Caregiver burden in familial caregivers and foreign domestic workers of patients with traumatic brain injury in a multi-ethnic Asian population

References

• Bayen E, Pradat-Diehl P, Jourdan C, Ghout I, Bosserelle V, Azerad S, Weiss JJ, Joël ME, Aegerter P, Azouvi P, et al. Predictors of informal care burden 1 year after a severe traumatic brain injury: results from the PariS-TBI study. J Head Trauma Rehabil. 2013;28:408–18.
   PubMed Web of Science ®Google Scholar
• Phelan SM, Griffin JM, Hellerstedt WL, Sayer NA, Jensen AC, Burgess DJ, van Ryn M. Perceived stigma, strain, and mental health among caregivers of veterans with traumatic brain injury. Disabil Health J. 2011;4:177–84. doi:10.1016/j.dhjo.2011.03.003.
   PubMed Web of Science ®Google Scholar
• Yap LKP, Seow CCD, Henderson LM, Goh YNJ. Family caregivers and caregiving in dementia. Rev Clin Gerontol. 2005;15:263–71. doi:10.1017/S0959259806001900.
   Google Scholar
• Mehta KK. Stress among family caregivers of older persons in Singapore. J Cross Cult Gerontol. 2005;20:319–34. doi:10.1007/s10823-006-9009-z.
   PubMedGoogle Scholar
• Tam WJ, Koh GC, Legido-Quigley H, Ha NHL, Yap PLK. “I can’t do this alone”: a study on foreign domestic workers providing long-term care for frail seniors at home. Int Psychogeriatr. 2018;30:1269–77. doi:10.1017/S1041610217002459.
   PubMed Web of Science ®Google Scholar
• Basnyat I, Chang L. Examining live-in foreign domestic helpers as a coping resource for family caregivers of people with dementia in Singapore. Health Commun. 2017;32:1171–79. doi:10.1080/10410236.2016.1220346.
   PubMed Web of Science ®Google Scholar
• Ministry of Manpower, Foreign workforce numbers. Singapore: Singapore Government Agency; 2019 Sep 24 [accessed 2019 Nov 27]. https://www.mom.gov.sg/documents-and-publications/foreign-workforce-numbers.
   Google Scholar
• Ha NHL, Chong MS, Choo RWM, Tam WJ, Yap PLK. Caregiving burden in foreign domestic workers caring for frail older adults in Singapore. Int Psychogeriatr. 2018;30:1139–47. doi:10.1017/S1041610218000200.
   PubMed Web of Science ®Google Scholar
• Heng JL, Fan E, Chan EY. Caregiving experiences, coping strategies and needs of foreign domestic workers caring for older people. J Clin Nurs. 2019;28:458–68. doi:10.1111/jocn.14619.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Marwitz JH, Sima AP, Godwin EE. Efficacy of the brain injury family intervention: impact on family members. J Head Trauma Rehabil. 2015;30:249–60. doi:10.1097/HTR.0000000000000144.
   PubMed Web of Science ®Google Scholar
• Mbakile-Mahlanza L, Manderson L, Downing M, Ponsford J. Family caregiving of individuals with traumatic brain injury in Botswana. Disabil Rehabil. 2017;39:559–67. doi:10.3109/09638288.2016.1152605.
   PubMed Web of Science ®Google Scholar
• Mazlan M, Ghani SZ, Tan KF, Subramanian P. Life satisfaction and strain among informal caregivers of patients with traumatic brain injury in Malaysia. Disabil Rehabil. 2016;5:1–8. doi:10.3109/09638288.2015.1123307.
   Web of Science ®Google Scholar
• Stevens LF, Arango-Lasprilla JC, Deng X, Schaaf KW, De Los Reyes Aragón CJ, Quijano MC, Kreutzer J. Factors associated with depression and burden in Spanish speaking caregivers of individuals with traumatic brain injury. NeuroRehabilitation. 2012;31:443–52. doi:10.3233/NRE-2012-00815.
   PubMed Web of Science ®Google Scholar
• Corrigan JD, Selassie AW, Orman JA.The epidemiology of traumatic brain injury [published correction appears in J Head Trauma Rehabil. 2010 May-Jun;25(3):224]. J Head Trauma Rehabil. 2010;25(2):72–80. doi:10.1097/HTR.0b013e3181ccc8b4.
   PubMed Web of Science ®Google Scholar
• Weir J, Steyerberg EW, Butcher I, Lu J, Lingsma HF, McHugh GS, Roozenbeek B, Maas AI, Murray GD. Does the extended Glasgow outcome scale add value to the conventional Glasgow outcome scale? J Neurotrauma. 2012;29:53–58. doi:10.1089/neu.2011.2137.
   PubMed Web of Science ®Google Scholar
• Collin C, Wade DT, Davies S, Horne V. The Barthel ADL index: a reliability study. Int Disabil Stud. 1988;10:61–63. doi:10.3109/09638288809164103.
   PubMedGoogle Scholar
• Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649–55. doi:10.1093/geront/20.6.649.
   PubMed Web of Science ®Google Scholar
• Jackson D, Turner-Stokes L, Murray J, Leese M, McPherson KM. Acquired brain injury and dementia: a comparison of carer experiences. Brain Inj. 2009;23:433–44. doi:10.1080/02699050902788451.
