Who should talk with patients about their end-of-life care wishes? A nationwide survey of the Hungarian population

References

• Abba K, Lloyd-Williams M, Horton S. Discussing end of life wishes – the impact of community interventions? BMC Palliat Care. 2019;18(1):26.
   PubMed Web of Science ®Google Scholar
• Hamel L, Wu B, Brodie M. Views and experiences with end-of-Life medical care in Japan, Italy, the United States, and Brazil: a cross-country survey 2017. Washington: Kaiser Family Foundation (US); 2017.
   Google Scholar
• Raijmakers JNH. End of life care and decision-making. Opinions and experiences of the general public, bereaved relatives, and professionals [dissertation]. Rotterdam (NL): Erasmus University; 2013.
   Google Scholar
• Canadian Hospice Palliative Care Association (CDN). Fact sheet: hospice palliative care in Canada. Ottawa: Canadian Hospice Palliative Care Association (CDN); 2019.
   Google Scholar
• Council of Europe. Recommendation CM/rec(2009)11 of the committee of ministers to member states on principles continuing powers of attorney and advance directives for incapacity. Strasbourg: Council of Europe (EU); 2010.
   Google Scholar
• Ross G, Rachel P. Public opinion on death and dying. London: Dying Matters Coalition (UK); 2016.
   Google Scholar
• Keeley MP. Family communication at the end of life. Behav Sci. 2017;7(4):45.
   PubMedGoogle Scholar
• Rietjens JAC, Sudore RL, Connolly M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017;18(9):e543–e551.
   PubMed Web of Science ®Google Scholar
• Houben CHM, Spruit MA, Groenen MTJ, et al. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc. 2014;15(7):477–489.
   PubMed Web of Science ®Google Scholar
• Royal College of General Practitioners (UK). The gold standards framework proactive identification guidance (PIG). 2016. London: Royal College of General Practitioners (UK); 2016.
   Google Scholar
• Hamilton I. Advance care planning in general practice: promoting patient autonomy and shared decision making. Br J Gen Pract. 2017;67(656):104–105.
   PubMed Web of Science ®Google Scholar
• Sharp T, Malyon A, Barclay S. GPs' perceptions of advance care planning with frail and older people: a qualitative study. Br J Gen Pract. 2018;68(666):e44–e53.
   PubMed Web of Science ®Google Scholar
• De Vleminck A, Pardon K, Beernaert K, et al. How do general practitioners conceptualise advance care planning in their practice? A qualitative study. PLoS One. 2016;11(4):e0153747–12.
   PubMed Web of Science ®Google Scholar
• Howard M, Bernard C, Klein D, et al. Barriers to and enablers of advance care planning with patients in primary care survey of health care providers. Can Fam Physician. 2018;64(4):e190–198–e198.
   Web of Science ®Google Scholar
• De Vleminck A, Houttekier D, Pardon K, et al. Barriers and facilitators for general practitioners to engage in advance care planning: a systematic review. Scand J Prim Health Care. 2013;31(4):215–226.
   PubMed Web of Science ®Google Scholar
• Den Herder-Van Der Eerden M, Hasselaar J, Payne S, et al. How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries. Palliat Med. 2017;31(10):946–955.
   PubMed Web of Science ®Google Scholar
• Rácz K, Szente S, Babonits-Farkas KR, et al. A háziorvosok és a lakosság ismeretei a hospice-palliatív ellátásról a szentendrei kistérségben [general practitioners' and the general population's knowledge about hospice and palliative care in szentendre micro-region. Onk & Hemat. 2019;5:35–38.
   Google Scholar
• Busa C, Radvanyi I, Csikos A. Mit tudnak a családorvosok az életvégi tervezésről? [What do general practitioners know about end-of-life planning?] In: Proceedings of the 16th Conference of the Hungarian Research Organization of Family Physicians. 2017. Febr 23–25; Szeged (HU); Szeged: Art Hotel; 2017. p. 4.
   Google Scholar
• Busa C, Zeller J, Csikós Á. Ki döntsön az élet végén? Az ellátás előzetes tervezésének nemzetközi gyakorlata és hazai lehetőségei [who should decide at the end of life? International practice of advance care planning and possibilities for adaptation in Hungary]. Orv Hetil. 2018;159(4):131–140.
   PubMed Web of Science ®Google Scholar
• Csikos A, Albanese T, Busa C, et al. Hungarians' perspectives on end-of-life care. J Palliat Med. 2008;11(8):1083–1087.
   PubMed Web of Science ®Google Scholar
• Hungarian Central Statistical Office. Place of Death. 2019. [cited 2021 Feb 24]; Available from: http://statinfo.ksh.hu/Statinfo/haViewer.jsp.
   Google Scholar
• Hegedűs K. Létezik-e jó halál? [is there such thing as good death?]. Budapest (HU): Oriold és Társai; 2017.
   Google Scholar
• Saevareid TJL, Pedersen R, Magelssen M. Positive attitudes to advance care planning – a Norwegian general population survey. BMC Health Serv Res. 2021;21(1):762.
   PubMed Web of Science ®Google Scholar
• Beernaert K, Deliens L, De Vleminck A, et al. Early identification of palliative care needs by family physicians: a qualitative study of barriers and facilitators from the perspective of family physicians, community nurses, and patients. Palliat Med. 2014;28(6):480–490.
   PubMed Web of Science ®Google Scholar
• Pfeifer M, Head BA. Which critical communication skills are essential for interdisciplinary end-of-life discussions? AMA J Ethics. 2018;20(8):724–731.
   Google Scholar
• Kastbom L, Milberg A, Karlsson M. 'We have no crystal ball' – advance care planning at nursing homes from the perspective of nurses and physicians. Scand J Prim Health Care. 2019;37(2):191–199.
   PubMed Web of Science ®Google Scholar
• Kastbom L, Karlsson M, Falk M, et al. Elephant in the room – family members’ perspectives on advance care planning. Scand J Prim Health Care. 2020;38(4):421–429.
   PubMed Web of Science ®Google Scholar
• Aasmul I, Husebo BS, Flo E. Description of an advance care planning intervention in nursing homes: outcomes of the process evaluation. BMC Geriatr. 2018;18(1):26.
   PubMed Web of Science ®Google Scholar
• Grant MS, Back AL, Dettmar NS. Public perceptions of advance care planning, palliative care, and hospice: a scoping review. J Palliat Med. 2021;24(1):46–52.
   PubMed Web of Science ®Google Scholar
• Eneslätt M, Helgesson G, Tishelman C. Dissemination, use, and impact of a community-based, conversational advance care planning intervention: ripple effects of the Swedish DöBra cards. Palliat Care Soc Pract. 2021;15:1–17.
   Google Scholar