3,072
Views
0
CrossRef citations to date
0
Altmetric
Review Article

Person-Centred Decision-Making in Mental Health: A Scoping Review

, RN, BN, MN, PhDORCID Icon, , RN, Bed, MSc, MPH, PhDORCID Icon, , RN, BN, GCEmergN, MPHTM, DrPH, GCHELTORCID Icon & , BN, Grad Cer Ter Teach, Grad Cer Mgt, MN Hons, PhDORCID Icon

References

  • Abate, A. W., Desalegn, W., Teshome, A. A., Chekol, A. T., & Aschale, M. (2023). Level of shared decision making and associated factors among patients with mental illness in Northwest Ethiopia: Explanatory sequential mixed method study. PLoS One, 18(4), e0283994. https://doi.org/10.1371/journal.pone.0283994
  • Alegria, M., Nakash, O., Johnson, K., Ault-Brutus, A., Carson, N., Fillbrunn, M., Wang, Y., Cheng, A., Harris, T., Polo, A., Lincoln, A., Freeman, E., Bostdorf, B., Rosenbaum, M., Epelbaum, C., LaRoche, M., Okpokwasili-Johnson, E., Carrasco, M., & Shrout, P. E. (2018). Effectiveness of the DECIDE interventions on shared decision making and perceived quality of care in behavioral health with multicultural patients a randomized clinical trial. JAMA Psychiatry, 75(4), 325–335. https://doi.org/10.1001/jamapsychiatry.2017.4585
  • Aoki, Y., Furuno, T., Watanabe, K., & Kayama, M. (2019). Psychiatric outpatients’ experiences with shared decision-making: A qualitative descriptive study. Journal of Communication in Healthcare, 12(2), 102–111. https://doi.org/10.1080/17538068.2019.1612212
  • Aoki, Y., Yaju, Y., Utsumi, T., Sanyaolu, L., Storm, M., Takaesu, Y., Watanabe, K., Watanabe, N., Duncan, E., & Edwards, A. G. (2022). Shared decision-making interventions for people with mental health conditions. The Cochrane Database of Systematic Reviews, 11(11), CD007297. https://doi.org/10.1002/14651858.CD007297.pub3
  • Ashoorian, D. M., & Davidson, R. M. (2021). Shared decision making for psychiatric medication management: A summary of its uptake, barriers and facilitators. International Journal of Clinical Pharmacy, 43(3), 759–763. https://doi.org/10.1007/s11096-021-01240-3
  • Braun, V. & Clarke, V. (2021). Thematic analysis: A practical guide. Sage Publications.
  • Burns, L., da Silva, A. L., & John, A. (2021). Shared decision-making preferences in mental health: Does age matter? A systematic review. Journal of Mental Health (Abingdon, England), 30(5), 634–645. https://doi.org/10.1080/09638237.2020.1793124
  • Campos, P. A., & Reich, M. R. (2019). Political analysis for health policy implementation. Health Systems and Reform, 5(3), 224–235. https://doi.org/10.1080/23288604.2019.1625251
  • Cusack, E., Killoury, F., & Nugent, L. E. (2017). The professional psychiatric/mental health nurse: Skills, competencies and supports required to adopt recovery-orientated policy in practice. Journal of Psychiatric and Mental Health Nursing, 24(2-3), 93–104. https://doi.org/10.1111/jpm.12347
  • Dahlqvist Jönsson, P., Schön, U. K., Rosenberg, D., Sandlund, M., & Svedberg, P. (2015). Service users’ experiences of participation in decision making in mental health services. Journal of Psychiatric and Mental Health Nursing, 22(9), 688–697. https://doi.org/10.1111/jpm.12246
  • Davidson, G., Kelly, B., Macdonald, G., Rizzo, M., Lombard, L., Abogunrin, O., Clift-Matthews, V., & Martin, A. (2015). Supported decision making: A review of the international literature. International Journal of Law and Psychiatry, 38, 61–67. https://doi.org/10.1016/j.ijlp.2015.01.008
  • Drake, R. E., Cimpean, D., & Torrey, W. C. (2009). Shared decision making in mental health: Prospects for personalized medicine. Dialogues in Clinical Neuroscience, 11(4), 455–463. https://doi.org/10.31887/DCNS.2009.11.4/redrake
  • Farrelly, S., Lester, H., Rose, D., Birchwood, M., Marshall, M., Waheed, W., Henderson, R. C., Szmukler, G., & Thornicroft, G. (2016). Barriers to shared decision making in mental health care: Qualitative study of the joint crisis plan for psychosis. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 19(2), 448–458. https://doi.org/10.1111/hex.12368