   PubMed Web of Science ®Google Scholar
• Kaufer DI, Cummings JL, Ketchel P, Smith V, MacMillan A, Shelley T, Lopez OL, DeKosky ST. Validation of the NPI-Q, a brief clinical form of the neuropsychiatric inventory. J Neuropsychiatry Clin Neurosci. 2000;12:233–39. doi:10.1176/jnp.12.2.233.
   PubMed Web of Science ®Google Scholar
• Kroenke K, Spitzer RL, Williams JBW. The PHQ-9: validity of a brief depression severity measure. J Gen Intern Med. 2001;16:606–13. doi:10.1046/j.1525-1497.2001.016009606.x.
   PubMed Web of Science ®Google Scholar
• Manea L, Gilbody S, McMillan D. Optimal cut-off score for diagnosing depression with the patient health questionnaire (PHQ-9): a meta-analysis. CMAJ. 2012;184:E191–6. doi:10.1503/cmaj.110829.
   PubMed Web of Science ®Google Scholar
• Spitzer RL, Kroenke K, Williams JB, Lowe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med. 2006;166:1092–97. doi:10.1001/archinte.166.10.1092.
   PubMed Web of Science ®Google Scholar
• Schalet BD, Cook KF, Choi SW, Cella D. Establishing a common metric for self-reported anxiety: linking the MASQ, PANAS, and GAD-7 to PROMIS anxiety. J Anxiety Disord. 2014;28:88–96. doi:10.1016/j.janxdis.2013.11.006.
   PubMed Web of Science ®Google Scholar
• Lehan T, Arango-Lasprilla JC, Jos C. The ties that bind: the relationship between caregiver burden and the neuropsychological functioning of TBI survivors. NeuroRehabilitation. 2012;30:87–95. doi:10.3233/NRE-2011-0730.
   PubMed Web of Science ®Google Scholar
• Manskow US, Friborg O, Røe C, Braine M, Damsgard E, Anke A. Patterns of change and stability in caregiver burden and life satisfaction from 1 to 2 years after severe traumatic brain injury: A Norwegian longitudinal study. NeuroRehabilitation. 2017;40:211–22. doi:10.3233/NRE-161406.
   PubMed Web of Science ®Google Scholar
• Marsh NV, Kersel DA, Havill JA, Sleigh JW. Caregiver burden during the year following severe traumatic brain injury. J Clin Exp Neuropsychol. 2002;24:434–47. doi:10.1076/jcen.24.4.434.1030.
   PubMed Web of Science ®Google Scholar
• Schepers VP, Ketelaar M, Visser-Meily JM, Dekker J, Lindeman E. Responsiveness of functional health status measures frequently used in stroke research. Disabil Rehabil. 2006;28:1035–40. doi:10.1080/09638280500494694.
   PubMed Web of Science ®Google Scholar
• Bayen E, Jourdan C, Ghout I, Darnoux E, Azerad S, Vallat-Azouvi C, Weiss JJ, Aegerter P, Pradat-Diehl P, Joël ME, et al. Subjective burden of informal caregivers 4 years after a severe traumatic brain injury: results from the PariS-TBI study. J Head Trauma Rehabil. 2016;31:E59–67. doi:10.1097/HTR.0000000000000079.
   PubMed Web of Science ®Google Scholar
• Liu S, Li C, Shi Z, Wang X, Zhou Y, Liu S, Liu J, Yu T, Ji Y. Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer’s disease caregivers in China. J Clin Nurs. 2017;26:1291–300. doi:10.1111/jocn.13601.
   PubMed Web of Science ®Google Scholar
• Davis LC, Sander AM, Struchen MA, Sherer M, Nakase-Richardson R, Malec JF. Medical and psychosocial predictors of caregiver distress and perceived burden following traumatic brain injury. J Head Trauma Rehabil. 2009;24:145–54. doi:10.1097/HTR.0b013e3181a0b291.
   PubMed Web of Science ®Google Scholar
• Kratz AL, Sander AM, Brickell TA, Lange RT, Carlozzi NE. Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychol Rehabil. 2017;27:16–37. doi:10.1080/09602011.2015.1051056.
   PubMed Web of Science ®Google Scholar
• Coy AE, Perrin PB, Stevens LF, Hubbard R, Díaz Sosa DM, Espinosa Jove IG, Arango-Lasprilla JC. Moderated mediation path analysis of Mexican traumatic brain injury patient social functioning, family functioning, and caregiver mental health. Arch Phys Med Rehabil. 2013;94:362–68. doi:10.1016/j.apmr.2012.08.210.
   PubMed Web of Science ®Google Scholar
• Van Bortel T, Martin S, Anjara S, Nellums LB. Perceived stressors and coping mechanisms of female migrant domestic workers in Singapore. PLoS One. 2019;14:e0210717. doi:10.1371/journal.pone.0210717.
   PubMed Web of Science ®Google Scholar
• Gillick MR. The critical role of caregivers in achieving patient-centered care. JAMA. 2013;310:575–76. doi:10.1001/jama.2013.7310.
   PubMed Web of Science ®Google Scholar
• Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA. 2014;311:1052–60. doi:10.1001/jama.2014.304.
   PubMed Web of Science ®Google Scholar