905
Views
9
CrossRef citations to date
0
Altmetric
Original Research

Learning Experiences and Strategies of Parents of Young Children with Developmental Disabilities: Implications for Rehabilitation Professionals

&
Pages 471-484 | Received 24 Apr 2016, Accepted 08 Jan 2017, Published online: 15 Mar 2017

References

  • Anderson, L., & Krathwohl, D. (2001). A taxonomy for learning, teaching, and assessing: A revision of Bloom's taxonomy of education objectives. New York, NY: Addison Wesley Longman.
  • Armstrong, J. (2008). The benefits and challenges of interdisciplinary, client-centered, goal setting in rehabilitation. New Zealand Journal of Occupational Therapy, 55(1), 20–25.
  • Barton, E., & Fetting, A. (2013). Parent-implemented interventions for young children with disabilities: A review of fidelity features. Journal of Early Intervention, 35(2), 194–219.
  • Bodner-Johnson, B. (2001). Parents as adult-learners in family-centred early education. American Annals of the Deaf, 146(3), 263–269.
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
  • Brewer, K., Pollock, N., & Wright, V. (2014). Addressing the challenges of collaborative goal setting with children's and their families. Physical & Occupational Therapy in Pediatrics, 34(2), 138–152.
  • Cambray-Engstrom, E., & Salisbury, C. (2010). An exploratory case study of providers' collaborative consultation practices with Latina mothers during home visits. Infants and Young Children, 23(4), 262–274.
  • Campbell, F., Goldman, B., Boccia, M., & Skinner, M. (2004). The effect of format modifications and reading comprehension on recall of informed consent information by low-income parents: A comparison of print, video, and computer-based presentation. Patient Education and Counseling, 53, 205–216.
  • Carpenter, C., & Suto, M. (2008). Qualitative research for occupation and physical therapist: A practical guide. Oxford,UK: Blackwell.
  • Champion, P. (2002). Infant/maternal interactive social/emotional learning where the infant has a disability or is at risk for a disability. Infants and Young Children, 12(3), 10–16.
  • Cheuk, D., Wong, S., Choi, Y., & Cheung, Y. (2004). Parents' understanding of their child's congenital heart disease. Heart, 90, 435–439.
  • Colyvas, J., Sawyer, L., & Campbell, P. (2010). Identifying strategies early intervention occupational therapists use to teach caregivers. American Journal of Occupational Therapy, 64(5), 776–785.
  • Cunningham, C., Deal, K., Rimas, H., Buchanan, D. H., Gold, M., Sdao-Jarvie, K., & Boyle, M. (2008). Modeling the information preferences of parents of children with mental health problems: A discrete choice conjoint experiment. Journal of Abnormal Child Psychology, 36(7), 1123–1138.
  • Darrah, J., Wiart, L., Magill-Evans, J., Ray, L., & Andersen, J. (2010). Are family-centered principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy? Child: Care, Health and Development, 38(1), 41–47.
  • Dunst, C., & Hamby, D. (2015). Research synthesis of studies for promoting parent and practitioner use of assistive technology with young children with disabilities. Advances in Special Education Technology, 1, 51–78.
  • Dunst, C., & Trivette, C. (2012). Moderators of the effectiveness of adult learning method practices. Journal of Social Sciences, 8(2), 143–148.
  • Farquharson, A. (1995). Teaching in practice: How professionals can work effectively with clients, patients and colleagues (289 pp). San Francisco, CA: Jossey-Bass.
  • Green, J., Charman, T., McConachie, H., Aldred, C., Slonims, V., Howlin, P., & Pickles, A. (2010). Parent mediated communication focused treatment in children with autism (PACT): A randomized controlled trial. Lancet, 375(9732), 2152–2160.
  • Harrison, C., Romer, T, Simon, M., & Schultze, C. (2007). Factors influencing mother's learning from pediatric therapists: A qualitative study. Physical and Occupational Therapy, 27(2), 77–96.
  • Hsieh, H. H., Wilder, D. A., & Abellon, O. E. (2011). The effects of training on caregiver implementation of incidental teaching. Journal of Applied Behavior Analysis, 44(1), 199–203.
  • Hummelinck, A., & Polluck, K. (2006). Parents' information needs about the treatment of their chronically ill child: A qualitative study. Patient Education and Counseling, 63, 228–234.
  • Hurtubise, K., & Carpenter, C. (2011). Parents' experiences in role negotiation with an infant services program. Infants and Young Children, 24(1), 75–86.
  • Ingersoll, B., & Dvortcsak, A. (2006). Including parent training in the early childhood special education curriculum for children with autism spectrum disorders. Journal of Positive Behaviour Interventions, 8(2), 79–87.
