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Research Articles

Tracking activity-based therapy for people living with spinal cord injury or disease: insights gained through focus group interviews with key stakeholders

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Pages 1354-1365 | Received 28 Jul 2022, Accepted 24 Mar 2023, Published online: 25 Apr 2023

References

  • Noonan VK, Fingas M, Farry A, et al. Incidence and prevalence of spinal cord injury in Canada: a national perspective. Neuroepidemiology. 2012;38(4):219–226.
  • Chen Y, He Y, DeVivo MJ. Changing demographics and injury profile of new traumatic spinal cord injuries in the United States, 1972–2014. Arch Phys Med Rehabil. 2016;97(10):1610–1619.
  • Kirshblum SC, Burns SP, Biering-Sorensen F, et al. International standards for neurological classification of spinal cord injury (revised 2011). J Spinal Cord Med. 2011;34(6):535–546.
  • Hitzig SL, Tonack M, Campbell KA, et al. Secondary health complications in an aging Canadian spinal cord injury sample. Am J Phys Med Rehabil. 2008;87(7):545–555.
  • Hitzig SL, Campbell KA, McGillivray CF, et al. Understanding age effects associated with changes in secondary health conditions in a Canadian spinal cord injury cohort. Spinal Cord. 2010;48(4):330–335.
  • Sun X, Jones ZB, Chen X, et al. Multiple organ dysfunction and systemic inflammation after spinal cord injury: a complex relationship. J Neuroinflammation. 2016;13(1):260.
  • Stillman MD, Barber J, Burns S, et al. Complications of spinal cord injury over the first year after discharge from inpatient rehabilitation. Arch Phys Med Rehabil. 2017;98(9):1800–1805.
  • Behrman AL, Harkema SJ. Physical rehabilitation as an agent for recovery after spinal cord injury. Phys Med Rehabil Clin N Am. 2007;18(2):183–202.
  • Jones ML, Harness E, Denison P, et al. Activity-based therapies in spinal cord injury: clinical focus and empirical evidence in three independent programs. Top Spinal Cord Inj Rehabil. 2012;18(1):34–42.
  • Dolbow DR, Gorgey AS, Recio AC, et al. Activity-Based restorative therapies after spinal cord injury: inter-Institutional conceptions and perceptions. Aging Dis. 2015;6:254–261.
  • Behrman AL, Ardolino EM, Harkema SJ. Activity-based therapy: from basic science to clinical application for recovery after spinal cord injury. JNPT. 2017;41: S39–S45.
  • Astorino TA, Harness ET, Witzke KA. Effect of chronic activity-based therapy on bone mineral density and bone turnover in persons with spinal cord injury. Eur J Appl Physiol. 2013;113(12):3027–3037.
  • Jones ML, Evans N, Tefertiller C, et al. Activity-Based therapy for recovery of walking in individuals with chronic spinal cord injury: results from a randomized clinical trial. Arch Phys Med Rehabil. 2014;95(12):2239–2246.e2.
  • Hubscher CH, Herrity AN, Williams CS, et al. Improvements in bladder, bowel and sexual outcomes following task-specific locomotor training in human spinal cord injury. PLOS One. 2018;13(1):e0190998.
  • Quel de Oliveira C, Middleton JW, Refshauge K, et al. Activity-based therapy in a community setting for independence, mobility, and sitting balance for people with spinal cord injuries. J Cent Nerv Syst Dis. 2019;11:1179573519841623.
  • Swaffield E, Cheung L, Khalili A, et al. Perspectives of people living with a spinal cord injury on activity-based therapy. Disabil Rehabil. 2022;44(14):3632–3640.
  • Behrman AL, Ardolino E, Vanhiel LR, et al. Assessment of functional improvement without compensation reduces variability of outcome measures after human spinal cord injury. Arch Phys Med Rehabil. 2012;93(9):1518–1529.
  • Musselman KE, Walden K, Noonan VK, and the Canadian ABT Summit Attendees, et al. Development of priorities for a Canadian strategy to advance activity-based therapies after spinal cord injury or disease. Spinal Cord. 2021;59(8):874–884.
  • Dejong G, Horn SD, Gassaway JA, et al. Toward a taxonomy of rehabilitation interventions: using an inductive approach to examine the "black box" of rehabilitation. Arch Phys Med Rehabil. 2004;85(4):678–686.
  • Whiteneck G, Dijkers M, Gassaway J, et al. The SCIRehab project: classification and quantification of spinal cord injury rehabilitation treatments. Preface J Spinal Cord Med. 2009;32(3):249–250.
  • Whiteneck G, Cassaway J, Dijkers M, et al. New approach to study the contents and outcomes of spinal cord injury rehabilitation: the SCIRehab project. J Spinal Cord Med. 2009;32(3):251–259.
  • Harvey LA. Physiotherapy rehabilitation for people with spinal cord injuries. J Physiother. 2016;62(1):4–11.
  • Franz M, Richner L, Wirz M, et al. Physical therapy is targeted and adjusted over time for the rehabilitation of locomotor function in acute spinal cord injury interventions in physical and sports therapy. Spinal Cord. 2018;56(2):158–167.
  • Natale A, Taylor S, LaBarbera J, et al. SCIRehab project series: the physical therapy taxonomy. J Spinal Cord Med. 2009;32(3):270–282.
  • Ozelie R, Sipple C, Foy T, et al. SCIRehab project series: the occupational therapy taxonomy. J Spinal Cord Med. 2009;32(3):283–297.
  • van Langeveld SA, Post MW, van Asbeck FW, et al. Development of a classification of physical, occupational, and sports therapy interventions to document mobility and self-care in spinal cord injury rehabilitation. JNPT. 2008;32(1):2–7.
