Perceptions and experiences underlying self-management and reporting of symptoms in teens with asthma

References

• Centers for Disease Control [CDC]. Asthma prevalence, disease characteristics, and self-management education-United States, 2001–2009. Atlanta, GA: Department of Health and Human Services Publication; 2011. Available from: https://www.cdc.gov/mmwr/preview/mmwrhtml/mm6017a4.htm [last accessed April 2016].
   Google Scholar
• Rand CS, Wright RJ, Cabana MD, Foggs MB, Halterman JS, Olson L, et al. Mediators of asthma outcomes. J Allergy Clincal Immunol 2012;129(3 Suppl):S136–41.
   PubMed Web of Science ®Google Scholar
• Rhee H, Belyea MJ, Ciurzynski S, Brasch J. Barriers to asthma self-management in adolescents: relationships to psychosocial factors. Pediatr Pulmonol 2009;44(2):183–191.
   PubMed Web of Science ®Google Scholar
• Britto MT, Byczkowski TL, Hesse EA, Munafo JK, Vockell ALB, Yi MS. Overestimation of impairment-related asthma control by adolescents. J Pediatr 2011;158(6):1028–1030.
   PubMed Web of Science ®Google Scholar
• Bruzzese JM, Stepney C, Fiorino EK, Bornstein L, Wang J, Petkova E, et al. Asthma self-management is sub-optimal in urban Hispanic and African American/Black early adolescents with uncontrolled persistent asthma. J Asthma 2012;49(1):90–97.
   PubMed Web of Science ®Google Scholar
• George M, Campbell J, Rand C. Self-management of acute asthma among low-income urban adults. J Asthma 2009;46(6):618–624.
   PubMed Web of Science ®Google Scholar
• Koster ES, Philbert D, de Vries TW, van Dijk L, Bouvy ML. “I just forget to take it”: asthma self-management needs and preferences in adolescents. J Asthma 2015;52(8):831–637.
   PubMed Web of Science ®Google Scholar
• Mammen J, Rhee H. Adolescent asthma self-management: a concept analysis and operational definition. Pediatr Allergy Immunol Pulmonol 2012;25(4):180–189.
   PubMed Web of Science ®Google Scholar
• Rich M, Lamola S, Amory C, Schneider L. Asthma in life context: Video Intervention/Prevention Assessment (VIA). Pediatr 2000;105(3 Pt 1):469–477.
   PubMed Web of Science ®Google Scholar
• Koster ES, Philbert D, Winters NA, Bouvy ML. Adolescents' inhaled corticosteroid adherence: the importance of treatment perceptions and medication knowledge. J Asthma 2015;52(4):431–436.
   PubMed Web of Science ®Google Scholar
• Koster ES, Raaijmakers JA, Vijverberg SJ, Maitland-van der Zee AH. Inhaled corticosteroid adherence in paediatric patients: the PACMAN cohort study. Pharmacoepidemiol Drug Saf 2011;20(10):1064–1072.
   PubMed Web of Science ®Google Scholar
• Department of Health and Human Services. Code of Federal Regulations: Protection of Human Subjects. 2009; 1–14. Available from: https://www.hhs.gov/ohrp/sites/default/files/ohrp/policy/ohrpregulations.pdf [Last accessed April 2016]
   Google Scholar
• Maxwell JA. Qualitative research design: An interactive approach. Thousand Oaks, CA: Sage; 2012.
   Google Scholar
• Mammen J, Norton S, Rhee H, Butz A. New approaches to qualitative interviewing: Development of a card sort technique to understand subjective patterns of symptoms and responses. Int J Nurs Stud. 2016;58:90–96.
   Google Scholar
• Patton MQ. Qualitative research & evaluation methods. 3rd ed. Thousand Oaks, CA: Sage; 2002.
   Google Scholar
• National Heart Lung and Blood Institues [NHLBI]. Expert Panel Report 3: Guidelines for the diagnosis and management of asthma. Bethesda, MD: National Asthma Education and Prevention Program; 2007.
   Google Scholar
• Marshall C, Rossman G. Designing qualitative research. 5th ed. London: Thousand Oaks, CA: Sage; 2011.
   Google Scholar
• Saldaña J. The coding manual for qualitative researchers, 2nd ed. Thousand Oaks, CA: Sage; 2013.
   Google Scholar
• Ayres L, Kavanaugh K, Knafl KA. Within-case and across-case approaches to qualitative data analysis. Qual Health Res 2003;13(6):871–883.
   PubMed Web of Science ®Google Scholar
• US Department of Housing and Urban Development [US DoHUD]. Uniform Relocation Assistance and Real Property Acquisition Policies Act of 1970 (Uniform Act or URA) - FY 2011 Low Income Limits 2011. Available from: http://www.huduser.org/portal/datasets/ura/ura11/RelocAct.html [last accessed April 2016].
   Google Scholar
• Protudjer JL, Kozyrskyj AL, Becker AB, Marchessault G. Normalization strategies of children with asthma. Qual Health Res 2009;19(1):94–104.
   PubMed Web of Science ®Google Scholar
• Rhee H, Belyea MJ, Elward KS. Patterns of asthma control perception in adolescents: associations with psychosocial functioning. J Asthma 2008;45(7):600–606.
