A Qualitative Exploration of Occupational Adaptation in Caregivers of People with Multiple Sclerosis

References

• Blank, C. W., & Finlayson, M. (2007). Exploring the impact of multiple sclerosis on couples: a pilot study. Canadian Journal of Occupational Therapy, 74(2), 134–142. https://doi.org/10.1177/000841740707400201
   PubMedGoogle Scholar
• Boland, P., Levack, W., Hudson, S., & Bell, E. (2018). A qualitative exploration of barriers and facilitators to coping experienced by couples when one has multiple sclerosis. International Journal of Therapy and Rehabilitation, 25(5), 240–246. https://doi.org/10.12968/ijtr.2018.25.5.240
   Web of Science ®Google Scholar
• Bowen, C., MacLehose, A., & Beaumont, J. G. (2011). Advanced multiple sclerosis and the psychosocial impact on families. Psychology & Health, 26(1), 113–127. https://doi.org/10.1080/08870440903287934
   PubMed Web of Science ®Google Scholar
• Chaffey, L., & Fossey, E. (2004). Caring and daily life: Occupational experiences of women living with sons diagnosed with schizophrenia. Australian Occupational Therapy Journal, 51(4), 199–207. https://doi.org/10.1111/j.1440-1630.2004.00460.x
   Google Scholar
• Cockrell, J. R., & Folstein, M. F. (1988). Mini-Mental State Examination (MMSE). Psychopharmacology Bulletin, 24(4), 688–692.
   Google Scholar
• Courts, N., Newton, A., & McNeal, L. (2005). Husbands and wives living with multiple sclerosis. The Journal of Neuroscience Nursing: Journal of the American Association of Neuroscience Nurses, 37(1), 20–27. https://doi.org/10.1097/01376517-200502000-00004
   PubMedGoogle Scholar
• Crepeau, E. B., Cohn, E. S., & Schell, B. A. (2009). Willard's & Spackman's Occupational Therapy. 11th Edition. Lippincott Williams & Wilkins.
   Google Scholar
• Curry, L. C., Walker, C., & Hogstel, M. O. (2006). Educational needs of employed family caregivers of older adults: Evaluation of a workplace project. Geriatric Nursing (New York, N.Y.).), 27(3), 166–173. https://doi.org/10.1016/j.gerinurse.2006.03.008
   PubMed Web of Science ®Google Scholar
• Dooley, N. R., & Hinojosa, J. (2004). Improving quality of life for persons with Alzheimer’s disease and their family caregivers: Brief occupational therapy intervention. American Journal of Occupational Therapy, 58(5), 561–569. https://doi.org/10.5014/ajot.58.5.561
   PubMed Web of Science ®Google Scholar
• Ebrahimi, E., Hassankhani, H., Namdar, H., Khodadadi, S., & Ferguson, C. (2016). Experiences of Iranian family caregivers supporting individuals with multiple sclerosis: A qualitative study. International Journal of Medical Research & Health Sciences, 5(9), 174–182. http://hdl.handle.net/10453/54842
   Web of Science ®Google Scholar
• Ebrahimi, H., Hasankhani, H., Namdar, H., Khodadadi, E., & Fooladi, M. (2017). Dealing with chronic illness: Experiences of Iranian families of persons with multiple sclerosis-a qualitative study. Multiple Sclerosis International, 2017, 9243161 https://doi.org/10.1155/2017/9243161
   PubMed Web of Science ®Google Scholar
• Eslami, A. A., Rabiei, L., Abedi, H. A., Shirani, M., & Masoudi, R. (2016). Coping skills of Iranian family caregivers' in caretaking of patients undergoing haemodialysis: A qualitative study. J Ren Care, 42(3), 162–171. https://doi.org/10.1111/jorc.12166
   PubMed Web of Science ®Google Scholar
• Finlayson, M., Preissner, K., & Garcia, J. (2009). Pilot study of an educational programme for caregivers of people ageing with multiple sclerosis. British Journal of Occupational Therapy, 72(1), 11–19. https://doi.org/10.1177%2F030802260907200104
   Web of Science ®Google Scholar
• Graff, M., Vernooij-Dassen, M., Thijssen, M., Dekker, J., Hoefnagels, W., & Olde Rikkert, M. (2007). Effects of community occupational therapy on quality of life, mood, and health status in dementia patients and their caregivers: A randomized controlled trial. The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 62(9), 1002–1009. https://doi.org/10.1093/gerona/62.9.1002
   PubMed Web of Science ®Google Scholar
• Grajo, L., Boisselle, A., & DaLomba, E. (2018). Occupational adaptation as a construct: A scoping review of literature. The Open Journal of Occupational Therapy, 6(1), 1–6. https://doi.org/10.15453/2168-6408.1400
