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Original Article

Caregiver distress in schizophrenia and mood disorders: the role of illness-related stressors and caregiver-related factors

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Pages 64-72 | Received 25 Oct 2017, Accepted 10 Dec 2018, Published online: 12 Jan 2019

References

  • Zarit SH, Edwards AB. Family caregiving: research and clinical intervention. In: Woods RT, editor. Psychological problems of ageing: assessment, treatment and care. Chichester, England: John Wiley & Sons; 1999. p. 153–193.
  • Shankar R, Rao K. From burden to empowerment: the journey of family caregivers in India. In: Sartorius N, Leff J, Lopez Ibor JJ, Okasha A, editors. Families and mental disorders: from burden to empowerment. Chichester, England: John Wiley & Sons; 2005. p. 259–290.
  • Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer; 1984.
  • Szmukler GI, Burgess P, Herrman H, et al. Caring for relatives with serious mental illness: the development of the experience of caregiving inventory. Soc Psychiatry Psychiatr Epidemiol. 1996;31:137–148.
  • Rungreangkulkij S, Gilliss CL. Conceptual approaches to studying family caregiving for persons with severe mental illness. J Fam Nurs. 2000;6:341–366.
  • Oyebode J. Assessment of carers’ psychological needs. Adv Psychiatr Treat. 2003;9:45–53.
  • Brodaty H, Donkin M. Family caregivers of people with dementia. Dialogues Clin Neurosci. 2009;11:217–228.
  • Knight BG, Sayegh P. Cultural values and caregiving: the updated sociocultural stress and coping model. J Gerontol B Psychol Sci Soc Sci. 2010;65B:5–13.
  • Addington J, McCleery A, Addington D. Three-year outcome of family work in an early psychosis program. Schizophr Res. 2005;79:107–116.
  • Moller-Leimkuhler AM. Burden of relatives and predictors of burden. Baseline results from the Munich 5-year-follow-up study on relatives of first hospitalized patients with schizophrenia or depression. Eur Arch Psychiatry Clin Neurosci. 2005;255:223–231.
  • Campbell P, Wright J, Oyebode J, et al. Determinants of burden in those who care for someone with dementia. Int J Geriatr Psychiatry. 2008;23:1078–1085.
  • Suro G. Ethnic/racial differences in the experience of burden and psychological outcomes for caregivers of patients with schizophrenia: the influence of family cohesion and interdependence. Dissertation, University of Miami, Open Access Theses. Paper 274: 2011[cited 2017 March 3]. Available From: http://scholarlyrepository.miami.edu/oa_theses/274
  • Moller-Leimkuhler AM, Wiesheu A. Caregiver burden in chronic mental illness: the role of patient and caregiver characteristics. Eur Arch Psychiatry Clin Neurosci. 2012;262:157–166.
  • Jansen JE, Haahr UH, Harder S. Caregiver distress in first-episode psychosis: the role of subjective appraisal, over-involvement and symptomatology. Soc Psychiatry Psychiatr Epidemiol. 2015;50:371–378.
  • Perlick DA, Rosenheck RA, Miklowitz DJ, et al. Caregiver burden and health in bipolar disorder: a cluster analytic approach. J Nerv Ment Dis. 2008;196:484–491.
  • Perlick D, Clarkin JF, Sirey J, et al. Burden experienced by care-givers of persons with bipolar affective disorder. Br J Psychiatry. 1999;175:56–62.
  • Joyce J, Leese M, Szmukler G. The Experience of Caregiving Inventory: further evidence. Soc Psychiatry Psychiatr Epidemiol. 2000;35:185–189.
  • Joyce J, Leese M, Kuipers E, et al. Evaluating a model of caregiving for people with psychosis. Soc Psychiatry Psychiatr Epidemiol. 2003;38:189–195.
