Avoiding lights and sounds: validation of the PhotoSensitivity and PhonoSensitivity Avoidance Behavior Scales (PHOTO-SABS & PHONO-SABS) in pediatric headache

References

• Abu-Arafeh, I., Razak, S., Sivaraman, B., & Graham, C. (2010). Prevalence of headache and migraine in children and adolescents: A systematic review of population-based studies. Developmental Medicine and Child Neurology, 52(12), 1088. doi:10.1111/j.1469-8749.2010.03793.x
   PubMed Web of Science ®Google Scholar
• Blankenburg, M., Schroth, M., & Braun, S. (2019). Chronic headache in children and adolescents. Klinische Pädiatrie, 50(01), 14–20. doi:10.1055/a-0710-5014
   Google Scholar
• Boateng, G. O., Neilands, T. B., Frongillo, E. A., Melgar-Quiñonez, H. R., & Young, S. L. (2018). Best practices for developing and validating scales for health, social, and behavioral research: A primer. Frontiers in Public Health, 6, 149. doi:10.3389/fpubh.2018.00149
   PubMed Web of Science ®Google Scholar
• Cattell, R. B. (1996). The screen test for the number of factors multivariate behavior. University of Illinois, Urbana-Champaign, IL, 3–35.
   Google Scholar
• Claar, R. L., & Walker, L. S. (2006). Functional assessment of pediatric pain patients: Psychometric properties of the functional disability inventory. Pain, 121(1–2), 77–84. doi:10.1016/j.pain.2005.12.002
   PubMed Web of Science ®Google Scholar
• Crombez, G., Bijttebier, P., Eccleston, C., Mascagni, T., Mertens, G., Goubert, L., & Verstraeten, K. (2003). The child version of the pain catastrophizing scale (PCS-C): A preliminary validation. Pain, 104(3), 639–646. doi:10.1016/S0304-3959(03)00121-0
   PubMed Web of Science ®Google Scholar
• Datz, H., Tumin, D., Miller, R., Smith, T. P., Bhalla, T., & Tobias, J. D. (2019). Pediatric chronic pain and caregiver burden in a national survey. Scandinavian Journal of Pain, 19(1), 109–116. doi:10.1515/sjpain-2018-0121
   PubMed Web of Science ®Google Scholar
• de Tommaso, M., Sciruicchio, V., Delussi, M., Vecchio, E., Goffredo, M., Simeone, M., & Barbaro, M. G. F. (2017). Symptoms of central sensitization and comorbidity for juvenile fibromyalgia in childhood migraine: An observational study in a tertiary headache center. The Journal of Headache and Pain, 18(1), 1–10. doi:10.1186/s10194-017-0764-8
   PubMedGoogle Scholar
• DeVellis, R. F., & Thorpe, C. T. (2021). Scale development: Theory and applications. Thousand Oaks, California: SAGE publications.
   Google Scholar
• Donado, C., Lobo, K., Berde, C. B., & Bourgeois, F. T. (2020). Developing a pediatric pain data repository. JAMIA Open, 3(1), 31–36. doi:10.1093/jamiaopen/ooz062
   PubMedGoogle Scholar
• Evans, S., Taub, R., Tsao, J. C., Meldrum, M., & Zeltzer, L. K. (2010). Sociodemographic factors in a pediatric chronic pain clinic: The roles of age, sex and minority status in pain and health characteristics. Journal of Pain Management, 3(3), 273.
