Patient empowerment: a systematic review of questionnaires measuring empowerment in cancer patients

References

• Danske Regioner. Evidens eller vanetænkning - et debatoplæg om fremtidens kontrolforløb for kræftpatienter. Copenhagen: Danske Regioner; 2009.
   Google Scholar
• Kvalitetsenheden Kræftens Bekæmpelse, (arbejdsgruppe). Knudsen J, Nissen A, Larsen S, et al. Kontrolforløb i kræftpatientens perspektiv. Copenhagen: Kræftens Bekæmpelse; 2009. p. 1–72.
   Google Scholar
• Antal der lever med kræft [Internet]. Kræftens Bekæmpelse. [cited 2016 Aug 10]. Available from: https://www.cancer.dk/hjaelp-viden/fakta-om-kraeft/kraeft-i-tal/antal-der-lever-med-kraeft/.
   Google Scholar
• Sundhedsstyrelsen. Opfølgningsprogrammer for kræftsygdomme [Internet]. [cited 2016 Aug 10]. Available from: https://sundhedsstyrelsen.dk/da/sygdom-og-behandling/kraeft/opfoelgningsprogrammer.
   Google Scholar
• Region Hovedstaden. Patient empowerment [Internet]. [cited 2016 Aug 10]. Available from: https://www.regionh.dk/patientempowerment.
   Google Scholar
• McCorkle R, Ercolano E, Lazenby M, et al. Self-management: enabling and empowering patients living with cancer as a chronic illness. CA Cancer J Clin. 2011;61:50–62.
   PubMed Web of Science ®Google Scholar
• Anderson RM, Funnell MM. Patient empowerment: myths and misconceptions. Patient Educ Couns. 2010;79:277–282.
   PubMed Web of Science ®Google Scholar
• Holman H, Lorig K. Patient self-management: a key to effectiveness and efficiency in care of chronic disease. Public Health Rep Wash DC 1974. 2004;119:239–243.
   PubMed Web of Science ®Google Scholar
• Lorig KR, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med Publ Soc Behav Med. 2003;26:1–7.
   PubMed Web of Science ®Google Scholar
• Hibbard JH, Greene J. What the evidence shows about patient activation: better health outcomes and care experiences; fewer data on costs. Health Aff Proj Hope. 2013;32:207–214.
   PubMed Web of Science ®Google Scholar
• Anderson RM, Funnell MM, Aikens JE, et al. Evaluating the efficacy of an empowerment-based self-management consultant intervention: results of a two-year randomized controlled trial. Ther Patient Educ. 2009;1:3–11.
   PubMedGoogle Scholar
• Jerofke T, Weiss M, Yakusheva O. Patient perceptions of patient-empowering nurse behaviours, patient activation and functional health status in postsurgical patients with life-threatening long-term illnesses. J Adv Nurs. 2014;70:1310–1322.
   PubMed Web of Science ®Google Scholar
• Barr PJ, Scholl I, Bravo P, et al. Assessment of patient empowerment: a systematic review of measures. PLoS One. 2015;10:e0126553. doi: 10.1371/journal.pone.0126553.
   PubMed Web of Science ®Google Scholar
• Wallerstein N. What is the evidence on effectiveness of empowerment to improve health? [Internet]. Copenhagen: WHO Regional Office for Europe. Health Evidence Network report. 2006 [cited 2016 Aug 10]. Available from: http://www.euro.who.int/__data/assets/pdf_file/0010/74656/E88086.pdf.
   Google Scholar
• Willert C, Hölmich L, Thorborg K. Udvikling og validering af patientrapporterede spørgeskemaer-del 1. [Internet]. Ugeskr Læger. 2015;177:V08140450 [cited 2016 Aug 11]. Available from: http://ugeskriftet.dk/files/V08140450_2.pdf.
   PubMedGoogle Scholar
• Herbert RJ, Gagnon AJ, Rennick JE, et al. A systematic review of questionnaires measuring health-related empowerment. Res Theory Nurs Pract. 2009;23:107–132.
   PubMedGoogle Scholar
• Cyril S, Smith BJ, Renzaho AMN. Systematic review of empowerment measures in health promotion. Health Promot Int. 2015;31:809–826.
