150
Views
0
CrossRef citations to date
0
Altmetric
Research Articles on Demenita

Can Occupation-Based Interventions for People Living with Dementia and Their Spousal Caregivers Support Positive Aspects of Caregiving? A Scoping Review

, , , &
Pages 291-316 | Received 09 Nov 2023, Accepted 24 Feb 2024, Published online: 04 Mar 2024

References

  • Arksey, H., & O’Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. https://doi.org/10.1080/1364557032000119616
  • Backman, C. L. (2004). Occupational balance: Exploring the relationships among daily occupations and their influence on well-being. Canadian Journal of Occupational Therapy. Revue Canadienne D’ergotherapie, 71(4), 202–209. https://doi.org/10.1177/000841740407100404
  • Baker, F. A., Grocke, D., & Pachana, N. A. (2012). Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia. Australian Journal of Music Therapy, 23, 4–21.
  • Bourne, P., Camic, P. M., & Crutch, S. J. (2021). Psychosocial outcomes of dyadic arts interventions for people with a dementia and their informal caregivers: A systematic review. Health & Social Care in the Community, 29(6), 1632–1649. https://doi.org/10.1111/hsc.13267
  • Brodaty, H., & Donkin, M. (2009). Family caregivers of people with dementia. Dialogues in Clinical Neuroscience, 11(2), 217–228. https://doi.org/10.31887/DCNS.2009.11.2/hbrodaty
  • Carbonneau, H., Caron, C., & Desrosiers, J. (2010). Development of a conceptual framework of positive aspects of caregiving in dementia. Dementia, 9(3), 327–353. https://doi.org/10.1177/1471301210375316
  • Cheng, S., Fung, H. H., Chan, W. C., & Lam, L. C. W. (2016). Short-term effects of a gain-focused reappraisal intervention for dementia caregivers: A double-blind cluster-randomized controlled trial. The American Journal of Geriatric Psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 24(9), 740–750. https://doi.org/10.1016/j.jagp.2016.04.012
  • Cheng, S., Mak, E. P. M., Fung, H. H., Kwok, T., Lee, D. T. F., & Lam, L. C. W. (2017). Benefit-finding and effect on caregiver depression: A double-blind randomized controlled trial. Journal of Consulting and Clinical Psychology, 85(5), 521–529. https://doi.org/10.1037/ccp0000176
  • Clark, I. N., Stretton-Smith, P. A., Baker, F. A., Lee, Y. E. C., & Tamplin, J. (2020). “It’s Feasible to Write a Song”: A feasibility study examining group therapeutic songwriting for people living with dementia and their family caregivers. Frontiers in Psychology, 11, 1951. https://doi.org/10.3389/fpsyg.2020.01951
  • Clark, I. N., Tamplin, J. D., & Baker, F. A. (2018). Community-dwelling people living with dementia and their family caregivers experience enhanced relationships and feelings of well-being following therapeutic group singing: A qualitative thematic analysis. Frontiers in Psychology, 9, 1332. https://doi.org/10.3389/fpsyg.2018.01332
  • Demers, L. (2022). Expanding occupational therapy perspectives with family caregivers. Canadian Journal of Occupational Therapy. Revue Canadienne D’ergotherapie, 89(3), 223–237. https://doi.org/10.1177/00084174221103952
  • Donovan, M. L., & Corcoran, M. A. (2010). Description of dementia caregiver uplifts and implications for occupational therapy. The American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association, 64(4), 590–595. https://doi.org/10.5014/ajot.2010.09064
  • Dowlen, R., Keady, J., Milligan, C., Swarbrick, C., Ponsillo, N., Geddes, L., & Riley, B. (2022). In the moment with music: An exploration of the embodied and sensory experiences of people living with dementia during improvised music-making. Ageing and Society, 42(11), 2642–2664. https://doi.org/10.1017/S0144686X21000210
  • Dowson, B., Schneider, J., McDermott, O., & Orrell, M. (2023). Online singing groups for people with dementia: Adaptation and resilience in the face of the COVID-19 pandemic. Dementia (London, England), 22(7), 1348–1371. https://doi.org/10.1177/14713012231179262
  • Edwards, M. (2015). Family caregivers for people with dementia and the role of occupational therapy. Physical & Occupational Therapy in Geriatrics, 33(3), 220–232. https://doi.org/10.3109/02703181.2015.1031926
