518
Views
7
CrossRef citations to date
0
Altmetric
Immunology

Development of the Rheumatoid Arthritis Symptom Questionnaire (RASQ): a patient reported outcome scale for measuring symptoms of rheumatoid arthritis

, , , &
Pages 1643-1651 | Received 07 Feb 2017, Accepted 01 Jun 2017, Published online: 22 Jun 2017

References

  • Aletaha D, Neogi T, Silman A, et al. 2010 Rheumatoid arthritis classification criteria: an American College of Rheumatology/European League Against Rheumatism collaborative initiative. Arthritis Rheum 2010;62:2569-81
  • Gibofsky A. Overview of epidemiology, pathophysiology, and diagnosis of rheumatoid arthritis. Am J Manag Care 2012;18:295-302
  • Centers for Disease Control and Prevention. Prevalence of Doctor-Diagnosed Arthritis and Arthritis-Attributable Activity Limitation – United States, 2010–2012. Morb Mortal Wkly Rep 2013;62:869-73
  • Centers for Disease Control and Prevention. Prevalence and most common causes of disability among adults. Morb Mortal Wkly Rep 2005;58:421-6
  • Cross M, Smith E, Hoy D, et al. The global burden of rheumatoid arthritis: estimates from the global burden of disease 2010 study. Ann Rheum Dis 2014;73:1316-22
  • Cutolo M, Kitas GD, van Riel PL. Burden of disease in treated rheumatoid arthritis patients: going beyond the joint. Semin Arthritis Rheum 2014;43:479-88
  • Finney A, Thwaites C. Rheumatoid arthritis. 1: Background, symptoms and ensuring prompt diagnosis and treatment. Nurs Times 2010;106:22-4
  • Calkins DR, Rubenstein LV, Cleary PD, et al. Failure of physicians to recognize functional disability in ambulatory patients. Ann Intern Med 1991;114:451-4
  • US Department of Health and Human Services, Food and Drug Administration. Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. Silver Spring, MD: FDA, 2009
  • Institute of Medicine. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, DC: National Academy Press, 2001
  • Davis K, Schoenbaum SC, Audet AM. A 2020 vision of patient-centered primary care. J Gen Intern Med 2005;20:953-7
  • Her M, Kavanaugh A. Patient-reported outcomes in rheumatoid arthritis. Curr Opin Rheumatol 2012;24:327-34
  • Pincus T, Bergman MJ, Maclean R, Yazici Y. Complex measures and indices for clinical research compared with simple patient questionnaires to assess function, pain, and global estimates as rheumatology “vital signs” for usual clinical care. Rheum Dis Clin North Am 2009;35:779-86, ix
  • Amaya-Amaya J, Botello-Corzo D, Calixto OJ, et al. Usefulness of patients-reported outcomes in rheumatoid arthritis focus group. Arthritis 2012;2012:935187
  • Salaffi F, Franchignoni F, Giordano A, et al. Classical test theory and Rasch analysis validation of the Recent-Onset Arthritis Disability questionnaire in rheumatoid arthritis patients. Clin Rheumatol 2013;32:211-17
  • Bruce B, Fries JF. The Health Assessment Questionnaire (HAQ). Clin Exp Rheumatol 2005;23:S14-S18
  • van der Heijde DM, van ’t Hof MA, van Riel PL, et al. Judging disease activity in clinical practice in rheumatoid arthritis: first step in the development of a disease activity score. Ann Rheum Dis 1990;49:916-20
  • Berthelot JM, De BM, Morel J, et al. A tool to identify recent or present rheumatoid arthritis flare from both patient and physician perspectives: the ‘FLARE’ instrument. Ann Rheum Dis 2012;71:1110-16
  • Salaffi F, Migliore A, Scarpellini M, The NEW INDICES study. et al. Psychometric properties of an index of three patient reported outcome (PRO) measures, termed the CLinical ARthritis Activity (PRO-CLARA) in patients with rheumatoid arthritis. Clin Exp Rheumatol 2010;28:186-200
  • Leeb BF, Haindl PM, Maktari A, et al. Patient-centered rheumatoid arthritis disease activity assessment by a modified RADAI. J Rheumatol 2008;35:1294-9
  • Stucki G, Liang MH, Stucki S, et al. A self-administered rheumatoid arthritis disease activity index (RADAI) for epidemiologic research. Psychometric properties and correlation with parameters of disease activity. Arthritis Rheum 1995;38:795-8
  • van der Heijde DM, van ’t Hof M, van Riel PL, van de Putte LB. Development of a disease activity score based on judgment in clinical practice by rheumatologists. J Rheumatol 1993;20:579-81
  • Patrick DL, Burke LB, Gwaltney CJ, et al. Content validity-establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: part 2 – assessing respondent understanding. Value Health 2011;14:978-88
  • Weitzman EA, Miles MB. Computer Programs for Qualitative Data Analysis. London: Sage Publications, 1995
  • Friese S. ATLAS.ti 7 User Manual. ATLAS.ti Scientific Software Development GmbH, 2013
  • Bartlett SJ, Hewlett S, Bingham CO III, et al. Identifying core domains to assess flare in rheumatoid arthritis: an OMERACT international patient and provider combined Delphi consensus. Ann Rheum Dis 2012;71:1855-60
  • Sanderson T, Calnan M, Morris M, et al. Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociol Health Illn 2011;33:618-33
  • Stack RJ, Sahni M, Mallen CD, Raza K. Symptom complexes at the earliest phases of rheumatoid arthritis: a synthesis of the qualitative literature. Arthritis Care Res (Hoboken) 2013;65:1916-26
  • Tourangeau R. Cognitive aspects of survey methodology: Building a bridge between disciplines. Jabine TB, Straf ML, Tanur JM, Tourangeau R, eds. Washington, DC: National Academic Press, 1984
  • Beatty PC, Willis GB. Research synthesis: the practice of cognitive interviewing. Public Opinion Quarterly 2007;71:287-311
  • Ericsson KA, Simon HA. Verbal reports as data. Psychol Rev 1980;87:215
  • Rindfleisch JA, Muller D. Diagnosis and management of rheumatoid arthritis. Am Fam Physician 2005;72:1037-47
  • Wild D, Grove A, Martin M, et al. Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health 2005;8:94-104

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.