   PubMed Web of Science ®Google Scholar
• Zimmerman MA. Psychological empowerment: issues and illustrations. Am J Community Psychol. 1995;23:581–599.
   PubMed Web of Science ®Google Scholar
• McAllister M, Dunn G, Payne K, et al. Patient empowerment: the need to consider it as a measurable patient-reported outcome for chronic conditions. BMC Health Serv Res. 2012;12:157.
   PubMed Web of Science ®Google Scholar
• Aujoulat I, D’hoore W, Deccache A. Patient empowerment in theory and practice: polysemy or cacophony? Patient Educ Couns. 2007;66:13–20.
   PubMed Web of Science ®Google Scholar
• Bravo P, Edwards A, Barr PJ, et al. Conceptualising patient empowerment: a mixed methods study. BMC Health Serv Res. 2015;15:252.
   PubMed Web of Science ®Google Scholar
• Bulsara C, Styles I, Ward AM, et al. The psychometrics of developing the patient empowerment scale. J Psychosoc Oncol. 2006;24:1–16.
   PubMed Web of Science ®Google Scholar
• van den Berg SW, van Amstel FKP, Ottevanger PB, et al. The cancer empowerment questionnaire: psychological empowerment in breast cancer survivors. J Psychosoc Oncol. 2013;31:565–583.
   PubMed Web of Science ®Google Scholar
• Baker DW. The meaning and the measure of health literacy. J Gen Intern Med. 2006;21:878–883.
   PubMed Web of Science ®Google Scholar
• Tengland P-A. Empowerment: a conceptual discussion. Health Care Anal HCA J Health Philos Policy. 2008;16:77–96.
   Web of Science ®Google Scholar
• Fumagalli LP, Radaelli G, Lettieri E, et al. Patient empowerment and its neighbours: clarifying the boundaries and their mutual relationships. Health Policy Amst Neth. 2015;119:384–394.
   PubMed Web of Science ®Google Scholar
• Hudon C, St-Cyr Tribble D, Légaré F, et al. Assessing enablement in clinical practice: a systematic review of available instruments. J Eval Clin Pract. 2010;16:1301–1308.
   PubMed Web of Science ®Google Scholar
• Shamseer L, Moher D, Clarke M, et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015: elaboration and explanation. BMJ. 2015;349:g7647.
   PubMed Web of Science ®Google Scholar
• Terwee CB, Bot SDM, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60:34–42.
   PubMed Web of Science ®Google Scholar
• Cunningham AJ, Lockwood GA, Cunningham JA. A relationship between perceived self-efficacy and quality of life in cancer patients. Patient Educ Couns. 1991;17:71–78.
   PubMed Web of Science ®Google Scholar
• Derogatis LR. The psychosocial adjustment to illness scale (PAIS). J Psychosom Res. 1986;30:77–91.
   PubMed Web of Science ®Google Scholar
• Ong LM, Visser MR, van Zuuren FJ, et al. Cancer patients' coping styles and doctor-patient communication. Psychooncology. 1999;8:155–166.
   PubMed Web of Science ®Google Scholar
• Mishel MH, Braden CJ. Finding meaning: antecedents of uncertainty in illness. Nurs Res. 1988;37:98–103, 127.
   PubMed Web of Science ®Google Scholar
• Lewis F. Family home visitation study final report. Bethesda, MD: National Cancer Institute. NIH; 1996.
   Google Scholar
• Ouwens M, Hermens R, Hulscher M, et al. Development of indicators for patient-centred cancer care. Support Care Cancer. 2010;18:121–130.
   PubMed Web of Science ®Google Scholar
• van Weert JCM, Jansen J, de Bruijn G-J, et al. QUOTEchemo: a patient-centred instrument to measure quality of communication preceding chemotherapy treatment through the patient’s eyes. Eur J Cancer Oxf Engl 1990. 2009;45:2967–2976.
   PubMed Web of Science ®Google Scholar
• Shin SH, Park H. [Development and validation of the empowerment scale for woman with breast cancer]. J Korean Acad Nurs. 2015;45:613–624.
