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Original Research

Access to and interest in assistive technology for home-dwelling people with dementia during the COVID-19 pandemic (PAN.DEM)

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon show all
Pages 404-411 | Received 21 Sep 2020, Accepted 29 Oct 2020, Published online: 08 Jan 2021

References

  • Alexopoulos, G. S., Abrams, R. C., Young, R. C., & Shamoian, C. A. (1988). Cornell scale for depression in dementia. Biological Psychiatry, 23(3), 271–284. https://doi.org/10.1016/0006-3223(88)90038-8
  • Antonini, A., Gentile, G., Giglio, M., Marcante, A., Gage, H., Touray, M. M. L., Fotiadis, D. I., Gatsios, D., Konitsiotis, S., Timotijevic, L., Egan, B., Hodgkins, C., Biundo, R., & Pellicano, C., on behalf of the PD_Manager consortium (2018). Acceptability to patients, carers and clinicians of an mHealth platform for the management of Parkinson's disease (PD_Manager): study protocol for a pilot randomised controlled trial. Trials, 19(1), 492. https://doi.org/10.1186/s13063-018-2767-4
  • Bankole, A., Anderson, M. S., Homdee, N., Alam, R., Lofton, A., Fyffe, N., Goins, H., Newbold, T., Smith-Jackson, T., & Lach, J. (2020). BESI: behavioral and environmental sensing and intervention for dementia caregiver empowerment-phases 1 and 2. American Journal of Alzheimer's Disease & Other Dementias, 35, 1533317520906686. https://doi.org/10.1177/1533317520906686
  • Brown, E. E., Kumar, S., Rajji, T. K., Pollock, B. G., & Mulsant, B. H. (2020). Anticipating and Mitigating the Impact of the COVID-19 Pandemic on Alzheimer's Disease and Related Dementias. The American Journal of Geriatric Psychiatry : official Journal of the American Association for Geriatric Psychiatry, 28(7), 712–721. https://doi.org/10.1016/j.jagp.2020.04.010
  • Channa, A., Popescu, N., & Ciobanu, V. (2020). Wearable solutions for patients with parkinson's disease and neurocognitive disorder: a systematic review. Sensors (Basel), 20(9), 2713. https://doi.org/10.3390/s20092713
  • Contreras-Somoza, L. M., Irazoki, E., Castilla, D., Botella, C., Toribio-Guzmán, J. M., Parra-Vidales, E., Suso-Ribera, C., Suárez-López, P., Perea-Bartolomé, M. V., & Franco-Martín, M. Á. (2020). Study on the acceptability of an ICT platform for older adults with mild cognitive impairment. Journal of Medical Systems, 44(7), 120. https://doi.org/10.1007/s10916-020-01566-x
  • Cummings, J. (2020). The neuropsychiatric inventory: development and applications. Journal of Geriatric Psychiatry and Neurology, 33(2), 73–84. https://doi.org/10.1177/0891988719882102
  • Dorsey, E. R., Okun, M. S., & Bloem, B. R. (2020). Care, convenience, comfort, confidentiality, and contagion: the 5 C's that will shape the future of telemedicine. Journal of Parkinson's Disease, 10(3), 893–897. https://doi.org/10.3233/JPD-202109
  • Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician . Journal of Psychiatric Research, 12(3), 189–198. https://doi.org/10.1016/0022-3956(75)90026-6
  • Greene, J. G., Smith, R., Gardiner, M., & Timbury, G. C. (1982). Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives: a factor analytic study. Age and Ageing, 11(2), 121–126. https://doi.org/10.1093/ageing/11.2.121
  • Guy, W. (1976). ECDEU assessment manual for psychopharmacology. National Institute of Mental Health, Psychopharmacology Research Branch, Division of Extramural Research Programs.