  • Giacco, D., Mavromara, L., Gamblen, J., Conneely, M., & Priebe, S. (2018). Shared decision-making with involuntary hospital patients: A qualitative study of barriers and facilitators. BJ Psych Open, 4(3), 113–118. https://doi.org/10.1192/bjo.2018.6
  • Gordon, S., Gardiner, T., Gledhill, K., Tamatea, A., & Newton-Howes, G. (2022). From substitute to supported decision making: Practitioner, community and service-user perspectives on privileging will and preferences in mental health care. International Journal of Environmental Research and Public Health, 19(10), 6002. https://doi.org/10.3390/ijerph19106002
  • Grim, K., Rosenberg, D., Svedberg, P., & Schön, U. K. (2016). Shared decision-making in mental health care-a user perspective on decisional needs in community-based services. International Journal of Qualitative Studies on Health and Well-Being, 11(1), 30563. https://doi.org/10.3402/qhw.v11.30563
  • Gurtner, C., Lohrmann, C., Schols, J. M. G. A., & Hahn, S. (2022). Shared decision making in the psychiatric inpatient setting: An ethnographic study about interprofessional psychiatric consultations. International Journal of Environmental Research and Public Health, 19(6), 3644. https://www.mdpi.com/1660-4601/19/6/3644 https://doi.org/10.3390/ijerph19063644
  • Hamann, J., Holzhüter, F., Blakaj, S., Becher, S., Haller, B., Landgrebe, M., Schmauß, M., & Heres, S. (2020). Implementing shared decision-making on acute psychiatric wards: A cluster-randomized trial with inpatients suffering from schizophrenia (SDM-PLUS). Epidemiology and Psychiatric Sciences, 29, e137, Article e137. https://doi.org/10.1017/S2045796020000505
  • Hamann, J., Kohl, S., McCabe, R., Bühner, M., Mendel, R., Albus, M., & Bernd, J. (2016). What can patients do to facilitate shared decision making? A qualitative study of patients with depression or schizophrenia and psychiatrists. Social Psychiatry and Psychiatric Epidemiology, 51(4), 617–625. https://doi.org/10.1007/s00127-015-1089-z
  • Harding, R., & Taşcıoğlu, E. (2018). Supported decision-making from theory to practice: Implementing the right to enjoy legal capacity. Societies, 8(2), 25. https://www.mdpi.com/2075-4698/8/2/25 https://doi.org/10.3390/soc8020025
  • Harris, B. A., & Panozzo, G. (2019). Therapeutic alliance, relationship building, and communication strategies-for the schizophrenia population: An integrative review. Archives of Psychiatric Nursing, 33(1), 104–111. https://doi.org/10.1016/j.apnu.2018.08.003
  • Haugom, E. W., Stensrud, B., Beston, G., Ruud, T., & Landheim, A. S. (2022). Experiences of shared decision making among patients with psychotic disorders in Norway: A qualitative study [Article]. BMC Psychiatry, 22(1):192. https://doi.org/10.1186/s12888-022-03849-8
  • Hines, A. L., Roter, D., Ghods Dinoso, B. K., Carson, K. A., Daumit, G. L., & Cooper, L. A. (2018). Informed and patient-centered decision-making in the primary care visits of African Americans with depression. Patient Education and Counseling, 101(2), 233–240. https://doi.org/10.1016/j.pec.2017.07.027
  • Hong, Q. N., Pluye, P., Fàbregues, S., Bartlett, G., Boardman, F., Cargo, M., Dagenais, P., Gagnon, M.-P., Griffiths, F., & Nicolau, B. (2018). Mixed methods appraisal tool (MMAT), version 2018. Registration of Copyright, 1148552(10)
  • Joanna Briggs Institute. (2022). Critical appraisal tools. Joanna Briggs Institute. https://jbi.global/critical-appraisal-tools
  • Kokanović, R., Brophy, L., McSherry, B., Flore, J., Moeller-Saxone, K., & Herrman, H. (2018). Supported decision-making from the perspectives of mental health service users, family members supporting them and mental health practitioners. The Australian and New Zealand Journal of Psychiatry, 52(9), 826–833. https://doi.org/10.1177/0004867418784177
  • Lovell, K., Bee, P., Brooks, H., Cahoon, P., Callaghan, P., Carter, L.-A., Cree, L., Davies, L., Drake, R., Fraser, C., Gibbons, C., Grundy, A., Hinsliff-Smith, K., Meade, O., Roberts, C., Rogers, A., Rushton, K., Sanders, C., Shields, G., Walker, L., & Bower, P. (2018). Embedding shared decision-making in the care of patients with severe and enduring mental health problems: The EQUIP pragmatic cluster randomised trial. PLoS One, 13(8), e0201533. https://doi.org/10.1371/journal.pone.0201533