   PubMed Web of Science ®Google Scholar
• Bulsara CE, Styles I. Development of a cancer related patient empowerment scale using the polytomous Rasch measurement model. Cancer Clin Oncol. 2013;2:87–102.
   Google Scholar
• Seçkin G. Informational and decisional empowerment in online health support communities: initial psychometric validation of the Cyber Info-Decisional Empowerment Scale (CIDES) and preliminary data from administration of the scale. Support Care Cancer. 2011;19:2057–2061.
   PubMed Web of Science ®Google Scholar
• Maunsell E, Lauzier S, Brunet J, et al. Health-related empowerment in cancer: validity of scales from the Health Education Impact Questionnaire. Cancer. 2014;120:3228–3236.
   PubMed Web of Science ®Google Scholar
• Arora NK, Reeve BB, Hays RD, et al. Assessment of quality of cancer-related follow-up care from the cancer survivor's perspective. J Clin Oncol. 2011;29:1280–1289.
   PubMed Web of Science ®Google Scholar
• Tzelepis F, Sanson-Fisher RW, Hall AE, et al. Development and psychometric evaluation of the quality of patient-centered cancer care measure with hematological cancer survivors. Cancer. 2015;121:2383–2392.
   PubMed Web of Science ®Google Scholar
• Tarrant C, Baker R, Colman AM, et al. The Prostate Care Questionnaire for Patients (PCQ-P): reliability, validity and acceptability. BMC Health Serv Res. 2009;9:199.
   PubMed Web of Science ®Google Scholar
• Booij JC, Zegers M, Evers PM, et al. Improving cancer patient care: development of a generic cancer consumer quality index questionnaire for cancer patients. BMC Cancer. 2013;13:203.
   PubMed Web of Science ®Google Scholar
• Osborne RH, Elsworth GR, Whitfield K. The Health Education Impact Questionnaire (heiQ): an outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions. Patient Educ Couns. 2007;66:192–201.
   PubMed Web of Science ®Google Scholar
• Elsworth GR, Nolte S, Osborne RH. Factor structure and measurement invariance of the Health Education Impact Questionnaire: does the subjectivity of the response perspective threaten the contextual validity of inferences? SAGE Open Med. 2015;3:2050312115585041.
   Google Scholar
• Schuler M, Musekamp G, Bengel J, et al. Measurement of stable changes of self-management skills after rehabilitation: a latent state-trait analysis of the Health Education Impact Questionnaire (heiQTM). Qual Life Res Int J Qual Life Asp Treat Care Rehabil. 2014;23:2531–2543.
   PubMed Web of Science ®Google Scholar
• Lauzier S, Campbell HS, Livingston PM, et al. Indicators for evaluating cancer organizations' support services: performance and associations with empowerment. Cancer. 2014;120:3219–3227.
   PubMed Web of Science ®Google Scholar
• Brunet J, Lauzier S, Campbell HS, et al. Measurement invariance of English and French Health Education Impact Questionnaire (heiQ) empowerment scales validated for cancer. Qual Life Res Int J Qual Life Asp Treat Care Rehabil. 2015;24:2375–2384.
   PubMed Web of Science ®Google Scholar
• Wahl AK, Osborne RH, Langeland E, et al. Making robust decisions about the impact of health education programs: Psychometric evaluation of the Health Education Impact Questionnaire (heiQ) in diverse patient groups in Norway. Patient Educ Couns. 2016;99:1733–1738.
   PubMed Web of Science ®Google Scholar
• Holmström I, Röing M. The relation between patient-centeredness and patient empowerment: a discussion on concepts. Patient Educ Couns. 2010;79:167–172.
   PubMed Web of Science ®Google Scholar
• Anderson RM, Funnell MM, Fitzgerald JT, et al. The Diabetes Empowerment Scale: a measure of psychosocial self-efficacy. Diabetes Care. 2000;23:739–743.
   PubMed Web of Science ®Google Scholar
• Livneh H, Antonak R. Psychosocial reactions to disability: a review and critique of the literature. Crit Rev Phys Rehabil Med. 1994;6:1–100.
   Google Scholar