   PubMed Web of Science ®Google Scholar
• Rhee H, Fairbanks E, Butz A. Symptoms, feelings, activities and medication use in adolescents with uncontrolled asthma: lessons learned from asthma diaries. J Pediatr Nurs 2013;29(1):39–46.
   PubMed Web of Science ®Google Scholar
• Babler E, Strickland CJ. Normalizing: Adolescent experiences living with type 1 diabetes. Diabetes Educ 2015:351–360.
   PubMed Web of Science ®Google Scholar
• Nicholas DB, Picone G, Selkirk EK. The lived experiences of children and adolescents with end-stage renal disease. Qual Health Res 2011;21(2):162–173.
   PubMed Web of Science ®Google Scholar
• Nilsen G, Anderssen N. Struggling for a normal life: Work as an individual self-care management strategy among persons living with non-malignant chronic pain. J Preven Assess Rehab 2014;49(1):123–132.
   Google Scholar
• Ilic M, Reinecke J, Bohner G, Rottgers HO, Beblo T, Driessen M, et al. Protecting self-esteem from stigma: A test of different strategies for coping with the stigma of mental illness. Int J Soc Psych 2012;58(3):246–257.
   PubMed Web of Science ®Google Scholar
• Rosen A, Ivarsson A, Nordyke K, Karlsson E, Carlsson A, Danielsson L, et al. Balancing health benefits and social sacrifices: a qualitative study of how screening-detected celiac disease impacts adolescents' quality of life. BMC Pediatr 2011;11:32.
   PubMed Web of Science ®Google Scholar
• Nordyke K, Rosen A, Emmelin M, Ivarsson A. Internalizing the threat of risk–a qualitative study about adolescents' experience living with screening-detected celiac disease 5 years after diagnosis. Health Qual Life Outcomes 2014;12:91.
   PubMed Web of Science ®Google Scholar
• Stewart M, Masuda JR, Letourneau N, Anderson S, McGhan S. "I want to meet other kids like me": support needs of children with asthma and allergies. Issues Compr Pediatr Nurs 2011;34(2):62–78.
   PubMedGoogle Scholar
• Kaptein AA, Klok T, Moss-Morris R, Brand PLP. Illness perceptions: impact on self-management and control in asthma. Curr Opin Allergy Clin Immun 2010;10(3):194–199.
   PubMed Web of Science ®Google Scholar
• Rhee H, Wenzel JA, Steeves RH. Adolescents' psychosocial experiences living with asthma: A focus group study. J Pediatr Health Care 2007;21(2):99–107.
   PubMedGoogle Scholar
• Mosnaim G, Li H, Martin M, Richardson D, Belice PJ, Avery E, et al. Factors associated with levels of adherence to inhaled corticosteroids in minority adolescents with asthma. Ann Allergy Asthma Immunol 2014;112(2):116–120.
   PubMed Web of Science ®Google Scholar
• McQuaid EL, Kopel SJ, Klein RB, Fritz GK. Medication adherence in pediatric asthma: Reasoning, responsibility, and behavior. J Pediatr Psychol 2003;28(5):323–333.
   PubMed Web of Science ®Google Scholar
• Buston KM, Wood SF. Non-compliance amongst adolescents with asthma: listening to what they tell us about self-management. Fam Prac 2000;17(2):134–138.
   PubMed Web of Science ®Google Scholar
• Cohen R, Franco K, Motlow F, Reznik M, Ozuah PO. Perceptions and attitudes of adolescents with asthma. J Asthma 2003;40(2):207–211.
   PubMed Web of Science ®Google Scholar
• Cotton S, Luberto CM, Yi MS, Tsevat J. Complementary and alternative medicine behaviors and beliefs in urban adolescents with asthma. J Asthma 2011;48(5):531–538.
   PubMed Web of Science ®Google Scholar
• George M, Topaz M, Rand C, Sommers ML, Glanz K, Pantalon MV, et al. Inhaled corticosteroid beliefs, complementary and alternative medicine, and uncontrolled asthma in urban minority adults. J Allergy Clin Immunol 2014;134(6):1252–1259.
   PubMed Web of Science ®Google Scholar
• Berg J, Morphew T, Tran J, Kilgore D, Galant SP. Prevalence of complementary and alternative medicine usage in Vietnamese American asthmatic children. Evid Based Complement Alternat Med 2015.
   Google Scholar
• Lin SI, Tsai TH, Chou YJ, Huang N. Characteristics associated with utilization of asthma-related traditional Chinese medicine services among asthma children in Taiwan: A nationwide cohort study. Evid Based Complement Alternat Med 2015;2015:108961.
   PubMed Web of Science ®Google Scholar
• Rhee H, Belyea MJ, Halterman JS. Adolescents' perception of asthma symptoms and health care utilization. J Pediatr Health Care 2011;25(2):105–13.
   PubMed Web of Science ®Google Scholar
• Fritz GK, McQuaid EL, Kopel SJ, Seifer R, Klein RB, Mitchell DK, et al. Ethnic differences in perception of lung function: a factor in pediatric asthma disparities? Am J Respir Crit Care Med 2010;182(1):1–8.
   PubMed Web of Science ®Google Scholar
• Rhee H, Allen J, Mammen J, Swift M. Mobile phone-based asthma self-management aid for adolescents (mASMAA): a feasibility study. Patient Prefer Adher 2014;8:63–72.
   PubMed Web of Science ®Google Scholar