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Research Article

Tilting at Windmills – A Qualitative Study about Family Caregiver Interactions and Perceptions in Forensic Mental Health Care

, PhD student, MScN, RNORCID Icon, , PhD, MScN, RN, , PhD, MScN, RN, , PhD, MEd & , PhD, MScN, RN

References

  • Ashcroft, K., Kim, E., Elefant, E., Benson, C., & Carter, J. A. (2018). Meta-analysis of family caregiver-directed psychosocial interventions for schizophrenia. Community Mental Health Journal, 54(7), 983–991. https://doi.org/10.1007/s10597-018-0289-x
  • Askola, R., Louheranta, O., Soininen, P., Putkonen, H., Åstedt-Kurki, P., & Paavilainen, E. (2017). The offense as perceived by the parents of forensic psychiatric patients. Issues in Mental Health Nursing, 38(9), 705–711. https://doi.org/10.1080/01612840.2017.1326993
  • Blumer, H. (1986). The methodological position of symbolic interactionism. In Symbolic interactionism. Perspective and method (pp. 1–60). University of California Press.
  • Boss, P. (2016). The context and process of theory development: The story of ambiguous loss. Journal of Family Theory & Review, 8(3), 269–286. https://doi.org/10.1111/jftr.12152
  • Cleary, M., West, S., Hunt, G. E., McLean, L., & Kornhaber, R. (2020). A qualitative systematic review of family caregivers’ experiences of caring for family diagnosed with schizophrenia. Issues in Mental Health Nursing, 41(8), 667–683. https://doi.org/10.1080/01612840.2019.1710012
  • de Tribolet-Hardy, F., & Habermeyer, E. (2016). Schizophrenic patients between general and forensic psychiatry. Frontiers in Public Health, 4, 135–135. https://doi.org/10.3389/fpubh.2016.00135
  • Dirik, A., Sandhu, S., Giacco, D., Barrett, K., Bennison, G., Collinson, S., & Priebe, S. (2017). Why involve families in acute mental healthcare? A collaborative conceptual review. BMJ Open, 7(9), e017680–e017680. https://doi.org/10.1136/bmjopen-2017-017680
  • Duclos, J., Piva, G., Riquin, É., Lalanne, C., Meilleur, D., Blondin, S., Cook-Darzens, S., & Godart, N., EVHAN Group. (2023). Correction: Family caregivers in anorexia nervosa: Is grief underlying parental burden? Eating and Weight Disorders: EWD, 28(1), 16. https://doi.org/10.1007/s40519-023-01564-1
  • Finlay-Carruthers, G., Davies, J., Ferguson, J., & Browne, K. (2018). Taking parents seriously: The experiences of parents with a son or daughter in adult medium secure forensic mental health care. International Journal of Mental Health Nursing, 27(5), 1535–1545. https://doi.org/10.1111/inm.12455
  • Fusch, P., & Ness, L. (2015). Are we there yet? Data saturation in qualitative research. The Qualitative Report, 20(9), 1408. https://doi.org/10.46743/2160-3715/2015.2281
  • Gatherer, C., Dickson-Lee, S., & Lowenstein, J. (2020). The forgotten families; a systematic literature review of family interventions within forensic mental health services. The Journal of Forensic Psychiatry & Psychology, 31(6), 823–836. https://doi.org/10.1080/14789949.2020.1799054
  • Gildberg, F. A., Bradley, S. K., Tingleff, E. B., & Hounsgaard, L. (2015). Empirically testing thematic analysis (ETTA) - Methodological implications in textual analysis coding system. Nordisk Sygeplejeforskning, 5(2), 193–207. https://doi.org/10.18261/ISSN1892-2686-2015-02-10
  • Gildberg, F. A., & Wilson, R. (2023). Scientific models for qualitative research: A textual thematic analysis coding system - Part 1. Nurse Res. 31, 30–35. https://doi.org/10.7748/nr.2023.e1860
  • Goffman, E. (1963). Stigma: Notes on the management of spoiled identity (Reprint ed.). Penguin Books.
  • Green, J., & Thorogood, N. (2018). Qualitative methods for health research (4th ed.). SAGE.
  • Grey, F. (2016). Benevolent othering: Speaking positively about mental health service users. Philosophy, Psychiatry & Psychology, 23(3–4), 241–251. https://doi.org/10.1353/ppp.2016.0025
