Informal primary carers of stroke survivors living at home–challenges, satisfactions and coping: A systematic review of qualitative studies

References

• Department of Health. Reducing brain damage: Faster access to better stroke care. The Stationery Office, London 2005
   Google Scholar
• Anderson C S, Linto J, Stewart-Wynne E G. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 1995; 26: 843–849
   PubMed Web of Science ®Google Scholar
• Han B, Haley W E. Family caregiving for patients with stroke. Review and analysis. Stroke 1999; 30: 1478–1485
   PubMed Web of Science ®Google Scholar
• Low J T, Payne S, Roderick P. The impact of stroke on informal carers: A literature review. Soc Sci Med 1999; 49(6)711–725
   PubMed Web of Science ®Google Scholar
• Morrison V. Predictors of carer distress following stroke. Rev Clin Gerontol 1999; 9: 265–271
   Google Scholar
• Visser-Meily A, Post M, Riphagen I I, Lindeman E. Measures used to assess burden among caregivers of stroke patients: A review. Clin Rehabil 2004; 18: 601–623
   PubMed Web of Science ®Google Scholar
• Greenwood N, Mackenzie A, Cloud G C, Wilson N. Informal carers of stroke survivors-factors influencing carers: A systematic review of quantitative studies. Disabil Rehabil, in press
   Web of Science ®Google Scholar
• McKevitt C, Redfern J, Mold F, Wolfe C. Qualitative studies of stroke: A systematic review. Stroke 2004; 35: 1499–1505
   PubMed Web of Science ®Google Scholar
• Murray J, Ashworth R, Forster A, Young J. Developing a primary care-based stroke service: A review of the qualitative literature. Br J Gen Pract 2003; 53: 137–142
   PubMed Web of Science ®Google Scholar
• Mays N, Pope C. Qualitative research in health care. BMJ Publishing Group, London 1996
   Google Scholar
• Popay J, Rogers A, Williams G. Rationale and standards in a systematic review of qualitative literature in health services research. Qualitat Health Res 1998; 8: 341–351
   PubMed Web of Science ®Google Scholar
• Centre for Reviews and Dissemination. Undertaking systematic reviews of research on effectiveness: CRD's guidance for those carrying out or commissioning reviews. CRD Report 42nd ed. 2001, 2001
   Google Scholar
• Bakas T, Austin J K, Okonkwo K F, Lewis R R, Chadwick L. Needs, concerns, strategies, and advice of stroke caregivers the first 6 months after discharge. J Neurosci Nursing 2002; 34(5)242–251
   PubMedGoogle Scholar
• Brereton L, Nolan M. ‘You do know he's had a stroke, don't you?’ Preparation for family caregiving – the neglected dimension. J Clin Nursing 2000; 9(4)498–506
   PubMed Web of Science ®Google Scholar
• Burman M E. Family caregiver expectations and management of the stroke trajectory. Rehabil Nursing 2001; 26(3)94–99
   PubMedGoogle Scholar
• Clemson L, Fitzgerald M H, Mullavey-O'Byrne C. Medical grand rounds. Family perspectives following stroke: The unheard stories. Top Stroke Rehabil 1999; 6(1)60–77
   Google Scholar
• Denman A. Determining the needs of spouses caring for aphasic partners. Disabil Rehabil 1998; 20(11)411–423
   PubMed Web of Science ®Google Scholar
• Fraser C. The experience of transition for a daughter caregiver of a stroke survivor. J Neurosci Nursing 1999; 31(1)9–16
   PubMedGoogle Scholar
• Grant J S. Home care problems experienced by stroke survivors and their family caregivers. Home Healthcare Nurse 1996; 14(11)892–902
   PubMedGoogle Scholar
• Grant J S. Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. Int J Rehabil Res 2004; 27: 105–111
   PubMed Web of Science ®Google Scholar
• Johnson P D. Rural stroke caregivers: A qualitative study of the positive and negative response to the caregiver role. Top Stroke Rehabil 1998; 5(3)51–68
   PubMedGoogle Scholar
• Kerr S, Smith L N. Stroke: An exploration of the experience of informal caregiving. Clin Rehabil 2001; 15: 428–436
   PubMed Web of Science ®Google Scholar
• Lee R LT. Caring for family members with stroke: Chinese family caregivers. Asian J Nursing Studies 2004; 7(1)18–27
   Google Scholar
• Moore W M, Maiocco G, Schmidt M, Guo L, Estes J. Perspectives of caregivers of stroke survivors: Implication for nursing. MEDSURG Nursing 2002; 11(6)289–295
   PubMedGoogle Scholar
• O'Connell B, Baker L, Prosser A. The educational needs of caregivers of stroke survivors in acute and community settings. J Neurosci Nursing 2003; 35(1)21–28
   PubMedGoogle Scholar
• Pierce L, Steiner V. What are male caregivers talking about?. Top Stroke Rehabil 2004; 11(2)77–83
   PubMedGoogle Scholar
• Secrest J. Transformation of the relationship: The experience of primary support persons of stroke survivors. Rehabil Nursing 2000; 25(3)93–99
   Google Scholar
• Smith L N, Lawrence M, Kerr S, Langhorne P, Lees K R. Informal carers' experience of caring for stroke survivors. J Adv Nursing 2004; 46(3)235–244
   PubMed Web of Science ®Google Scholar
• Subgranon R, Lund D A. Maintaining caregiving at home: A culturally sensitive grounded theory of providing care in Thailand. J Transcult Nursing 2000; 11(3)166–173
   PubMedGoogle Scholar
• Sturges J E, Hanrahan K J. Comparing telephone and face-to-face qualitative interviewing: A research note. Qualitat Res 2004; 4: 107–118
   Google Scholar