822
Views
2
CrossRef citations to date
0
Altmetric
Articles

Content Validity of the Parentship Protocol: A Multidimensional Intervention for Parents of Adolescents with High-Functioning Autism Spectrum Disorder

, &
Pages 373-387 | Received 10 Jan 2018, Accepted 05 Jul 2018, Published online: 06 Sep 2018

References

  • American Occupational Therapy Association (AOTA). (2014). Occupational therapy practice framework Domain and process (3rd ed.). American Journal of Occupational Therapy, 68(Suppl. 1), S1. doi:10.5014/ajot.2014.68006
  • Baker-Ericzn, M. J., Brookman-Frazee, L., & Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30(4), 194–204. doi:10.2511/rpsd.30.4.194
  • Baldwin, P., King, G., Evans, J., McDougall, S., Tucker, M. A., & Servais, M. (2013). Solution-focused coaching in pediatric rehabilitation: An integrated model for practice. Physical & Occupational Therapy in Pediatrics, 33(4), 467–483.
  • Bekhet, A. K., Johnson, N. L., & Zauszniewski, J. A. (2012). Resilience in family members of persons with autism spectrum disorder: A review of the literature. Issues in Mental Health Nursing, 33(10), 650–656.
  • Bryman, A. (2015). Social research methods. Oxford: Oxford University Press.
  • Byers, E. S., Nichols, S., & Voyer, S. D. (2013). Challenging stereotypes: Sexual functioning of single adults with high functioning autism spectrum disorder. Journal of Autism and Developmental Disorders, 43 (11), 2617–2627.
  • Chen, S. F., Chien, Y. L., Wu, C. T., Shang, C. Y., Wu, Y. Y., & Gau, S. S. (2016). Deficits in executive functions among youths with autism spectrum disorders: An age-stratified analysis. Psychological Medicine, 46(08), 1625–1638.
  • Clauss-Ehlers, C. S., Yang, Y. T. T., & Chen, W. C. J. (2006). Resilience from childhood stressors: The role of cultural resilience, ethnic identity, and gender identity. Journal of Infant, Child, and Adolescent Psychotherapy, 5(1), 124–138.
  • Cridland, E. K., Jones, S. C., Caputi, P., & Magee, C. A. (2014). Being a girl in a boys’ world: Investigating the experiences of girls with autism spectrum disorders during adolescence. Journal of Autism and Developmental Disorders, 44(6), 1261–1274.
  • Deci, E. L., & Ryan, R. M. (1985). Intrinsic motivation and self-determination in human behavior. New York, NY: Plenum Press.
  • DeGrace, B. W. (2004). The everyday occupation of families with children with autism. American Journal of Occupational Therapy, 58(5), 543–550. doi:10.5014/ajot.58.5.543
  • de Schipper, E., Lundequist, A., Coghill, D., de Vries, P. J., Granlund, M., Holtmann, M., … Bölte, S. (2015). Ability and disability in autism spectrum disorder: A systematic literature review employing the international classification of functioning, disability and health‐children and youth version. Autism Research, 8(6), 782–794.
  • Dewinter, J., Vermeiren, R., Vanwesenbeeck, I., Lobbestael, J., & Van Nieuwenhuizen, C. (2015). Sexuality in adolescent boys with autism spectrum disorder: Self-reported behaviours and attitudes. Journal of Autism and Developmental Disorders, 45(3), 731–741.
  • Dewinter, J., Vermeiren, R. R. J. M., Vanwesenbeeck, I., & Van Nieuwenhuizen, C. (2016). Parental awareness of sexual experience in adolescent boys with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(2), 713–719.
  • Dunn, W. (2007a). Ecology of human performance model. In S. B. Dunbar (Ed.), Occupational therapy models for intervention with children and families (pp. 127–156). Thorofare, NJ: SLACK Incorporated.
  • Dunn, W. (2007b). Living sensationally: Understanding your senses. Philadelphia, PA: Jessica Kingsley Publishers.
  • Dunn, W., Cox, J., Foster, L., Mische-Lawson, L., & Tanquary, J. (2012). Impact of a contextual intervention on child participation and parent competence among children with autism spectrum disorders: A pretest-posttest repeated-measures design. American Journal of Occupational Therapy, 66(5), 520–528. doi:10.5014/ajot.2012.004119
  • First, J., Cheak-Zamora, N. C., & Teti, M. (2016). A qualitative study of stress and coping when transitioning to adulthood with autism spectrum disorder. Journal of Family Social Work, 19(3), 220–236.
  • Graham, F., & Rodger, S. (2010). Occupational performance coaching: Enabling parents’ and children’s occupational performance. In S. Rodger (Ed.), Occupation-centred practice with children (pp. 203–226). Oxford, UK: Wiley-Blackwell.
  • Graham, F., Rodger, S., & Ziviani, J. (2015). Coaching caregivers to enable children’s participation: Whose goals are they anyway? In J. Ziviani, A. A. Poulsen, & M. Cuskelly (Eds.), Goal setting and motivation in therapy: Engaging children and parents (pp. 100–112). London, UK: Jessica Kingsley.
  • Hellemans, H., Colson, K., Verbraeken, C., Vermeiren, R., & Deboutte, D. (2007). Sexual behavior in high-functioning male adolescents and young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(2), 260–269.
  • Hodgetts, S., & Park, E. (2017). Preparing for the future: A review of tools and strategies to support autonomous goal setting for children and youth with autism spectrum disorders. Disability and Rehabilitation, 39(6), 535–543.
  • Kielhofner, G. (Ed.). (2008). Model of human occupation: Theory and application. Baltimore, MD: Lippincott Williams & Wilkins.
