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Reviews

Emergency and disaster preparedness among children and youth with disabilities and chronic conditions, their caregivers and service providers: a scoping review

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Pages 1239-1255 | Received 21 Jul 2022, Accepted 23 Feb 2023, Published online: 02 Mar 2023

References

  • Khan Y, O’Sullivan T, Brown A, et al. Public health emergency preparedness: a framework to promote resilience. BMC Public Health. 2018;18:1–16.
  • Intergovernmental Panel on Climate Change. Climate change 2022: impacts, adaptation and vulnerability D.C.R. In: Pörtner H-O, Tignor M, Poloczanska ES, Mintenbeck K, Alegría A, Craig M, Langsdorf S, Löschke S, Möller V, Okem A, Rama B, editors. Contribution of working group II to the sixth assessment report of the intergovernmental panel on climate change. Cambridge: Cambridge University Press; 2022.
  • Bell S. Inclusion for adults with dyslexia: examining the transition periods of a group of adults in England: ‘clever is when you come to a brick wall and you have got to get over it without a ladder’. J Res Spec Educ Needs. 2010;10(3):216–226.
  • Delicado A, Rowland J, Fonseca S, et al. Children in disaster risk reduction in Portugal: policies, education and (non) participation. Int J Disaster Risk Sci. 2017;8(3):246–257.
  • Gaskin CJ, Taylor D, Kinnear S, et al. Factors associated with climate change vulnerability and the adaptive capacity of people with disability: a systematic review. Weather Climate Soc. 2017;9(4):801–814.
  • Araos J. Equity in human adaptation-related responses: a systematic global review. OneEarth. 4:1454–1467.
  • Adams R, Eisenman D, Glik D. Community advantage and individual self-efficacy promote disaster preparedness: a multilevel model among persons with disabilities. IJERPH. 2019;16(15):2718–2779.
  • Subramaniam P, Villeneuve M. Advancing emergency preparedness for people with disabilities and chronic health conditions in the community: a scoping review. Disabil Rehabil. 2020;42(22):3256–3264.
  • Hipper TJ, Davis R, Massey PM, et al. The disaster information needs of families of children with special healthcare needs: a scoping review. Health Secur. 2018;16(3):178–192.
  • Koch L, Hill J, Rumrill P. Emerging disabilities that result from or are exacerbated by severe weather events: implications for rehabilitation counselors. Rehabil Res Pol Educ. 2019;33(1):8–23.
  • Davies S, Hemmeter J. Supplemental security income recipients affected by Hurricanes Katrina and Rita: an analysis of two years administrative data. Popul Environ. 2010;31(1–3):87–120.
  • Wolbring G. A culture of neglect: climate discourse and disabled people. Media Cult. 2009;12:1–9.
  • Kosanic A, Petzold J, Martín-López B, et al. An inclusive future: disabled populations in the context of climate and environmental change. Curr Opin Environ Sustainability. 2022;55:101112–101159.
  • United Nations. Realization of the sustainable development goals by, for and with persons with disabilities. In: United Nations flagship report on disability and development. New York: United Nations; 2018.
  • Peek L, Stough L. Children with disabilities in the context of disaster: a social vulnerability perspective. Child Dev. 2010;81(4):1260–1270.
  • Stough L, Kang D. The Sendai framework for disaster risk reduction and persons with disabilities. Int J Disaster Risk Sci. 2015;6(2):140–149.
  • United Nations. Convention on the rights of persons with disabilities. Geneva; 2006. p. 106. https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
  • Stough LM, Ducy EM, Kang D. Addressing the needs of children with disabilities experiencing disaster or terrorism. Curr Psychiatry Rep. 2017;19(4):1–10.
  • Stough LM, Ducy EM, Kang D, et al. Disasters, schools and children: disability at the intersection. Int J Disaster Risk Reduct. 2020;45:101410–101447.
  • Boon H, et al. School disaster planning for children with disabilities: a critical review of the literature. Int J Special Educ. 2011;26(3):223–237.
  • Ronoh S, Gaillard G, Marlowe J. Children with disabilities and disaster risk reduction: a review. Int J Disaster Risk Sci. 2015;6(1):38–48.
  • Baker L, Baker M. Disaster preparedness among families of children with special health care needs. Disaster Med Public Health Prep. 2010;4(3):240–245.
  • World Health Organization. World report on disability. Geneva (Switzerland): WHO Press; 2011.
  • American Academy of Pediatrics. Children and disasters. Ithaca (IL); 2015. https://www.aap.org/en/patient-care/disasters-and-children/
  • Mann M, McMillan JE, Silver EJ, et al. Children and adolescents with disabilities and exposure to disasters, terrorism and the COVID-19 pandemic: a scoping review. Curr Psychiatry Rep. 2021;23(12):80–92.
  • Tanaka S. Issues in the support and disaster preparedness of severely disabled children in affected areas. Brain & Dev. 2013;35(3):209–213.
