Experiences and coping behaviors of patients with psoriasis: a qualitative study

References

• Trettin B, Feldman S, Andersen F, et al. Improving management of psoriasis patients receiving biological treatment: a qualitative approach. Nurs Open. 2021;8(3):1–8.
   Web of Science ®Google Scholar
• Parisi R, Symmons DP, Griffiths CE, et al. Global epidemiology of psoriasis: a systematic review of incidence and prevalence. J Invest Dermatol. 2013;133(2):377–385.
   PubMed Web of Science ®Google Scholar
• Michalek IM, Loring B, John SM. A systematic review of worldwide epidemiology of psoriasis. J Eur Acad Dermatol Venereol. 2017;31(2):205–212.
   PubMed Web of Science ®Google Scholar
• World Health Organization. Global Report on Psoriasis. Geneva: World Health Organization; 2016 [cited 2020 February 13]. Available from: https://apps.who.int/iris/handle/10665/204417
   Google Scholar
• Koo J, Marangell LB, Nakamura M, et al. Depression and suicidality in psoriasis: review of the literature including the cytokine theory of depression. J Eur Acad Dermatol Venereol. 2017;31(12):1999–2009.
   PubMed Web of Science ®Google Scholar
• Griffiths CE, Barker JN. Pathogenesis and clinical features of psoriasis. Lancet. 2007;370(9583):263–271.
   PubMed Web of Science ®Google Scholar
• Boehncke WH, Schön MP. Psoriasis. Lancet. 2015;386(9997):983–994.
   PubMed Web of Science ®Google Scholar
• Szepietowski JC, Reich A. Pruritus in psoriasis: an update. Eur J Pain. 2016;20(1):41–46.
   PubMed Web of Science ®Google Scholar
• Elewski B, Alexis AF, Lebwohl M, et al. Itch: an under-recognized problem in psoriasis. J Eur Acad Dermatol Venereol. 2019;33(8):1465–1476.
   PubMed Web of Science ®Google Scholar
• Hrehorów E, Salomon J, Matusiak L, et al. Patients with psoriasis feel stigmatised. Acta Derm Venereol. 2012;92(1):67–72.
   PubMed Web of Science ®Google Scholar
• Ghorbani Birgani A, Fallahi-Khoshknab M, Zarea K, et al. The lived experience of psoriasis patients from social stigma and rejection: a qualitative study. Iran Red Crescent Med J. 2016;18(7):e27893.
   PubMed Web of Science ®Google Scholar
• Tsai TF, Wang TS, Hung ST, et al. Epidemiology and comorbidities of psoriasis patients in a national database in Taiwan. J Dermatol Sci. 2011;63(1):40–46.
   PubMed Web of Science ®Google Scholar
• Barankin B, DeKoven J. Psychosocial effect of common skin diseases. Can Fam Physician. 2002;48:712–716.
   PubMed Web of Science ®Google Scholar
• Sampogna F, Tabolli S, Abeni D. Living with psoriasis: prevalence of shame, anger, worry, and problems in daily activities and social life. Acta Derm Venereol. 2012;92(3):299–303.
   PubMed Web of Science ®Google Scholar
• Kimball AB, Jacobson C, Weiss S, et al. The psychosocial burden of psoriasis. Am J Clin Dermatol. 2005;6:383–392.
   PubMed Web of Science ®Google Scholar
• Bohm D, Stock Gissendanner S, Bangemann K, et al. Perceived relationships between severity of psoriasis symptoms, gender, stigmatisation and quality of life. J Eur Acad Dermatol Venereol. 2013;27(2):220–226.
   PubMed Web of Science ®Google Scholar
• Bangemann K, Schulz W, Wohlleben J, et al. Depression and anxiety disorders among psoriasis patients: protective and exacerbating factors. Hautarzt. 2014;65(12):1056–1061.
   PubMed Web of Science ®Google Scholar
• Augustin M, Radtke MA. Quality of life in psoriasis patients. Expert Rev Pharmacoecon Outcomes Res. 2014;14(4):559–568.
   PubMed Web of Science ®Google Scholar
• Richards HL, Fortune DG, Griffiths CE, et al. The contribution of perceptions of stigmatisation to disability in patients with psoriasis. J Psychosom Res. 2001;50(1):11–15.