  • Krakovich, T. M., McGrew, J. H., Yu, Y., & Ruble, L. A. (2016). Stress in parents of children with autism spectrum disorder: An exploration of demands and resources. Journal of Autism and Developmental Disorders, 46, 2042–2053. doi:10.1007/s10803-016-2728-2
  • Krueger, R. A., & Casey, M. A. (2002). Designing and conducting focus group interviews. Social Analysis, Selected Tools and Techniques, 4(23), 4–24.
  • Law, M., & Dunbar, S. B. (2007). Person–environment–occupation model. In S. Dunba (Ed.), Occupational therapy models for intervention with children and families (pp. 27–50). Thorofare, NJ: SLACK Inc.
  • Lee, L. C., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38(6), 1147–1160. doi:10.1007/s10803-007-0491-0
  • Leno, V. C., Charman, T., Pickles, A., Jones, C. R., Baird, G., Happé, F., & Simonoff, E. (2015). Callous–unemotional traits in adolescents with autism spectrum disorder. British Journal of Psychiatry, 207, 392–399.
  • Little, L. M., Pope, E., Wallisch, A., & Dunn, W. (2018). Occupation-based coaching by means of telehealth for families of young children with autism spectrum disorder. American Journal of Occupational Therapy, 72(2), 7202205020p1–7202205020p1. doi:10.5014/ajot.2018.024786
  • Lu, Y. Y. F., & Haase, J. E. (2011). Content validity and acceptability of the daily enhancement of meaningful activity program intervention for mild cognitive impairment patient-spouse dyads. Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses, 43(6), 317.
  • Mazor-Karsenty, T., Wachspress, B., & Maeir, A. (2017). Parentship—Partnering with parents of adolescents with high functioning autism spectrum disorder in a multi-dimensional intervention. (Treatment Manual). Jerusalem, IL: School of Occupational Therapy, Faculty of Medicine, Hadassah and Hebrew University.
  • McCollum, M., LaVesser, P., & Berg, C. (2016). Participation in daily activities of young adults with high functioning autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(3), 987–997.
  • Miller, L. J., Anzalone, M. E., Lane, S. J., Cermak, S. A., & Osten, E. T. (2007). Concept evolution in sensory integration: A proposed nosology for diagnosis. American Journal of Occupational Therapy, 61(2), 135–140. doi:10.5014/ajot.61.2.135
  • Myles, B. S., Dunn, W., Rinner, L., Hagiwara, T., Reese, M., Huggins, A., & Becker, S. (2004). Sensory issues in children with Asperger syndrome and autism. Education and Training in Developmental Disabilities, 283, 290.
  • Polatajko, H. J., Townsend, E. A., & Craik, J. (2007). Canadian model of occupational performance and engagement (CMOP-E). In E. A. Townsend & H. J. Polatajko (Eds.), Enabling occupation II: Advancing an occupational therapy vision of health, well-being & justice through occupation (pp. 22–36). Ottawa, ON: CAOT Publications ACE.
  • Rennekamp, R. A., & Nall, M. A. (2000). Using focus groups in program development and evaluation. UK Cooperative service, University of Kentucky, College of Agriculture: A Practical Guide for Applied research. Retrieved from http://citeseerx.ist.psu.edu/viewdoc/download? doi=10.1.1.506.277&rep=rep1&type=pdf.
  • Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centred service: A conceptual framework and research review. Physical & Occupational Therapy in Pediatrics, 18(1), 1–20.
  • Rush, D. D., & Shelden, M. L. (2011). The early childhood coaching handbook. Baltimore, MD: Paul H. Brookes.
  • Ryan, R. M., & Deci, E. L. (2017). Self-determination theory: Basic psychological needs in motivation, development, and wellness. New York, NY: Guilford Publications.
  • Siman-Tov, A., & Kaniel, S. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41(7), 879–890.
  • Simpson, D. (2015). Coaching as a family-centred, occupational therapy intervention for autism: A literature review. Journal of Occupational Therapy, Schools, & Early Intervention, 8(2), 109–125.
  • Taylor, R. R. (2008). The intentional relationship: Outpatient therapy and use of self. Philadelphia, PA: F.A. Davis.
  • Taylor, R. R., Fan, C. W., Popova, E., & Wong, S. (2014a). Clinical assessment of modes—Client (CAM-C). Chicago, IL: University of Illinois at Chicago.
  • Taylor, R. R., Fan, C. W., Popova, E., & Wong, S. (2014b). Clinical Assessment of Modes—Provider (CAM-P). Chicago, IL: University of Illinois at Chicago.
  • Tse, J., Strulovitch, J., Tagalakis, V., Meng, L., & Fombonne, E. (2007). Social skills training for adolescents with Asperger syndrome and high-functioning autism. Journal of Autism and Developmental Disorders, 37(10), 1960–1968. doi:10.1007/s10803-006-0343-3
  • Van Breda, A. D. (2001). Resilience theory: A literature review. Pretoria, South Africa: South African Military Health Service.
  • Winter, S. M., Classen, S., Bédard, M., Lutz, B. J., Velozo, C. A., Lanford, D. N., & Brumback, B. A. (2011). Focus group findings for the self-report Safe Driving Behaviour Measure. Canadian Journal of Occupational Therapy, 78(2), 72–79.
  • World Health Organization. (2007). International classification of functioning, disability, and health: Children & youth version: ICF-CY. Geneva: World Health Organization.
  • Wu, C. C., & Chiang, C. H. (2014). The developmental sequence of social-communicative skills in young children with autism: A longitudinal study. Autism: International Journal of Research and Practice, 18(4), 385–392.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.