Through children's eyes: children's experience of living with a parent with an acquired brain injury

References

• BROOICS, D. N.: The head injured family. Journal of Clinical and Experimental Neuropsychology, 13: 155–188, 1991.
   Google Scholar
• KREUTZER, J. S., GERVASIO. A. H. and CAMPLAIR, P. S.: Primary caregivers' psychological status and family functioning after traumatic brain injury. Brain Injury, 8: 197–210, 1994.
   Google Scholar
• LEZAK, M. D.: Living with characterologically altered brain injured patient. The Journal of Clinical Psychiatry, 39: 592–598, 1978.
   PubMed Web of Science ®Google Scholar
• LEZAK, M. D.: Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychology, 10: 111–123, 1988.
   PubMed Web of Science ®Google Scholar
• LINN, R. T., ALLEN, K. and WILLER, B. S.: Affective symptoms in the chronic stage of traumatic brain injury: a study of married couples. Brain Injury, 8: 135–147, 1994.
   PubMed Web of Science ®Google Scholar
• FLORIAN, V. and KATZ, S.: The other victims of traumatic brain injury: consequences for family members. Neuropsychology, 5: 267–279, 1991.
   Google Scholar
• PERLESZ, A. J., KINSELLA, G. and CROWE, S.: Impact of traumatic brain injury on the family: a critical review. Rehabilitation Psychology, 44: 6–35, 1999.
   Web of Science ®Google Scholar
• MILLER, W. G.: The neuropsychology of head injuries. In: D. Wedding, A. M. Horton Jr. and J. Webster (editors) The Neuropsychology Handbook: Behavioural and Clinical Perspectives (New York: Springer), pp. 347–375, 1986.
   Google Scholar
• URBACH, J. R. and CULBERT, J. P.: Head injured parents and their children: psychological consequences of a traumatic syndrome. Pyschosomatics, 32: 24–33, 1991.
   PubMed Web of Science ®Google Scholar
• URBACH, J. R., SONENICLAR, N. A. and CULBERT, J. P.: Risk factors and assessment in children of brain-injured parents. Journal of Neuropsychiatry, 6: 289–295, 1994.
   PubMed Web of Science ®Google Scholar
• HANSELL, A. G.: The Effects on Children of a Father's Severe Closed Head Injury (Ann Arbor, MI: University of Michigan), 1990.
   Google Scholar
• PESSAR, L. F., COAD, M., LINN, R. T. et al.: The effects of parental traumatic brain injury on the behaviour of parents and children. Brain Injury, 7: 231–240, 1993.
   PubMed Web of Science ®Google Scholar
• PERLESZ, A. J., KINSELLA, G. and CROWE, S.: Psychological distress and family satisfaction follow-ing traumatic brain injury: injured individuals and their primary, secondary and tertiary carers. Journal of Head Trauma Rehabilitation, 15: 909–929, 2000.
   PubMed Web of Science ®Google Scholar
• ANTHONY, J. E.: A clinical evaluation of children with psychotic parents. American Journal of Psychiatry, 126: 63–70, 1969.
   Google Scholar
• ANTHONY, J. E.: The impact of mental and physical illness on family life. American Journal of Psychiatry, 127: 57–64. 1970.
   Google Scholar
• BEARDSLEE, W. R. and PODOREFSKY, M. A.: Resilient adolescents whose parents have serious affective and other psychiatric disorders: importance of self-understanding and relationships. American Journal of Psychiatry, 145: 63–69, 1988.
   PubMed Web of Science ®Google Scholar
• FRIEDMANN, M. L. and TUBERGEN, P.: Multiple sclerosis and the family. Archives of Psychiatry Nursing, 1: 47–54, 1987.
   PubMedGoogle Scholar
• GARLEY, D., GALLOP, R., JOHNSTO N. et al.: Children of the mentally ill: a qualitative focus group approach. Journal of Psychiatric and Mental Health Nursing, 4: 97–103, 1997.
   PubMedGoogle Scholar
• KELLER, M., BEARSDALEE, W., DORER, D. et al.: Impact of severity and chronicity of parental affective illness on adaptive functioning and psychopathology in children. Archives of General Psychiatry, 43: 930–937, 1986.
   PubMed Web of Science ®Google Scholar
• WARNER, V., WEISSMAN, M. M., FENDRICH, M. et al.: The course of major depression in the offspring of depressed parents. Incidence, recurrence, and recovery. Archives of General Psychiatry, 49: 795–801, 1992.
   Google Scholar
• GERSHON, E. S.: Genetics of the major psychoses. In: S. S. Kety, L. P. Rowland, R. L. Sidman et al. (editors) Genetics of Neurological and Psychiatric Disorders (New York: Ravem), pp. 121–144, 1983.