   PubMedGoogle Scholar
• Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2), 105–112. https://doi.org/10.1016/j.nedt.2003.10.001
   PubMed Web of Science ®Google Scholar
• Hogan, V. M., Lisy, E. D., Savannah, R. L., Henry, L., Kuo, F., & Fisher, G. S. (2004). Role exchange experienced by family caregivers of adults with Alzheimers disease: implications for occupational therapy. Physical & Occupational Therapy in Geriatrics, 22(1), 21–43. https://doi.org/10.1080/J148v22n01_02
   Google Scholar
• Hassankhani, Taleghani, F., Mills, J., Birks, M., Francis, K., & Ahmadi, F. (2010). Being hopeful and continuing to move ahead: religious coping in Iranian chemical warfare poisoned veterans, a qualitative study. Journal of Religion and Health, 49 (3), 311–321. https://doi.org/10.1007/s10943-009-9252-z
   PubMed Web of Science ®Google Scholar
• Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687
   PubMed Web of Science ®Google Scholar
• Kurtzke, J. F. (1983). Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology, 33(11), 1444–1452. https://doi.org/10.1212/wnl.33.11.1444
   PubMed Web of Science ®Google Scholar
• Lexell, E. M., Iwarsson, S., & Larsson Lund, M. (2011). Occupational adaptation in people with multiple sclerosis. OTJR: Occupation, Participation and Health, 31 (3), 127–134.
   Web of Science ®Google Scholar
• Lincoln, S. Y., & Guba, E. G. (1985). Naturalistic inquiry. Sage.
   Google Scholar
• Lublin, F., & Miller, A. (2008). Multiple sclerosis and other inflammatory demyelinating diseases of the central nervous system. In W. G. Bradley, R. B. Daroff, G. M. Fenichel, & J. Jankovic (Eds.), Neurology in clinical practice (3rd ed., Vol. 2), Butterworth-Heinemann.
   Google Scholar
• McDougall, C., Buchanan, A., & Peterson, S. (2014). Understanding primary carers' occupational adaptation and engagement. Australian Occupational Therapy Journal, 61(2), 83–91. https://doi.org/10.1111/1440-1630.12076
   PubMed Web of Science ®Google Scholar
• Moreno-Cámara, S., Palomino-Moral, P. A., Moral-Fernández, L., Frías-Osuna, A., Parra-Anguita, L., & del-Pino-Casado, R. (2019). Perceived needs of the family caregivers of people with dementia in a Mediterranean setting: A qualitative study. International Journal of Environmental Research and Public Health, 16(6), 993. https://doi.org/10.3390/ijerph16060993
   Web of Science ®Google Scholar
• Polit, D. F., & Beck, C. T. (2013). Essentials of nursing research: Appraising evidence for nursing practice. Lippincott Williams & Wilkins.
   Google Scholar
• Polman, C. H., Reingold, S. C., Banwell, B., Clanet, M., Cohen, J. A., Filippi, M., Fujihara, K., Havrdova, E., Hutchinson, M., Kappos, L., Lublin, F. D., Montalban, X., O'Connor, P., Sandberg-Wollheim, M., Thompson, A. J., Waubant, E., Weinshenker, B., & Wolinsky, J. S. (2011). Diagnostic criteria for multiple sclerosis: 2010 revisions to the McDonald criteria. Annals of Neurology, 69 (2), 292–302. https://doi.org/10.1002/ana.22366
   PubMed Web of Science ®Google Scholar
• Schkade, J. K., & Schultz, S. (1992). Occupational adaptation: Toward a holistic approach for contemporary practice, part I. American Journal of Occupational Therapy, 45, 829–837. https://doi.org/10.5014/ajot.46.9.829
   Google Scholar
• Schultz, S., & Schkade, J. K. (1992). Occupational adaptation: Toward a holistic approach for contemporary practice, part 2. The American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association, 46(10), 917–925. https://doi.org/10.5014/ajot.46.10.917
   PubMed Web of Science ®Google Scholar
• Sharrack, B., Hughes, R. A. C., Soudain, S., & Dunn, G. (1999). The psychometric properties of clinical rating scales used in multiple sclerosis. Brain, 122(1), 141–159. https://doi.org/10.1093/brain/122.1.141
   PubMed Web of Science ®Google Scholar
• White, S. M., Riley, A., & Flom, P. (2013). Assessment of Time Management Skills (ATMS): A practice-based outcome questionnaire. Occupational Therapy in Mental Health, 29(3), 215–231. https://doi.org/10.1080/0164212X.2013.819481
   Google Scholar