  • Haselden, M., Corbeil, T., Tang, F., Olfson, M., Dixon, L. B., Essock, S. M., Wall, M. M., Radigan, M., Frimpong, E., Wang, R., Lamberti, S., Schneider, M., & Smith, T. E. (2019). Family involvement in psychiatric hospitalizations: Associations with discharge planning and prompt follow-up care. Psychiatric Services (Washington, DC), 70(10), 860–866. https://doi.org/10.1176/appi.ps.201900028
  • Hörberg, U., Benzein, E., Erlingsson, C., & Syrén, S. (2015). Engaging with families is a challenge: Beliefs among healthcare professionals in forensic psychiatric care. Nursing Research and Practice, 2015, 843717–843710. https://doi.org/10.1155/2015/843717
  • Jacob, J. D., Gagnon, M., Perron, A., & Canales, M. K. (2021). Revisiting the concept of othering: A structural analysis. ANS. Advances in Nursing Science, 44(4), 280–290. https://doi.org/10.1097/ans.0000000000000353
  • Järvinen, M., & Kessing, M. L. (2023). Self-casting and alter-casting: Healthcare professionals’ boundary work in response to peer workers. Current Sociology, 71(3), 414–431. https://doi.org/10.1177/00113921211048532
  • Javed, A., & Herrman, H. (2017). Involving patients, carers and families: An international perspective on emerging priorities. BJPsych International, 14(1), 1–4. https://doi.org/10.1192/S2056474000001550
  • Johnson, J. L., Bottorff, J. L., Browne, A. J., Grewal, S., Hilton, B. A., & Clarke, H. (2004). Othering and being othered in the context of health care services. Health Communication, 16(2), 255–271. https://doi.org/10.1207/S15327027HC1602_7
  • Liu, Z., Heffernan, C., & Tan, J. (2020). Family caregiver burden: A concept analysis. International Journal of Nursing Sciences, 7(4), 438–445. https://doi.org/10.1016/j.ijnss.2020.07.012
  • Livingston, J. D., Crocker, A. G., Nicholls, T. L., & Seto, M. C. (2016). Forensic mental health tribunals: A qualitative study of participants’ experiences and views. Psychology, Public Policy, and Law, 22(2), 173–184. https://doi.org/10.1037/law0000084
  • Mik-Meyer, N. (2016). Othering, ableism and disability: A discursive analysis of co-workers’ construction of colleagues with visible impairments. Human Relations (New York,), 69(6), 1341–1363. https://doi.org/10.1177/0018726715618454
  • Møllerhøj, J. (2022). “What if you listened to and involved the family caregivers?” – Experiences and needs amongst family caregivers involved with mentally disordered offenders and mental health services. The European Journal of Psychiatry, 36(3), 191–199. https://doi.org/10.1016/j.ejpsy.2022.01.006
  • National Institute for Health and Care Excellence. (2020). Supporting adult carers. www.nice.org.uk/guidance/ng150
  • Northern Nurses’ Federation. (2003). Ethical guidelines for nursing research in the Nordic countries. ttps://ssn-norden.dk/wp-content/uploads/2020/05/ssns_etiske_retningslinjer_0-003.pdf
  • Paradis-Gagné, E., Holmes, D., & Jacob, J. D. (2020). Caring for a violent relative with severe mental illness: A qualitative study. Journal of Research in Nursing: JRN, 25(8), 664–676. https://doi.org/10.1177/1744987120937409
  • Paradis-Gagné, E., Holmes, D., & Perron, A. (2020). Experiences of family violence committed by relatives with severe mental illness: A grounded theory. Journal of Forensic Nursing, 16(2), 108–117. https://doi.org/10.1097/JFN.0000000000000272
  • Pedersen, A. L. W., Gildberg, F. A., Hjorth, P., Højlund, M., & Andersen, K. (2022). Hospitalisation time is associated with weight gain in forensic mental health patients with schizophrenia or bipolar disorder. Nordic Journal of Psychiatry, 77(1), 46–54. https://doi.org/10.1080/08039488.2022.2053202
  • Pedersen, A. L. W., Lindekilde, C. R., Andersen, K., Hjorth, P., & Gildberg, F. A. (2021). Health behaviours of forensic mental health service users, in relation to smoking, alcohol consumption, dietary behaviours and physical activity—A mixed methods systematic review. Journal of Psychiatric and Mental Health Nursing, 28(3), 444–461. https://doi.org/10.1111/jpm.12688