   Google Scholar
• GOTTESMAN I. I. and SHIELDS, J.: Schizophrenia: the Epigenetic Puzzle (New York: Cambridge University Press), 1982.
   Google Scholar
• WEISSMAN, M. M., PRUSOFF, B., GAMMON, C. D. et al.: Psychopathology in the children (ages 6–18) of depressed and normal parents. Journal of the American Academy of Child Psychiatry, 23: 78–84, 1984.
   Google Scholar
• WEISMAN, M. M., GAMMON, C. D., JOHN, K. et al.: Children of depressed parents: increased psychopathology and early onset of major depression. Archives of General Psychiatry, 44: 847–853, 1987.
   PubMedGoogle Scholar
• CHILAND, C.: Some paradoxes connected with risk and vulnerability. In: E. J. Anthony and C. Koupemik (editors) The Child in his Family: Children at Psychiatric Risk (New York: Wiley), pp. 23–31, 1974.
   Google Scholar
• WINNICOTT, D. W.: The effects of psychotic parents on the emotional development of the child. In: H. L. Morrison (editor) Children of Depressed Parents. Risk, Identification and Intervention (New York: Grune & Stratton), pp. 37, 1983.
   Google Scholar
• PERRY, B. D., POLLARD, R. A., BLACLEY, T. L. et al.: Childhood trauma, the neurobiology of adaptation, and 'use-development' of the brain: How 'states' become 'traits'. Infant Mental Health Journal, 16: 271–287, 1995.
   Web of Science ®Google Scholar
• PERRY, B. D.: Incubated in terror: neurodevelopmental factors in the 'cycle of violence'. In: J. Osofsky (editor) Children, Youth and Violence: The Search for Solutions (New York: Guilford Press), pp. 124–148, 1997.
   Google Scholar
• ETH, S. and PYNOOS, R. S.: Developmental perspective on psychic trauma in childhood. In: C. R. Figley (editor) Trauma And Its Wake (New York: Brunner/Mazel), pp. 36–52, 1985.
   Google Scholar
• MOFFITT, E. T. and CASPI. A.: Annotation: implications of violence between intimate partners for child psychologists and psychiatrists. Journal of Child Psychology and Psychiatry, 39: 137–144, 1998.
   Google Scholar
• TER, L. C.: Childhood traumas: an outline and overview. American Journal of Psychiatry, 148: 10–20, 1991.
   PubMedGoogle Scholar
• WiDow, C. S.: Post-traumatic stress disorder in abused and neglected children grown up. American Journal of Psychiatry, 156: 1223–1229, 1999.
   PubMedGoogle Scholar
• SCHWARZ, E. D. and PERRY, B. D.: The post-traumatic response in children and adolescents. Psychiatric Clinics of North America, 17: 311–327, 1994.
   PubMed Web of Science ®Google Scholar
• HADDAD, P., and GARRALDA, M.: Hyperkinetic syndrome and disruptive early experiences. British Journal of Psychiatry, 161: 700–703, 1992.
   PubMedGoogle Scholar
• PERLESZ, A. J., FURLONG, M. and MCLACHLAN, D.: Family-centred rehabilitation: family therapy for the head injured and their relatives. In: R. Harris, R. Burns and R. Rees (editors) Recovery from Brain Injury: Expectations, Needs and Processes (Adelaide: Institute for the Study of Learning Difficulties), pp. 180–191, 1989.
   Google Scholar
• TESTANI-DUFOUR, L., CHAPPEL-AITICEN, L. and GUELDNER, S.: Traumatic brain injury: a family experience. Journal of Neuroscience and Nursing, 24: 317–323, 1992.
   PubMedGoogle Scholar
• Boss, P.: Ambiguous loss. In: F. Walsh and M. McGoldrick (editors) Living Beyond Loss (New York: Norton), 1991.
   Google Scholar
• GRIFFITHS, K.: A Guide to Understanding Head Injury (Melbourne: Australian Academic Press), 1997.
   Google Scholar
• ANTHONY, J. E. and COHLER, B. J. (editors) The Invulnerable Child (New York: Guilford Press), 1987.
   Google Scholar
• KAUFFMAN, C., GRUNEBAUM, H., COHLER, B. et al.: Superkids: competent children of psychotic mothers. American Journal of Psychiatry, 136: 1398–1402, 1979.
   PubMed Web of Science ®Google Scholar
• RUTTER, M.: Resilience in the face of adversity: protective factors and resistance to psychiatric disorder. British Journal of Psychiatry, 147: 598–611, 1985.
