References
- Centers for Disease Control and Prevention. Disabilities among children aged <17 years, United States, 1991–1992. Morb Mortal Wkly Rep 1995; 44: 609–612
- Farmer J E, Deidrick K K. Introduction to childhood disability. Treating neurodevelopmental disabilities: Clinical research and practice, J E Farner, J Donders, S Warschausky. The Guilford Press, New York 2006; 3–20
- Cadman D, Boyle M H, Offord D R, Szatmari P, Raegrant N I, Crawford J, Byles J. Chronic illness and functional limitation in Ontario children – Findings of the Ontario Child Health Study. CMAJ 1986; 135: 761–767
- Gortmaker S L, Walker D K, Weitzman M, Sobol A M. Chronic conditions, socioeconomic risks, and behavioral problems in children and adolescents. Pediatrics 1990; 85: 267–276
- Howe G W, Feinstein C, Reiss D, Molock S, Berger K. Adolescent adjustment to chronic physical disorders. I. Comparing neurological and non-neurological conditions. J Clin Child Psychol Psychiatry 1993; 34: 1153–1171
- McDermott S, Mani S, Krishnaswami S. A population based analysis of specific behavior problems associated with childhood seizures. J Epilepsy 1995; 8: 110–118
- McDermott S, Coker A L, Mani S, Krishnaswami S, Nagle R J, Barnett-Queen L, Wuori W F. A population based analysis of behavior problems in children with cerebral palsy. J Pediatr Psychol 1996; 21: 447–463
- Rutter M, Graham P, Yule W. A neuropsychiatric study in children. Spastics International Medical Publications, London 1970
- Weiland S K, Pless I B, Roghmann K. Chronic illness and mental health problems in pediatric practice: Results from a survey of primary care providers. Pediatrics 1992; 89: 445–449
- Breslau N, Marshall I A. Psychological disturbance in children with physical disabilities: Continuity and change in a 5-year follow up. J Abnorm Child Psychol 1985; 13: 199–215
- Seltzer M M, Floyd F, Greenberg J, Jounds J, Lindstrom M, Hong J. Life course impacts of mild intellectual deficits. Am J Mental Retard 2005; 110: 451–468
- Schor E L. Family pediatrics: Report of the American Academy of Pediatrics Task Force on the Family. Pediatrics 2003; 111: 1541–1571
- ILO, UNESCO, UNICEF, WHO. Community-based rehabilitation for and with people with disabilities, Internet. 2001. Joint position paper. http://www.disability.dk/site/countryindex.php?secion_id=13. Last accessed 6 June 2007
- Dunst K J, Boyd K, Trivette C M, Hamby D W. Family-oriented program models and professional helpgiving practices. Family Relat 2002; 51: 221–229
- Rosenbaum P, King S, Law M, King G, Evans J. Family-centred service: A conceptual framework and research review. Phys Occup Ther Pediatr 1998; 18: 1–20
- Brehaut J C, Kohen D E, Raina P, Walter S D, Russell D J, Swinton M, O'Donnell M, Rosenbaum P. The health of primary caregivers of children with cerebral palsy: How does it compared with that of other Canadian caregivers. Pediatrics 2004; 114: e182–e191
- Breslau N, Staruch K, Mortimer E. Psychological distress in mothers of disabled children. Am J Dis Children 1982; 136: 682–686
- Cadman D, Rosenbaum P, Boyle M, Offord D. Children with chronic illness: Family and parent demographic characteristics and psychological adjustment. Pediatrics 1991; 87: 884–9
- Gowen J, Johnson-Martin N, Goldman B, Appelbaum M. Feelings of depression and parenting competence of mothers of handicapped and nonhandicapped infants: A longitudinal study. Am J Ment Defic 1989; 94: 259–271
- Holmbeck G L, Gorey-Ferguson L, Hudson T, Seefeldt T, Shapera W, Turner T, Uhler J. Maternal, paternal, and marital functioning in families of preadolescents with Spina Bifida. J Pediatr Psychol 1997; 22: 167–181
- Romans-Clarkson S E, Clarkson J E, Dittmer I D, Flett R, Linsell C, Mullen P E, Mullin B. Impact of a handicapped child on mental health of parents. Br Med J 1986; 293: 1395–1397
- Wallander J L, Varni J W. Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998; 39: 29–46
- Breslau N, Davis G C. Chronic stress and major depression. Arch Gen Psychiatry 1986; 43: 309–314
- Bristol M M, Gallagher J J, Schopler E. Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support. Dev Psychol 1988; 24: 441–451