   PubMedGoogle Scholar
• Gallé-Tessonneau, M., & Gana, K. (2019). Development and validation of the school refusal evaluation scale for adolescents. Journal of Pediatric Psychology, 44(2), 153–163. doi:10.1093/jpepsy/jsy061
   PubMed Web of Science ®Google Scholar
• Groenewald, C. B., Essner, B. S., Wright, D., Fesinmeyer, M. D., & Palermo, T. M. (2014). The economic costs of chronic pain among a cohort of treatment-seeking adolescents in the United States. The Journal of Pain, 15(9), 925–933. doi:10.1016/j.jpain.2014.06.002
   PubMed Web of Science ®Google Scholar
• Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S., Kabbouche, M. A., & Maynard, M. K. (2001). PedMIDAS: Development of a questionnaire to assess disability of migraines in children. Neurology, 57(11), 2034–2039. doi:10.1212/wnl.57.11.2034
   PubMed Web of Science ®Google Scholar
• Kaczynski, K. J., Claar, R. L., & LeBel, A. A. (2013). Relations between pain characteristics, child and parent variables, and school functioning in adolescents with chronic headache: A comparison of tension-type headache and migraine. Journal of Pediatric Psychology, 38(4), 351–364. doi:10.1093/jpepsy/jss120
   PubMed Web of Science ®Google Scholar
• King, S., Chambers, C. T., Huguet, A., MacNevin, R. C., McGrath, P. J., Parker, L., & MacDonald, A. J. (2011). The epidemiology of chronic pain in children and adolescents revisited: A systematic review. Pain, 152(12), 2729–2738. doi:10.1016/j.pain.2011.07.016
   PubMed Web of Science ®Google Scholar
• Kosinski, M., Bayliss, M. S., Bjorner, J. B., Ware, J. E., Garber, W. H., Batenhorst, A., ... Tepper, S. (2003). A six-item short-form survey for measuring headache impact: The HIT-6. Quality of Life Research, 12(8), 963–974. doi:10.1023/a:1026119331193
   PubMed Web of Science ®Google Scholar
• Kubik, S. U., & Martin, P. R. (2017). The headache triggers sensitivity and avoidance questionnaire: Establishing the psychometric properties of the questionnaire. Headache: The Journal of Head and Face Pain, 57(2), 236–254. doi:10.1111/head.12940
   PubMed Web of Science ®Google Scholar
• Langdon, R., & DiSabella, M. T. (2017). Pediatric headache: An overview. Current Problems in Pediatric and Adolescent Health Care, 47(3), 44–65. doi:10.1016/j.cppeds.2017.01.002
   PubMed Web of Science ®Google Scholar
• Latremoliere, A., & Woolf, C. J. (2009). Central sensitization: A generator of pain hypersensitivity by central neural plasticity. The Journal of Pain, 10(9), 895–926. doi:10.1016/j.jpain.2009.06.012
   PubMed Web of Science ®Google Scholar
• Martin, P. R., Reece, J., Callan, M., MacLeod, C., Kaur, A., Gregg, K., & Goadsby, P. J. (2014). Behavioral management of the triggers of recurrent headache: A randomized controlled trial. Behavior Research and Therapy, 61, 1–11. doi:10.1016/j.brat.2014.07.002
   PubMed Web of Science ®Google Scholar
• Nahman-Averbuch, H., Leon, E., Hunter, B. M., Ding, L., Hershey, A. D., Powers, S. W., ... Coghill, R. C. (2019). Increased pain sensitivity but normal pain modulation in adolescents with migraine. Pain, 160(5), 1019–1028. doi:10.1097/j.pain.0000000000001477
   PubMed Web of Science ®Google Scholar
• Nayak, S., Shiflett, S. C., Eshun, S., & Levine, F. M. (2000). Culture and gender effects in pain beliefs and the prediction of pain tolerance. Cross-Cultural Research, 34(2), 135–151. doi:10.1177/106939710003400203
   Web of Science ®Google Scholar
• Neut, D., Fily, A., Cuvellier, J. C., & Vallée, L. (2012). The prevalence of triggers in pediatric migraine: A questionnaire study in 102 children and adolescents. The Journal of Headache and Pain, 13(1), 61–65. doi:10.1007/s10194-011-0397-2
   PubMed Web of Science ®Google Scholar
• Olesen, J. (2018). International classification of headache disorders. Lancet Neurology, 17(5), 396–397. doi:10.1016/S1474-4422(18)30085-1
   PubMed Web of Science ®Google Scholar
• Perquin, C. W., Hazebroek-Kampschreur, A. A., Hunfeld, J. A., Bohnen, A. M., van Suijlekom-Smit, L. W., Passchier, J., & Van Der Wouden, J. C. (2000). Pain in children and adolescents: A common experience. Pain, 87(1), 51–58. doi:10.1016/S0304-3959(00)00269-4