   PubMed Web of Science ®Google Scholar
• GAR/vIEZY, N.: Stress, competence and development: continuities in the study of schizophrenic adults, children vulnerable to psychopathology, and the search for stress-resistant children. American Journal of Orthopsychiatry, 57: 159–174, 1987.
   PubMedGoogle Scholar
• HAGGERTY, R. J., SHERROD, L. R., GAR/vIEZY, N. et al.: Stress, Risk, and Resilience in Children and Adolescents: Processes, Mechanisms, and Interventions (Cambridge: Cambridge University Press), 1996.
   Google Scholar
• WERNER, E. E. and SMITH, R. S.: Vulnerable But Invincible: A Study of Resilient Children (New York: McGraw-Hill), 1982.
   Google Scholar
• CUFF, R. and PIETSCH, J.: Peer Support For Children Of Parents With Mental Illness (Melbourne: The Mental Health Research Institute), 1997.
   Google Scholar
• DUNN, B.: Growing up with a psychotic mother: a retrospective. American Journal of Orthopsychiatry, 63: 177–189, 1993.
   PubMed Web of Science ®Google Scholar
• MOON, S. M., DILLON, D. R. and SPRENICLE, D. H.: Family therapy and qualitative research. Journal of Marital and Family Therapy, 16: 187–192, 1990.
   Google Scholar
• Boss, P., DAHL, C. and KAPLAN, L.: The use of phenomenology for family therapy research: the search for meaning. In: D. H. Sprenkle and S. M. Moon (editors) Research Methods in Family Therapy (New York: Guilford Press), pp. 83–106, 1996.
   Google Scholar
• REYNOLDS, C. R. and KAMPHAUS, R. W.: Behaviour Assessment System for Children (BASC) manual (Circle Pines, MN: American Guidance Service, Inc), 1992.
   Google Scholar
• MINICHIELLO, V., ARON', R., TIMEWELL. E. et al.: In-depth Interviewing. (Melbourne: Longman), 1995.
   Google Scholar
• FLANAGAN, R.: A review of the Behaviour Assessment System for Children (BASC): assessment consistent with the requirements of the Individuals with Disabilities Education Act (IDEA).Journal of School Psychology, 33: 177–186, 1995.
   Web of Science ®Google Scholar
• PERLESZ, A: Complex responses to trauma: challenges in bearing witness. The Australian and New Zealand Journal of Family Therapy, 20: 11–19, 1999.
   Google Scholar
• RYCROFT, P. and PERLESZ, A.: Speaking the unspeakable: reclaiming grief and loss in family life. The Australian and New Zealand Journal of Family Therapy, 22: 57–65, 2001.
   Google Scholar
• MONAHON, C.: Children and Trauma; A Guide for Parents and Professionals (Jossey Bass Publishers, San Francisco, USA: Lexington Books), 1993.
   Google Scholar
• ROLLAND, J. S.: Parental illness and disability: a family systems framework. Journal of Family Therapy, 21: 239–241, 1999.
   Google Scholar
• DALE, B. and ALTSCHULER, J.: 'In sickness and in health': the development of alternative discourses in work with families with parental illness. Journal of Family Therapy, 21: 239–241, 1999.
   Google Scholar
• BROOKS, D. N.: Closed Head-Injury: Psychological, Social and Family Consequences (Oxford: Oxford University Press), 1984.
   Google Scholar
• KOZLOFF, R.: Networks of social supports and the outcome of severe head-injury. Journal of Head Trauma Rehabilitation, 2: 14–23, 1987.
   Google Scholar
• PANTING, A. and MERRY, P. H.: The long-term rehabilitation of severe head injuries with particular reference to the need for social and medical support for the patient's family. Rehabilitation, 38: 33–37, 1972.
   Google Scholar
• WILLIAMS. J. M.: Family reaction to head injury. In: J. M. Williams and T. Kay (editors) Head Injury: a Family Matter (Baltimore: Paul H. Brookes Publishing Co), pp. 81–99, 1991.
   Google Scholar
• FELSMAN, J. K. and VAILLANT, G. E.: Resilient children as adults: a forty-year study. In: J. E. Anthony and B. J. Cohler (editors) The Invulnerable Child (New York: Guilford Press), pp. 289–314, 1987.
   Google Scholar
• LEZAK, M. D.: Psychological implications of traumatic brain damage for the patient's family. Rehabilitation Psychology, 31: 241–250, 1986.
   Web of Science ®Google Scholar
• LUTHAR, S. and ZIGLER, E.: Vulnerability and competence: a review of research on resilience in childhood. American Journal of Orthopsychiatry, 8: 6–22, 1991.
   Google Scholar