  • Richardson, M., Cobham, V., Murray, J., & McDermott, B. (2011). Parents’ grief in the context of adult child mental illness: A qualitative review. Clinical Child and Family Psychology Review, 14(1), 28–43. https://doi.org/10.1007/s10567-010-0075-y
  • Robinson, L., Haskayne, D., & Larkin, M. (2017). How do carers view their relationship with forensic mental health services? Journal of Forensic Psychology Research and Practice, 17(4), 232–248. https://doi.org/10.1080/24732850.2017.1326804
  • Rowaert, S., De Pau, M., De Meyer, F., Nicaise, P., Vander Laenen, F., & Vanderplasschen, W. (2022). Voices to be heard: Understanding family perspectives in forensic care trajectories. Frontiers in Psychiatry, 13, 1022490–1022490. https://doi.org/10.3389/fpsyt.2022.1022490
  • Rowaert, S., Vandevelde, S., Lemmens, G., & Audenaert, K. (2017). How family members of mentally ill offenders experience the internment measure and (forensic) psychiatric treatment in Belgium: A qualitative study. International Journal of Law and Psychiatry, 54, 76–82. https://doi.org/10.1016/j.ijlp.2017.05.003
  • Rowaert, S., Vandevelde, S., Lemmens, G., Vanderplasschen, W., Vander Beken, T., Vander Laenen, F., & Audenaert, K. (2016). The role and experiences of family members during the rehabilitation of mentally ill offenders. International Journal of Rehabilitation Research. Internationale Zeitschrift Fur Rehabilitationsforschung. Revue Internationale De Recherches De Readaptation, 39(1), 11–19. https://doi.org/10.1097/MRR.0000000000000152
  • Sampson, S., Foster, S., Majid, S., & Völlm, B. (2019). Carers of long-stay patients’ perspectives of secure forensic care: An exploratory qualitative study. International Journal of Forensic Mental Health, 18(4), 305–315. https://doi.org/10.1080/14999013.2018.1552635
  • Spradley, J. P. (1979). The ethnographic interview. Wadsworth Cengage Learning.
  • Svendsen, M. L., Ellegaard, T., Jeppesen, K. A., Riiskjær, E., & Nielsen, B. K. (2021). Family involvement and patient-experienced improvement and satisfaction with care: A nationwide cross-sectional study in Danish psychiatric hospitals. BMC Psychiatry, 21(1), 190–190. https://doi.org/10.1186/s12888-021-03179-1
  • The Danish Institute for Human Rights. (2019). The Danish Institute for Human Rights. Forensic Psychiatry. In a human rights perspective. https://www.humanrights.dk/publications/forensic-psychiatry-human-rights-perspective
  • The International Council of Nurses. (2022). Nursing definitions. https://www.icn.ch/nursing-policy/nursing-definitions
  • Tingleff, E. B., Hounsgaard, L., Bradley, S. K., Wilson, R. L., & Gildberg, F. A. (2019). A matter of trust and distrust: A qualitative investigation of parents’ perceptions about the use of mechanical restraint on their adult children in a forensic psychiatric setting. Journal of Forensic Nursing, 15(2), 120–130. https://doi.org/10.1097/JFN.0000000000000237
  • Tingleff, E. B., Rowaert, S., Vinding, S., Vestphal, T. K., Wilson, R., & Gildberg, F. A. (2022). “It’s still our child”. A qualitative interview study with parent carers in forensic mental health. Archives of Psychiatric Nursing, 41, 124–131. https://doi.org/10.1016/j.apnu.2022.07.017
  • Vestphal, T. K., Gildberg, F. A., Jørgensen, R., Rowaert, S., & Tingleff, E. B. (2023). Experiences of family family caregivers in forensic mental health care-A qualitative evidence synthesis. Journal of Psychiatric and Mental Health Nursing, 30(4), 663–678. https://doi.org/10.1111/jpm.12910
  • Voltelen, B., Konradsen, H., & Østergaard, B. (2018). Ethical considerations when conducting joint interviews with close relatives or family: An integrative review. Scandinavian Journal of Caring Sciences, 32(2), 515–526. https://doi.org/10.1111/scs.12535
  • World Medical Association. (2018). WMA declaration of Helsinki - Ethical principles for medical research involving human subjects. https://www.wma.net/policies-post/wma-declaration-of-helsinki-ethical-principles-for-medical-research-involving-human-subjects/.

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