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Articles

A Swedish cultural adaptation of the participation questionnaire Functional Scale of the Disability Evaluation System – Child version

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Pages 1720-1727 | Received 14 Aug 2020, Accepted 12 Apr 2021, Published online: 03 May 2021

References

  • United Nations General Assembly. Convention on the rights of the child. United Nations Treaty Series. Vol. 1577. No. 27531. New York: United Nations; 1989. p. 44–61.
  • Schreuer N, Sachs D, Rosenblum S. Participation in leisure activities: differences between children with and without physical disabilities. Res Dev Disabil. 2014;35(1):223–233.
  • King M, Shields N, Imms C, et al. Participation of children with intellectual disability compared with typically developing children. Res Dev Disabil. 2013;34(5):1854–1862.
  • Axelsson AK, Granlund M, Wilder J. Engagement in family activities: a quantitative, comparative study of children with profound intellectual and multiple disabilities and children with typical development. Child Care Health Dev. 2013;39(4):523–534.
  • Axelsson AK, Wilder J. Frequency of occurrence and child presence in family activities: a comparative study of children with profound intellectual and multiple disabilities and children with typical development. Int J Dev Disabil. 2014;60(1):13–25.
  • Ullenhag A, Bult MK, Nyquist A, et al. An international comparison of patterns of participation in leisure activities for children with and without disabilities in Sweden, Norway and the Netherlands. Dev Neurorehabil. 2012;15(5):369–385.
  • Hwang AW, Yen CF, Liou TH, et al. Participation in children with disabilities in Taiwan: the gap between capability and frequency. PLoS One. 2015;10(5):e0126693.
  • Bult MK, Verschuren O, Jongmans MJ, et al. What influences participation in leisure activities of children and youth with physical disabilities? A systematic review. Res Dev Disabil. 2011;32(5):1521–1529.
  • Henderson S, Skelton H, Rosenbaum P. Assistive devices for children with functional impairments: impact on child and caregiver function. Dev Med Child Neurol. 2008;50(2):89–98.
  • Shields N, Synnot AJ, Barr M. Perceived barriers and facilitators to physical activity for children with disability: a systematic review. Br J Sports Med. 2012;46(14):989–997.
  • Ändring i föreskrifterna och allmänna råden (SOSFS 2007:10) om samordning av insatser för habilitering och rehabilitering (Socialstyrelsens författningssamling [SOSFS] 2008:20) [Amendment of the regulations and guidelines (SOSFS 2007:10) concerning coordination of habilitation and rehabilitation intervention (Code of Statutes of The National Board of Health and Welfare [SOSFS] 2008:20)]. Stockholm: The National Board of Health and Welfare; 2008.
  • Gannotti ME, Law M, Bailes AF, et al. Comparative effectiveness research and children with cerebral palsy: identifying a conceptual framework and specifying measures. Pediatr Phys Ther. 2016;28(1):58–69.
  • Adair B, Ullenhag A, Keen D, et al. The effect of interventions aimed at improving participation outcomes for children with disabilities: a systematic review. Dev Med Child Neurol. 2015;57(12):1093–1104.
  • Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59(1):16–25.
  • Bedell G. Child and Adolescent Scale of Participation (CASP). Administration and scoring guidelines. Medford (MA): Tufts University; 2011. Available from: http://sites.tufts.edu/garybedell/files/2012/07/CASP-Administration-Scoring-Guidelines-8-19-11.pdf
  • Adair B, Ullenhag A, Rosenbaum P, et al. Measures used to quantify participation in childhood disability and their alignment with the family of participation-related constructs: a systematic review. Dev Med Child Neurol. 2018;60(11):1101–1116.
  • World Health Organization. International Classification of Functioning, Disability, and Health: ICF. Geneva: World Health Organization; 2001.
  • Bedell G. Developing a follow-up survey focused on participation of children and youth with acquired brain injuries after inpatient rehabilitation. NeuroRehabilitation. 2004;19(3):191–205.
  • Bedell G. Further validation of the Child and Adolescent Scale of Participation (CASP). Dev Neurorehabil. 2009;12(5):342–351.
  • Chamberon M, Catale C, Kerrouche B, et al. Validation and psychometric properties of the French version of the Child and Adolescent Scale of Participation (CASP) in a sample of children with acquired brain injury. Ann Phys Rehabil Med. 2016;59:e62.
  • De Bock F, Bosle C, Graef C, et al. Measuring social participation in children with chronic health conditions: validation and reference values of the child and adolescent scale of participation (CASP) in the German context. BMC Pediatr. 2019;19(1):125.
  • Hwang AW, Liou TH, Bedell GM, et al. Psychometric properties of the child and adolescent scale of participation – traditional Chinese version. Int J Rehabil Res. 2013;36(3):211–220.
  • Hwang AW, Yen CF, Liou TH, et al. Development and validation of the ICF-CY-based functioning scale of the disability evaluation system – child version in Taiwan. J Formos Med Assoc. 2015;114(12):1170–1180.
  • Hwang A-W, Yen C-F, Liao H-F, et al. Structural validity of an ICF-based measure of activity and participation for children in Taiwan’s disability eligibility determination system. Int J Environ Res Public Health. 2020;17(17):6134.
  • Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine J. 2000;25(24):3186–3191.
  • Mokkink LB, Terwee CB, Patrick DL, et al. COSMIN checklist manual. Amsterdam: COSMIN; 2009. Available from: https://www.cosmin.nl/
  • Imms C, Mathews S, Richmond KN, et al. Optimising leisure participation: a pilot intervention study for adolescents with physical impairments. Disabil Rehabil. 2016;38(10):963–971.
  • King G, Imms C, Debra S, et al. A transactional framework for pediatric rehabilitation: shifting the focus to situated contexts, transactional processes, and adaptive developmental outcomes. Disabil Rehabil. 2018;40(15):1829–1841.
  • King G, Law M, King S, et al. A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Phys Occup Ther Pediatr. 2003;23(1):63–90.
  • Willis GB. Cognitive interviewing: a “how to” guide; 1999. Available from: https://www.hkr.se/contentassets/9ed7b1b3997e4bf4baa8d4eceed5cd87/gordonwillis.pdf
  • Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
  • Vroland-Nordstrand K, Krumlinde-Sundholm L. The Perceived Efficacy and Goal Setting System (PEGS). Part I. Evaluation of test–retest reliability and differences between child and parental reports in the Swedish version. Scand J Occup Ther. 2012;19(6):506–514.
  • Anaby D, Hand C, Bradley L, et al. The effect of the environment on participation of children and youth with disabilities: a scoping review. Disabil Rehabil. 2013;35(19):1589–1598.
  • Willis C, Girdler S, Thompson M, et al. Elements contributing to meaningful participation for children and youth with disabilities: a scoping review. Disabil Rehabil. 2017;39(17):1771–1784.
  • Weisner TS. Ecocultural understanding of children’s developmental pathways. Hum Dev. 2002;45(4):275–281.
  • Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105–112.