  • van Langeveld SA, Post MW, van Asbeck FW, et al. Feasibility of a classification system for physical therapy, occupational therapy, and sports therapy interventions for mobility and self-care in spinal cord injury rehabilitation. Arch Phys Med Rehabil. 2008;89(8):1454–1459.
  • van Langeveld SA, Post MW, van Asbeck FW, et al. Reliability of a new classification system for mobility and self-care in spinal cord injury rehabilitation: the spinal cord injury-interventions classification system. Arch Phys Med Rehabil. 2009;90(7):1229–1236.
  • Harkema SJ, Shogren C, Ardolino E, et al. Assessment of functional improvement without compensation for human spinal cord injury: extending the neuromuscular recovery scale to the upper extremities. J Neurotrauma. 2016;33(24):2181–2190.
  • Tester NJ, Lorenz DJ, Suter SP, et al. Responsiveness of the neuromuscular recovery scale during outpatient activity-dependent rehabilitation for spinal cord injury. Neurorehabil Neural Repair. 2016;30(6):528–538.
  • Horn SD, Corrigan JD, Bogner J, et al. Traumatic brain injury-practice based evidence study: design and patients, centers, treatments, and outcomes. Arch Phys Med Rehabil. 2015;96(8):S178–S196.e15.
  • Guyatt GH, Bombardier C, Tugwell PX. Measuring disease-specific quality of life in clinical trials. CMAJ. 1986;134(8):889–895.
  • Clark LA, Watson D. Constructing validity: basic issues in objective scale development. Psychological Assessment. 1995;7(3):309–319.
  • Kaiser A, Chan K, Pakosh M, et al. A scoping review of the characteristics of activity-based therapy interventions across the continuum of care for people living with spinal cord injury or disease. Arch Rehabil Res Clin Transl. 2022;4(4):100218.
  • Parsons M, Greenwood J. A guide to the use of focus groups in health care research: part 1. Contemp Nurse. 2000;9(2):169–180.
  • Lehoux P, Poland B, Daudelin G. Focus group research and “the patient’s view”. Soc Sci Med. 2006;63(8):2091–2104.
  • O’Brien BC, Harris IB, Beckman TJ, et al. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89(9):1245–1251.
  • Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
  • Nassar-McMillan SC, Borders LD. Use of focus groups in survey item development. The Qualitative Report. 2002;7(1):1–12.
  • Vasileiou K, Barnett J, Thorpe S, et al. Characterising and justifying sample size sufficiency in interview-based studies: systematic analysis of qualitative health research over a 15-year period. BMC Med Res Methodol. 2018;18(1):148.
  • Dryden D, Saunders L, Rowe B, et al. The epidemiology of traumatic spinal cord injury in Alberta. Can j Neurol Sci. 2003;30(2):113–121.
  • Guilcher S, Munce S, Couris C, et al. Health care utilization in non-traumatic and traumatic spinal cord injury: a population-based study. Spinal Cord. 2010;48(1):45–50.
  • Praxis Spinal Cord Institute. Rick Hansen spinal cord injury registry – a look at traumatic spinal cord injury in Canada in 2019. Vancouver, BC: Praxis; 2021.
  • Naderifar M, Goli H, Ghaljaie F. Snowball sampling: a purposeful method of sampling in qualitative research. Strides Dev Med Educ. 2017;14(3):e67670.
  • Patton MQ. Qualitative research & evaluation methods: integrative theory and practice. 4th ed. Thousand Oaks (CA): SAGE Publications; 2014.
  • Musselman KE, Shah M, Zariffa J. Rehabilitation technologies and interventions for individuals with spinal cord injury: translational potential of current trends. J Neuroeng Rehab. 2018;15:40.
  • Finlay L. “Outing” the researcher: the provenance, process, and practice of reflexivity. Qual Health Res. 2002;12(4):531–545.
  • Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
  • Shenton AK. Strategies for ensuring trustworthiness in qualitative research projects. EFI. 2004;22(2):63–75.
  • Cheung L, Musselman KE, Kaiser A. Activity-based therapy in the community for individuals living with spinal cord injury or disease: qualitative interviews with clinicians. Disabil Rehabil. 2021;2:1–10.
  • Whyte J, Hart T. It’s more than a black box; it’s a Russian doll: defining rehabilitation treatments. Am J Phys Med Rehabil. 2003;82(8):639–652.
  • Dijkers MP, Hart T, Tsaousides T, et al. Treatment taxonomy for rehabilitation: past, present, and prospects. Arch Phys Med Rehabil. 2014;95(1):S6–S16.
  • Zanca JM, Dijkers MP. Describing what we do: a qualitative study of clinicians’ perspectives on classifying rehabilitation interventions. Arch Phys Med Rehabil. 2014;95(1):S55–S65.e2.
  • McDermid F, Peters K, Jackson D, et al. Conducting qualitative research in the context of pre-existing peer and collegial relationships. Nurse Res. 2014;21(5):28–33.
  • Nikolopoulou K. What is social desirability bias? | Definition & Examples. Scribbr; 2022. November 18. Retrieved January 31, 2023, from https://www.scribbr.com/research-bias/social-desirability-bias/.
  • Padalia D. Conformity bias: a fact or an experimental artifact? Psychol Stud. 2014;59(3):223–230.
  • Nikolopoulou K. What is self-selection bias? | Definition & Example. Scribbr; 2022, November 18. Retrieved February 2, 2023, from https://www.scribbr.com/research-bias/self-selection-bias/.
  • Shuttleworth M. Research bias; 2009, February 5. Retrieved February 6, 2023 from Explorable.com: https://explorable.com/research-bias.

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