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Articles

Everyday Occupations and Other Factors in Relation to Mental Well-Being among Persons with Advanced Parkinson’s Disease

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Pages 1-18 | Received 03 May 2019, Accepted 09 Nov 2019, Published online: 26 Nov 2019

References

  • Altman, D. G. (1993). Practical statistics for medical research. London: Chapman & Hall.
  • Bejerholm, U., & Eklund, M. (2007). Occupational engagement in persons with schizophrenia: Relationships to self-related variables, psychopathology, and quality of life. American Journal of Occupational Therapy, 61(1), 21–32. doi:10.5014/ajot.61.1.21
  • Bowling, A. (2005). Just one question: If one question works, why ask several? Journal of Epidemiology & Community Health, 59(5), 342–345. doi:10.1136/jech.2004.021204
  • Brown, R. G., Landau, S., Hindle, J. V., Playfer, J., Samuel, M., Wilson, K. C., … Gibson, G. (2011). Depression and anxiety related subtypes in Parkinson's disease. Journal of Neurology, Neurosurgery & Psychiatry, 82(7), 803–809. doi:10.1136/jnnp.2010.213652
  • Carter, J. H., Stewart, B. J., Lyons, K. S., & Archbold, P. G. (2008). Do motor and nonmotor symptoms in PD patients predict caregiver strain and depression?. Movement Disorders, 23(9), 1211–1216. doi: 10.1002/mds.21686
  • Deane, K. H. O., Ellis-Hill, C., Dekker, K., Davies, P., & Clarke, C. E. (2003). A Delphi survey of best practice occupational therapy for Parkinson’s disease in the United Kingdom. British Journal of Occupational Therapy, 66(6), 247–254. doi:10.1177/030802260306600603
  • Dissanayaka, N. N. W., Sellbach, A., Matheson, S., O'Sullivan, J. D., Silburn, P. A., Byrne, G. J., … Mellick, G. D. (2010). Anxiety disorders in Parkinson's disease: Prevalence and risk factors. Movement Disorders, 25(7), 838–845. doi:10.1002/mds.22833
  • Eklund, M., Argentzell, E., Bejerholm, U., Tjörnstrand, C., & Brunt, D. (2017). Wellbeing, activity and housing satisfaction - Comparing residents with psychiatric disabilities in supported housing and ordinary housing with support. BMC Psychiatry, 17(1), 315. doi:10.1186/s12888-017-1472-2
  • Eklund, M., Bäckström, M., & Eakman, A. (2014). Psychometric properties and factor structure of the 13-item satisfaction with daily occupations scale when used with people with mental health problems. Health & Quality of Life Outcomes, 12(1), 308–323. doi:10.1186/s12955-014-0191-3
  • Eklund, M., Hermansson, A., & Håkansson, C. (2012). Meaning in life for people with schizophrenia: Does it include occupation? Journal of Occupational Science, 19(2), 93–105. doi:10.1080/14427591.2011.605833
  • Eklund, M., & Leufstadius, C. (2007). Relationships between occupational factors and health and well-being in individuals with persistent mental illness living in the community. Canadian Journal of Occupational Therapy, 74(4), 303–313. doi:10.1177/000841740707400403
  • Eklund, M., & Sandqvist, G. (2006). Psychometric properties of the satisfaction with daily occupations (SDO) instrument and the Manchester short assessment of quality of life (MANSA) in women with scleroderma and without known illness. Scandinavian Journal of Occupational Therapy, 13(1), 23–30. doi:10.1080/11038120500239578
  • Eklund, M., & Tjörnstrand, C. (2019). Associations between occupational and social interaction factors and well-being among people with psychiatric disabilities living in supported housing in Sweden. Journal of Occupational Science. DOI: 10.1080/14427591.2019.
  • Feddern Donbaek, D., & Elklit, A. (2014). A validation of the experiences in close relationships-relationship structures scale (ECR-RS) in adolescents. Attachment & Human Development, 16(1), 58–76. doi:10.1080/14616734.2013.850103
  • Forjaz, M. J., Chandiramani, C., & Martinez-Martin, P. (2011). The burden of non-motor symptoms. In K. R. Chaudhuri, A. Antonini, & P. Martinez-Martin (Eds.), Handbook of non-motor symptoms in Parkinson's disease (pp 13–26). London: Springer Healthcare.
