It’s all about the CA-19-9. A longitudinal qualitative study of patients’ experiences and perspectives on follow-up after curative surgery for cancer in the pancreas, duodenum or bile-duct

References

• Andersen O, Iuul C, E. C Opfølgningsprogram for kraeft i øvre mave-tarm In: Authority TDHaM, editor. 1 ed. www.sst.dk: The Danish Health and Medicine Authority 2015. p. 1–36.
   Google Scholar
• Ducreux M, Cuhna AS, Caramella C, et al. Cancer of the pancreas: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol. 2015;26:v56–v68.
   PubMed Web of Science ®Google Scholar
• Valle JW, Borbath I, Khan SA, et al. Biliary cancer: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol. 2016;27:v28–v37.
   PubMed Web of Science ®Google Scholar
• Lee SY, Goh BK, Sadot E, et al. Surgical strategy and outcomes in duodenal gastrointestinal stromal tumor. Ann Surg Oncol. 2017;24:202–210.
   PubMed Web of Science ®Google Scholar
• Deobald RG, Cheng ES, Ko YJ, et al. A qualitative study of patient and clinician attitudes regarding surveillance after a resection of pancreatic and peri-ampullary cancer. HPB (Oxford). 2015;17:409–415.
   PubMed Web of Science ®Google Scholar
• Andersson T, Falk K, Bjerså K, et al. Health is belonging: lived experiences during recovery after pancreaticoduodenectomy. Int Scholary Res Netw. 2012;602323:8.
   Google Scholar
• Wagland R, Richardson A, Armes J, et al. Treatment-related problems experienced by cancer patients undergoing chemotherapy: a scoping review. Eur J Cancer Care (Engl). 2015;24:605–617.
   PubMed Web of Science ®Google Scholar
• Hartung TJ, Brahler E, Faller H, et al. The risk of being depressed is significantly higher in cancer patients than in the general population: prevalence and severity of depressive symptoms across major cancer types. Eur J Cancer. 2017;72:46–53.
   PubMed Web of Science ®Google Scholar
• Elberg Dengso K, Hillingso J, Marcussen AM, et al. Health-related quality of life and anxiety and depression in patients diagnosed with cholangiocarcinoma: a prospective cohort study. Acta Oncol. 2017;56:198–204.
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research & evaluation methods – integrating theory and practice. 4 ed. United States of America: Sage Publications Inc; 2015. 832 p.
   Google Scholar
• Rahib L, Smith BD, Aizenberg R, et al. Projecting cancer incidence and deaths to 2030: the unexpected burden of thyroid, liver, and pancreas cancers in the United States. Cancer Res. 2014;74:2913–2921.
   PubMed Web of Science ®Google Scholar
• Dengso KE, Tjornhoj-Thomsen T, Dalton SO, et al. Gut disruption impairs rehabilitation in patients curatively operated for pancreaticoduodenal cancer – a qualitative study. BMC Cancer. 2018;18:1017.
   PubMed Web of Science ®Google Scholar
• Sau Johansen J, Rahbek J, Møller K, et al. Hvidbog om rehabiliteringsbegrebet. 2014. http://www.rehabiliteringsforum.dk/contentassets/519c219e42a3454da34db60a8454de58/hvidbog.pdf
   Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–357.
   PubMed Web of Science ®Google Scholar
• Thorne S. Interpretive description. Qualitative research for applied practice 2 ed. Routledge: Taylor and Francis group; 2016.
   Google Scholar
• Brandenbarg D, Berendsen AJ, de Bock GH. Patients' expectations and preferences regarding cancer follow-up care. Maturitas. 2017;105:58–63.
   PubMed Web of Science ®Google Scholar
• Calman L, Brunton L, Molassiotis A. Developing longitudinal qualitative designs: lessons learned and recommendations for health services research. BMC Med Res Methodol. 2013;13:14.
   PubMed Web of Science ®Google Scholar
• Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
   PubMed Web of Science ®Google Scholar
• Daamen LA, Groot VP, Heerkens HD, et al. Systematic review on the role of serum tumor markers in the detection of recurrent pancreatic cancer. HPB (Oxford). 2018;20:297–304.
   PubMed Web of Science ®Google Scholar
• Dahl L, Wittrup I, Petersen LK, et al. Paradoxes of follow-up – health professionals' views on follow-up after surgical treatment in gynecological cancer. Acta Oncol. 2015;54:194–199.
   PubMed Web of Science ®Google Scholar
• Eicher M, Matzka M, Dubey C, et al. Resilience in adult cancer care: an integrative literature review. Oncol Nurs Forum. 2015;42:E3–E16.
   PubMed Web of Science ®Google Scholar
• Dubey C, De Maria J, Hoeppli C, et al. Resilience and unmet supportive care needs in patients with cancer during early treatment: a descriptive study. Eur J Oncol Nurs. 2015;19:582–588.
   PubMed Web of Science ®Google Scholar
• Lin JJ, Smith CB, Feder S, et al. Patients' and oncologists' views on family involvement in goals of care conversations. Psycho-oncology. 2018;27:1035–1041.
   PubMed Web of Science ®Google Scholar
• Tolbert E, Bowie J, Snyder C, et al. A qualitative exploration of the experiences, needs, and roles of caregivers during and after cancer treatment: “That's what I say. I'm a relative survivor”. J Cancer Surviv. 2018;12:134–144.
   PubMed Web of Science ®Google Scholar
• Elmqvist C, Fridlund B, Ekebergh M. On a hidden game board: the patient's first encounter with emergency care at the emergency department. J Clin Nurs. 2012;21:2609–2616.
   PubMed Web of Science ®Google Scholar