The potential contribution of critical theories in healthcare transition research and practice

References

• Betz CL, Ferris ME, Woodward JF, et al. The health care transition research consortium health care transition model: a framework for research and practice. J Pediatr Rehabil Med. 2014;7(1):3–15.
   PubMedGoogle Scholar
• American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128:182–200.
   PubMed Web of Science ®Google Scholar
• Scal P. Improving health care transition services: just grow up will you please. JAMA Pediatr. 2016;170(3):197–199.
   PubMed Web of Science ®Google Scholar
• Dieluweit U, Debatin KM, Grabow D, et al. Social outcomes of long-term survivors of adolescent cancer. Psychooncology. 2012;19:277–1284.
   Web of Science ®Google Scholar
• Lorenzi MF, Xie L, Rogers PC, et al. Hospital-related morbidity among childhood cancer survivors in British Columbia, Canada: report of the childhood, adolescent, young adult cancer survivors (CAYACS) program. Int J Cancer. 2011;28:1624–1631.
   Web of Science ®Google Scholar
• Koop CE. Who are the disabled among us? J Adolesc Health Care. 1985;6(2):156–158.
   PubMedGoogle Scholar
• Rosen DS, Blum RW, Britto M, et al. Transition to adult health care for adolescents and young adults with chronic conditions. J Adolesc Heal. 2003;33(4):309–311.
   PubMed Web of Science ®Google Scholar
• Gibson BE. Rehabilitation: a post-critical approach. Boca Raton (FL): Taylor & Francis; 2015.
   Google Scholar
• Gerlach AJ. Sharpening our critical edge: occupational therapy in the context of marginalized populations. Can J Occup Ther. 2015;82(4):245–253.
   PubMed Web of Science ®Google Scholar
• Hammell KRW, Iwama MK. Well-being and occupational rights: an imperative for critical occupational therapy. Scand J Occup Ther. 2012;19(5):385–394.
   PubMed Web of Science ®Google Scholar
• American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians- American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics. 2002;110(6):1304–1306. Available from: http://pediatrics.aappublications.org/content/110/Supplement_3/1304
   PubMed Web of Science ®Google Scholar
• Fair C, Cuttance J, Sharma N, et al. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatr. 2016;170(3):205–211.
   PubMed Web of Science ®Google Scholar
• Hamdani Y, Jetha A, Norman C. Systems thinking perspectives applied to healthcare transition for youth with disabilities: a paradigm shift for practice, policy and research. Child Care Health Dev. 2011;37(6):806–814.
   PubMed Web of Science ®Google Scholar
• Commission on social determinants of health's interim statement [Internet]. Geneva: World Health Organization Commission on Social Determinants of Health; 2007 [cited 2019 Mar 24]. Available from: www.who.int/social_determinants/resources/interim_statement/csdh_interim_statement_intro_07.pdf
   Google Scholar
• Van Herk KA, Smith D, Andrew C. Examining our privileges and oppressions: incorporating an intersectionality paradigm into nursing. Nurs Inq. 2011;18(1):29–39.
   PubMed Web of Science ®Google Scholar
• Abbott D, Carpenter J. Wasting precious time”: young men with Duchenne muscular dystrophy negotiate the transition to adulthood. Disabil Soc. 2014;29(8):1192–1205.
   Web of Science ®Google Scholar
• Cook K, Siden H, Jack S, et al. Up against the system: a case study of young adult perspectives transitioning from pediatric palliative care. Nurs Res Pract. 2013;2013:1–10.
   Google Scholar
• Gibson BE, Young NL, Upshur REG, et al. Men on the margin: a Bourdieusian examination of living into adulthood with muscular dystrophy. Soc Sci Med. 2007;65(3):505–517.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Yantzi N. Weather, disability, vulnerability, and resilience: exploring how youth with physical disabilities experience winter. Disabil Rehabil. 2014;36(26):2195–2204.
   PubMed Web of Science ®Google Scholar
• Schwartz LA, Tuchman LK, Hobbie WL, et al. A social-ecological model of readiness for transition to adult-oriented care for adolescents and young adults with chronic health conditions. Child Care Health Dev. 2011;37(6):883–895.
   PubMed Web of Science ®Google Scholar
• Lindsay S, McAdam L, Mahendiran T. Enablers and barriers of men with Duchenne muscular dystrophy transitioning from an adult clinic within a pediatric hospital. Disabil Health J. 2017;10(1):73–79.
