Advanced search
Publication Cover
Disability and Rehabilitation Volume 27, 2005 - Issue 4
Submit an article Journal homepage
335
Views
29
CrossRef citations to date
0
Altmetric
Research Paper

Foot pain and disability in individuals with Ehlers – Danlos syndrome (EDS): Impact on daily life activities

Britta Berglunda Department of Nursing, Karolinska Institutet, Stockholm;b Nursing Department at Gastrocentrum, Karolinska University Hospital, Huddinge, Stockholm;c Sophiahemmet University College, StockholmCorrespondence[email protected]
,
Gun Nordströma Department of Nursing, Karolinska Institutet, Stockholm;d Division of Health and Caring Sciences, Karlstad University, Karlstad
,
Catharina Hagberge Mun-H-Center, Swedish National Orofacial Centre for Rare Disorders, Gothenburg;f Department of Orthodontics, Faculty of Odontology, Sahlgrenska Academy, Gothenburg
&
Anne-Cathrine Mattiassonc Sophiahemmet University College, Stockholm;g Karolinska Institutet, Danderyd Hospital, Stockholm, Sweden
Pages 164-169 | Accepted 01 Aug 2004, Published online: 07 Jul 2009

References

  • Steinmann B, Royce PM, Superti-Furga A. The Ehlers – Danlos syndrome. In: Royce PM, Steinmann B, editors. Connective tissue and its heritable disorders: Molecular, genetic and medical aspects. New York: Wiley-Liss; 1993; pp. 351–407.
  • Beighton PH, de Paepe A, Steinmann B, Wenstrup R, Tsipouras P. Ehlers-Danlos syndromes: Revised Nosology, Villefranche, 1997. American Journal of Medical Genetics 1998; 77: 31–37.
  • Lumley MA, Hjordan M, Rubenstein R, Tsipouras P, Evans MI. Psychosocial functioning in the Ehlers-Danlos syndrome. American Journal of Medical Genetics 1994; 53: 149–152.
  • Sacheti A, Szemere J, Bernstein B, Tafas T, Schechter N, Tsipouras P. Chronic pain is a manifestation of the Ehlers- Danlos syndrome. Journal of Pain and Symptom Management 1997; 14(2):88–93.
  • Berglund B, Nordstro¨ m G, Lu¨ tze´n K. Living a restricted life with Ehlers-Danlos syndrome (EDS). International Journal of Nursing Studies 2000; 37: 111–118.
  • Berglund B, Nordstro¨ m G. Symptoms and functional health status in individuals with Ehlers-Danlos syndrome (EDS). JCR: Journal of Clinical Rheumatology 2001; 7(5):308–314.
  • Stanitski DF, Nadjarian R, Stanitski CL, Bawle E, Tsipouras P. Orthopaedic manifestations of Ehlers-Danlos syndrome. Clinical Orthopaedics and Related Research 2000; 376: 213–221.
  • Ainsworth ST, Aulicino PL. A survey of patients with Ehlers- Danlos syndrome. Clinical Orthopaedics and Related Re- search 1993; 286: 250–256.
  • Beighton P, Horan FT. Surgical aspects of the Ehlers-Danlos syndrome. A survey of 100 cases. British Journal of Surgery 1969; 56: 255–259.
  • Beighton PH. Articular manifestations of the EDS. Seminars in Arthritis and Rheumatism 1971; 1: 246–301.
  • Lewkonia RM, Pope F. Joint contractures and acroosteolysis in the EDS type IV. The Journal of Rheumatology 1985; 12: 140–144.
  • Tompkins MH, Bellacosa RA. Podiatric surgical considera- tions in the Ehlers-Danlos patient. The Journal of Foot and Ankle Surgery 1997; 36(5):381–387.
  • SEMA (SPAR: Samordnade Personadressregister). Available: http://www.infodata.sema.se/spar [2003-04-22]. Schlumber- gerSema InfoData AB (2002). Spar-na¨mnden, Stockholm.
  • Polit DF, Hungler BP. Nursing research: Principles and methods, 6th ed. Philadelphia, PA: Lippincott; 1999.
  • Garrow AP, Papageorgiou AC, Silman AJ, Thomas E, Jayson MIV, MacFarlane GJ. Development and validation of a questionnaire to assess disabling foot pain. Pain 2000;85: 107– 113.
  • White M, Elander G. Translation of an instrument. The US- Nordic Family Dynamics Nursing Research Project. Scandi- navian Journal of Caring Sciences 1992; 6(3):161–164.
  • Weinberg J, Doering C, McFarland EG. Joint surgery in Ehlers-Danlos patients: Results of a survey. American Journal of Orthopedics 1999; 28(7):406–409.
  • Napolitano C, Walsh S, Mahoney L, McCrea J. Risk factors that may adversely modify the natural history of the pediatric pronated foot. Clinics in Podiatric Medicine and Surgery 2000; 17(3):397–417.
  • Bowling A. What things are important in people’s lives? A survey of the public’s judgements to inform scales of health- related quality of life. Social Science and Medicine 1995; 41(10):1447–1462.
  • Agnew PS, Raducanu Y. An algoritmic approach to evaluation of the flatfoot. Avoidance of pitfalls. Clinics in Podiatric Medicine and Surgery 2000; 17(3):383–396.
  • Lind J. The Marfan and Ehlers-Danlos syndromes and pregnancy, Doctoral dissertation, Erasmus Universitet, Rot- terdam, The Netherlands; 2000.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.