Patient and provider perspectives on uptake of a shared decision making intervention for asthma in primary care practices

References

• National Heart L, and Blood Institute. Asthma. [ updated August 4, 2014]. Available from: https://www.nhlbi.nih.gov/health/health-topics/topics/asthma [ last accessed January 18, 2017].
   Google Scholar
• Centers for Disease C. 2014. Lifetime Asthma, Current Asthma, Asthma Attacks among those with Current Asthma. [ updated March 1, 2016]. Available from: https://www.cdc.gov/asthma/nhis/2014/data.htm [ last accessed January 18, 2017].
   Google Scholar
• Association AL. Trends in Asthma Morbidity and Mortality 2012. [ updated September 15, 2015]. Available from: http://www.lung.org/assets/documents/research/asthma-trend-report.pdf [ last accessed January 18, 2017].
   Google Scholar
• Centers for Disease C. Most Recent Asthma Data. [ updated April 14, 2016]. Available from: https://www.cdc.gov/asthma/most_recent_data.htm [ last accessed January 18, 2017].
   Google Scholar
• Centers for Disease C. Behavioral Risk Factor Surveillance Survey 2010. Available from: http://www.cdc.gov/brfss/index.htm.
   Google Scholar
• Bender BG, Rankin A, Tran ZV, Wamboldt FS. Brief-interval telephone surveys of medication adherence and asthma symptoms in the Childhood Asthma Management Program Continuation Study. Ann Allergy Asthma Immunol. 2008;101(4):382–6. doi:10.1016/S1081-1206(10)60314-6. PMID: 18939726.
   PubMed Web of Science ®Google Scholar
• Wu AC, Butler MG, Li L, Fung V, Kharbanda EO, Larkin EK, Vollmer WM, Miroshnik I, Davis RL, Lieu TA, et al. Primary adherence to controller medications for asthma is poor. Ann Am Thorac Soc. 2015;12(2):161–6. doi:10.1513/AnnalsATS.201410-459OC. PMID: 25569765.
   PubMed Web of Science ®Google Scholar
• Wells KE, Peterson EL, Ahmedani BK, Williams LK. Real-world effects of once vs greater daily inhaled corticosteroid dosing on medication adherence. Ann Allergy Asthma Immunol. 2013;111(3):216–20. doi:10.1016/j.anai.2013.06.008. PMID: 23987199.
   PubMed Web of Science ®Google Scholar
• O'Conor R, Martynenko M, Gagnon M, Hauser D, Young E, Lurio J, Wisnivesky JP, Wolf MS, Federman AD. Supporting Asthma Self-Management Behaviors Among Aging Adults (SAMBA) investigators. A qualitative investigation of the impact of asthma and self-management strategies among older adults. 2017;54(1):39–45. doi:10.1080/02770903.2016.1193602.
   Google Scholar
• Wu AC, Li L, Fung V, Kharbanda EO, Larkin EK, Butler MG, Galbraith A, Miroshnik I, Davis RL, Horan K, et al. Mismatching among guidelines, providers, and parents on controller medication use in children with asthma. J Allergy Clin Immunol Pract. 2016;4(5):910–6. doi:10.1016/j.jaip.2016.04.004. PMID: 27212379.
   PubMed Web of Science ®Google Scholar
• Wamboldt FS, Bender BG, Rankin AE. Adolescent decision-making about use of inhaled asthma controller medication: results from focus groups with participants from a prior longitudinal study. J Asthma. 2011;48(7):741–50. doi:10.3109/02770903.2011.598204. PMID: 21854323.
   PubMed Web of Science ®Google Scholar
• Soo WF, Tan NC. The influence of caregivers' knowledge and understanding of asthma aetiology on domiciliary management of children with asthma. Singapore Med J. 2014;55(3):132–6. doi:10.11622/smedj.2014032. PMID: 24664379.