   PubMed Web of Science ®Google Scholar
• Stewart D, Freeman M, Law M, et al. The transition to adulthood for youth with disabilities: Evidence from the literature. In: Stone JH, Blouin M, editors. International Encyclopedia of Rehabilitation. Buffalo (NY): Center for International Rehabilitation Research Information and Exchange; 2010 [cited 2014 Sep 1]. Available from: http://cirrie.buffalo.edu/encyclopedia/en/article/110/
   Google Scholar
• van Staa A, van Der Stege HA, Jedeloo S, et al. Readiness to transfer to adult care of adolescents with chronic conditions: exploration of associated factors. J Adolesc Heal. 2011;48(3):295–302.
   PubMed Web of Science ®Google Scholar
• Labhard S. Transitioning to adulthood with disabilities: a holistic approach. Top Spinal Cord Inj Rehabil. 2010;16(1):1–16.
   Google Scholar
• Sawyer SM, MacNee S. Transition to adult health care for adolescents with spina bifida: research issues. Dev Disabil Res Revs. 2010;16(1):60–65.
   PubMed Web of Science ®Google Scholar
• Kelly AM, Kratz B, Bielski M, et al. Implementing transitions for youth with complex chronic conditions using the medical home model. Pediatrics. 2002;110(6 Pt 2):1322–1327.
   PubMed Web of Science ®Google Scholar
• Stewart D, Law M, Young NL, et al. Complexities during transitions to adulthood for youth with disabilities: person-environment interactions. Disabil Rehabil. 2014;36(23):1998–2004.
   PubMed Web of Science ®Google Scholar
• Joly E. Integrating transition theory and bioecological theory: a theoretical perspective for nurses supporting the transition to adulthood for young people with medical complexity. J Adv Nurs. 2016;72(6):1251–1262.
   PubMed Web of Science ®Google Scholar
• Doane GH, Varcoe C. How to nurse: relational inquiry with individuals and families in changing health care contexts. Baltimore (MD): Lippincott Williams & Wilkins; 2015.
   Google Scholar
• Kincheloe JL, McLaren P, Steinberg SR. Critical pedagogy and qualitative research. In: Denizen NK, Lincoln YS, editors. The SAGE handbook of qualitative research. Thousand Oaks (CA): Sage; 2011. p. 163–178.
   Google Scholar
• Lincoln YS, Lynham SA, Guba EG. Paradigmatic controversies, contradictions, and emerging confluences, revisited. In: Denizen NK, Lincoln YS, editors. The SAGE handbook of qualitative research. Thousand Oaks (CA): Sage; 2011. p. 97–128.
   Google Scholar
• Meekosha H, Shuttleworth RP. What’s so critical about critical disability studies? Aust J Hum Rights. 2009;15(1):47–75.
   Google Scholar
• Njelesani J, Gibson BE, Nixon S, et al. Towards a critical occupational approach to research. Int J Qual Methods. 2013;12(1):207–220.
   Web of Science ®Google Scholar
• Habermas J. The theory of communicative action. Vol. 2 Lifeworld and system: a critique of functionalist reason. Boston (MA): Beacon Press; 1987.
   Google Scholar
• Browne AJ. The potential contribution of critical social theory to nursing science. Can J Nurs Res. 2000;32(2):35–55.
   PubMedGoogle Scholar
• Mertens DM, Sullivan M, Stace H. Disability communities: transformative research for social practice. In: Denizen NK, Lincoln YS, editors. The SAGE handbook of qualitative research. Thousand Oaks (CA): Sage; 2011. p. 227–241.
   Google Scholar
• Browne AJ, Smye VL, Varcoe C. The relevance of postcolonial theoretical perspectives to research in Aboriginal health. Can J Nurs Res. 2005;37(4):16–37.
   PubMedGoogle Scholar
• Gerlach AJ, Teachman G, Laliberte-Rudman D, et al. Expanding beyond individualism: engaging critical perspectives on occupation. Scand J Occup Ther. 2018;25(1):35–43.
   PubMed Web of Science ®Google Scholar
• Hammel KW. Occupational rights and critical occupational therapy: rising to the challenge. Aust Occup Ther J. 2015;62(2):449–451.
   PubMed Web of Science ®Google Scholar
• Noyes J, Pritchard S, Pritchard A, et al. Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services. J Adv Nurs. 2018;74(12):2871–2881.
   PubMed Web of Science ®Google Scholar
• Hankivsky O, Christoffersen A. Intersectionality and the determinants of health: a Canadian perspective. Crit Public Health. 2008;18(3):271–283.
   Google Scholar
• Crenshaw K. Demarginalizing the intersection of race and sex: a black feminist critique of antidiscrimination doctrine, feminist theory and antiracist policies. Univ Chic Leg Forum. 1989;1989(1):139–167.
   Google Scholar
• Hankivsky O. Intersectionality 101. Vancouver (BC): The Institute for Intersectionality Research & Policy, Simon Fraser University; 2014.