   PubMed Web of Science ®Google Scholar
• Choi J, Koo JY. Quality of life issues in psoriasis. J Am Acad Dermatol. 2003;49(2 Suppl):S57–S61.
   PubMed Web of Science ®Google Scholar
• Bhosle MJ, Kulkarni A, Feldman SR, et al. Quality of life in patients with psoriasis. Health Qual Life Outcomes. 2006;4:35.
   PubMed Web of Science ®Google Scholar
• Krueger G, Koo J, Lebwohl M, et al. The impact of psoriasis on quality of life: results of a 1998 national psoriasis foundation patient-membership survey. Arch Dermatol. 2001;37:280–284.
   Google Scholar
• Globe D, Harrison DJ, Bayliss M. The impact of itch symptoms in psoriasis: results from physician interviews and patient focus groups. Health Qual Life Outcomes. 2009;7:62.
   PubMed Web of Science ®Google Scholar
• Ljosaa TM, Bondevik H, Halvorsen JA, et al. The complex experience of psoriasis related skin pain: a qualitative study. Scand J Pain. 2020;20(3):491–498.
   PubMed Web of Science ®Google Scholar
• Taliercio VL, Snyder AM, Webber LB, et al. The disruptiveness of itchiness from psoriasis: a qualitative study of the impact of a single symptom on quality of life. J Clin Aesthet Dermatol. 2021;14:42–48.
   PubMedGoogle Scholar
• Zhong H, Yang H, Mao Z, et al. Impact of moderate-to-severe psoriasis on quality of life in China: a qualitative study. Health Qual Life Outcomes. 2021;19(1):271.
   PubMed Web of Science ®Google Scholar
• Kaufman BP, Alexis AF. Psoriasis in skin of color: insights into the epidemiology, clinical presentation, genetics, quality-of-life impact, and treatment of psoriasis in non-white racial/ethnic groups. Am J Clin Dermatol. 2018;19(3):405–423.
   PubMed Web of Science ®Google Scholar
• Schmitt J, Wozel G. The psoriasis area and severity index is the adequate criterion to define severity in chronic plaque-type psoriasis. Dermatology. 2005;210(3):194–199.
   PubMed Web of Science ®Google Scholar
• Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.
   PubMed Web of Science ®Google Scholar
• Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park (CA): Sage; 1985.
   Google Scholar
• Reich A, Welz-Kubia K, Rams L. Apprehension of the disease by patients suffering from psoriasis. Postepy Dermatol Alergol. 2014;31:289–293.
   PubMed Web of Science ®Google Scholar
• Yosipovitch G, Goon A, Wee J, et al. The prevalence and clinical characteristics of pruritus among patients with extensive psoriasis. Br J Dermatol. 2000;143(5):969–973.
   PubMed Web of Science ®Google Scholar
• Yosipovitch G, Goon ATJ, Wee J, et al. Itch characteristics in chinese patients with atopic dermatitis using a new questionnaire for the assessment of pruritus. Int J Dermatol. 2002;41(4):212–216.
   PubMed Web of Science ®Google Scholar
• Dickison P, Swain G, Peek JJ, et al. Itching for answers: prevalence and severity of pruritus in psoriasis. Australas J Dermatol. 2018;59(3):206–209.
   PubMed Web of Science ®Google Scholar
• Prignano F, Ricceri F, Pescitelli L, et al. Itch in psoriasis: epidemiology, clinical aspects and treatment options. Clin Cosmet Investig Dermatol. 2009;2:9–13.
   PubMedGoogle Scholar
• Gisondi P, Girolomoni G. Patients’ perspectives in the management of psoriasis: the italian results of the multinational assessment of psoriasis and psoriatic arthritis (MAPP) survey. J Dermatolog Treat. 2017;28(5):390–393.
   PubMed Web of Science ®Google Scholar
• Amatya B, Wennersten G, Nordlind K. Patients’ perspective of pruritus in chronic plaque psoriasis: a questionnaire-based study. J Eur Acad Dermatol Venerol. 2008;22(7):822–826.
   PubMed Web of Science ®Google Scholar
• Lebwohl MG, Bachelez H, Barker J, et al. Patient perspectives in the management of psoriasis: results from the population-based multinational assessment of psoriasis and psoriatic arthritis survey. J Am Acad Dermatol. 2014;70(5):871–881.e30.