   PubMed Web of Science ®Google Scholar
• Tapp H, Kuhn L, Alkhazraji T, Steuerwald M, Ludden T, Wilson S, Mowrer L, Mohanan S, Dulin MF. Adapting community based participatory research (CBPR) methods to the implementation of an asthma shared decision making intervention in ambulatory practices. J Asthma. 2014;51(4):380–90. doi:10.3109/02770903.2013.876430. PMID: 24350877.
   PubMed Web of Science ®Google Scholar
• Pelaez S, Bacon SL, Lacoste G, Lavoie KL. How can adherence to asthma medication be enhanced? Triangulation of key asthma stakeholders' perspectives. J Asthma. 2016;53(10):1076–84. doi:10.3109/02770903.2016.1165696. PMID: 27167629.
   PubMed Web of Science ®Google Scholar
• Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Social Sci Med (1982). 1999;49(5):651–61. doi:10.1016/S0277-9536(99)00145-8.
   PubMed Web of Science ®Google Scholar
• Wilson SR, Strub P, Buist AS, Knowles SB, Lavori PW, Lapidus J, Vollmer WM. Better Outcomes of Asthma Treatment (BOAT) Study Group. Shared treatment decision making improves adherence and outcomes in poorly controlled asthma. Am J Respir Crit Care Med. 2010;181(6):566–77. doi:10.1164/rccm.200906-0907OC. PMID: 20019345.
   PubMed Web of Science ®Google Scholar
• Stacey D, Legare F, Lewis K, Barry MJ, Bennett CL, Eden KB, Holmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Thomson R, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Syst Rev. 2017;4:CD001431.
   Web of Science ®Google Scholar
• Taylor YJ, Tapp H, Shade LE, Liu TL, Mowrer JL, Dulin MF. Impact of shared decision making on asthma quality of life and asthma control among children. J Asthma. 2018;55(6):675–683. doi:10.1080/02770903.2017.1362423.
   PubMed Web of Science ®Google Scholar
• Tapp H, Shade L, Mahabaleshwarkar R, Taylor YJ, Ludden T, Dulin MF. Results from a pragmatic prospective cohort study: Shared decision making improves outcomes for children with asthma. J Asthma. 2017;54(4):392–402. doi:10.1080/02770903.2016.1227333. PMID: 27813670.
   PubMed Web of Science ®Google Scholar
• Legare F, Stacey D, Turcotte S, Cossi MJ, Kryworuchko J, Graham ID, Lyddiatt A, Politi MC, Thomson R, Elwyn G, et al. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst Rev. 2014(9):CD006732. PMID: 25222632
   Web of Science ®Google Scholar
• Elwyn G, Frosch DL, Kobrin S. Implementing shared decision-making: consider all the consequences. Implement Sci. 2016;11:114. doi:10.1186/s13012-016-0480-9. PMID: 27502770.
   PubMed Web of Science ®Google Scholar
• Mader EM, Fox CH, Epling JW, Noronha GJ, Swanger CM, Wisniewski AM, Vitale K, Norton AL, Morley CP. A practice facilitation and academic detailing intervention can improve cancer screening rates in primary care safety net clinics. J Am Board Fam Med. 2016;29(5):533–42. doi:10.3122/jabfm.2016.05.160109. PMID: 27613786.
   PubMed Web of Science ®Google Scholar
• Mold JW, Fox C, Wisniewski A, Lipman PD, Krauss MR, Harris DR, Aspy C, Cohen RA, Elward K, Frame P, et al. Implementing asthma guidelines using practice facilitation and local learning collaboratives: a randomized controlled trial. Annals of family medicine. 2014;12(3):233–40. doi:10.1370/afm.1624. PMID: 24821894.
   PubMed Web of Science ®Google Scholar
• Lugtenberg M, Weenink JW, van der Weijden T, Westert GP, Kool RB. Implementation of multiple-domain covering computerized decision support systems in primary care: a focus group study on perceived barriers. BMC Med Inform Decis Mak. 2015;15:82. doi:10.1186/s12911-015-0205-z. PMID: 26459233.
