Participation seven years after severe childhood traumatic brain injury^*

References

• Dewan MC, Mummareddy N, Wellons JC. Epidemiology of global pediatric traumatic brain injury: qualitative review. World Neurosurg. 2016;91:497–509.e1.
   PubMed Web of Science ®Google Scholar
• Babikian T, Merkley T, Savage RC, et al. Chronic aspects of pediatric traumatic brain injury: review of the literature. J Neurotrauma. 2015;32:1849–1860.
   PubMed Web of Science ®Google Scholar
• Ryan NP, van Bijnen L, Catroppa C, et al. Longitudinal outcome and recovery of social problems after pediatric traumatic brain injury (TBI): contribution of brain insult and family environment. Int J Dev Neurosci. 2016;49:23–30.
   PubMed Web of Science ®Google Scholar
• Rosema S, Crowe L, Anderson V. Social function in children and adolescents after traumatic brain injury: a systematic review 1989–2011. J Neurotrauma. 2012;29:1277–1291.
   PubMed Web of Science ®Google Scholar
• Muscara F, Catroppa C, Eren S, et al. The impact of injury severity on long-term social outcome following paediatric traumatic brain injury. Neuropsychol Rehabil. 2009;19:541–561.
   PubMed Web of Science ®Google Scholar
• Chertkoff WN, Owen YK, Wade SL, et al. Social information processing skills in adolescents with traumatic brain injury: Relationship with social competence and behavior problems. J Pediatr Rehabil Med Inderdiscip Approach. 2009;4;285–295.
   Google Scholar
• Janusz JA, Kirkwood MW, Yeates KO, et al. Social problem-solving skills in children with traumatic brain injury: long-term outcomes and prediction of social competence. Child Neuropsychol J Norm Abnorm Dev Child Adolesc. 2002;8:179–194.
   PubMed Web of Science ®Google Scholar
• Kapapa T, Pfister U, König K, et al. Head trauma in children, part 3: clinical and psychosocial outcome after head trauma in children. J Child Neurol. 2010;25:409–422.
   PubMed Web of Science ®Google Scholar
• Ryan NP, Catroppa C, Cooper JM, et al. Relationships between acute imaging biomarkers and theory of mind impairment in post-acute pediatric traumatic brain injury: a prospective analysis using susceptibility weighted imaging (SWI). Neuropsychologia. 2015;66:32–38.
   PubMed Web of Science ®Google Scholar
• Treble-Barna A, Zang H, Zhang N, et al. Long-term neuropsychological profiles and their role as mediators of adaptive functioning after traumatic brain injury in early childhood. J Neurotrauma. 2017;34:353–362.
   PubMed Web of Science ®Google Scholar
• Levin HS, Hanten G, Li X. The relation of cognitive control to social outcome after paediatric TBI: implications for intervention. Dev Neurorehabil. 2009;12:320–329.
   PubMed Web of Science ®Google Scholar
• Hung AH, Cassedy A, Schultz HM, et al. Predictors of long-term victimization after early pediatric traumatic brain injury. J Dev Behav Pediatr. 2017;38:49–57.
   PubMed Web of Science ®Google Scholar
• Katz-Leurer M, Rotem H, Keren O, et al. Recreational physical activities among children with a history of severe traumatic brain injury. Brain Inj. 2010;24:1561–1567.
   PubMed Web of Science ®Google Scholar
• Anderson V, Godfrey C, Rosenfeld JV, et al. 10 years outcome from childhood traumatic brain injury. Int J Dev Neurosci. 2012;30:217–224.
   PubMed Web of Science ®Google Scholar
• Crowe LM, Catroppa C, Babl FE, et al. Intellectual, behavioral, and social outcomes of accidental traumatic brain injury in early childhood. Pediatrics. 2012;129:e262–e268.
   PubMed Web of Science ®Google Scholar
• Keenan HT, Clark AE, Holubkov R, et al. Psychosocial and executive function recovery trajectories one year after pediatric traumatic brain injury: the influence of age and injury severity. J Neurotrauma. 2018;35:286–296.
   PubMed Web of Science ®Google Scholar
• Yeates KO, Taylor HG, Walz NC, et al. The family environment as a moderator of psychosocial outcomes following traumatic brain injury in young children. Neuropsychology. 2010;24:345–356.
