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Original Articles

The coolest I know – a qualitative study exploring the participation experiences of children with disabilities in an adapted physical activities program

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Pages 2501-2509 | Received 30 Oct 2017, Accepted 10 Dec 2018, Published online: 20 Apr 2019

References

  • Shikako-Thomas K, Dahan-Oliel N, Shevell M, et al. Play and be happy? Leisure participation and quality of life in school-aged children with cerebral palsy. Int J Pediatr. 2012;2012:387280.
  • Bjornson KF, Belza B, Kartin D, et al. The relationship of physical activity to health status and quality of life in cerebral palsy. Pediatr Phys Ther. 2008;20(3):247–253.
  • Dahan-Oliel N, Shikako-Thomas K, Majnemer A. Quality of life and leisure participation in children with neurodevelopmental disabilities: a thematic analysis of the literature. Qual Life Res. 2012;21(3):427–439.
  • Fowler EG, Kolobe TH, Damiano DL, et al. Promotion of physical fitness and prevention of secondary conditions for children with cerebral palsy: section on pediatrics research summit proceedings. Phys Ther. 2007;87(11):1495–1510.
  • Law M, King G, King S, et al. Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol. 2006;48(5):337–342.
  • Shikako-Thomas K, Shevell M, Schmitz N, et al. Determinants of participation in leisure activities among adolescents with cerebral palsy. Res Dev Disabil. 2013;34(9):2621–2634.
  • Ullenhag A, Bult MK, Nyquist A, et al. An international comparison of patterns of participation in leisure activities for children with and without disabilities in Sweden, Norway and the Netherlands. Dev Neurorehabil. 2012;15(5):369–385.
  • Engel-Yeger B, Jarus T, Anaby D, et al. Differences in patterns of participation between youths with cerebral palsy and typically developing peers. The Am J Occup Ther. 2009;63(1):96–104.
  • Lindsay S. Child and youth experiences and perspectives of cerebral palsy: a qualitative systematic review. Child. 2016;42(2):153–175.
  • Bult MK, Verschuren O, Jongmans MJ, et al. What influences participation in leisure activities of children and youth with physical disabilities? A systematic review. Res Dev Disabil. 2011;32(5):1521–1529.
  • Shields N, Synnot AJ, Barr M. Perceived barriers and facilitators to physical activity for children with disability: a systematic review. Br J Sports Med. 2012;46(14):989–997.
  • Anaby D, Hand C, Bradley L, et al. The effect of the environment on participation of children and youth with disabilities: a scoping review. Disabil Rehabil. 2013;35(19):1589–1598.
  • World Health Organization. International Classification of Functioning, Disability, and Health: Children & Youth Version: ICF-CY: World Health Organization; 2007.
  • Dijkers MP. Issues in the conceptualization and measurement of participation: an overview. Archiv Phys Med Rehabil. 2010;91(9 Suppl):S5–S16.
  • Coster W, Khetani MA. Measuring participation of children with disabilities: issues and challenges. Disabil Rehabil. 2008;30(8):19.
  • Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Archiv Phys Med Rehabil. 90(11):S22–S35.
  • Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59(1):16–25.
  • Imms C, Adair B, Keen D, et al. 'Participation': a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Dev Med Child Neurol. 2016;58(1):29–38.
  • Powrie B, Kolehmainen N, Turpin M, et al. The meaning of leisure for children and young people with physical disabilities: a systematic evidence synthesis. Dev Med Child Neurol. 2015;57(11):993–1010.
  • King G, Tucker MA, Baldwin P, et al. A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities. Phys Occup Ther Pediatr. 2002;22(2):53–77.
  • Adair B, Ullenhag A, Keen D, et al. The effect of interventions aimed at improving participation outcomes for children with disabilities: a systematic review. Dev Med Child Neurol. 2015;57(12):1093–1104.
  • Imms C, Mathews S, Richmond KN, et al. Optimising leisure participation: a pilot intervention study for adolescents with physical impairments. Disabil Rehabil. 2016;38(10):963–971.