  • Han, A. (2019). Interventions for attitudes and empathy toward people with dementia and positive aspects of caregiving: A systematic review and meta-analysis. Research on Aging, 42(2), 72–82. https://doi.org/10.1177/0164027519884766
  • Hooper, E. K., & Collins, T. (2019). An occupational perspective of the lived experience of familial dementia caregivers: A thematic review of qualitative literature. Dementia (London, England), 18(1), 323–346. https://doi.org/10.1177/1471301216672489
  • Ingersoll-Dayton, B., Spencer, B., Kwak, M., Scherrer, K., Allen, R. S., & Campbell, R. (2013). The couples life story approach: A dyadic intervention for dementia. Journal of Gerontological Social Work, 56(3), 237–254. https://doi.org/10.1080/01634372.2012.758214
  • Karlsson, E., Axelsson, K., Zingmark, K., Fahlander, K., & Sävenstedt, S. (2014). Supporting conversations between individuals with dementia and their family members. Journal of Gerontological Nursing, 40(2), 38–46. https://doi.org/10.3928/00989134-20130916-07
  • Kindell, J., Wilkinson, R., Sage, K., & Keady, J. (2018). Combining music and life story to enhance participation in family interaction in semantic dementia: A longitudinal study of one family’s experience. Arts & Health, 10(2), 165–180. https://doi.org/10.1080/17533015.2017.1342269
  • Kwak, M., Han, J. W., & Ha, J. H. (2018). Telling life stories: A dyadic intervention for older Korean couples affected by mild Alzheimer’s disease. International Psychogeriatrics, 30(7), 1009–1018. https://doi.org/10.1017/S1041610217002423
  • Lee, S., O’Neill, D., & Moss, H. (2022). Promoting well-being among people with early-stage dementia and their family carers through community-based group singing: A phenomenological study. Arts & Health, 14(1), 85–101. https://doi.org/10.1080/17533015.2020.1839776
  • Letts, L., Edwards, M., Berenyi, J., Moros, K., O’Neill, C., O’Toole, C., & McGrath, C. (2011). Using occupations to improve quality of life, health and wellness, and client and caregiver satisfaction for people with Alzheimer’s disease and related dementias. The American Journal of Occupational Therapy: Official Publication of the American Occupational Therapy Association, 65(5), 497–504. https://doi.org/10.5014/ajot.2011.002584
  • Lloyd, J., Patterson, T., & Muers, J. (2016). The positive aspects of caregiving in dementia: A critical review of the qualitative literature. Dementia (London, England), 15(6), 1534–1561. https://doi.org/10.1177/1471301214564792
  • Ma, K. P. K., & Saw, A. (2020). An international systematic review of dementia caregiving interventions for Chinese families. International Journal of Geriatric Psychiatry, 35(11), 1263–1284. https://doi.org/10.1002/gps.5400
  • Madsø, K. G., Molde, H., Hynninen, K. M., & Nordhus, I. H. (2022). Observing music therapy in dementia: Repeated single-case studies assessing well-being and sociable interaction. Clinical Gerontologist, 45(4), 968–982. https://doi.org/10.1080/07317115.2021.1978121
  • McMahon, K., McFerran, K., Clark, I. N., Odell-Miller, H., Stensæth, K., Tamplin, J., & Baker, F. A. (2023). Learning to use music as a resource: The experiences of people with dementia and their family care partners participating in a home-based skill-sharing music intervention: A HOMESIDE sub-study. Frontiers in Medicine, 10, 1205784. https://doi.org/10.3389/fmed.2023.1205784
  • Merrilees, J. (2016). The impact of dementia on family caregivers: What is research teaching us? Current Neurology and Neuroscience Reports, 16(10), 88. https://doi.org/10.1007/s11910-016-0692-z
  • Mittelman, M. S., & Papayannopoulou, P. M. (2018). The Unforgettables: A chorus for people with dementia with their family members and friends. International Psychogeriatrics, 30(6), 779–789. https://doi.org/10.1017/S1041610217001867
  • Moon, H., & Dilworth-Anderson, P. (2015). Baby boomer caregiver and dementia caregiving: Findings from the National Study of Caregiving. Age and Ageing, 44(2), 300–306. https://doi.org/10.1093/ageing/afu119
  • Nogueira, M. M. L., Neto, J. P. S., & Dourado, M. C. N. (2021). Quality of life of people with alzheimer disease: Comparison between dyads degree of kinship. Journal of Geriatric Psychiatry and Neurology, 34(2), 119–127. https://doi.org/10.1177/0891988720915521