   Google Scholar
• Hankivsky O, Grace D, Hunting G, et al. An intersectionality-based policy analysis framework: critical reflections on a methodology for advancing equity. Int J Equity Health. 2014;13(1):119.
   PubMed Web of Science ®Google Scholar
• Teachman G. Interrogating inclusion: critical research with disabled youth who use augmentative and alternative communication [dissertation]. Toronto (ON): University of Toronto; 2016.
   Google Scholar
• Berben L, Dobbels F, Engberg S, et al. An ecological perspective on medication adherence. West J Nurs Res. 2012;34(5):635–653.
   PubMed Web of Science ®Google Scholar
• Fredericks EM. Nonadherence and the transition to adulthood. Liver Transpl. 2009;15(S2):S63–S69.
   PubMed Web of Science ®Google Scholar
• Pai ALH, Ostendorf HM. Treatment adherence in adolescents and young adults affected by chronic illness during the health care transition from pediatric to adult care: a literature review. Children's Hlth Care. 2011;40(1):16–33.
   Web of Science ®Google Scholar
• Bissonnette JM. Adherence: a concept analysis. J Adv Nurs. 2008;63(6):634–643.
   PubMed Web of Science ®Google Scholar
• Rouhani S. Intersectionality-informed quantitative research: a primer. Vancouver, BC: The Institute for Intersectionality Research & Policy, Simon Fraser University; 2014.
   Google Scholar
• Flintoff A, Fitzgerald H, Scraton S. The challenges of intersectionality: researching difference in physical education. Int Stud Soc Educ. 2008;18(2):73–85.
   Google Scholar
• Cook KA, Jack SM, Siden H, et al. Investing in uncertainty: young adults with life-limiting conditions achieving their developmental goals. J Palliat Med. 2016;19(8):830–835.
   PubMed Web of Science ®Google Scholar
• Joly E. Transition to adulthood for young people with medical complexity: an integrative literature review. J Pediatr Nurs. 2015;30(5):e91–103.
   PubMed Web of Science ®Google Scholar
• Fairclough N. Analyzing discourse: textual analysis for social research. London: Routledge; 2003.
   Google Scholar
• Phillips L, Jorgensen MW. Discourse analysis as theory and method. London: Sage; 2002.
   Google Scholar
• Persson A, Newman C. When HIV-positive children grow up: a critical analysis of the transition literature in developed countries. Qual Health Res. 2012;22(5):656–667.
   PubMed Web of Science ®Google Scholar
• Priestley M. Disability: a life course approach. Malden (MA): Polity; 2003.
   Google Scholar
• Walkerdine V. Beyond developmentalism? Theory Psychol. 1993;3(4):451–469.
   Web of Science ®Google Scholar
• Hamdani Y, Mistry B, Gibson BE. Transitioning to adulthood with a progressive condition: best practice assumptions and individual experiences of young men with Duchenne muscular dystrophy. Disabil Rehabil. 2015;37(13):1144–1151.
   PubMed Web of Science ®Google Scholar
• Gibson BE, Mistry B, Smith B, et al. Becoming men: gender, disability, and transitioning to adulthood. Health (London). 2014;18(1):95–114.
   PubMed Web of Science ®Google Scholar
• Widdowson HG. Discourse analysis: a critical view. Lang Lit. 1995;4(3):157–172.
   Google Scholar
• Purvis T, Hunt A. Discourse, ideology, discourse, ideology, discourse, ideology…. Brit J Sociol. 1993;44(3):473–499.
   Web of Science ®Google Scholar
• Hubley AM, Zumbo BD. Validity and the consequences of test interpretation and use. Soc Indic Res. 2011;103(2):219–230.
   Web of Science ®Google Scholar
• MacKenzie SB. The dangers of poor construct conceptualization. J Acad Mark Sci. 2003;31(3):323–326.
   Web of Science ®Google Scholar
• Straus E. Challenges in measuring healthcare transition readiness: taking stock and looking forward. J Pediatr Nurs. 2019;46:109–117.
   PubMed Web of Science ®Google Scholar
• Vandenberg RJ, Lance CE. A review and synthesis of the measurement invariance literature: suggestions, practices, and recommendations for organizational research. Organ Res Methods. 2000;3(1):4–70.
   Web of Science ®Google Scholar
• Nixon SA, Yeung E, Shaw JA, et al. Seven-step framework for critical analysis and its application in the field of physical therapy. Phys Ther. 2017;97(2):249–257.
   PubMed Web of Science ®Google Scholar
• Nairn S, Pinnock D. Pierre Bourdieu: expanding the scope of nursing research and practice. Nurs Philos. 2017;18(4):e12167.
   Web of Science ®Google Scholar