  • Marshall, T., Stellick, C., Abba-Aji, A., Lewanczuk, R., Li, X. M., Olson, K., & Vohra, S. (2021). The impact of shared decision-making on the treatment of anxiety and depressive disorders: Systematic review [Review]. BJPsych Open, 7(6), e189. https://doi.org/10.1192/bjo.2021.1028
  • Matthias, M. S., Fukui, S., Kukla, M., Eliacin, J., Bonfils, K. A., Firmin, R. L., Oles, S. K., Adams, E. L., Collins, L. A., & Salyers, M. P. (2014). Consumer and relationship factors associated with shared decision making in mental health consultations. Psychiatric Services (Washington, D.C.), 65(12), 1488–1491. https://doi.org/10.1176/appi.ps.201300563
  • Matthias, M. S., Salyers, M. P., Rollins, A. L., & Frankel, R. M. (2012). Decision making in recovery-oriented mental health care [Article. Psychiatric Rehabilitation Journal, 35(4), 305–314. https://doi.org/10.2975/35.4.2012.305.314
  • Morán-Sánchez, I., Bernal-López, M. A., & Pérez-Cárceles, M. D. (2020). Compulsory admissions and preferences in decision-making in patients with psychotic and bipolar disorders. Social Psychiatry and Psychiatric Epidemiology, 55(5), 571–580. https://doi.org/10.1007/s00127-019-01809-4
  • Moyo, N., Jones, M., Kushemererwa, D., Arefadib, N., Jones, A., Pantha, S., & Gray, R. (2022). Service user and carer views and expectations of mental health nurses: A systematic review. International Journal of Environmental Research and Public Health, 19(17), 11001. https://doi.org/10.3390/ijerph191711001
  • Mundal, I., Lara-Cabrera, M. L., Betancort, M., & De las Cuevas, C. (2021). Exploring patterns in psychiatric outpatients’ preferences for involvement in decision-making: A latent class analysis approach. BMC Psychiatry, 21(1), 133. https://doi.org/10.1186/s12888-021-03137-x
  • Munjal, S. (2016). Don’t assume that psychiatric patients lack capacity to make decisions about care. Current Psychiatry, 15(4), e4–e6. https://www.scopus.com/inward/record.uri?eid=2-s2.0-84971574744&partnerID=40&md5=b7c2957b0f69c2f767044e93fae7eda4
  • Munn, Z., Peters, M. D. J., Stern, C., Tufanaru, C., McArthur, A., & Aromataris, E. (2018). Systematic review or scoping review? Guidance for authors when choosing between a systematic or scoping review approach. BMC Medical Research Methodology, 18(1), 143. https://doi.org/10.1186/s12874-018-0611-x
  • Myers, N., Sood, A., Fox, K. E., Wright, G., & Compton, M. T. (2019). Decision making about pathways through care for racially and ethnically diverse young adults with early psychosis. Psychiatric Services (Washington, D.C.), 70(3), 184–190. https://doi.org/10.1176/appi.ps.201700459
  • O’Callaghan, E., Mahrer, N., Belanger, H. G., Sullivan, S., Lee, C., Gupta, C. T., & Winsberg, M. (2022). Telehealth-Supported decision-making psychiatric care for suicidal ideation: Longitudinal observational study. JMIR Formative Research, 6(9), e37746. https://doi.org/10.2196/37746
  • O'Driscoll, W., Livingston, G., Lanceley, A., A’ Bháird, C. N., Xanthopoulou, P., Wallace, I., Manoharan, M., & Raine, R. (2014). Patient experience of MDT care and decision-making. Mental Health Review Journal, 19(4), 265–278. https://doi.org/10.1108/MHRJ-07-2014-0024
  • Park, S. G., Derman, M., Dixon, L. B., Brown, C. H., Klingaman, E. A., Fang, L. J., Medoff, D. R., & Kreyenbuhl, J. (2014). Factors associated with shared decision–making preferences among veterans with serious mental illness. Psychiatric Services (Washington, D.C.), 65(12), 1409–1413. https://doi.org/10.1176/appi.ps.201400131
  • Penzenstadler, L., Molodynski, A., & Khazaal, Y. (2020). Supported decision making for people with mental health disorders in clinical practice: A systematic review. International Journal of Psychiatry in Clinical Practice, 24(1), 3–9. https://doi.org/10.1080/13651501.2019.1676452
  • Ramon, S., Brooks, H., Rae, S., & O’Sullivan, M.-J. (2017). Key issues in the process of implementing shared decision making (DM) in mental health practice. Mental Health Review Journal, 22(3), 257–274. https://doi.org/10.1108/MHRJ-01-2017-0006
