704
Views
14
CrossRef citations to date
0
Altmetric
Original Articles

“Healthcare seems to vary a lot”: A focus group study among parents of children with severe allergy

, RN, , RN & , PhD, RN
Pages 672-678 | Received 18 Jul 2016, Accepted 02 Nov 2016, Published online: 22 Feb 2017

References

  • Haahtela T, Holgate S, Pawankar R, Akdis CA, Benjaponpitak S, Caraballo L, et al. The biodiversity hypothesis and allergic disease: world allergy organization position statement. World Allergy Organ J 2013;6(1):3.
  • Ballardini N, Kull I, Lind T, Hallner E, Almqvist C, Ostblom E, et al. Development and comorbidity of eczema, asthma and rhinitis to age 12: data from the BAMSE birth cohort. Allergy 2012;67(4):537–544 [ Research Support, Non-U.S. Gov't].
  • Kjaer HF, Eller E, Host A, Andersen KE, Bindslev-Jensen C. The prevalence of allergic diseases in an unselected group of 6-source-old children. The DARC birth cohort study. Pediatric Allergy Immunol 2008;19(8):737–745 [ Research Support, Non-U.S. Gov't].
  • Broms K, Norback D, Eriksson M, Sundelin C, Svardsudd K. Prevalence and co-occurrence of parentally reported possible asthma and allergic manifestations in pre-school children. BMC Public Health 2013;13:764 [ Research Support, Non-U.S. Gov't].
  • The National Board of Health and Welfare, National guidelines for asthma and COPD care. Edita Bobergs AB, Falun, November 2015.
  • Global strategy for asthma management and prevention. 2015. Available from http://ginasthma.org/wp-content/uploads/2016/01/GINA_Report_2015_Aug11-1.pdf
  • Jonsson M, Egmar AC, Kiessling A, Ingemansson M, Hedlin G, Krakau I, et al. Adherence to national guidelines for children with asthma at primary health centres in Sweden: potential for improvement. Primary Care Respir J 2012;21(3):276–282 [ Multicenter Study Research Support, Non-U.S. Gov't].
  • Ganemo A, Svensson A, Lindberg M, Wahlgren CF. Quality of life in Swedish children with eczema. Acta dermato-venereologica 2007;87(4):345–349 [ Research Support, Non-U.S. Gov't].
  • Covaciu C, Bergstrom A, Lind T, Svartengren M, Kull I. Childhood allergies affect health-related quality of life. J Asthma 2013;50(5):522–528.
  • Cummings AJ, Knibb RC, King RM, Lucas JS. The psychosocial impact of food allergy and food hypersensitivity in children, adolescents and their families: a review. Allergy [Review] 2010;65(8):933–945.
  • Hedlin G, Bush A, Lodrup Carlsen K, Wennergren G, De Benedictis FM, Melen E, et al. Problematic severe asthma in children, not one problem but many: a GA2LEN initiative. Eur Respir J 2010;36(1):196–201.
  • Pedersen S. Asthma control in children: is it important and can we measure it? Paediatric Respir Rev 2016;17:36–38.
  • Dean BB, Calimlim BC, Sacco P, Aguilar D, Maykut R, Tinkelman D. Uncontrolled asthma among children: impairment in social functioning and sleep. J Asthma 2010;47(5):539–544 [ Research Support, Non-U.S. Gov't].
  • Dean BB, Calimlim BM, Kindermann SL, Khandker RK, Tinkelman D. The impact of uncontrolled asthma on absenteeism and health-related quality of life. J Asthma [Research Support, Non-U.S. Gov't]. 2009;46(9):861–866.
  • Broome SB, Lutz BJ, Cook C. Becoming the parent of a child with life-threatening food allergies. J Pediatric Nurs 2015;30(4):532–542 [ Research Support, Non-U.S. Gov't].
  • Birdi G, Cooke R, Knibb R. Quality of life, stress, and mental health in parents of children with parentally diagnosed food allergy compared to medically diagnosed and healthy controls. J Allergy 2016;2016:1497375.
  • Lawton S. Atopic eczema: the current state of clinical research. Br J Nurs 2014;23(20):1061–1066.
  • Malterud K. Systematic text condensation: a strategy for qualitative analysis. Scand J Public Health 2012;40(8):795–805.
  • Natalie A. Williams GRPTDE. Subjective distress and emotional resources in parents of children with food allergy. Children's Health Care 2009;38(3):213–227.
  • Williams NA, Hankey M. Support and negativity in interpersonal relationships impact caregivers' quality of life in pediatric food allergy. Qual Life Res 2015;24(6):1369–1378.
  • Ravid NL, Annunziato RA, Ambrose MA, Chuang K, Mullarkey C, Sicherer SH, et al. Mental health and quality-of-life concerns related to the burden of food allergy. Immunol Allergy Clin North Am 2012;32(1):83–95.
  • Stewart M, Letourneau N, Masuda JR, Anderson S, Cicutto L, McGhan S, et al. Support needs and preferences of young adolescents with asthma and allergies: “just no one really seems to understand”. J Pediatric Nurs 2012;27(5):479–490 [ Research Support, Non-U.S. Gov't].
  • Jonsson M, Egmar AC, Hallner E, Kull I. Experiences of living with asthma—a focus group study with adolescents and parents of children with asthma. J Asthma 2014;51(2):185–192 [ Research Support, Non-U.S. Gov't].
  • Franquet M, Husson M, Dubus JC, Rimet Y. Knowledge and experience of 2- to 15-source-old children's parents consulting in pediatric emergency departments for asthma. Arch Pediatrie 2015;22(8):840–847.
  • Ring N, Pinnock H, Wilson C, Hoskins G, Jepson R, Wyke S, et al. Understanding what asthma plans mean: a linguistic analysis of terminology used in published texts. Primary Care Respir J 2011;20(2):170–177.
  • Ostblom E, Egmar AC, Gardulf A, Lilja G, Wickman M. The impact of food hypersensitivity reported in 9-source-old children by their parents on health-related quality of life. Allergy 2008;63(2):211–218.
  • Silva N, Carona C, Crespo C, Canavarro MC. Caregiving burden and uplifts: a contradiction or a protective partnership for the quality of life of parents and their children with asthma? J Fam Psychol 2015;29(2):151–161 [ Research Support, Non-U.S. Gov't].
  • The National Board of Health and Wellfare. National guidelines for asthma and COPD care. Edita Brobergs AB, Falun, November 2015.
  • Jayasekara RS. Focus groups in nursing research: methodological perspectives. Nurs Outlook [Review] 2012;60(6):411–416.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.