Accommodating to a troubled life – chronic obstructive pulmonary disease patients’ experiences and perceptions of self-image during the course of rehabilitation

References

• Global Initiative for Chronic Obstructive Lung Disease. global strategy for the diagnosis management and prevention of COPD [Internet]. Global 2018. [cited 2018 Sept 1]. Available from:. https://goldcopd.org/wp-content/uploads/2017/11/GOLD-2018-v6.0-FINAL-revised-20-Nov_WMS.pdf
   Google Scholar
• World Health Organization. Chronic respiratory diseases [Internet]. 2018. [cited 2018 Sept 1]. Available from: http://www.who.int/respiratory/copd/en/
   Google Scholar
• Giacomini M, DeJean D, Simeonov D, et al. Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature. Ont Health Technol Assess Ser. 2012;12:1–47.
   PubMedGoogle Scholar
• Spruit MA. Pulmonary rehabilitation. Eur Respir Rev. 2014;23:55–63.
   PubMedGoogle Scholar
• Effing TW, Vercoulen JH, Bourbeau J, et al. Definition of a COPD self-management intervention: international expert group consensus. Eur Respir J. 2016;48:46–54.
   PubMed Web of Science ®Google Scholar
• Kaptein A, Fischer M, Scharloo M. Self-management in patients with COPD: theoretical context, content, outcomes, and integration into clinical care. Int J Chron Obstruct Pulmon Dis. 2014;9:907–917.
   PubMed Web of Science ®Google Scholar
• Coventry PA, Hind D. Comprehensive pulmonary rehabilitation for anxiety and depression in adults with chronic obstructive pulmonary disease: systematic review and meta-analysis. J Psychosom Res. 2007;63:551–565.
   PubMed Web of Science ®Google Scholar
• McCarthy B, Casey D, Devane D, et al. Pulmonary rehabilitation for chronic obstructive pulmonary disease. Cochrane Database Syst Rev England. 2015;Feb: CD003793.
   Google Scholar
• Toms J, Harrison K. Living with chronic lung disease and the effect of pulmonary rehabilitation: patients’ perspectives. Physiotherapy. 2002;88:605–619.
   Google Scholar
• Halding A-G, Heggdal K. Patients’ experiences of health transitions in pulmonary rehabilitation. Nurs Inq. 2012;19:345–356.
   PubMed Web of Science ®Google Scholar
• Kaptein AA, Scharloo M, Fischer MJ, et al. Illness perceptions and COPD: an emerging field for COPD patient management. J Asthma. 2008;45:625–629.
   PubMed Web of Science ®Google Scholar
• Andersen IC, Thomsen TG, Bruun P, et al. The experience of being a participant in one’s own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study. Int J Qual Stud Health Well-Being. 2017;12:1371994.
   PubMed Web of Science ®Google Scholar
• Disler RT, Gallagher RD, Davidson PM. Factors influencing self-management in chronic obstructive pulmonary disease: an integrative review. Int J Nurs Stud. 2012;49:230–242.
   PubMed Web of Science ®Google Scholar
• Ternestedt B, Andershed B, Eriksson M, et al. A good death: development of a nursing model of care. J Hosp Palliat Nurs. 2002;4:153–160.
   Google Scholar
• Fog J. Conversation as the key point: the qualitative research interview (Med samtalen som udgangspunkt: det kvalitative forskningsinterview). Copenhagen: Akademisk Forlag; 2004.
   Google Scholar
• Hammersley M, Atkinson P. Ethnography – principles in practice. London and New York: Routlegde; 2007.
   Google Scholar
• Spradley JP. Participant observation. New York, Chicago, San Francisco, Dallas: Holt, Rinehart and Winston; 1980.
   Google Scholar
• Kvale S. InterViews: an introduction to qualitative research interviewing. Thousand Oaks: Sage; 1996.
   Google Scholar
• Dreyer PS, Pedersen BD. Distanciation in Ricoeur’s theory of interpretation: narrations in a study of life experiences of living with chronic illness and home mechanical ventilation. Nurs Inq. 2009;16:64.