   PubMed Web of Science ®Google Scholar
• Petersen, S., Brulin, C., & Bergström, E. (2006). Recurrent pain symptoms in young schoolchildren are often multiple. Pain, 121(1–2), 145–150. doi:10.1016/j.pain.2005.12.017
   PubMed Web of Science ®Google Scholar
• Piebes, S. K., Snyder, A. R., Bay, R. C., & McLeod, T. C. V. (2011). Measurement properties of headache-specific outcomes scales in adolescent athletes. Journal of Sport Rehabilitation, 20(1), 129–142. doi:10.1123/jsr.20.1.129
   PubMed Web of Science ®Google Scholar
• Russo, A. F., & Recober, A. (2013). Unanswered questions in headache: So what is photophobia anyway? Headache, 53(10), 1677. doi:10.1111/head.12231
   PubMedGoogle Scholar
• Seng, E. K., & Klepper, J. E. (2017). Development of the Cogniphobia Scale for Headache Disorders (CS-HD): A pilot study. Psychological Assessment, 29(10), 1296. doi:10.1037/pas0000432
   PubMed Web of Science ®Google Scholar
• Shulman, J., Zurakowski, D., Keysor, J., Jervis, K., & Sethna, N. F. (2020). Offset analgesia identifies impaired endogenous pain modulation in pediatric chronic pain disorders. Pain, 161(12), 2852–2859. doi:10.1097/j.pain.0000000000001984
   PubMed Web of Science ®Google Scholar
• Silvia, M., & Smith, A. M. (2021). Development and feasibility of the headache-related light and sound sensitivity inventories in youth. Children, 8(10), 861. doi:10.3390/children8100861
   PubMedGoogle Scholar
• Simons, L. E., & Kaczynski, K. J. (2012). The fear avoidance model of chronic pain: Examination for pediatric application. The Journal of Pain, 13(9), 827–835. doi:10.1016/j.jpain.2012.05.002
   PubMed Web of Science ®Google Scholar
• Simons, L. E., Pielech, M., Cappucci, S., & Lebel, A. (2015). Fear of pain in pediatric headache. Cephalalgia, 35(1), 36–44. doi:10.1177/0333102414534084
   PubMed Web of Science ®Google Scholar
• Simons, L. E., Sieberg, C. B., Carpino, E., Logan, D., & Berde, C. (2011). The Fear of Pain Questionnaire (FOPQ): Assessment of pain-related fear among children and adolescents with chronic pain. The Journal of Pain, 12(6), 677–686. doi:10.1016/j.jpain.2010.12.008
   PubMed Web of Science ®Google Scholar
• Strine, T. W., Okoro, C. A., McGuire, L. C., & Balluz, L. S. (2006). The associations among childhood headaches, emotional and behavioral difficulties, and health care use. Pediatrics, 117(5), 1728–1735. doi:10.1542/peds.2005-1024
   PubMed Web of Science ®Google Scholar
• Suhr, J., & Spickard, B. (2012). Pain-related fear is associated with cognitive task avoidance: Exploration of the cogniphobia construct in a recurrent headache sample. The Clinical Neuropsychologist, 26(7), 1128–1141. doi:10.1080/13854046.2012.713121
   PubMed Web of Science ®Google Scholar
• Tabachnick, B. G., & Fidell, L. S. (2013). Using multivariate statistics 6th. Boston, MA: Pearson.
   Google Scholar
• Vlaeyen, J. W., & Linton, S. J. (2000). Fear-avoidance and its consequences in chronic musculoskeletal pain: A state of the art. Pain, 85(3), 317–332. doi:10.1016/S0304-3959(99)00242-0
   PubMed Web of Science ®Google Scholar
• Von Baeyer, C. L., Spagrud, L. J., McCormick, J. C., Choo, E., Neville, K., & Connelly, M. A. (2009). Three new datasets supporting use of the Numerical Rating Scale (NRS-11) for children’s self-reports of pain intensity. Pain, 143(3), 223–227. doi:10.1016/j.pain.2009.03.002
   PubMed Web of Science ®Google Scholar
• Walker, L. S., & Greene, J. W. (1991). The functional disability inventory: Measuring a neglected dimension of child health status. Journal of Pediatric Psychology, 16(1), 39–58. doi:10.1093/jpepsy/16.1.39
   PubMed Web of Science ®Google Scholar
• Wöber-Bingöl, C. (2013). Epidemiology of migraine and headache in children and adolescents. Current Pain and Headache Reports, 17(6), 1–11. doi:10.1007/s11916-013-0341-z
   Web of Science ®Google Scholar
• Woolf, C. J. (2011). Central sensitization: Implications for the diagnosis and treatment of pain. Pain, 152(3), S2–15. doi:10.1016/j.pain.2010.09.030
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2006). Neurological disorders: Public health challenges. Switzerland: WHO.
   Google Scholar