  • Mace S, Doyle C, Fuchs S. Pediatric patients in a disaster: part of the all-hazard, comprehensive approach to disaster management. Disaster Med J. 2012;7:111–125.
  • Bell JE, Brown CL, Conlon K, et al. Changes in extreme events and the potential impacts on human health. J Air Waste Manage Assoc. 2018;68(4):265–287.
  • Rosato-Scott C, Evans B, Barrington D. CHILD-SAN: a new disability-inclusive framework for emergency sanitation for children aged five to 11 based on a systematic review of existing guidance. Int J Humanitarian Action. 2021;6(18):1–14.
  • Koeffler TJ, Demeter NE, Kysh L, et al. Evaluation and gap analysis of pediatric disaster preparedness resources. Disaster Med Public Health Prep. 2019;13(2):330–337.
  • Mace S, Bern A. Needs assessment: are disaster medical assistance teams up for the challenge of pediatric disaster? Am J Emerg Med. 2007;25(7):762–769.
  • Uscher-Pines L, Hausman AJ, Powell S, et al. Disaster preparedness of households with special needs in Southeastern Pennsylvania. Am J Prev Med. 2009;37(3):227–230.
  • Tomio J, Sato H. Emergency and disaster preparedness for chronically ill patients: a review of recommendations. Open Access Emerg Med. 2014;6:69–79.
  • Foltin G, Lucky C, Portelli I, et al. Overcoming legal obstacles involving the voluntary care of children who are separated from their legal guardians during a disaster. Pediatr Emerg Care. 2008;24(6):1–7.
  • Sheikhbardsiri H, Yarmohammadian MH, Rezaei F, et al. Rehabilitation of vulnerable groups in emergencies and disasters: a systematic review. World J Emerg Manag. 2017;8(4):253–264.
  • O’Hagan EC, Matalon S, Riesenberg LA. Systematic reviews of the literature: a better way of addressing basic science controversies. Am J Physiol-Lung Cellular Mol Physiol. 2018;314(3):L439–L442.
  • Munn Z, Peters MDJ, Stern C, et al. Guidance for authors when choosing between a systematic or scoping review approach. BMC Med Res Methodol. 2018;18(1):1–7.
  • Snyder H. Literature review as a methodology: an overview and guidelines. J Bus Res. 2019;104:333–339.
  • Angulo E, Diagne C, Ballesteros-Mejia L, et al. Non-English languages enrich scientific knowledge: the example of economic costs of biological invasions. Sci Total Environ. 2021;775:144410–144441.
  • Connon I, Hall E. It’s not about having a back-up plan; it’s always being in back-up mode: rethinking the relationship between disability and vulnerability to extreme weather. Geoforum. 2021;126:277–289.
  • Arksey H, O’Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.
  • Levac D, Colquhoun H, O’Brien K. Scoping studies: advancing the methodology. Implementation Sci. 2010;5(1):1–12.
  • World Health Organization. International classification and functioning. Geneva (Switzerland): WHO Press; 2007.
  • Kreiman J. On peer review. J Speech Lang Hear Res. 2016;59(3):480–483.
  • Doncliff B. The peer-review process in scholarly writing. Whitireia Nurs Health J. 2016;(23):55.
  • Bellefontaine S, Lee C. Between black and white: examining grey literature in meta-analyses of psychological research. J Child Fam Stud. 2014;23(8):1378–1388.
  • Adams J, Hillier-Brown FC, Moore HJ, et al. Searching and synthesising ‘grey literature’ and ‘grey information’ in public health: critical reflections on three case studies. Syst Rev. 2016;5:164.
  • Pham MT, Rajić A, Greig JD, et al. A scoping review of scoping reviews: advancing the approach and enhancing the consistency. Res Syn Meth. 2014;5(4):371–385.
  • Tricco AC, Lillie E, Zarin W, et al. PRISMA extension for scoping reviews (PRISMA-ScR): checklist and explanation. Ann Intern Med. 2018;169(7):467–473.
  • Heptulla R, Hashim R, Johnson DN, et al. Evaluating emergency preparedness and impact of a hurricane sandy in pediatric patients with diabetes. Disaster and Mil Med. 2016;2(1):1–15.
  • Renukuntla VS, Hassan K, Wheat S, et al. Disaster preparedness in pediatric type 1 diabetes. Pediatrics. 2009;124(5):e973–e977.
  • Nakayama T, Tanaka S, Uematsu M, et al. Effect of a blackout in pediatric patients with home medical devices during the 2011 Eastern Japan earthquake. Brain Dev. 2014;36(2):143–147.
  • Sakashita K, Matthews W, Yamamoto L. Disaster preparedness for technology-and electricity-dependent children and youth with special health care needs. Clin Pediatr (Phila). 2013;52(6):549–556.
  • Bagwell HB, Liggin R, Thompson T, et al. Disaster preparedness in families with children with special health care needs. Clin Pediatr (Phila). 2016;55(11):1036–1043.
  • Baker M, Baker L, Flagg L. Preparing families of children with special health care needs for disasters: an education intervention. Social Work in Health Care. 2012;51(5):417–429.
  • Baker L, Cormier L. Disaster preparedness and families of children with special needs: a geographic comparison. J Community Health. 2013;38(1):106–112.