  • Hoe, J., Katona, C., Roch, B., & Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia–the LASER-AD study. Age and Ageing, 34(2), 130–135. https://doi.org/10.1093/ageing/afi030
  • Holthe, T., Halvorsrud, L., Thorstensen, E., Karterud, D., Laliberte Rudman, D., & Lund, A. (2020). Community health care workers' experiences on enacting policy on technology with citizens with mild cognitive impairment and dementia. Journal of Multidisciplinary Healthcare, 13, 447–458. https://doi.org/10.2147/JMDH.S246180
  • Husebo, B. S., & Berge, L. I. (2020). Intensive medicine and nursing home care in times of SARS CoV-2: a norwegian perspective. The American Journal of Geriatric Psychiatry, 28(7), 792–793. https://doi.org/10.1016/j.jagp.2020.04.016
  • Husebo, B. S., Allore, H., Achterberg, W., Angeles, R. C., Ballard, C., Bruvik, F. K., Faeø, S. E., Gedde, M. H., Hillestad, E., Jacobsen, F. F., Kirkevold, Ø., Kjerstad, E., Kjome, R. L. S., Mannseth, J., Naik, M., Nouchi, R., Puaschitz, N., Samdal, R., Tranvåg, O., … Berge, L. I. (2020). [email protected] the clinical pathway for home-dwelling people with dementia and their caregivers: study protocol for a mixed-method, stepped-wedge, randomized controlled trial. Trials, 21(1), 510. https://doi.org/10.1186/s13063-020-04414-y
  • Husebo, B. S., Heintz, H. L., Berge, L. I., Owoyemi, P., Rahman, A. T., & Vahia, I. V. (2019). Sensing technology to facilitate behavioral and psychological symptoms and to monitor treatment response in people with dementia. A Systematic Review. Frontiers in Pharmacology, 10, 1699.
  • Husebo, B. S., Ostelo, R., & Strand, L. I. (2014). The MOBID-2 pain scale: reliability and responsiveness to pain in patients with dementia. European Journal of Pain, 18(10), 1419–1430. https://doi.org/10.1002/ejp.507
  • Islam, N., Sharp, S. J., Chowell, G., Shabnam, S., Kawachi, I., & Lacey, B. (2020). Physical distancing interventions and incidence of coronavirus disease 2019: natural experiment in 149 countries. BMJ, 370, m2743.
  • John, W. C. V. (2011). Designing and conducting mixed methods research. Sage Publications.
  • Kernebeck, S., Holle, D., Pogscheba, P., Jordan, F., Mertl, F., Huldtgren, A., Bader, S., Kirste, T., Teipel, S., Holle, B., & Halek, M. (2019). A tablet app- and sensor-based assistive technology intervention for informal caregivers to manage the challenging behavior of people with dementia (the insideDEM study): protocol for a feasibility study. JMIR Research Protocols, 8(2), e11630. https://doi.org/10.2196/11630
  • Khan, S. S., Ye, B., Taati, B., & Mihailidis, A. (2018). Detecting agitation and aggression in people with dementia using sensors-A systematic review. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 14(6), 824–832. https://doi.org/10.1016/j.jalz.2018.02.004
  • Lawton, M. P. (1990). Aging and performance of home tasks. Human Factors, 32(5), 527–536. https://doi.org/10.1177/001872089003200503
  • Lawton, M. P., & Brody, E. M. (1969). Assessment of older people: self-maintaining and instrumental activities of daily living. The Gerontologist, 9(3), 179–186. https://doi.org/10.1093/geront/9.3_Part_1.179
  • Lyketsos, C. G., Galik, E., Steele, C., Steinberg, M., Rosenblatt, A., Warren, A., Sheppard, J. M., Baker, A., & Brandt, J. (1999). The General Medical Health Rating: a bedside global rating of medical comorbidity in patients with dementia. Journal of the American Geriatrics Society, 47(4), 487–491. https://doi.org/10.1111/j.1532-5415.1999.tb07245.x
  • McDermott, M. M., & Newman, A. B. (2020). Preserving clinical trial integrity during the coronavirus pandemic. JAMA, 323(21), 2135–2136. https://doi.org/10.1001/jama.2020.4689
  • Merilahti, J., Viramo, P., & Korhonen, I. (2016). Wearable monitoring of physical functioning and disability changes, circadian rhythms and sleep patterns in nursing home residents. IEEE Journal of Biomedical and Health Informatics, 20(3), 856–864. https://doi.org/10.1109/JBHI.2015.2420680
  • Naglie, G., Tomlinson, G., Tansey, C., Irvine, J., Ritvo, P., Black, S. E., Freedman, M., Silberfeld, M., & Krahn, M. (2006). Utility-based Quality of Life measures in Alzheimer's disease. Quality of Life Research, 15(4), 631–643. https://doi.org/10.1007/s11136-005-4364-8
  • Nicol, G. E., Piccirillo, J. F., Mulsant, B. H., & Lenze, E. J. (2020). Action at a Distance: Geriatric Research during a Pandemic. Journal of the American Geriatrics Society, 68(5), 922–925. https://doi.org/10.1111/jgs.16443
  • Rabinowitz, J., Davidson, M., De Deyn, P. P., Katz, I., Brodaty, H., & Cohen-Mansfield, J. (2005). Factor analysis of the Cohen-Mansfield Agitation Inventory in three large samples of nursing home patients with dementia and behavioral disturbance. The American Journal of Geriatric Psychiatry : official Journal of the American Association for Geriatric Psychiatry, 13(11), 991–998. https://doi.org/10.1097/00019442-200511000-00010
  • Reisberg, B. (1988). Functional assessment staging (FAST). Psychopharmacology Bulletin, 24(4), 653–659.
