Parental Experience of Home Adaptation for Children with Motor Disabilities

REFERENCES

• Allard H. Développement et validation de contenu de la version pédiatrique de “l'Évaluation à domicile de l'interaction personne-environnement (ÉDIPE).”. Université de Montréal, QuébecCanada 2006, Unpublished mémoire de maîtrise
   Google Scholar
• Baum L. S. Internet parent support groups for primary caregivers of a child with special health care needs. Pediatric Nursing 2004; 30(5)381–390
   PubMedGoogle Scholar
• Brett J. The journey to accepting support: How parents of profoundly disabled children experience support in their lives. Pediatric Nursing 2004; 16(8)14–18
   Google Scholar
• Carignan M. Élaboration d'un instrument d'évaluation de la relation personne-environnement pour la clientèle ayant des incapacités visuelles. Université de Montréal, QuébecCanada 2007, Unpublished mémoire de maîtrise
   Google Scholar
• Creswell J. W. Research design: Qualitative, quantitative, and mixed methods approaches. Sage, Thousand Oaks, CA 2003
   Google Scholar
• Duger T., Yilmaz O., Aki E., Kayihan H., Karaduman A. The environmental barriers of children with muscular dystrophy and its effect on mother's low back pain. Disability and Rehabilitation 2003; 25: 1187–1192
   PubMed Web of Science ®Google Scholar
• Eker L., Tuzun E. H. An evaluation of quality of life of mothers of children with cerebral palsy. Disability and Rehabilitation 2004; 23: 1354–1359
   Web of Science ®Google Scholar
• Johnson C. P., Kastner T. A. Helping families raise children with special health care needs at home. Paediatrics 2005; 115: 507–511
   PubMed Web of Science ®Google Scholar
• Krueger R. A. Focus groups: A practical guide for applied research, 2nd ed. Sage, Thousand Oaks, CA 1994
   Google Scholar
• Kuhlthau K., Hill K., Yucel R., Perrin J. M. Financial burden for families of children with special health care needs. Maternal and Child Health Journal 2005; 9(2)207–218
   PubMed Web of Science ®Google Scholar
• Larson E. A. The orchestration of occupation: The dance of mothers. American Journal of Occupational Therapy 2000; 54(3)269–280
   PubMed Web of Science ®Google Scholar
• McGibbon Lammi B., Law M. The effects of Family-Centred Functional Therapy on the occupational performance of children with cerebral palsy. Canadian Journal of Occupational Therapy 2003; 70: 285–297
   PubMedGoogle Scholar
• Mihaylov S., Jarvis S. N., Colver A. F., Beresford B. Identification and description of environmental factors that influence participation of children with cerebral palsy. Developmental Medicine and Child Neurology 2004; 46(5)299–304
   PubMed Web of Science ®Google Scholar
• Miles M. B., Huberman A. M. Qualitative data analysis: An expanded sourcebook, 2nd ed. Sage, Thousand Oaks, CA 1994
   Google Scholar
• O'Brien M. Living in a house of cards: Family experiences with long-term childhood technology dependence. Journal of Pediatric Nursing 2001; 16: 13–22
   PubMedGoogle Scholar
• Ostenjo S., Carlberg E. B., Vollestad N. K. Everyday functioning in young children with cerebral palsy: Functional skills, caregiver assistance, and modifications of the environment. Developmental Medicine & Child Neurology 2003; 45: 603–612
   PubMed Web of Science ®Google Scholar
• Palisano R. J., Tieman B. L., Walter S. D., Bartlett D. J., Rosenbaum P. L., Russell, et al. Effect of environmental setting on mobility methods of children with cerebral palsy. Developmental Medicine & Child Neurology 2003; 45(2)113–120
   PubMed Web of Science ®Google Scholar
• QSR International. QSR N'VIVO: New generation software for qualitative data analysis. Author, Victoria, Australia 2002
   Google Scholar
• Rousseau J. Élaboration d'un instrument de mesure de la situation de handicap en milieu de vie naturel pour l'adulte présentant des incapacités motrices (Tomes 1 et 2). Université de Montréal, QuébecCanada 1997, Unpublished thèse de doctorat
   Google Scholar
• Rousseau J., Allard H., Carignan M., Ska B., St-Arnaud A., Gresset J., et al. Analysing person–environment interaction at home: A battery of tests. Canadian Journal of Occupational Therapy—Conference Program Supplement 2007; 74(1)40
   Google Scholar
• Rousseau J., Potvin L., Dutil É., Falta P. Model of competence: a conceptual framework for understanding the person–environment interaction for persons with motor disabilities. Occupational Therapy in Health Care 2002; 16: 15–36
   PubMedGoogle Scholar
• Rousseau J., Potvin L., Dutil É., Falta P., Bourget A. Home adaptation: validation process of a new assessment tool [abstract]. Paper presented at the 13th World Congress of Occupational Therapists—Action for health in a new Millennium, StockholmSweden, June 23–28, 2002, Retrieved on March 24, 2005, from the Congress CD-ROM
   Google Scholar
• Seltzer M. M., Greenberg J. S., Floyd F. J., Pettee Y., Hong J. Life course impacts of parenting a child with a disability. American Journal of Mental Retardation 2001; 106(3)265–286
   PubMedGoogle Scholar
• Skar L. Peer and adult relationship of adolescent with disabilities. Journal of Adolescence 2003; 26: 635–649
   PubMed Web of Science ®Google Scholar
• Statistics Canada. A profile of disability in Canada, 2001. 2002; 24, Minister of Industry. Published in Ottawa, ON
   Google Scholar
• Strauss A., Corbin J. Basics of qualitative research: Techniques and procedures for developing grounded theory. Sage, Thousand Oaks, CA 1998
   Google Scholar
• Stewart D. W., Shamdasani P. N. Focus groups: Theory and practice. Sage, Newbury Park, CA 1990
   Google Scholar
• Van der Maren J. M. Recherche appliquée en pédagogie, 2nd éd. De Boeck, Paris 2003
   Google Scholar
• Webb C. L. Parents' perspectives on coping with Duchenne muscular dystrophy. Child: Care, Health & Development 2005; 31: 385–396
   PubMed Web of Science ®Google Scholar
• Yin R. K. Designing case studies. Case study research: Design and methods, 3rd ed. Sage, Thousand Oaks, CA 2003; 19–56
   Google Scholar