  • Foster, E. R., Bedekar, M., & Tickle-Degnen, L. (2014). Systematic review of the effectiveness of occupational therapy-related interventions for people with Parkinson's disease. American Journal of Occupational Therapy, 68(1), 39–49. doi:10.5014/ajot.2014.008706
  • Foster, E. R., & Hershey, T. (2011). Everyday executive function is associated with activity participation in Parkinson disease without dementia. OTJR: Occupation, Participation and Health, 31(1_suppl), S16–S22. doi:10.3928/15394492-20101108-04
  • Fraley, R. C., Heffernan, M. E., Vicary, A. M., & Brumbaugh, C. C. (2011). The experiences in close relationships-relationship structures questionnaire: A method for assessing attachment orientations across relationships. Psychological Assessment, 23(3), 615–625. doi:10.1037/a0022898
  • Fraley, R. C., Waller, N. G., & Brennan, K. A. (2000). An item response theory analysis of self-report measures of adult attachment. Journal of Personality and Social Psychology, 78(2), 350–365. doi:10.1037//0022-3514.78.2.350
  • Franchignoni, F., Giordano, A., & Ferriero, G. (2008). Rasch analysis of the short form 8-item Parkinson’s disease questionnaire (PDQ-8). Quality of Life Research, 17(4), 541. doi:10.1007/s11136-008-9341-6
  • Gaudet, P. (2002). Measuring the impact of Parkinson's disease: An occupational therapy perspective. Canadian Journal of Occupational Therapy, 69(2), 104–113. doi:10.1177/000841740206900206
  • Gibson, G. (2016). ‘Signposts on the journey’; medication adherence and the lived body in men with Parkinson's disease. Social Science & Medicine, 152, 27–34. doi:10.1016/j.socscimed.2016.01.023
  • Giladi, N. (2009). Mobility and exercise in movement disorders. Parkinsonism & Related Disorders, 15, S46–S48. doi:10.1016/S1353-8020(09)70779-5
  • Goldberg, B., Britnell, E. S., & Goldberg, J. (2002). The relationship between engagement in meaningful activities and quality of life in persons disabled by mental illness. Occupational Therapy in Mental Health, 19(2), 17–44. doi:10.1300/J004v18n02_03
  • Hagell, P., & Nygren, C. (2007). The 39-item Parkinson’s disease questionnaire (PDQ-39) revisited: Implications for evidence-based medicine. Journal of Neurology, Neurosurgery & Psychiatry, 78, 1191–1198. doi:10.1136/jnnp.2006.111161
  • Hovelius, E., & Lindén, E. (2015). Anknytningsstil och självscheman hos personer i behandling för opiatberoende. Graduate Diploma in Psychotherapy. Psychology. Lund University. Lund.
  • Hultqvist, J., Wästberg, B., & Eklund, M. (2017). Satisfaction with daily occupations for elderly people (SDO-E)—Adaptation and psychometric testing. Healthcare, 5(4), 61. doi:10.3390/healthcare5040061
  • IBM SPSS statistics 24 core system user's guide. Retrieved from http://ftp://public.dhe.ibm.com/software/analytics/spss/documentation/statistics/24.0/en/client/Manuals/IBM_SPSS_Statistics_Core_System_User_Guide.pdf
  • Jenkinson, C., Fitzpatrick, R., Peto, V., Greenhall, R., & Hyman, N. (1997). The PDQ-8: Development and validation of a short-form Parkinson's disease questionnaire. Psychology & Health, 12(6), 805–814. doi:10.1080/08870449708406741
  • Law, M. (2002). Participation in the occupations of everyday life. American Journal of Occupational Therapy, 56(6), 640–649. doi:10.5014/ajot.56.6.640
  • Lutz, S. G., Holmes, J. D., Ready, E. A., Jenkins, M. E., & Johnson, A. M. (2016). Clinical presentation of anxiety in Parkinson’s disease: A scoping review. OTJR: Occupation, Participation and Health, 36(3), 134–147. doi:10.1177/1539449216661714
  • Martens, K. A. E., Ellard, C. G., & Almeida, Q. J. (2014). Does anxiety cause freezing of gait in Parkinson's disease? PLoS One, 9(9), e106561. doi:10.1371/journal.pone.0106561
  • Martínez-Martín, P., Guerrero-Díaz, M., & Frades-Payo, B. (2004). Neuropsychological disorders in Parkinson's disease: Evaluating them and their impact on the caregiver. Revista de Neurologia, 39(7), 639–645.
