Using ecological momentary assessment to evaluate neuropathic pain experienced by adults with SCI: recommendations and participant perceptions

References

• Siddall PJ, McClelland JM, Rutkowski SB, Cousins MJ. A longitudinal study of the prevalence and characteristics of pain in the first 5 years following spinal cord injury. Pain. 2003;103(3):249–257.
   PubMed Web of Science ®Google Scholar
• Anson CA, Shepherd C. Incidence of secondary complications in spinal cord injury. Int J Rehabil Res. 1996;19(1):55–66.
   PubMed Web of Science ®Google Scholar
• Backonja M-M, Stacey B. Neuropathic pain symptoms relative to overall pain rating. J Pain. 2004;5(9):491–497.
   PubMed Web of Science ®Google Scholar
• Redelmeier DA, Kahneman D. Patientsʼ memories of painful medical treatments: real-time and retrospective evaluations of two minimally invasive procedures. Pain. 1996;66(1):3–8.
   PubMed Web of Science ®Google Scholar
• Dworkin RH, Turk DC, Farrar JT, et al. Core outcome measures for chronic pain clinical trials: IMMPACT recommendations. Pain. 2005;113(1):9–19.
   PubMed Web of Science ®Google Scholar
• May M, Junghaenel DU, Ono M, et al. Ecological momentary assessment methodology in chronic pain research: a systematic review. J Pain. 2018;19(7):699–716.
   PubMed Web of Science ®Google Scholar
• Stone AA, Shiffman S, Schwartz JE, et al. Patient compliance with paper and electronic diaries. Control Clin Trials. 2003;24(2):182–199.
   PubMedGoogle Scholar
• Shiffman S, Stone AA, Hufford MR. Ecological momentary assessment. Annu Rev Clin Psychol. 2008;4(1):1–32.
   PubMed Web of Science ®Google Scholar
• Rejeski WJ, Gauvin L, Hobson ML, et al. Effects of baseline responses, in-task feelings, and duration of activity on exercise-induced feeling states in women. Heal Psychol. 1995;14(4):350–359.
   PubMed Web of Science ®Google Scholar
• Eich E. Context, memory, and integrated item/context imagery. J Exp Psychol Learn Mem Cogn. 1985;11(4):764–770.
   Web of Science ®Google Scholar
• Hufford MR, Shields AL. Rationale for developing EDs electronic diaries applications and what works in the field. Appl Clin Trials. 2002;11(4):44–56.
   Google Scholar
• Sorbi MJ, Peters ML, Kruise DA, et al. Electronic momentary assessment in chronic pain II: pain and psychological pain responses as predictors of pain disability. Clin J Pain. 2006;22(1):67–81.
   PubMed Web of Science ®Google Scholar
• Smyth JM, Smyth JM. Ecological momentary assessment research in behavioral medicine. J Happiness Stud. 2003;4(1):35–52.
   Google Scholar
• Hadjipavlou G, Cortese AM, Ramaswamy B. Spinal cord injury and chronic pain. BJA Educ. 2016;16(8):264–268.
   Web of Science ®Google Scholar
• Morren M, Dulmen S, Ouwerkerk J, et al. Compliance with momentary pain measurement using electronic diaries: a systematic review. Eur J Pain. 2009;13(4):354–365.
   PubMed Web of Science ®Google Scholar
• Wolf LD, Davis MC, Yeung EW, et al. The within-day relation between lonely episodes and subsequent clinical pain in individuals with fibromyalgia: mediating role of pain cognitions. J Psychosom Res. 2015;79(3):202–206.
   PubMed Web of Science ®Google Scholar
• Kratz AL, Kalpakjian CZ, Hanks RA. Are intensive data collection methods in pain research feasible in those with physical disability? A study in persons with chronic pain and spinal cord injury. Qual Life Res. 2017;26(3):587–600.
   PubMed Web of Science ®Google Scholar
• Thiele C, Laireiter A-R, Baumann U. Diaries in clinical psychology and psychotherapy: a selective review. Clin Psychol Psychother. 2002;9(1):1–37.
   Web of Science ®Google Scholar
• Moskowitz DS, Young SN. Ecological momentary assessment: what it is and why it is a method of the future in clinical psychopharmacology. J Psychiatry Neurosci. 2006;31(1):13–20.
   PubMed Web of Science ®Google Scholar
• Aaron LA, Turner JA, Mancl L, et al. Electronic diary assessment of pain-related variables: is reactivity a problem? J Pain. 2005;6(2):107–115.