  • Oliveira, D., Sousa, L., & Orrell, M. (2019). Improving health-promoting self-care in family carers of people with dementia: A review of interventions. Clinical Interventions in Aging, 14, 515–523. https://doi.org/10.2147/CIA.S190610
  • O’Connor, C. M., Clemson, L., Brodaty, H., Low, L.-F., Jeon, Y.-H., Gitlin, L. N., Piguet, O., & Mioshi, E. (2019). The tailored activity program (TAP) to address behavioral disturbances in frontotemporal dementia: A feasibility and pilot study. Disability and Rehabilitation, 41(3), 299–310. https://doi.org/10.1080/09638288.2017.1387614
  • O’Shaughnessy, M., Lee, K., & Lintern, T. (2010). Changes in the couple relationship in dementia care: Spouse carers’ experiences. Dementia, 9(2), 237–258. https://doi.org/10.1177/1471301209354021
  • Pickering, C. E., Yefimova, M., Maxwell, C., Puga, F., & Sullivan, T. (2020). Daily context for abusive and neglectful behavior in family caregiving for dementia. The Gerontologist, 60(3), 483–493. https://doi.org/10.1093/geront/gnz110
  • Quinn, C., & Toms, G. (2019). Influence of positive aspects of dementia caregiving on caregivers’ well-being: A systematic review. The Gerontologist, 59(5), e584–e596. https://doi.org/10.1093/geront/gny168
  • Richardson, T. J., Lee, S. J., Berg-Weger, M., & Grossberg, G. T. (2013). Caregiver health: Health of caregivers of Alzheimer’s and other dementia patients. Current Psychiatry Reports, 15(7), 367. https://doi.org/10.1007/s11920-013-0367-2
  • Schafer, R., Karstens, A., Hospelhorn, E., Wolfe, J., Ziemba, A., Wise, P., Crown, R., Rook, J., & Bonakdarpour, B. (2022). Musical Bridges to Memory: A pilot dyadic music intervention to improve social engagement in dementia. Alzheimer Disease and Associated Disorders, 36(4), 312–318. https://doi.org/10.1097/WAD.0000000000000525
  • Shim, B., Barroso, J., Gilliss, C. L., & Davis, L. L. (2013). Finding meaning in caring for a spouse with dementia. Applied Nursing Research: ANR, 26(3), 121–126. https://doi.org/10.1016/j.apnr.2013.05.001
  • Skingley, A., Billam, D., Clarke, D., Hodges, R., Jobson, I., Jobson, R., Moore, J., Vella-Burrows, T., Vickers, P., Walker, J., & West, H. (2021). Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad. Dementia (London, England), 20(4), 1319–1335. https://doi.org/10.1177/1471301220933121
  • Thompson, Z., Tamplin, J., Clark, I., & Baker, F. (2023). Therapeutic choirs for families living with dementia: A phenomenological study. Activities, Adaptation & Aging, 47(1), 40–74. https://doi.org/10.1080/01924788.2022.2056682
  • Unadkat, S., Camic, P. M., & Vella-Burrows, T. (2017). Understanding the experience of group singing for couples where one partner has a diagnosis of dementia. The Gerontologist, 57(3), 469–478. https://doi.org/10.1093/geront/gnv698
  • Vella-Burrows, T. (2017). Carers Create 2015-2017: Report on Activities and Evaluation of Effect. https://www.music4wellbeing.org.uk/wp-content/uploads/2021/01/Carers-Create-Report-on-Activities-FINAL-D_P-PDF.pdf
  • Wang, J., Li, X., Liu, W., Yang, B., Zhao, Q., Lü, Y., & Xiao, M. (2022). The positive aspects of caregiving in dementia: A scoping review and bibliometric analysis. Frontiers in Public Health, 10, 985391. https://doi.org/10.3389/fpubh.2022.985391
  • Whitlatch, C. J., Judge, K., Zarit, S. H., & Femia, E. (2006). Dyadic intervention for family caregivers and care receivers in early-stage dementia. The Gerontologist, 46(5), 688–694. https://doi.org/10.1093/geront/46.5.688
  • Windle, G., Caulfield, M., Woods, B., & Joling, K. (2020). How can the arts influence the attitudes of dementia caregivers? A mixed-methods longitudinal investigation. The Gerontologist, 60(6), 1103–1114. https://doi.org/10.1093/geront/gnaa005
  • Yu, S. F., Cheng, S. T., & Wang, J. (2018). Unravelling positive aspects of caregiving in dementia: An integrative review of research literature. International Journal of Nursing Studies, 79, 1–26. https://doi.org/10.1016/j.ijnurstu.2017.10.008

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.