  • Mackay C, Pakenham KI. Identification of stress and coping risk and protective factors associated with changes in adjustment to caring for an adult with mental illness. J Clin Psychol. 2011;67:1064–1079.
  • Mackay C, Pakenham KI. A stress and coping model of adjustment to caring for an adult with mental illness. Community Ment Health J. 2012;48:450–462.
  • American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders, 4th ed. Washington (DC): American Psychiatric Association; 1994.
  • Sheehan DV, Lecrubier Y, Sheehan KH, et al. The Mini-International Neuropsychiatric Interview (M.I.N.I.): the development and validation of a structured diagnostic psychiatric interview for DSM-IV and ICD 10. J Clin Psychiatry. 1998;59:22–33.
  • Andreasen NC, Carpenter WT, Kane JM, et al. Remission in schizophrenia: proposed criteria and rationale for consensus. Ajp. 2005;162:441–449.
  • Hamilton M. Hamilton Psychiatric Rating Scale for primary depressive illness. Br J Soc Clin Psychol. 1967;6:278–296.
  • Young RC, Biggs JT, Ziegler VE, et al. A rating scale for mania: reliability, validity and sensitivity. Br J Psychiatry. 1978;133:429–435.
  • Kumar N, Shekhar C, Kumar P, et al. Kuppuswamy's Socioeconomic Status scale-updating for 2007. Indian J Pediatr. 2007;74:1131–1132.
  • Kay SR, Fiszbein A, Opler A. The Positive and Negative Syndrome Scale (PANSS) for Schizophrenia. Schizophr Bull. 1987;13:261–276.
  • Pai S, Kapur RL. The burden on the family of a psychiatric patient: development of an interview schedule. Br J Psychiatry. 1981;138:332–335.
  • Nehra R, Chakrabarti S, Sharma R, et al. Psychometric properties of the Hindi version of the coping checklist of Scazufca and Kuipers. Ind J Clin Psychol. 2002;29:79–84.
  • Scazufca M, Kuipers E. Coping strategies in relatives of people with schizophrenia before and after psychiatric admission. Br J Psychiatry. 1999;174:154–158.
  • Wig NN, Verma SK. Construction and standardization of PGI Health Questionnaire N2. Agra, India: Agra Psychological Research Cell; 1979.
  • Broadhead WE, Gehlbach SH, De Gruy FV, et al. The Duke-UNC Functional Social Support Questionnaire: measurement of social support in family medicine patients. Med Care. 1988;26:709–723.
  • Sabogal F, Marin G, Otero-Sabogal R, et al. Hispanic familism and acculturation: what changes and what doesn't? Hisp J Behav Sci. 1987;9:397–412.
  • Moos R, Moos BS. Family Environment Scale. Palo Alto: Consulting Psychologists Press; 1986.
  • Goldberg DP, Gater R, Sartorius N, et al. The validity of two versions of the GHQ in the WHO study of mental illness in general health care. Psychol Med. 1997;27:191–197.
  • World Health Organization. Process of translation and adaptation of instruments. 2015 [cited 2015 July 26]. Available From: http://www.who.int/substance_abuse/research_tools/translation/en.
  • Yang HK, Shin DW, Park JH, et al. The association between perceived social support and continued smoking in cancer survivors. Jpn J Clin Oncol. 2013;43:45–54.
  • Jansen JE, Gleeson J, Cotton S. Towards a better understanding of caregiver distress in early psychosis: a systematic review of the psychological factors involved. Clin Psychol Rev. 2015;35:56–66.
  • Awad AG, Voruganti LN. The burden of schizophrenia on caregivers: a review. Pharmacoeconomics. 2008;26:149–162.
  • Ogilvie AD, Morant N, Goodwin GM. The burden on informal caregivers of people with bipolar disorder. Bipolar Disord Suppl. 2005;7:25–32.
  • Chakrabarti S, Raj L, Kulhara P, et al. A comparison of the extent and pattern of family burden in affective disorders and schizophrenia. Indian J Psychiatry. 1995;37:105–112.