   PubMed Web of Science ®Google Scholar
• Todd KR, Martin Ginis KA. An examination of diurnal variations in neuropathic pain and affect, on exercise and non-exercise days, in adults with spinal cord injury. Spinal Cord Ser Cases. 2018;4(1):94.
   PubMedGoogle Scholar
• IASP. IASP taxonomy. 2012. Available from: http://www.iasp-pain.org/Education/Content.aspx?ItemNumber=1698&navItemNumber=576.
   Google Scholar
• Yezierski RP. Spinal cord injury pain: spinal and supraspinal mechanisms. JRRD. 2009;46(1):95–107.
   PubMed Web of Science ®Google Scholar
• Costigan M, Scholz J, Woolf CJ. Neuropathic pain: a maladaptive response of the nervous system to damage. Annu Rev Neurosci. 2009;32(1):1–32.
   PubMed Web of Science ®Google Scholar
• Kramer JL, Minhas NK, Jutzeler CR, et al. Neuropathic pain following traumatic spinal cord injury: models, measurement, and mechanisms. J Neurosci Res. 2017;95(6):1–32.
   Web of Science ®Google Scholar
• Krause SJ, Backonja MM. Development of a neuropathic pain questionnaire. Clin J Pain. 2003;19(5):306–314. 2003;
   PubMed Web of Science ®Google Scholar
• Martin Ginis KA, Hicks AL, Latimer AE, et al. The development of evidence-informed physical activity guidelines for adults with spinal cord injury. Spinal Cord. 2011;49(11):1088–1096.
   PubMed Web of Science ®Google Scholar
• Straus SE, Tetroe JM, Graham ID. Knowledge translation is the use of knowledge in health care decision making. J Clin Epidemiol. 2011;64(1):6–10.
   PubMed Web of Science ®Google Scholar
• Kalpakjian CZ, Farrell DJ, Albright KJ, et al. Association of daily stressors and salivary cortisol in spinal cord injury. Rehabil Psychol. 2009;54(3):288–298.
   PubMed Web of Science ®Google Scholar
• Tuomenoksa M. 2013. ilumivu: Ecological momentary assessment. Available from: http://www.ilumivu.com/index.php?section=41&chapter=54.
   Google Scholar
• Galer BS, Jensen MP. Development and preliminary validation of a pain measure specific to neuropathic pain: the Neuropathic Pain Scale. Neurology. 1997;48(2):332–338.
   PubMed Web of Science ®Google Scholar
• Hardy CJ, Rejeski WJ. Not what, but how one feels: the measurement of affect during exercise. J Sport Exerc Psychol. 1989;11(3):304–317.
   Web of Science ®Google Scholar
• Svebak S, Murgatroyd S. Metamotivational dominance: a multimethod validation of reversal theory constructs. J Pers Soc Psychol. 1985;48(1):107–116.
   Web of Science ®Google Scholar
• Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–340.
   PubMed Web of Science ®Google Scholar
• Neergaard MA, Olesen F, Andersen RS, et al. Qualitative description – the poor cousin of health research? BMC Med Res Methodol. 2009;9(1):52.
   PubMed Web of Science ®Google Scholar
• Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
   PubMed Web of Science ®Google Scholar
• Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62(1):107–115.
   PubMed Web of Science ®Google Scholar
• Löfgren M, Norrbrink C. But I know what works” – patients’ experience of spinal cord injury neuropathic pain management. Disabil Rehabil. 2012;34(25):2139–2147.
   PubMed Web of Science ®Google Scholar
• Stone AA, Broderick JE. Real-time data collection for pain: appraisal and current status. Pain Med. 2007;8(suppl 3):S85–S93.
   PubMed Web of Science ®Google Scholar
• Henry JA, Galvez G, Turbin MB, et al. Pilot study to evaluate ecological momentary assessment of tinnitus. Ear Hear. 2012;33(2):179–290.
   PubMed Web of Science ®Google Scholar
• Van Teijlingen ER, Rennie AM, Hundley V, et al. The importance of conducting and reporting pilot studies: the example of the Scottish Births Survey. J Adv Nurs. 2001;34(3):289–295.
   PubMed Web of Science ®Google Scholar
• Sezer N, Akkuş S, Uğurlu FG. Chronic complications of spinal cord injury. WJO. 2015;6(1):24–33.
   Google Scholar