  • Chin K, et al. A mixed method analysis: disaster preparedness of families with children with access and functional needs. Am J Disaster Med. 2020;15(3):187–197.
  • Gillen J, Morris M. Preparing families of technology-dependent children for emergencies. Hosp Paediatr. 2019;9(11):874–879.
  • Goodhue CJ, Demeter NE, Burke RV, et al. Mixed-methods pilot study: disaster preparedness of families with children followed in an intestinal rehabilitation clinic. Nutr Clin Pract. 2016;31(2):257–265.
  • Hamann CJ, Mello E, Wu H, et al. Disaster preparedness in rural families of children with special health care needs. Disaster Med Public Health Prep. 2016;10(2):225–232.
  • Miresmaeeli S, et al. Disaster risk assessment among Iranian exceptional schools. Disaster Med Public Health Preparedness. 2022;16:678–682.
  • Wolf-Fordham S, Curtin C, Maslin M, et al. Emergency preparedness of families of children with disabilities: what public health and safety emergency planners need to know. J Emerg Manag. 2015;13(1):7–18.
  • Tipler K, Tarrant R, Tuffin K, et al. Learning from experience: emergency response in schools. Nat Hazard. 2018;90(3):1237–1257.
  • Toor KT, Burke RV, Demeter NE, et al. Improving disaster preparedness of families with a parenteral nutrition-dependent child. J Pediatr Gastroenterol Nutr. 2018;67(2):237–241.
  • Boon HJ, Pagliano P, Brown L, et al. An assessment of policies guiding school emergency disaster management for students with disabilities in Australia. J Policy Pract Intellect Disabil. 2012;9(1):17–26.
  • Boon H, Brown L, Pagliano P. Emergency planning for students with disabilities: a survey of Australian schools. Aust J Emerg Manag. 2014;29(1):1–5.
  • Danquah L, Polack S, Brus A, et al. Disability in post-earthquake Haiti: prevalence and inequality in access to services. Disabil Rehabil. 2015;37(12):1082–1089.
  • Fathoni M, Yusuf A, Sumartono W. The relationship of the role of teachers in the implemented curriculum of school-based disaster preparedness in vulnerability in school teachers with disabilities in Malang City, Indonesia. Ind J Publ Health Res Dev. 2019;10(8):2762–2768.
  • Fifolt M, Wakelee J, Eldridge-Auffant L, et al. Addressing the needs of adults and children with disabilities through emergency preparedness. Nonprofit Manag Leadersh. 2017;27(3):423–434.
  • Rofia N, Kawai N, Hayati E. Key elements of disaster mitigation education in inclusive school setting in the Indonesian context. J Disaster Risk Stud. 2021;13:1–8.
  • Ronoh S, Gaillard J, Marlowe J. Children with disabilities and disaster preparedness: a case study of Christchurch Kotuitui. N Z J Soc Sci. 2015;10(2):91–102.
  • Ronoh S, Gaillard J, Marlowe J. Children with disabilities in disability-inclusive disaster risk reduction: focussing on school settings. Policy Futures Educ. 2017;15(3):380–388.
  • Shah AA, Ye J, Pan L, et al. Schools’ flood emergency preparedness in Khyber Pakhtunkhwa province, Pakistan. Int J Disaster Risk Sci. 2018;9(2):181–194.
  • Shah S. Disabled people are sexual citizens too: supporting sexual identity, well-being and safety for disabled young people. Front Educ. 2017;2(46):1–5.
  • Tipler K, Tarrant R, Johnston D, et al. Are you ready? Emergency preparedness in New Zealand schools. Int J Disaster Risk Reduct. 2017;25:324–333.
  • Shah AA, Gong Z, Pal I, et al. Disaster risk management insight on school emergency preparedness: a case study of Khyber Pakhtunkhwa, Pakistan. Int J Disaster Risk Reduct. 2020;51:101805–101812.
  • Mulligan-Smith D. Emergency preparedness for children with special health care needs. Prehospital Emerg Care. 2000;4(1):87–88.
  • Tomio J, Sato H, Mizumura H. Interruption of medication among outpatients with chronic conditions after a flood. Prehosp Disaster Med. 2010;25(1):42–50.
  • Salvatore C, Wolbring G. Children and youth environmental action: the case of children and youth with disabilities. Sustainability. 2021;13(17):9927–9950.
  • Barbato D, Bryie L, Carlisle CM, et al. Chronically unprepared: emergency preparedness status among US medically vulnerable populations. J Public Health (Berl). 2021;1–9.
  • Edmonds C. Designing emergency preparedness resources for children with autism. Int J Disabil Dev Educ. 2017;64(4):404–419.
  • Ablah E, Konda K, Kelley C. Factors predicting individual emergency preparedness: a multi-state analysis of 2006 BRFSS data. Biosecur Bioterror. 2009;7(3):317–330.
  • Fox MH, White GW, Rooney C, et al. The psychosocial impact of hurricane Katrina on persons with disabilities and independent living center staff living on the American Gulf Coast. Rehabil Psychol. 2010;55(3):231–240.
  • Quail J, Barker R, West C. Experiences of individuals with physical disabilities in natural disasters: an integrative review. Aust Inst Disaster Resilience. 2017;33(3):58–63.

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