   PubMed Web of Science ®Google Scholar
• Ricoeur P. Interpretation theory: discourse and the surplus of meaning. Fort Worth (TX): Texas Christian University Press; 1976.
   Google Scholar
• Sundhedsstyrelsen. Rehabilitering af patienter med KOL. (National Clinical Guideline for Rehabilitation of Patients with COPD). [Internet]. Ugeskrift for Læger. 2014; 169:3398–3400.
   Google Scholar
• Spradley JP. The ethnographic interview. Fort Worth, Philadelphia, San Diego New York, Orlando, Austin, San Antonio: Harcourt Brace Jovanovich College Publishers; 1979.
   Google Scholar
• Dahlberg K. The essence of essences – the search for meaning structures in phenomenological analysis of lifeworld phenomena. Int J Qual Stud Heal Well-Being. 2006;1:11.
   Google Scholar
• Dahlberg H, Dahlberg K. To not make definite what is indefinite: a phenomenological analysis of perception and its epistemological consequences in human science research. Humanist Psychol. 2003;31:34.
   Google Scholar
• Emerson RM, Fretz R, Shaw LL. Writing ethnographic fieldnotes. London: The University of Chicago Press; 1995.
   Google Scholar
• Mortensen JN. The common good: an introduction to personalism. Frederiksværk: Bodahl; 2014.
   Google Scholar
• WorldMedicalAssociation. World Medical Association declaration of Helsinki ethical principles for medical research involving human subjects. J Am Med Assoc. 2013;310: 2191–2194.
   Web of Science ®Google Scholar
• Hogg L, Grant A, Garrod R, et al. People with COPD perceive ongoing, structured and socially supportive exercise opportunities to be important for maintaining an active lifestyle following pulmonary rehabilitation: a qualitative study. J Physiother. 2012;58:189–195.
   PubMed Web of Science ®Google Scholar
• Halding A-G, Wahl A, Heggdal K. “Belonging”: patients’ experiences of social relationships during pulmonary rehabilitation. Disabil Rehabil. 2010;32:1272–1280.
   PubMed Web of Science ®Google Scholar
• Birkelund R, Larsen LS. Patient–patient interaction – caring and sharing. Scand J Caring Sci. 2013;27:608–615.
   PubMed Web of Science ®Google Scholar
• Andersen IC, Thomsen TG, Bruun P, et al. Between hope and hopelessness: COPD patients’ and their family members’ experiences of interacting with healthcare providers – a qualitative longitudinal study. Scand J Caring Sci. 2018;32:1–10.
   Web of Science ®Google Scholar
• Halding AG, Heggdal K, Wahl A. Experiences of self-blame and stigmatisation for self-infliction among individuals living with COPD. Scand J Caring Sci. 2011;25:100–107.
   PubMed Web of Science ®Google Scholar
• Simonÿ C, Specht K, Andersen IC, et al. A Ricoeur-inspired approach to interpret participant observations and interviews. Glob Qual Nurs Res. 2018;5:1–10.
   Web of Science ®Google Scholar
• Polit DF, Beck CT. Essentials of nursing research: methods, appraisal, and utilization. Philadelphia: Lippincott Williams & Wilkins; 2006.
   Google Scholar
• Gershon AS, Dolmage TE, Stephenson A, et al. Chronic obstructive pulmonary disease and socioeconomic status: a systematic review. Chronic Obstr Pulm Dis J. 2012;9:216–226.
   Web of Science ®Google Scholar
• Lange P, Marott JL, Vestbo J, et al. Socioeconomic status and prognosis of COPD in Denmark. Chronic Obstr Pulm Dis J. 2014;11:431–437.
   Web of Science ®Google Scholar
• Pedersen BD. Sygeplejepraksis: Sprog & erkendelse. [Nursing practice. Language and cognition] [PhD thesis]. Århus: The Faculty of Helalth Science, University of Aarhus, Denmark; 2005.
   Google Scholar