   PubMed Web of Science ®Google Scholar
• Lantagne A, Peterson RL, Kirkwood MW, et al. Featured article: interpersonal stressors and resources as predictors of adolescent adjustment following traumatic brain injury. J Pediatr Psychol. 2018;43:703–712.
   PubMed Web of Science ®Google Scholar
• Bedell G, Coster W. Measuring participation of school-aged children with traumatic brain injuries: considerations and approaches. J Head Trauma Rehabil. 2008;23:220–229.
   PubMed Web of Science ®Google Scholar
• Morris C. Measuring participation in childhood disability: how does the capability approach improve our understanding? Dev Med Child Neurol. 2009;51:92–94.
   PubMed Web of Science ®Google Scholar
• McCauley SR, Wilde EA, Anderson VA, et al. Recommendations for the use of common outcome measures in pediatric traumatic brain injury research. J Neurotrauma. 2012;29:678–705.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability and health. Geneva, Switzerland: WHO; 2001.
   Google Scholar
• Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil. 2009;90:S22–S35.
   PubMed Web of Science ®Google Scholar
• McConachie H, Colver AF, Forsyth RJ, et al. Participation of disabled children: how should it be characterised and measured? Disabil Rehabil. 2006;28:1157–1164.
   PubMed Web of Science ®Google Scholar
• Coster W, Khetani MA. Measuring participation of children with disabilities: issues and challenges. Disabil Rehabil. 2008;30:639–648.
   PubMed Web of Science ®Google Scholar
• King G, Law M, King S, et al. A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Phys Occup Ther Pediatr. 2003;23:63–90.
   PubMedGoogle Scholar
• Bedell GM. Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after discharge from inpatient rehabilitation. NeuroRehabilitation. 2004;19:191–205.
   PubMed Web of Science ®Google Scholar
• Bedell G. Further validation of the Child and Adolescent Scale of Participation (CASP). Dev Neurorehabil. 2009;12:342–351.
   PubMed Web of Science ®Google Scholar
• Golos A, Bedell G. Psychometric properties of the Child and Adolescent Scale of Participation (CASP) across a 3-year period for children and youth with traumatic brain injury. NeuroRehabilitation. 2016;38:311–319.
   PubMed Web of Science ®Google Scholar
• Harrison PL, Oakland T. Adaptive behavior assessment system. 2nd Edition. San Antonio: Psychological Corp.; 2003.
   Google Scholar
• Varni JW, Seid M, Rode CA. The PedsQL: measurement model for the pediatric quality of life inventory. Med Care. 1999;37:126–139.
   PubMed Web of Science ®Google Scholar
• Golos A, Bedell G. Responsiveness and discriminant validity of the Child and Adolescent Scale of Participation across three years for children and youth with traumatic brain injury. Dev Neurorehabil. 2018;21:431–438.
   PubMed Web of Science ®Google Scholar
• Chambéron M, Catale C, Kerrouche B, et al. Factors associated with participation in children and adolescents with acquired brain injury: validation of the French version of the Child and Adolescent Scale of Participation (CASP). Disabil Rehabil(submitted);
   Google Scholar
• de Kloet AJ, Gijzen R, Braga LW, et al. Determinants of participation of youth with acquired brain injury: a systematic review. Brain Inj. 2015;29:1135–1145.
   PubMed Web of Science ®Google Scholar
• Anderson V, Beauchamp MH, Yeates KO, et al. Social competence at two years after childhood traumatic brain injury. J Neurotrauma. 2017;34:2261–2271.
   PubMed Web of Science ®Google Scholar
• McDougall J, Bedell G, Wright V. The youth report version of the Child and Adolescent Scale of Participation (CASP): assessment of psychometric properties and comparison with parent report. Child Care Health Dev. 2013;39:512–522.
   PubMed Web of Science ®Google Scholar
• van Tol E, Gorter JW, DeMatteo C, et al. Participation outcomes for children with acquired brain injury: a narrative review. Brain Inj. 2011;25:1279–1287.
   PubMed Web of Science ®Google Scholar
• Thompson M, Elliott C, Willis C, et al. Can, want and try: parents’ viewpoints regarding the participation of their child with an acquired brain injury. Plos One. 2016;11:e0157951.
   PubMed Web of Science ®Google Scholar
• Bedell GM, Khetani MA, Cousins MA, et al. Parent perspectives to inform development of measures of children's participation and environment. Arch Phys Med Rehabil. 2011;92:765–773.