  • Martinez-Martin, P., Schapira, A. H. V., Stocchi, F., Sethi, K., Odin, P., MacPhee, G., … Chaudhuri, K. R. (2007). Prevalence of nonmotor symptoms in Parkinson's disease in an international setting; study using nonmotor symptoms questionnaire in 545 patients. Movement Disorders, 22(11), 1623–1629. doi:10.1002/mds.21586
  • Miertová, M., Tomagová, M., Jarošová, M., & Kiabová, L. (2014). Self-care in patients with Parkinson's disease. Central European Journal of Nursing & Midwifery, 5(2), 54–62.
  • Montel, S., Bonnet, A.-M., & Bungener, C. (2009). Quality of life in relation to mood, coping strategies, and dyskinesia in Parkinson’s disease. Journal of Geriatric Psychiatry and Neurology, 22(2), 95–102. doi:10.1177/0891988708328219
  • Murdock, C., Cousins, W., & Kernohan, W. G. (2015). Running water won't freeze”: How people with advanced Parkinson's disease experience occupation. Palliative and Supportive Care, 13(5), 1363–1372. doi:10.1017/S1478951514001357
  • Murphy, S., & Tickle-Degnen, L. (2001). The effectiveness of occupational therapy–related treatments for persons with Parkinson’s Disease: A meta-analytic review. American Journal of Occupational Therapy, 55(4), 385–392. doi:10.5014/ajot.55.4.385
  • Nicoletti, A., Mostile, G., Stocchi, F., Abbruzzese, G., Ceravolo, R., Cortelli, P., … Zappia, M. (2017). Factors influencing psychological well-being in patients with Parkinson’s disease. PLoS One, 12(12), e0189682. doi:10.1371/journal.pone.0189682
  • Nyholm, D., Klangemo, K., & Johansson, A. (2012). Levodopa/carbidopa intestinal gel infusion long‐term therapy in advanced Parkinson’s disease. European Journal of Neurology, 19(8), 1079–1085. doi:10.1111/j.1468-1331.2012.03679.x
  • Odin, P., & Dietrich, K. (2011). Neuropsychiatric symptoms. In K. R. Chaudhuri, A. Antonini, & P. Martinez-Martin (Eds.), Handbook of non-motor symptoms in Parkinson's disease (pp. 45–56). London: Springer Healthcare.
  • Odin, P., Ray Chaudhuri, K., Slevin, J. T., Volkmann, J., Dietrichs, E., Martinez-Martin, P., … Poewe, W. (2015). Collective physician perspectives on non-oral medication approaches for the management of clinically relevant unresolved issues in Parkinson's disease: Consensus from an international survey and discussion program. Parkinsonism & Related Disorders, 21(10), 1133–1144. doi:10.1016/j.parkreldis.2015.07.020
  • Oguh, O., Kwasny, M., Carter, J., Stell, B., & Simuni, T. (2013). Caregiver strain in Parkinson's disease: National Parkinson Foundation Quality Initiative Study. Parkinsonism & Related Disorders, 19(11), 975–979. doi:10.1016/j.parkreldis.2013.06.015
  • Persson, E., Rivano-Fischer, M., & Eklund, M. (2004). Evaluation of changes in occupational performance among patients in a pain management program. Journal of Rehabilitation Medicine, 36(2), 85–91. doi:10.1080/16501970310019142
  • Poewe, W. (2008). Non‐motor symptoms in Parkinson’s disease. European Journal of Neurology , 15(s1), 14–20. doi:10.1111/j.1468-1331.2008.02056.x
  • Rosqvist, K., Hagell, P., Odin, P., Ekström, H., Iwarsson, S., & Nilsson, M. H. (2017). Factors associated with life satisfaction in Parkinson's disease. Acta Neurologica Scandinavica, 136(1), 64–71. doi:10.1111/ane.12695