  • Sather, E. W., Iversen, V. C., Svindseth, M. F., Crawford, P., & Vasset, F. (2019). Patients’ perspectives on care pathways and informed shared decision making in the transition between psychiatric hospitalization and the community. Journal of Evaluation in Clinical Practice, 25(6), 1131–1141. https://doi.org/10.1111/jep.13206
  • Scholl, I., & Barr, P. J. (2017). Incorporating shared decision making in mental health care requires translating knowledge from implementation science. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 16(2), 160–161. https://doi.org/10.1002/wps.20418
  • Simmons, M. B., & Gooding, P. M. (2017). Spot the difference: Shared decision-making and supported decision-making in mental health. Irish Journal of Psychological Medicine, 34(4), 275–286. https://doi.org/10.1017/ipm.2017.59
  • Simmons, M., Hetrick, S., & Jorm, A. (2010). Shared decision-making: Benefits, barriers and current opportunities for application. Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists, 18(5), 394–397. https://doi.org/10.3109/10398562.2010.499944
  • Slade, M. (2017). Implementing shared decision making in routine mental health care. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 16(2), 146–153. https://doi.org/10.1002/wps.20412
  • Smith, C. A., Chang, E., Gallego, G., Khan, A., Armour, M., & Balneaves, L. G. (2019). An education intervention to improve decision making and health literacy among older Australians: A randomised controlled trial. BMC Geriatrics, 19(1), 129. https://doi.org/10.1186/s12877-019-1143-x
  • Tambuyzer, E., Pieters, G., & Van Audenhove, C. (2014). Patient involvement in mental health care: One size does not fit all. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 17(1), 138–150. https://doi.org/10.1111/j.1369-7625.2011.00743.x
  • The EndNote Team. (2013). EndNote. In (Version EndNote 20) [64-bit]. Clarivate.
  • Thomas, E. C., Suarez, J., Lucksted, A., Siminoff, L., Hurford, I., Dixon, L., O'Connell, M., & Salzer, M. (2022). Treatment decision-making needs among emerging adults with early psychosis [Article. Early Intervention in Psychiatry, 16(1), 78–90. https://doi.org/10.1111/eip.13134
  • Tonelli, M. R., & Sullivan, M. D. (2019). Person-centred shared decision making. Journal of Evaluation in Clinical Practice, 25(6), 1057–1062. https://doi.org/10.1111/jep.13260
  • Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., Hempel, S., Akl, E. A., Chang, C., McGowan, J., Stewart, L., Hartling, L., Aldcroft, A., Wilson, M. G., Garritty, C., … Straus, S. E. (2018). Prisma extension for scoping reviews (PRISMA-ScR): Checklist and explanation. Annals of Internal Medicine, 169(7), 467–473. https://doi.org/10.7326/m18-0850
  • Veritas Health Innovation. (2022). Covidence systematic review software. Veritas Health Innovation. www.covidence.org
  • Watson, J., Wilson, E., & Hagiliassis, N. (2017). Supporting end of life decision making: Case studies of relational closeness in supported decision making for people with severe or profound intellectual disability. Journal of Applied Research in Intellectual Disabilities: JARID, 30(6), 1022–1034. https://doi.org/10.1111/jar.12393
  • Whittemore, R., & Knafl, K. (2005). The integrative review: Updated methodology. Journal of Advanced Nursing, 52(5), 546–553. https://doi.org/10.1111/j.1365-2648.2005.03621.x
  • Wills, C. E., & Holmes-Rovner, M. (2006). Integrating decision making and mental health interventions research: research directions. Clinical Psychology: A Publication of the Division of Clinical Psychology of the American Psychological Association, 13(1), 9–25. https://doi.org/10.1111/j.1468-2850.2006.00002.x
  • World Health Organization. (2021). Comprehensive mental health action plan 2013–2030. WHO.
  • World Health Organization. (2022). World mental health report: Transforming mental health for all. WHO.
  • Younas, M., Bradley, E., Holmes, N., Sud, D., & Maidment, I. D. (2016). Mental health pharmacists views on shared decision-making for antipsychotics in serious mental illness. International Journal of Clinical Pharmacy, 38(5), 1191–1199. https://doi.org/10.1007/s11096-016-0352-z