  • Schuijff, M., & Dijkstra, A. M. (2020). Practices of Responsible Research and Innovation: A Review. Science and Engineering Ethics, 26(2), 533–574. https://doi.org/10.1007/s11948-019-00167-3
  • Silva de Lima, A. L., Evers, L. J. W., Hahn, T., Bataille, L., Hamilton, J. L., Little, M. A., Okuma, Y., Bloem, B. R., & Faber, M. J. (2017). Freezing of gait and fall detection in Parkinson's disease using wearable sensors: a systematic review. Journal of Neurology, 264(8), 1642–1654. https://doi.org/10.1007/s00415-017-8424-0
  • Sorell, T., & Draper, H. (2012). Telecare, surveillance, and the welfare state. American Journal of Bioethics, 12(9), 36–44. https://doi.org/10.1080/15265161.2012.699137
  • Teipel, S., König, A., Hoey, J., Kaye, J., Krüger, F., Robillard, J. M., Kirste, T., & Babiloni, C. (2018). Use of nonintrusive sensor-based information and communication technology for real-world evidence for clinical trials in dementia. Alzheimer's & Dementia : The Journal of the Alzheimer's Association, 14(9), 1216–1231. https://doi.org/10.1016/j.jalz.2018.05.003
  • The Norwegian Directorate of Health (2015). Første gevinstrealiseringsrapport med anbefalinger. Nasjonalt velferdsteknologiprogram. [First report on benefit realisations with recommendations]. Oslo.
  • The Norwegian Directorate of Health. (2012). Fagrapport om implementering av velferdsteknologi i de kommunale helse- og omsorgstjenestene 2013-2030. [Report on implementation of welfare technology in the community health care services 2013–2030]. Oslo.
  • Whynes, D. K., & Group, T, TOMBOLA Group. (2008). Correspondence between EQ-5D health state classifications and EQ VAS scores. Health and Quality of Life Outcomes, 6, 94 https://doi.org/10.1186/1477-7525-6-94
  • Wimo, A., Gustavsson, A., Jonsson, L., Winblad, B., Hsu, M. A., & Gannon, B. (2013). Application of Resource Utilization in Dementia (RUD) instrument in a global setting. Alzheimer's & Dementia: The Journal of the Alzheimer's Association, 9(4), 429–435 e17. https://doi.org/10.1016/j.jalz.2012.06.008
  • Wimo, A., Jonsson, L., & Zbrozek, A. (2010). The Resource Utilization in Dementia (RUD) instrument is valid for assessing informal care time in community-living patients with dementia. The Journal of Nutrition, Health & Aging, 14(8), 685–690. https://doi.org/10.1007/s12603-010-0316-2
  • Yang, Y. T., & Kels, C. G. (2017). Ethical considerations in electronic monitoring of the cognitively impaired. Journal of the American Board of Family Medicine: Jabfm, 30(2), 258–263. https://doi.org/10.3122/jabfm.2017.02.160219
  • Yesavage, J. A., Brink, T. L., Rose, T. L., Lum, O., Huang, V., Adey, M., & Leirer, V. O. (1982). Development and validation of a geriatric depression screening scale: a preliminary report. Journal of Psychiatric Research, 17(1), 37–49. https://doi.org/10.1016/0022-3956(82)90033-4