References
- ALLEA (All European Academies). 2018. “Loss of Trust? Loss of Trustworthiness? Truth and Expertise Today.” ALLEA Discussion Paper # 1 (May).
- Andorno, R., F. Baylis, M. Darnovsky, D. Dickenson, H. Haker, K. Hasson, L. Lowthorp, et al. 2020. “Geneva Statement on Heritable Human Genome Editing: The Need for Course Correction.” Trends in Biotechnology 38: 351–354. doi:https://doi.org/10.1016/j.tibtech.2019.12.022.
- Baylis, F. 2019. Altered Inheritance: CRISPR and the Ethics of Human Genome Editing. Cambridge, MA: Harvard University Press.
- Borry, P, HB Bentzen, I Budin-Ljøsne, MC Cornel, HC Howard, O Feeney, L Jackson, et al. 2018. “The Challenges of the Expanded Availability of Genomic Information: An Agenda-setting Paper.” Journal of Community Genetics 9: 103–116. doi:https://doi.org/10.1007/s12687-017-0331-7.
- Cavaliere, G., K. Devolder, and A. Giubilini. 2019. “Regulating Genome Editing: For an Enlightened Democratic Governance.” Cambridge Quarterly of Healthcare Ethics 28 (1): 76–88. doi:https://doi.org/10.1017/S0963180118000403.
- Cyranoski, D, and H. Ledford. 2018. “Genome-edited Baby Claim Provokes International Outcry.” Nature 26: 2018.
- Donnelly, S., Ó Coimín, D. O’Donnell, D. Ní Shé, É. Davies, C. Christophers, L. McDonald, and T. Kroll. 2021. “Assisted Decision-making and Interprofessional Collaboration in the Care of Older People: A Qualitative Study Exploring Perceptions of Barriers and Facilitators in the Acute Hospital Setting.” Journal of Interprofessional Care 15: 1–11. doi:https://doi.org/10.1080/13561820.2020.1863342.
- Feeney, O., P. Borry, H. Felzmann, L. Galvagni, A. Haukkala, S. Nordal, V. Rakić, B. Riso, S. Sterckx, and D. Vears. 2018. “Genuine Participation in Participant-centred Research Initiatives: The Rhetoric and the Potential Reality.” Journal of Community Genetics 9: 133–142. doi:https://doi.org/10.1007/s12687-017-0342-4.
- Fitzpatrick, M. 2006. “The Cutter Incident: How America’s First Polio Vaccine Led to a Growing Vaccine Crisis.” Journal of the Royal Society of Medicine 99 (3): 156. doi:https://doi.org/10.1177/014107680609900320.
- Germani, F, and N Biller-Andorno. 2021. “The Anti-vaccination Infodemic on Social Media: A Behavioral Analysis.” PLoS ONE 16 (3): e0247642. doi:https://doi.org/10.1371/journal.pone.0247642.
- Gracia, D. 2003. “Ethical Case Deliberation and Decision Making.” Medicine, Health Care, and Philosophy 6: 227–233. doi:https://doi.org/10.1023/A:1025969701538.
- Gutmann, A, and D Thompson. 2002. “Deliberative Democracy beyond Process.” The Journal of Political Philosophy 10 (2): 153–174. doi:https://doi.org/10.1111/1467-9760.00147.
- Kassirer, S., E.E. Levine, and C. Gaertig. 2020. “Decisional Autonomy Undermines Advisees’ Judgments of Experts in Medicine and in Life.” Proceedings of the National Academy of Sciences 117 (21, May): 11368–11378. doi:https://doi.org/10.1073/pnas.1910572117.
- Keller, T. R., and U. Klinger. 2019. ”Social bots in election campaigns: theoretical, empirical, and methodological implications.” Political Communication, 36(1):171–189.
- Kraetschmer, N., N. Sharpe, S. Urowitz, and R. B. Deber. 2004. “How Does Trust Affect Patient Preferences for Participation in Decision-making?” Health Expectations: An International Journal of Public Participation in Health Care and Health Policy 7 (4): 317–326. doi:https://doi.org/10.1111/j.1369-7625.2004.00296.x.
- Mak, YY, G Elwyn, and IG Finlay. 2003. “Patients’ Voices are Needed in Debates on Euthanasia.” BMJ 327 (7408): 213–215. doi:https://doi.org/10.1136/bmj.327.7408.213.
- Oliver, D. 2019. “Vaccination Sceptics are Immune to Debate.” BMJ 365: l2244. doi:https://doi.org/10.1136/bmj.l2244.
- Richards T, Montori V M, Godlee F, Lapsley P, and D. Paul. 2013. ”Let the patient revolution begin”. BMJ 346:f2614 doi:https://doi.org/10.1136/bmj.f2614
- Williamson, L., and H. Glaab. 2018. “Addressing Vaccine Hesitancy Requires an Ethically Consistent Health Strategy.” BMC Medical Ethics 19: 84. doi:https://doi.org/10.1186/s12910-018-0322-1.