   PubMed Web of Science ®Google Scholar
• Rivara FP, Vavilala MS, Durbin D, et al. Persistence of disability 24 to 36 months after pediatric traumatic brain injury: a cohort study. J Neurotrauma. 2012;29:2499–2504.
   PubMed Web of Science ®Google Scholar
• Catroppa C, Godfrey C, Rosenfeld JV, et al. Functional recovery ten years after pediatric traumatic brain injury: outcomes and predictors. J Neurotrauma. 2012;29:2539–2547.
   PubMed Web of Science ®Google Scholar
• Catroppa C, Hearps S, Crossley L, et al. Social and behavioral outcomes following childhood traumatic brain injury: what predicts outcome at 12 months post-insult? J Neurotrauma. 2017;34:1439–1447.
   PubMed Web of Science ®Google Scholar
• Shultz EL, Hoskinson KR, Keim MC, et al. Adaptive functioning following pediatric traumatic brain injury: relationship to executive function and processing speed. Neuropsychology. 2016;30:830–840.
   PubMed Web of Science ®Google Scholar
• Anderson V, Beauchamp MH, Yeates KO, et al. Social competence at 6 months following childhood traumatic brain injury. J Int Neuropsychol Soc. 2013;19:539–550.
   PubMed Web of Science ®Google Scholar
• Meadows EA, Owen Yeates K, Rubin KH, et al. Rejection sensitivity as a moderator of psychosocial outcomes following pediatric traumatic brain injury. J Int Neuropsychol Soc. 2017;23:451–459.
   PubMed Web of Science ®Google Scholar
• Teasdale G, Jennett B. Assessment of coma and impaired consciousness. A practical scale. Lancet. 1974;2:81–84.
   PubMed Web of Science ®Google Scholar
• Baker SP, O’Neill B, Haddon W, et al. The injury severity score. A method for describing patients with multiple injuries and evaluating emergency care. J Trauma. 1974;14:187–196.
   PubMed Web of Science ®Google Scholar
• Carney NA, Chesnut R, Kochanek PM. Guidelines for the acute medical management of severe traumatic brain injury in infants, children, and adolescents. Pediatr Crit. Care Med. 2003;4:1–75.
   Google Scholar
• Chevignard M, Toure H, Brugel DG, et al. A comprehensive model of care for rehabilitation of children with acquired brain injuries. Child Care Health Dev. 2010;36:31–43.
   PubMed Web of Science ®Google Scholar
• Tepas JJ, Mollitt DL, Talbert JL, et al. The pediatric trauma score as a predictor of injury severity in the injured child. J Pediatr Surg. 1987;22:14–18.
   PubMed Web of Science ®Google Scholar
• Baker SP, O'Neill B. The injury severity score: an update. J Trauma. 1976;16:882–885.
   PubMed Web of Science ®Google Scholar
• Copes WS, Champion HR, Sacco WJ, et al. The Injury Severity Score revisited. J Trauma. 1988;28:69–77.
   PubMed Web of Science ®Google Scholar
• Beers SR, Wisniewski SR, Garcia-Filion P, et al. Validity of a pediatric version of the glasgow outcome scale-extended. J Neurotrauma. 2012;29:1126–1139.
   PubMed Web of Science ®Google Scholar
• Ewing-Cobbs L, Bloom DR, Prasad MR, et al. Assessing recovery and disability after physical trauma: the pediatric injury functional outcome scale. J Pediatr Psychol. 2014;39:653–665.
   PubMed Web of Science ®Google Scholar
• Wilson JTL, Pettigrew LEL, Teasdale GM. Structured interviews for the Glasgow outcome scale and the extended Glasgow outcome scale: guidelines for their use. J Neurotrauma. 1998;15:573–585.
   PubMed Web of Science ®Google Scholar
• Wechsler D. Échelle d’intelligence de Wechsler pour enfants: WISC-IV. Paris, France: Les Éditions du Centre de Psychologie Appliquée; 2005.
   Google Scholar
• Wechsler D. Échelle d’intelligence de Wechsler pour adultes: WAIS-IV. Paris, France: Les Éditions du Centre de Psychologie Appliquée; 2011.
   Google Scholar
• Gioia GA, Isquith PK, Guy SC, et al. Behavior rating inventory of executive function. Lutz, FL.: Psychological Assessment Ressources, Inc.; 2000.