   PubMed Web of Science ®Google Scholar
• King VJ, Davis MM, Gorman PN, Rugge JB, Fagnan LJ. Perceptions of shared decision making and decision aids among rural primary care clinicians. Med Decis Mak. 2012;32(4):636–44. doi:10.1177/0272989X11431961. PMID: 22247423.
   PubMed Web of Science ®Google Scholar
• Boland L, McIsaac DI, Lawson ML. Barriers to and facilitators of implementing shared decision making and decision support in a paediatric hospital: A descriptive study. Paediatr Child Health. 2016;21(3):e17–e21. doi:10.1093/pch/21.3.e17.
   PubMed Web of Science ®Google Scholar
• Watkins K, Fisher C, Misaghian J, Schneider CR, Clifford R. A qualitative evaluation of the implementation of guidelines and a support tool for asthma management in primary care. Asthma Res Pract. 2016;2:8. doi:10.1186/s40733-016-0023-9. PMID: 27965776.
   PubMedGoogle Scholar
• Ring N, Booth H, Wilson C, Hoskins G, Pinnock H, Sheikh A, Jepson R. The ‘vicious cycle’ of personalised asthma action plan implementation in primary care: a qualitative study of patients and health professionals' views. BMC Family Pract. 2015;16:145. doi:10.1186/s12875-015-0352-4. PMID: 26487557.
   PubMed Web of Science ®Google Scholar
• van Gaalen JL, van Bodegom-Vos L, Bakker MJ, Snoeck-Stroband JB, Sont JK. Internet-based self-management support for adults with asthma: a qualitative study among patients, general practitioners and practice nurses on barriers to implementation. BMJ Open. 2016;6(8):e010809. doi:10.1136/bmjopen-2015-010809. PMID: 27566627.
   PubMed Web of Science ®Google Scholar
• Fiks AG, DuRivage N, Mayne SL, Finch S, Ross ME, Giacomini K, Suh A, McCarn B, Brandt E, Karavite D, et al. Adoption of a portal for the primary care management of pediatric asthma: A mixed-methods implementation study. J Med Internet Res. 2016;18(6):e172. doi:10.2196/jmir.5610. PMID: 27357835.
   PubMed Web of Science ®Google Scholar
• Tapp H, McWilliams A, Ludden T, Kuhn L, Taylor Y, Alkhazraji T, Halladay J, Derkowski D, Mohanan S, Dulin M. Comparing traditional and participatory dissemination of a shared decision making intervention (ADAPT-NC): a cluster randomized trial. Implement Sci. 2014;9:158. doi:10.1186/s13012-014-0158-0. PMID: 25359128.
   PubMed Web of Science ®Google Scholar
• Rucker L, Shapiro J, Fornwalt C, Hundal K, Reddy S, Singson Z, Trieu K. Using focus groups to understand causes for morale decline after introducing change in an IM residency program. BMC Med Educ. 2014;14:132. doi:10.1186/1472-6920-14-132. PMID: 24994046.
   PubMed Web of Science ®Google Scholar
• Gupta PS, Anandarajah G. The role of spirituality in diabetes self-management in an urban, underserved population: a qualitative exploratory study. Rhode Island Med J. 2014;97(3):31–5.
   Google Scholar
• Jones A, Pill R, Adams S. Qualitative study of views of health professionals and patients on guided self management plans for asthma. BMJ. 2000;321(7275):1507–10. doi:10.1136/bmj.321.7275.1507. PMID: 11118179.
   PubMedGoogle Scholar
• Mowrer JL, Tapp H, Ludden T, Kuhn L, Taylor Y, Courtlandt C, Alkhazraji T, Reeves K, Steuerwald M, Andrew M, et al. Patients' and providers' perceptions of asthma and asthma care: a qualitative study. J Asthma. 2015;52(9):949–56. doi:10.3109/02770903.2015.1010731. PMID: 25975701.
   PubMed Web of Science ®Google Scholar
• Davis P, Man P, Cave A, McBennett S, Cook D. Use of focus groups to assess the educational needs of the primary care physician for the management of asthma. Medical education. 2000;34(12):987–93. doi:10.1046/j.1365-2923.2000.00685.x. PMID: 11123561.