- Seltzer M M, Greenberg J S, Floyd F J, Hong J. Accommodative coping and well-being of midlife parents of children with mental health problems or developmental disabilities. Am J Orthopsychiatry 2004; 74: 187–195
- Breslau N. Psychiatric disorder in children with physical disabilities. J Am Acad Child Psychiatry 1985; 24: 87–94
- Rodenburg R, Meijer A M, Dekovic M, Aldenkamp A P. Family factors and psychopathology in children with epilepsy: A literature review. Epilepsy Behav 2005; 6: 488–503
- Silver E, Westbrook L, Stein R. Relationship of parental psychological distress to consequences of chronic health conditions in children. J Pediatr Psychol 1998; 23: 5–15
- McGill P, Papachristoforou E, Cooper V. Support for family carers of children and young people with developmental disabilities and challenging behaviour. Child: Care, Health Dev 2006; 32: 159–165
- Renty J, Roeyers H. Satisfaction with formal support and education for children with autism spectrum disorder: The voices of the parents. Child: Care, Health Dev 2006; 32: 371–385
- Dyson L L. Fathers and mothers of school-age children with developmental disabilities: Parental stress, family functioning, and social support. Am J Ment Retard 1997; 102: 267–279
- Barakat L P, Linney J A. Children with physical handicaps and their mothers: The interrelation of social support, maternal adjustment and child adjustment. J Pediatr Psychol 1992; 17(6)725–739
- Berge J M, Patterson J M, Rueter M. Marital satisfaction and mental health of couples with children with chronic health conditions. Families, Systems, & Health 2006; 24: 267–285
- Hoare P, Kerley S. Psychosocial adjustment of children with chronic epilepsy and their families. Dev Med Child Neurol 1991; 33: 201–215
- McCarthy A, Cuskelly M, van Kraayenoord C E, Cohen J. Predictors of stress in mothers and fathers of children with fragile X syndrome. Res Dev Disabil 2006; 27: 688–704
- Abbeduto L, Seltzer M M, Krauss M W, Orsmond G, Murphy M M. Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. Am J Ment Retard 2004; 109: 237–254
- Harrison C, Sofronoff K. ADHD and parental psychological distress: Role of demographics, child behavioural characteristics, and parental cognitions. J Am Acad Child Adolesc Psychiatry 2002; 41: 703–711
- Baker B L, Blacher J, Olsson M B. Preschool children with and without developmental delay: Behavior problems, parents' optimism and well-being. J Intellect Disabil Res 2005; 49: 575–590
- Hauser-Cram P, Warfield M E, Shonkoff J P, Krauss M W, Sayer A, Upshur C C, Hodapp R M. Children with disabilities: A longitudinal study of child development and parent well-being. Monogr Soc Res Child Dev 2001; 66: 1–131
- King G, King S, Rosenbaum P, Goffin R. Family-centered caregiving and well-being of parents of children with disabilities: Linking process with outcome. J Pediatr Psychol 1999; 24: 41–53
- Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter S D, Russell D, Swinton M, Zhu B, Wood E. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005; 115: e626–e636
- Johnston C. Parent characteristics and parent-child interactions in families of nonproblem children and ADHD children with higher and lower levels of oppositional-defiant behavior. J Abnorm Child Psychol 1996; 24: 85–104
- Cunningham C, Benness B, Siegel L S. Family functioning, time allocation, and parental depression in the families of normal and ADDH children. J Clin Child Psychol 1988; 17: 169–177
- Woodward L, Taylor E, Dowdney L. The parenting and family functioning of children with hyperactivity. J Child Psychol Psychiatry 1998; 39: 161–169
- Gorman-Smith D, Tolan P H, Loeber R, Henry D B. Relation of family problems to patterns of delinquent involvement in urban youth. J Abnorm Child Psychol 1998; 26: 319–333
- Sukhodolsky D G, de Rosario-Campos M C, Scahill L, Katsovich L, Pauls D L, Peterson B S, King R A, Lombroso P J, Findley D B, Leckman J F. Adaptive, emotional, and family functioning of children with obsessive-compulsive disorder and comorbid attention deficit hyperactivity disorder. Am J Psychiatry 2005; 162: 1125–1132
- Keown L L, Woodward L J. Early parent–child relations and family functioning of preschool boys with pervasive hyperactivity. J Abnorm Child Psychol 2002; 30: 541–553
