References
- Vermeulen N, De Bie B, Dunselman G. Information for women with endometriosis: patient version of the ESHRE guideline on management of women with endometriosis. Belgium: European Society of Human Reproduction and Embryology; 2014.
- Zondervan KT, Becker CM, Koga K, et al. Endometriosis. Nat Rev Dis Primers. 2018;4(1):9.
- Laganà AS, Vitale SG, Salmeri FM, et al. Unus pro omnibus, omnes pro uno: a novel, evidence-based, unifying theory for the pathogenesis of endometriosis. Med Hypoth. 2017;103:10–20.
- Leyland N, Casper R, Laberge P, et al. Endometriosis diagnosis and management: SOGC clinical practice guideline. J Obstet Gynaecol Can. 2010;32(7 Suppl 2):S1–S32.
- Koch J, Rowan K, Rombauts L, et al. Endometriosis and infertility–a consensus statement from Australasian CREI Consensus Expert Panel on Trial evidence (ACCEPT). Aust N Z J Obstet Gynaecol. 2012;52(6):513–522.
- National Institute for Health and Care Excellence. Endometriosis: diagnosis and management. London: National Institute for Health and Care Excellence; 2017.
- De Graaff AA, D'Hooghe TM, Dunselman GA, et al. The significant effect of endometriosis on physical, mental and social wellbeing: results from an international cross-sectional survey. Hum Reprod. 2013;28(10):2677–2685.
- Nnoaham KE, Hummelshoj L, Webster P, et al. Impact of endometriosis on quality of life and work productivity: a multicenter study across ten countries. Fertil Steril. 2011;96(2):366–373.e8.
- Moradi M, Parker M, Sneddon A, et al. Impact of endometriosis on women's lives: a qualitative study. BMC Womens Health. 2014;14(article 123):123.
- Vitale SG, La Rosa VL, Rapisarda AMC, et al. Endometriosis and infertility: the impact on quality of life and mental health. J Endometr Pelvic Pain Disord. 2017;9(2):112–115.
- La Rosa VL, De Franciscis P, Barra F, et al. Quality of life in women with endometriosis: a narrative overview. Minerva Med. 2020a;111(1):68–78.
- La Rosa VL, De Franciscis P, Barra F, et al. Sexuality in women with endometriosis: a critical narrative review. Minerva Med. 2020b;111(1):79–89.
- Dunselman GAJ, Vermeulen N, Becker C, et al. ESHRE guideline: management of women with endometriosis. Hum Reprod. 2014;29(3):400–412.
- Johnson NP, Hummelshoj L. Hum Reprod. 2013;28(6):1552–1568.
- Department of Health. National action plan for endometriosis. Canberra: Australian Government; 2018 [cited 2018 Dec 14]. Available from: http://www.health.gov.au/internet/main/publishing.nsf/Content/endometriosis.
- Lorig KR, Sobel DS, Ritter PL, et al. Effect of a self-management program on patients with chronic disease. Eff Clin Pract. 2001;4(6):256–262.
- Stanford Patient Education Research Center. Chronic disease self-management program questionnaire code book. California: Stanford University; 2007 [cited 2018 Dec 14]. Available from: http://patienteducation.stanford.edu/research/
- Qualtrics. Qualtrics. Utah: Qualtrics; 2018.
- Australian Bureau of Statistics. Australian Statistical Geography Standard (ASGS): Volume 5 - Remoteness Structure, July 2011. Canberra: Australian Bureau of Statistics; 2013a [cited 2018 Nov 24]. Available from: http://www.abs.gov.au/AUSSTATS/[email protected]/allprimarymainfeatures/17A7 A350F48DE42ACA258251000C8CA0?opendocument.
- Australian Bureau of Statistics. Australian Health Survey: Users' Guide, 2011-13 Canberra: Australian Bureau of Statistics; 2013b [cited 2018 Dec 12]. Available from: http://www.abs.gov.au/AUSSTATS/abs.
- Hudelist G, Fritzer N, Thomas A, et al. Diagnostic delay for endometriosis in Austria and Germany: causes and possible consequences. Hum Reprod. 2012;27(12):3412–3416.
- Han XT, Guo HY, Kong DL, et al. Analysis of characteristics and influence factors of diagnostic delay of endometriosis. Zhonghua Fu Chan Ke Za Zhi. 2018;53(2):92–98.
- Ballard K, Lowton K, Wright J. What's the delay? A qualitative study of women's experiences of reaching a diagnosis of endometriosis. Fertil Steril. 2006;86(5):1296–1301.
- Culley L, Law C, Hudson N, et al. The social and psychological impact of endometriosis on women's lives: a critical narrative review. Hum Reprod Update. 2013;19(6):625–639.
- Denny E. I never know from one day to another how I will feel: pain and uncertainty in women with endometriosis. Qual Health Res. 2009;19(7):985–995.
- Young K, Fisher J, Kirkman M. Women's experiences of endometriosis: a systematic review and synthesis of qualitative research. J Fam Plann Reprod Health Care. 2015;41(3):225–234.
- Moen MH. Endometriosis, an everlasting challenge. Acta Obstet Gynecol Scand. 2017;96:783–786. DOI:10.1111/aogs.13148
- Bush D, Brick E, East MC, et al. Endometriosis education in schools: a New Zealand model examining the impact of an education program in schools on early recognition of symptoms suggesting endometriosis. Aust N Z J Obstet Gynaecol. 2017; 57(4):452–457.
- Pelvic Pain Foundation of Australia. PPEP talk results so far; 2020 [cited 2020 Jul 26]. Available from: https://www.pelvicpain.org.au/schools-ppep-program/.
- Committee on adolescent health care. Committee opinion no. 651 summary: menstruation in girls and adolescents: using the menstrual cycle as a vital sign. Obstetr Gynecol. 2015;126(6):1328.
- Bandura A, O'Leary A, Taylor CB, et al. Perceived self-efficacy and pain control: opioid and nonopioid mechanisms. J Pers Soc Psychol. 1987;53(3):563–571.
- O’Hara R, Rowe H, Roufeil L, et al. Should endometriosis be managed within a chronic disease framework? An analysis of national policy documents. Aust Health Rev. 2018;42(6):627–634.
- Department of Health. Chronic disease management: provider information Canberra: Australian Government - Department of Health; 2014 [cited 2019 Feb 24]. Available from: http://www.health.gov.au/internet/main/publishing.nsf/Content/mbsprimarycare-chronicdiseasemanagement.
- Tourangeau R, Yan T. Sensitive questions in surveys. Psychol Bull. 2007;133(5):859–883.
- Australian Longitudinal Study of Women's Health. Data Book seventh survey of the 1973-1978 cohort 2015 2016; [cited 2019 Feb 24]. Available from: https://alswh.org.au/images/content/pdf/Surveys_and_Databooks/Databooks/Young_7databook.pdf.