References
- Divo MJ, Martinez CH, Mannino DM. Ageing and the epidemiology of multimorbidity. Eur Respir J. 2014;44(4):1055–1068.
- Rietjens JAC, Sudore RL, Connolly M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017;18(9):e543–e551.
- Lamas DJ, Owens RL, Nace RN, et al. Conversations about goals and values are feasible and acceptable in long-term acute care hospitals: a pilot study. J Palliat Med. 2017;20(7):710–715.
- Waller A, Sanson-Fisher R, Zdenkowski N, et al. The right place at the right time: medical oncology outpatients' perceptions of location of end-of-life care. J Natl Compr Cancer Netw. 2018;16(1):35–41.
- O'Sullivan R, Mailo K, Angeles R, et al. Advance directives: survey of primary care patients. Can Fam Physician. 2015;61:353–356.
- Snyder S, Hazelett S, Allen K, et al. Physician knowledge, attitude, and experience with advance care planning, palliative care, and hospice: results of a primary care survey. Am J Hosp Palliat Care. 2013;30(5):419–424.
- Sorensen AR, Marsaa K, Prior TS, et al. Attitude and barriers in palliative care and advance care planning in nonmalignant chronic lung disease: results from a Danish national survey. J Palliat Care. 2020;35(4):232–235.
- Bergenholtz H, Timm HU, Missel M. Talking about end of life in general palliative care – what's going on? A qualitative study on end-of-life conversations in an acute care hospital in Denmark. BMC Palliat Care. 2019;18(1):62.
- Tulsky JA, Beach MC, Butow PN, et al. A research agenda for communication between health care professionals and patients living with serious illness. JAMA Intern Med. 2017;177(9):1361–1366.
- National POLST [cited 2021 Jan 26]. Available from: https://polst.org
- Oregon POLST [cited 2021 Jan 26]. Available from: https://oregonpolst.org
- Gonella S, Basso I, Dimonte V, et al. Association between end-of-life conversations in nursing homes and end-of-life care outcomes: a systematic review and meta-analysis. J Am Med Dir Assoc. 2019;20(3):249–261.
- Hickman SE, Keevern E, Hammes BJ. Use of the physician orders for life-sustaining treatment program in the clinical setting: a systematic review of the literature. J Am Geriatr Soc. 2015;63(2):341–350.
- Waller A, Hall A, Sanson-Fisher R, et al. Do medical oncology patients and their support persons agree about end-of-life issues? Intern Med J. 2018;48(1):60–66.
- Kvale S, Brinkman S. InterViews: learning the craft of qualitative research interviewing. Copenhagen: Hans Reitzel; 2009.
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
- Waibel S, Henao D, Aller MB, et al. What do we know about patients' perceptions of continuity of care? A meta-synthesis of qualitative studies. Int J Qual Health Care. 2012;24(1):39–48.
- Almansour I, Abdel Razeq NM. Communicating prognostic information and hope to families of dying patients in intensive care units: a descriptive qualitative study. J Clin Nurs. 2021;30(5–6):861–873.
- Waller A, Sanson-Fisher R, Nair BRK, et al. Are older and seriously ill inpatients planning ahead for future medical care? BMC Geriatr. 2019;19(1):212.
- Heyland DK, Barwich D, Pichora D, et al. Failure to engage hospitalized elderly patients and their families in advance care planning. JAMA Intern Med. 2013;173(9):778–787.
- Gaber KA, Barnett M, Planchant Y, et al. Attitudes of 100 patients with chronic obstructive pulmonary disease to artificial ventilation and cardiopulmonary resuscitation. Palliat Med. 2004;18(7):626–629.
- Carson SS, Cox CE, Wallenstein S, et al. Effect of palliative care-led meetings for families of patients with chronic critical illness: a randomized clinical trial. JAMA. 2016;316(1):51–62.
- Schubart JR, Reading JM, Penrod J, Stewart RR, et al. Family caregivers' characterization of conversations following an ACP event. Am J Hosp Palliat Care. 2018;35(9):1161–1167.
- Lakin JR, Block SD, Billings JA, et al. Improving communication about serious illness in primary care: a review. JAMA Intern Med. 2016;176(9):1380–1387.
- Downar J, Goldman R, Pinto R, et al. The “surprise question” for predicting death in seriously ill patients: a systematic review and meta-analysis. CMAJ. 2017;189(13):E484–E493.
- Detering KM, Hancock AD, Reade MC, et al. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340(1):c1345.
- Comer AR, Hickman SE, Slaven JE, et al. Assessment of discordance between surrogate care goals and medical treatment provided to older adults with serious illness. JAMA Netw Open. 2020;3(5):e205179.
- Davidson JE, Aslakson RA, Long AC, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med. 2017;45(1):103–128.
- Shen HN, Lin CC, Hoffmann T, et al. The relationship between health literacy and perceived shared decision making in patients with breast cancer. Patient Educ Couns. 2019;102(2):360–366.
- De Oliveira GS Jr., Errea M, Bialek J, et al. The impact of health literacy on shared decision making before elective surgery: a propensity matched case control analysis. BMC Health Serv Res. 2018;18(1):958.
- Godolphin W. Shared decision-making. Healthc Q. 2009;12:e186–e190. 12 Spec No Patient:e186–90.
- Collins A, McLachlan SA, Philip J. Initial perceptions of palliative care: an exploratory qualitative study of patients with advanced cancer and their family caregivers. Palliat Med. 2017;31(9):825–832.
- Balaban RB. A physician's guide to talking about end-of-life care. J Gen Intern Med. 2000;15(3):195–200.
- Watson A, Weaver M, Jacobs S, et al. Interdisciplinary communication: documentation of advance care planning and end-of-life care in adolescents and young adults with cancer. J Hosp Palliat Nurs. 2019;21(3):215–222.