   Google Scholar
• Roth RM, Gioia GA, Isquith PK. BRIEF-A Inventaire d’évaluation comportementale des fonctions exécutives - version adulte [BRIEF-A Behavior rating inventory of executive function - adult version]. Besnard J, Fournet N, Lancelot C, et al. editors. Adaptation Française. Paris, France: Hogrefe; 2015.
   Google Scholar
• Achenbach TM. Manual for Child Behavior Checklist/4-18 and 1991 Profile. Burlington, VT: University of Vermont, Dept. of Psychiatry; 1991.
   Google Scholar
• Varni JW, Limbers CA. The PedsQL 4.0 Generic Core Scales Young Adult Version: feasibility, reliability and validity in a university student population. J Health Psychol. 2009;14:611–622.
   PubMed Web of Science ®Google Scholar
• Varni JW, Burwinkle TM, Katz ER, et al. The PedsQL in pediatric cancer: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales, Multidimensional Fatigue Scale, and Cancer Module. Cancer. 2002;94:2090–2106.
   PubMed Web of Science ®Google Scholar
• Varni JW, Limbers CA. The PedsQLTM Multidimensional Fatigue Scale in young adults: feasibility, reliability and validity in a University student population. Qual Life Res. 2008;17:105–114.
   PubMed Web of Science ®Google Scholar
• Varni JW, Burwinkle TM, Szer IS. The PedsQL Multidimensional Fatigue Scale in pediatric rheumatology: reliability and validity. J Rheumatol. 2004;31:2494–2500.
   PubMed Web of Science ®Google Scholar
• Varni JW, Limbers CA, Bryant WP, et al. The PedsQL Multidimensional Fatigue Scale in type 1 diabetes: feasibility, reliability, and validity. Pediatr Diabetes. 2009;10:321–328.
   PubMed Web of Science ®Google Scholar
• Varni JW, Limbers CA, Bryant WP, et al. The PedsQL Multidimensional Fatigue Scale in pediatric obesity: feasibility, reliability and validity. Int J Pediatr Obes. 2010;5:34–42.
   PubMed Web of Science ®Google Scholar
• Speranza M, Guénolé F, Revah-Levy A, et al. The French version of the family assessment device. Can J Psychiatry. 2012;57:570–577.
   PubMed Web of Science ®Google Scholar
• Statistical Analysis Software Institute Inc. SAS/STAT ® 9.1 User’s Guide. Cary, NC: Statistical Analysis Software Institute Inc.; 2004.
   Google Scholar
• Marin RS. Differential diagnosis and classification of apathy. Am J Psychiatry. 1990;147:22–30.
   PubMed Web of Science ®Google Scholar
• Marin RS, Fogel BS, Hawkins J, et al. Apathy: a treatable syndrome. J Neuropsychiatry Clin Neurosci. 1995;7:23–30.
   PubMed Web of Science ®Google Scholar
• Arnould A, Rochat L, Azouvi P, et al. A multidimensional approach to apathy after traumatic brain injury. Neuropsychol Rev. 2013;23:210–233.
   PubMed Web of Science ®Google Scholar
• Galvin J, Froude EH, McAleer J. Children’s participation in home, school and community life after acquired brain injury. Aust Occup Ther J. 2010;57:118–126.
   PubMed Web of Science ®Google Scholar
• Aaro Jonsson CC, Emanuelson IM, Charlotte Smedler A. Variability in quality of life 13 years after traumatic brain injury in childhood. Int J Rehabil Res. 2014;37:317–322.
   PubMed Web of Science ®Google Scholar
• Wells R, Minnes P, Phillips M. Predicting social and functional outcomes for individuals sustaining paediatric traumatic brain injury. Dev Neurorehabil. 2009;12:12–23.
   PubMed Web of Science ®Google Scholar
• Catroppa C, Crossley L, Hearps SJC, et al. Social and behavioral outcomes: pre-injury to six months following childhood traumatic brain injury. J Neurotrauma. 2015;32:109–115.
   PubMed Web of Science ®Google Scholar
• Bedell GM, Dumas HM. Social participation of children and youth with acquired brain injuries discharged from inpatient rehabilitation: a follow-up study. Brain Inj. 2004;18:65–82.
   PubMed Web of Science ®Google Scholar
• Foo WS, Galvin J, Olsen J. Participation of children with ABI and the relationship with discharge functional status. Dev Neurorehabil. 2012;15:1–12.
   PubMed Web of Science ®Google Scholar