   PubMed Web of Science ®Google Scholar
• Reich A, Hrehorow E, Szepietowski JC. Pruritus is an important factor negatively influencing the well-being of psoriatic patients. Acta Derm Venerol. 2010;90(3):257–263.
   PubMed Web of Science ®Google Scholar
• Jacob JT, Franco-Paredes C. The stigmatisation of leprosy in India and its impact on future approaches to elimination and control. PLOS Negl Trop Dis. 2008;2(1):e113.
   PubMed Web of Science ®Google Scholar
• Brihan I, Ianoși SL, Boda D, et al. Implications of self-esteem in the quality of life in patients with psoriasis. Exp Ther Med. 2020;20(6):1–1.
   PubMed Web of Science ®Google Scholar
• Hassani F, Koraei A, Yaghoobi R, et al. An evaluating of the relationship between body image, body satisfaction, depression, marital quality, and self-esteem in patients with psoriasis. Psychol Health Med. 2021;26(4):467–477.
   PubMed Web of Science ®Google Scholar
• Kouris A, Platsidaki E, Kouskoukis C, et al. Psychological parameters of psoriasis. Psychiatriki. 2017;28(1):54–59.
   PubMedGoogle Scholar
• Kowalewska B, Krajewska-Kułak E, Sobolewski M. The impact of stress-coping strategies and the severity of psoriasis on self-esteem, illness acceptance and life satisfaction. Dermatol Ther. 2022;12(2):529–543.
   Web of Science ®Google Scholar
• Nazik H, Nazik S, Gul FC. Body image, self-esteem, and quality of life in patients with psoriasis. Indian Dermatol Online J. 2017;8(5):343–346.
   PubMedGoogle Scholar
• Słomian A, Łakuta P, Bergler-Czop B, et al. Self-esteem is related to anxiety in psoriasis patients: a case control study. J Psychosom Res. 2018;114:45–49.
   PubMed Web of Science ®Google Scholar
• Schmid-Ott G, Kunsebeck HW, Jager B, et al. Significance of the stigmatisation experience of psoriasis patients: a 1-year follow-up of the illness and its psychosocial consequences in men and women. Acta Derm Venereol. 2005;85(1):27–32.
   PubMed Web of Science ®Google Scholar
• Halioua B, Sid-Mohand D, Roussel ME, et al. Extent of misconceptions, negative prejudices and discriminatory behaviour to psoriasis patients in France. J Eur Acad Dermatol Venereol. 2016;30(4):650–654.
   PubMed Web of Science ®Google Scholar
• Aldwin CM, Park CL, Jeong YJ, et al. Differing pathways between religiousness, spirituality, and health: a self-regulation perspective. Psycholog Relig Spiritual. 2014;6(1):9–21.
   Web of Science ®Google Scholar
• Shenefelt PD, Shenefelt DA. Spiritual and religious aspects of skin and skin disorders. Psychol Res Behav Manag. 2014;7:201–212.
   PubMedGoogle Scholar
• Zeichner JA, Lebwohl M. Potential complications associated with the use of biologic agents for psoriasis. Dermatol Clin. 2007;25(2):207–213.
   PubMed Web of Science ®Google Scholar
• Norlin JM, Carlsson KS, Persson U, et al. Switch to biological agent in psoriasis significantly improved clinical and patient-reported outcomes in real-world practice. Dermatology. 2012;225(4):326–332.
   PubMed Web of Science ®Google Scholar
• Kishimoto M, Komine M, Kamiya K, et al. Drug survival of biologic agents for psoriatic patients in a real-world setting in Japan. J Dermatol. 2020;47(1):33–40.
   PubMed Web of Science ®Google Scholar
• Lorenzin M, Ortolan A, Cozzi G, et al. Predictive factors for switching in patients with psoriatic arthritis undergoing anti-TNFα, anti-IL12/23, or anti-IL17 drugs: a 15-year monocentric real-life study. Clin Rheumatol. 2021;40(11):4569–4580.
   PubMed Web of Science ®Google Scholar
• Mastorino L, Roccuzzo G, Dapavo P, et al. Patients with psoriasis resistant to multiple biological therapies: characteristics and definition of a difficult-to-treat population. Br J Dermatol. 2022;187(2):263–265.
   PubMed Web of Science ®Google Scholar