  • Sahlström, T., Eklund, M., Timpka, J., Henriksen, T., Nyholm, D., & Odin, P. (2018). Workforce participation and activities in Parkinson's disease patients receiving device-aided therapy. Acta Neurologica Scandinavica, 138(1), 78–84. doi:10.1111/ane.12929
  • Sandqvist, G., Åkesson, A., & Eklund, M. (2005). Daily occupations and well-being in women with limited cutaneous systemic sclerosis. American Journal of Occupational Therapy, 59(4), 390–397. doi:10.5014/ajot.59.4.390
  • Schrag, A., Hovris, A., Morley, D., Quinn, N., & Jahanshahi, M. (2006). Caregiver-burden in Parkinson's disease is closely associated with psychiatric symptoms, falls, and disability. Parkinsonism & Related Disorders, 12(1), 35–41. doi:10.1016/j.parkreldis.2005.06.011
  • Simpson, J., Haines, K., Lekwuwa, G., Wardle, J., & Crawford, T. (2006). Social support and psychological outcome in people with Parkinson's disease: Evidence for a specific pattern of associations. British Journal of Clinical Psychology, 45(4), 585–590. doi:10.1348/014466506X96490
  • Soleimani, M. A., Negarandeh, R., & Bastani, F. (2015). Exploring for self-care process in patients with Parkinson's disease: A grounded theory study. Journal of Gerontology, 21(1), 6. doi:10.18869/acadpub.joge.1.1.1
  • Špica, V., Pekmezović, T., Svetel, M., & Kostić, V. S. (2013). Prevalence of non-motor symptoms in young-onset versus late-onset Parkinson’s disease. Journal of Neurology, 260(1), 131–137. doi:10.1007/s00415-012-6600-9
  • Streiner, D. L., Norman, G. R., & Cairney, J. (2015). Health measurement scales: A practical guide to their development and use. Oxford, MS: Oxford University Press.
  • Sturkenboom, I. H. W. M., Graff, M. J. L., Hendriks, J. C. M., Veenhuizen, Y., Munneke, M., Bloem, B. R., & Nijhuis-van der Sanden, M. W. (2014). Efficacy of occupational therapy for patients with Parkinson's disease: A randomised controlled trial. The Lancet Neurology, 13(6), 557–566. doi:10.1016/S1474-4422(14)70055-9
  • Tickle-Degnen, L., Ellis, T., Saint-Hilaire, M. H., Thomas, C. A., & Wagenaar, R. C. (2010). Self-management rehabilitation and health-related quality of life in Parkinson's disease: A randomized controlled trial. Movement Disorders, 25(2), 194–204. doi:10.1002/mds.22940
  • Tickle-Degnen, L., Lur, S-y., & Pickett, J. (2015). Experience of Parkinson’s disease symptoms during daily life activities. American Journal of Occupational Therapy, 69(Suppl. 1), 6911505111p1. 6911505111p6911505111-6911505111p6911505111. doi:10.5014/ajot.2015.69S1-PO3087
  • Timpka, J., Nitu, B., Datieva, V., Odin, P., & Antonini, A. (2017). Device-aided treatment strategies in advanced Parkinson’s disease. International Review of Neurobiology, 132, 453–474.
  • Wästberg, B. A., Persson, E. B., & Eklund, M. (2016). The satisfaction with daily occupations (SDO-13) scale: Psychometric properties among clients in primary care in Sweden. Occupational Therapy in Health Care, 30(1), 29–41. doi:10.3109/07380577.2015.1048036
  • WHO. (2004). Promoting mental health: concepts, emerging evidence, practice. Summary report. Retrieved 2019 May 22 from https://www.who.int/mental_health/evidence/en/promoting_mhh.pdf.
  • Zampieri, M., & Pedroso de Souza, E. A. (2011). Locus of control, depression, and quality of life in Parkinson’s disease. Journal of Health Psychology, 16(6), 980–987. doi:10.1177/1359105310397220