  • Perlick DA, Rosenheck RA, Miklowitz DJ, et al. Prevalence and correlates of burden among caregivers of patients with bipolar disorder enrolled in the Systematic Treatment Enhancement Program for Bipolar Disorder. Bipolar Disord. 2007;9:262–273.
  • Barrowclough C. Families of people with schizophrenia. In: Sartorius N, Leff J, Lopez Ibor JJ, Okasha A, editors. Families and mental disorders: from burden to empowerment. Chichester, England: John Wiley & Sons; 2005. p. 1–24.
  • Steele A, Maruyama N, Galynker I. Psychiatric symptoms in caregivers of patients with bipolar disorder: a review. J Affect Disord. 2010;121:10–21.
  • Chakrabarti S, Gill S. Coping and its correlates among caregivers of patients with bipolar disorder: a preliminary study. Bipolar Disord. 2002;4:50–60.
  • Nehra R, Chakrabarti S, Kulhara P, et al. Caregiver-coping in bipolar disorder and schizophrenia-a re-examination. Soc Psychiatry Psychiatr Epidemiol. 2005;40:329–336.
  • Grover S, Chakrabarti S, Aggarwal M, et al. Comparative study of the experience of caregiving in bipolar affective disorder and schizophrenia. Int J Soc Psychiatry. 2012;58:614–622.
  • Mueser KT, Webb C, Pfeiffer M, et al. Family burden of schizophrenia and bipolar disorder: perceptions of relatives and professionals. Psychiatr Serv. 1996;47:507–511.
  • Ostman M, Wallsten T, Kjellin L. Family burden and relatives' participation in psychiatric care: are the patient's diagnosis and the relation to the patient of importance? Int J Soc Psychiatry. 2005;51:291–301.
  • von Kardorff E, Soltaninejad A, Kamali M, et al. Family caregiver burden in mental illnesses: the case of affective disorders and schizophrenia – a qualitative exploratory study. Nord J Psychiatry. 2016;70:248–254.
  • Ayalong L. Cultural variants of caregiving or the culture of caregiving. J Cult Divers. 2004;11:131–138.
  • Nunley M. The involvement of families in Indian psychiatry. Cult Med Psychiatry. 1998;22:317–353.
  • Aranda MP, Knight BG. The influence of ethnicity and culture on the caregiver stress and coping process: a sociocultural review and analysis. Gerontologist. 1997;37:342–354.
  • Hoenig J, Hamilton MW. The schizophrenic patient in the community and his effect on the household. Int J Soc Psychiatry. 1966;12:165–176.
  • Moller-Leimkuhler AM. Multivariate prediction of relatives' stress outcome one year after first hospitalization of schizophrenic and depressed patients. Eur Arch Psychiatry Clin Neurosci. 2006;256:122–130.
  • Moller-Leimkuhler AM, Obermeier M. Predicting caregiver burden in first admission psychiatric patients. 2-year follow-up results. Eur Arch Psychiatry Clin Neurosci. 2008;258:406–413.
  • Moller-Leimkuhler AM, Madger F. Personality factors and mental health outcome in caregivers of first hospitalized schizophrenic and depressed patients: 2-year follow-up results. Eur Arch Psychiatry Clin Neurosci. 2011;261:165–172.
  • Lautenschlager NT, Kurz AF, Loi S, et al. Personality of mental health caregivers. Curr Opin Psychiatry. 2013;26:97–101.
  • Dyck DG, Short R, Vitaliano PP. Predictors of burden and infectious illness in schizophrenia caregivers. Psychosom Med. 1999;61:4119.
  • Grandón P, Jenaro C, Lemos S. Primary caregivers of schizophrenia outpatients: burden and predictor variables. Psychiatry Res. 2008;158:335–343.
  • Baandrup L, Østrup Rasmussen J, Klokker L, et al. Treatment of adult patients with schizophrenia and complex mental health needs – a national clinical guideline. Nord J Psychiatry. 2016;70:231–240.

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