   PubMed Web of Science ®Google Scholar
• Rudell K, Hareendran A, Bonner N, Arbuckle R, Burbridge C, Abetz L. Patients' experience of asthma control and clinical guidelines: perspectives from a qualitative study. Respir Med. 2012;106(6):909–11. doi:10.1016/j.rmed.2011.08.024. PMID: 22361503.
   PubMed Web of Science ®Google Scholar
• Turner-Bowker DM, Saris-Baglama RN, Derosa MA, Paulsen CA, Bransfield CP. Using qualitative research to inform the development of a comprehensive outcomes assessment for asthma. The Patient. 2009;2(4):269–82. doi:10.2165/11313840-000000000-00000.
   Google Scholar
• Ahluwalia SC, Bekelman DB, Huynh AK, Prendergast TJ, Shreve S, Lorenz KA. Barriers and strategies to an iterative model of advance care planning communication. Am J Hosp Palliat Care. 2015;32(8):817–23. doi:10.1177/1049909114541513.
   PubMed Web of Science ®Google Scholar
• Kitzinger J. Qualitative research. Introducing focus groups. BMJ. 1995;311(7000):299–302. doi:10.1136/bmj.311.7000.299. PMID: 7633241.
   PubMedGoogle Scholar
• Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Sci Med. 1997;44(5):681–92. doi:10.1016/S0277-9536(96)00221-3.
   PubMed Web of Science ®Google Scholar
• Sopcak N, Aguilar C, O'Brien MA, Nykiforuk C, Aubrey-Bassler K, Cullen R, Grunfeld E, Manca D. Implementation of the BETTER 2 program: a qualitative study exploring barriers and facilitators of a novel way to improve chronic disease prevention and screening in primary care. Implement Sci. 2016;11(1):158. doi:10.1186/s13012-016-0525-0. PMID: 27906041.
   PubMedGoogle Scholar
• Zeuner R, Frosch DL, Kuzemchak MD, Politi MC. Physicians' perceptions of shared decision-making behaviours: a qualitative study demonstrating the continued chasm between aspirations and clinical practice. Health Expect: An Int J Public Participat Health Care Health Policy. 2015;18(6):2465–76. doi:10.1111/hex.12216. PMID: 24938120.
   Google Scholar
• Scott SD, Osmond MH, O'Leary KA, Graham ID, Grimshaw J, Klassen T, Pediatric Emergency Research Canada (PERC) MDI/spacer Study Group. Barriers and supports to implementation of MDI/spacer use in nine Canadian pediatric emergency departments: a qualitative study. Implement Sci. 2009;4:65. doi:10.1186/1748-5908-4-65. PMID: 19828086.
   PubMed Web of Science ®Google Scholar
• Manca DP, Greiver M, Carroll JC, Salvalaggio G, Cave A, Rogers J, Pencharz J, Aguilar C, Barrett R, Bible S, et al. Finding a BETTER way: a qualitative study exploring the prevention practitioner intervention to improve chronic disease prevention and screening in family practice. BMC Family Pract. 2014;15:66. doi:10.1186/1471-2296-15-66. PMID: 24720686.
   PubMed Web of Science ®Google Scholar
• VanDevanter N, Kumar P, Nguyen N, Nguyen L, Nguyen T, Stillman F, Weiner B, Shelley D. Application of the Consolidated Framework for Implementation Research to assess factors that may influence implementation of tobacco use treatment guidelines in the Viet Nam public health care delivery system. Implement Sci. 2017;12(1):27. doi:10.1186/s13012-017-0558-z. PMID: 28241770.
   PubMedGoogle Scholar
• Grimshaw JM, Eccles MP, Lavis JN, Hill SJ, Squires JE. Knowledge translation of research findings. Implement Sci. 2012;7:50. doi:10.1186/1748-5908-7-50. PMID: 22651257.
   PubMed Web of Science ®Google Scholar