- Mahoney A, Jouriles E N, Scavone J. Marital adjustment, marital discord over childrearing, and child behavior problems: Moderating effects of child age. J Clin Child Psychol 1997; 26: 415–423
- Murphy K R, Barkley R A. Parents of children with attention deficit/hyperactivity disorders: Psychological and attentional impairment. Am J Orthopsychiatry 1996; 66: 93–102
- Porter B, O'Leary K D. Marital discord and child behaviour problems. J Abnorm Child Psychol 1980; 8: 287–295
- Shelton T L, Barkley R A. Psychiatric and psychological morbidity as a function of adaptive disability in preschool children with aggressive and hyperactive impulsive inattentive behaviour. J Abnorm Child Psychol 1998; 26: 475–494
- Camparo L B, Christensen A, Buhrmester D, Hinshaw S P. System functioning in families with ADHD and non-ADHD sons. Pers Relationships 1994; 1: 301–308
- Szatmari P, Boyle M H, Offord D R. ADDH and conduct disorder: Degree of diagnostic overlap and differences among correlates. J Am Acad Child Adolesc Psychiatry 1989; 28: 865–872
- Pithers W D, Gray A, Busconi A, Houchens P. Caregivers of children with sexual behaviour problems: Psychological and familial functioning. Child Abuse Neglect 1998; 22: 129–141
- Floyd F L, Gallagher E M. Parental stress, care demands, and use of support services for school-aged children with disabilities and behaviour problems. Fam Relat 1997; 46: 359–371
- Olsson M B, Hwang C P. Depression in mothers and fathers of children with intellectual disability. J Intellect Disabil Res 2001; 45: 535–543
- Statistics Canada, Human Resources Development Canada. National Longitudinal Survey of Children: Overview of survey instruments for 1994–1995 data collection, Cycle 1. Statistics Canada, Ottawa, ON 1995
- Feeny D, Furlong W, Boyle M, Torrance G W. Multiattribute health-status classification systems – Health Utilities Index. Pharmacoeconomics 1995; 7: 490–502
- Achenbach T M, Edelbrock C S. Behavioral problems and competencies reported by parents of normal and disturbed children aged four through sixteen. Monogr Soc Res Child Dev 1981; 46: 1–82
- Offord D R, Boyle M H, Szatmari P, Rae-Grant N I, Links P S, Cadman D T, Byles J A, Crawford J W, Munroe Blum H, Byrne C, Thomas H, Woodward C A. Ontario Child Health Study II. Six month prevalence of disorder and rates of service utilization. Arch Gen Psychiatry 1987; 44: 832–836
- Tremblay R E, Loeber R, Gagnon C, Charlebois P, Larivee S, Leblanc M. Disruptive boys with stable and unstable fighting behaviour patterns during junior elementary school. J Abnorm Child Psychol 1991; 19: 285–300
- Radloff L S. The CES-D scale: A self-report depression scale for research in the general population. Appl Pscyhol Meas 1977; 1: 385–401
- Poulin C, Hand D, Boudreau B. Validity of a 12-item version of the CES-D used in the National Longitudinal Survey of Children and Youth. Chronic Dis Can 2005; 26: 65–72
- Epstein N B, Baldwin L M, Bishop D W. The McMaster Family Assessment Device. J Mar Fam Ther 1983; 9: 171–180
- Cutrona C E, Russell D. The provisions of social relationships and adaptation to stress. Adv Pers Relat 1987; 1: 37–67
- Cohen J. Statistical power analysis for the behavioural sciences. Academic Press, London 1969
- Norman G R, Sloan J A, Wyrwich K W. Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation. Medical Care 2003; 41: 582–592
- Rust K, Rao J NK. Variance estimation for complex surveys using replication techniques. Stat Methods Med Res 1996; 5: 281–310
- Seltzer M M, Greenberg J S. Life course impacts of parenting a child with a disability. Am J Ment Retard 2001; 106: 265–286
- Locke H J, Wallace K M. Short marital adjustment prediction tests: Their reliability and validity. Marriage Fam Living 1957; 21: 251–255
- Spanier G B. Measuring dyadic adjustment: New scales for assessing the quality of marriage and similar dyads. J Marriage Fam 1976; 38: 15–28
- Offord D R, Chmura Kraemer H, Kazdin A E, Jensen P S, Harrington R. Lowering the burden of suffering from child psychiatric disorder: Trade-offs among clinical, targeted, and universal interventions. J Am Acad Child Adolesc Psychiatry 1998; 37: 686–694
- Kronenberger W G, Thompson R J, Jr. Psychological adaptation of mothers of children with spina bifida: Association with dimensions of social relationships. J Pediatr Psychol 1992; 17: 1–14