  • Zwinkels M, Verschuren O, Lankhorst K, et al. Sport-2-Stay-Fit study: health effects of after-school sport participation in children and adolescents with a chronic disease or physical disability. BMC Sports Sci Med Rehabil. 2015;7(22):1–9.
  • Baxendale J, Lockton E, Adams C, et al. Parent and teacher perceptions of participation and outcomes in an intensive communication intervention for children with pragmatic language impairment. Int J Lang Commun Dis. 2013;48(1):41–53.
  • Anaby DR, Law M, Feldman D, et al. The effectiveness of the Pathways and Resources for Engagement and Participation (PREP) intervention: improving participation of adolescents with physical disabilities. Dev Med Child Neurol. 2018;60(5):513–519.
  • Wachs TD. Necessary but not sufficient: the respective roles of single and multiple influences on individual development. Washington (DC): American Psychological Association; 2000.
  • Brown CA. The application of complex adaptive systems theory to clinical practice in rehabilitation. Disabil Rehabil. 2006;28(9):587–593.
  • Willis CE, Reid S, Elliott C, et al. 'It's important that we learn too': empowering parents to facilitate participation in physical activity for children and youth with disabilities. Scand J Occup Ther. 2019;26(2):135–148.
  • Shikako-Thomas K, Kolehmainen N, Ketelaar M, et al. Promoting leisure participation as part of health and well-being in children and youth with cerebral palsy. J Child Neurol. 2014;29(8):1125–1133.
  • Tatla SK, Sauve K, Virji-Babul N, et al. Evidence for outcomes of motivational rehabilitation interventions for children and adolescents with cerebral palsy: an American Academy for Cerebral Palsy and Developmental Medicine systematic review. Dev Med Child Neurol. 2013;55(7):593–601.
  • Henderson S, Skelton H, Rosenbaum P. Assistive devices for children with functional impairments: impact on child and caregiver function. Dev Med Child Neurol. 2008;50(2):89–98.
  • Willis CE, Reid S, Elliott C, et al. A realist evaluation of a physical activity participation intervention for children and youth with disabilities: what works, for whom, in what circumstances, and how? BMC Pediatr. 2018;18(1):113.
  • Chinn PL, Kramer MK. Theory and Nursing Integrated Knowledge Development; 1999.
  • Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–115.
  • Hutzler Y, Sherrill C. Defining adapted physical activity: international perspectives. Adapt Phys Act Quart. 2007;24(1):1–20.
  • Guba EG. Criteria for assessing the trustworthiness of naturalistic inquiries. Educ Technol Res Dev. 1981;29(2):75–91.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.
  • Goodwin DL, Lieberman LJ, Johnston K, et al. Connecting through summer camp: youth with visual impairments find a sense of community. Adapt Phys Act Quart. 2011;28(1):40–55.
  • Willis C, Girdler S, Thompson M, et al. Elements contributing to meaningful participation for children and youth with disabilities: a scoping review. Disabil Rehabil. 2017;39(17):1771–1784.
  • Sansone C, Thoman DB. Maintaining activity engagement: individual differences in the process of self-regulating motivation. J Person. 2006;74(6):1697–1720.
  • KristÈn L, Patriksson G, Fridlund B. Conceptions of children and adolescents with physical disabilities about their participation in a sports programme. Eur Phys Educ Rev. 2002;8(2):139–156.
  • Palisano RJ, Chiarello LA, King GA, et al. Participation-based therapy for children with physical disabilities. Disabil Rehabil. 2012;34(12):1041–1052.
  • Law M, Darrah J. Emerging therapy approaches: an emphasis on function. J Child Neurol. 2014;29(8):1101–1107.
  • Saebu M, Sørensen M, Halvari H. Motivation for physical activity in young adults with physical disabilities during a rehabilitation stay: a longitudinal test of self‐determination theory. J Appl Soc Psychol. 2013;43(3):612–625.
  • Heah T, Case T, McGuire B, et al. Successful participation: the lived experience among children with disabilities. Can J Occup Ther. 2007;74(1):38–47.

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