  • Ingersoll, B., & Wainer, A. (2013). Initial efficacy of project ImPACT: A parent mediated social communication intervention for young children with ASD. Journal of Autism and Developmental Disordersi 43(12), 2943–2952.
  • Jackson, R., Baird, W., Davis-Reynold, L., Smith, C., Blackburn, S., & Allsebrook, J. (2007). Qualitative analysis of parents' information needs and psychosocial experiences when supporting children with health care needs. Health Information and Libraries Journal, 25, 31–37.
  • Jeglinsky, I., Salminen, A., BrogenCarlberg, A., & Autti-Ramo, I. (2012). Rehabilitation planning for children and adolescents with cerebral palsy. Journal of Pediatric Rehabilitation Medicine, 5, 203–215.
  • Kepreotes, E., Keating, D., & Stone, T. (2011). The experience of parenting children with chronic health conditions: The new reality. The Journal of Nursing and Healthcare of Chronic Illness: An International Journal, 2(1), 51–62.
  • King, G. (2004). The meaning of life experiences: Application of a meta-model to rehabilitation sciences and services. American Journal of Orthpsychiatry, 74(1), 72–88.
  • Klein, D., & Chen, D. (2008). Home visiting practices in early intervention with infants with disabilities: An exploratory study. Early Childhood Services, 2, 207–224.
  • Knowles, M., Holton, E., & Swanson, R. (2005). The adult learner: The definitive classic in adult education and human resource development (6th ed.). London: Elsevier Butterworth-Heinemann.
  • Krathwohl, D. (2002). A revision of Bloom's Taxonomy: An overview. Theory into Practice, 41(4), 212–218.
  • Krau, S. (2011). Creating education objectives for patient education using the new Bloom's Taxonomy. Nursing Clinical of North America, 46(3), 299–312.
  • Matson, M., Mahan, S., & Matson, J. (2009). Parent training: A review of methods for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3, 868–875.
  • McDuffie, A., Machalicek, W., Oakes, A., Haebig, E., Weismer, S. E., & Abbeduto, L. (2013). Distance video teleconferencing in early intervention: Pilot study of a naturalistic parent implemented language intervention. Topics in Early Childhood Special Education, 33(3), 172–185.
  • Mitchell, W., & Sloper, P. (2002). Information that informs rather than alienates families with disabled children: Developing a model of good practice. Health and Social Care in the Community, 10(2), 74–81.
  • Oien, I., Fallang, B., & Ostensjo, S. (2009). Goal setting in pediatric rehabilitation: Perceptions of parents and professionals. Child: Care, Health and Development, 36(4), 558–565.
  • Peterander, F. (2000). The best quality cooperation between parents and experts in early childhood intervention. Infant and Young Children, 12(2), 32–35.
  • Peterson, C., Luze, G., Eshbaugh, E, Jeon, H., & Kantz, K. (2007). Enhancing parent-child interactions through home visiting: Promise practice or unfulfilled promise. Journal of Early Intervention, 29, 119–140.
  • Playford, E., Siegert, R., Levack, W., & Freeman, J. (2009). Areas of consensus and controversy about goal setting in rehabilitation: A conference report. Clinical Rehabilitation, 23, 334–344.
  • Sciberras, E., Lyer, S., Efron, D., & Green, J. (2010). Information needs of parents of children with attention deficit/hyperactivity disorder. Clinical Pediatrics, 49, 150–157.
  • Sharry, R., McKenna, K., & Tooth, L. (2002). Occupational therapists' use and perception of written client education material. The American Journal of Occupational Therapy, 56(5), 573–576.
  • Tonge, B., Brereton, A., Kiomall, M., Mackinnon, A., & Rinehart, N. J. (2014). A randomized group comparison controlled trial of “preschoolers with autism”: A parent education and skills training intervention for young children with autistic disorder. Autism: The International Journal of Research and Practice, 18(2), 166–177.
  • Wainer, A., & Ingersoll, B. (2013). Disseminating ASD Interventions: A pilot study of a distance learning program for parents and professionals. Journal of Autism and Developmental Disorders, 43(1), 11–24.
  • Waisman, Y., Siegal, N., Chemo, M., Siegal, G., Amir, L., Blachar, Y., & Mimouni, M. (2003). Do parents understand emergency department discharge instructions? A survey analysis. The Israel Medical Association Journal: IMAJ, 5, 567–570.
  • Wetherby, A. M., Guthrie, W., Woods, J., Schatschneider, C., Holland, R. D., Morgan, L., & Lord, C. (2014). Parent-implemented social intervention for toddlers with autism: An RCT. Pediatrics, 134(6), 1084–1093.
  • Wiart, L., Ray, L., Darrah, J., & Magill-Evans, J. (2010). Parents' perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disability and Rehabilitation, 32(3), 248–258.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.