386
Views
1
CrossRef citations to date
0
Altmetric
Research Articles

Outcomes of importance to people with multiple sclerosis, Parkinson’s disease and stroke following a falls prevention intervention: a qualitative study to inform a core outcome set

ORCID Icon, ORCID Icon & ORCID Icon
Pages 1580-1592 | Received 18 Nov 2022, Accepted 06 Apr 2023, Published online: 24 Apr 2023

References

  • Gazibara T, Kisic-Tepavcevic D, Svetel M, et al. Indoor and outdoor falls in persons with parkinson’s disease after 1 year follow-up study: differences and consequences. Neurol Sci. 2016;37(4):597–602.
  • Schmid AA, Yaggi HK, Burrus N, et al. Circumstances and consequences of falls among people with chronic stroke. J Rehabil Res Dev. 2013;50(9):1277–1286.
  • Batchelor FA, Mackintosh SF, Said CM, et al. Falls after stroke. Int J Stroke. 2012;7(6):482–490.
  • Matsuda PN, Shumway-Cook A, Bamer AM, et al. Falls in multiple sclerosis. Pm R. 2011;3(7):624–632; quiz 632.
  • Peterson EW, Cho CC, von Koch L, et al. Injurious falls among middle aged and older adults with multiple sclerosis. Arch Phys Med Rehabil. 2008;89(6):1031–1037.
  • Comber L, Coote S, Finlayson M, et al. An exploration of fall-related, psychosocial variables in people with multiple sclerosis who have fallen. Brit J Occup Ther. 2017;80(10):587–595.
  • Kader M, Iwarsson S, Odin P, et al. Fall-related activity avoidance in relation to a history of falls or near falls, fear of falling and disease severity in people with Parkinson’s disease. BMC Neurol. 2016;16:84.
  • Schmid AA, Rittman M. Consequences of poststroke falls: activity limitation, increased dependence, and the development of fear of falling. Am J Occup Ther. 2009;63(3):310–316.
  • Walsh ME, Sorensen J, Galvin R, et al. First year post-stroke healthcare costs and fall-status among those discharged to the community. Eur Stroke J. 2018;3(3):254–262.
  • Paul SS, Harvey L, Canning CG, et al. Fall-related hospitalization in people with parkinson’s disease. Eur J Neurol. 2017;24(3):523–529.
  • Foster M, Allen S, Fleming J. Unmet health and rehabilitation needs of people with long-term neurological conditions in Queensland, Australia. Health Soc Care Community. 2015;23(3):292–303.
  • Kim KT, Chang WK, Jung Y-S, et al. Unmet needs for rehabilitative management in common health-related problems negatively impact the quality of life of community-dwelling stroke survivors [original research]. Front Neurol. 2021;12:12.
  • Saumur TM, Gregor S, Xiong Y, et al. Quantifying the amount of physical rehabilitation received by individuals living with neurological conditions in the community: a scoping review. BMC Health Serv Res. 2022; 22(1):349.
  • (HSE) HSE. National strategy & policy for the provision of neuro-rehabilitation services in Ireland: Implementation framework 2019–2021. 2019 [ cited 2020 March 11]. Available from: https://www.hse.ie/eng/services/list/4/disability/neurorehabilitation/national-strategy-policy-for-the-provision-of-neuro-rehabilitation-services-in-ireland.pdf.
  • Mohd Nordin NA, Aziz NAA, Abdul Aziz AF, et al. Exploring views on long term rehabilitation for people with stroke in a developing country: findings from focus group discussions. BMC Health Serv Res. 2014; 14(1):118.
  • Deb P, Sharma S, Hassan KM. Pathophysiologic mechanisms of acute ischemic stroke: an overview with emphasis on therapeutic significance beyond thrombolysis. Pathophysiology. 2010; 17(3):197–218.
  • Ghasemi N, Razavi S, Nikzad E. Multiple sclerosis: pathogenesis, symptoms, diagnoses and cell-based therapy. Cell Journal. 2017;19(1):1–10.
  • Kouli A, Torsney KM, Kuan WL. Parkinson’s disease: etiology, neuropahtology, and pathogenesis. In: stoker TB, Greenland JC, editors. Parkinson’s disease: pathogenesis and clinical aspects. Brisbabe, Australia: Codon Publications; 2018.
  • Xu T, Clemson L, O’Loughlin K, et al. Risk factors for falls in community stroke survivors: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2018;99(3):563–573.e5.
  • Allen NE, Schwarzel AK, Canning CG. Recurrent falls in Parkinson’s disease: a systematic review. Parkinsons Dis. 2013;2013:906274.
  • Gunn H, Newell P, Bernhard H, et al. Identification of risk factors for falls in multiple sclerosis: a systematic review and meta-analysis. Phys Ther. 2013;93(4):504–513.
  • Canning CG, Paul SS, Nieuwboer A. Prevention of falls in Parkinson’s disease: a review of fall risk factors and the role of physical interventions. Neurodegener Dis Manag. 2014;4(3):203–221.
  • Scholz M, Haase R, Trentzsch K, et al. Fear of falling and falls in people with multiple sclerosis: a literature review. Mult Scler Relat Disord. 2021;47:102609. Jan
  • O’Malley N, Clifford AM, Conneely M, et al. Effectiveness of interventions to prevent falls for people with multiple sclerosis, Parkinson’s disease and stroke: an umbrella review. BMC Neurol. 2021;21(1):378.
  • O’Malley N, Clifford AM, Comber L, et al. Effectiveness of non-pharmacological falls prevention interventions for people with multiple sclerosis, Parkinson’s disease and stroke: protocol for an umbrella review. HRB Open Res. 2020;3:17.
  • O’Malley N, Clifford AM, Comber L, et al. Fall definitions, faller classifications and outcomes used in falls research among people with multiple sclerosis: a systematic review. Disabil Rehabil. 2022; 44(6):855–863.
  • Denissen S, Staring W, Kunkel D, et al. Interventions for preventing falls in people after stroke. Cochrane Database Syst Rev. 2019;10(10):CD008728.
  • Hayes S, Galvin R, Kennedy C, et al. Interventions for preventing falls in people with multiple sclerosis. Cochrane Database Syst Rev. 2019;11(11):CD012475.
  • Shen X, Wong-Yu IS, Mak MK. Effects of exercise on falls, balance, and gait ability in Parkinson’s disease: a meta-analysis. Neurorehabil Neural Repair. 2016; Jul30(6):512–527.
  • Gargon E, Williamson PR, Altman DG, et al. The COMET initiative database: progress and activities from 2011 to 2013. Trials. 2014;15(1):15.
  • Williamson PR, Altman DG, Blazeby JM, et al. Developing core outcome sets for clinical trials: issues to consider. Trials. 2012;13(132):132.
  • Gunn H, Endacott R, Haas B, et al. Development of a balance, safe mobility and falls management programme for people with multiple sclerosis. Disabil Rehabil. 2018;40(24):2857–2866.
  • O’Malley N, Coote S, Clifford AM. Protocol for the development of a core outcome set for evaluating mixed-diagnosis falls prevention interventions for people with multiple sclerosis, Parkinson’s disease and stroke. HRB Open Res. 2021;4:123.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
  • Brett J, Staniszewska S, Mockford C, et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. 2014;17(5):637–650.
  • Seetharaman B. Sampling and methods of data collection in qualitative research. Indian J Continuing Nurs Edu. 2016;17(2):41–47.
  • Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exer Health. 2021;13(2):201–216.
  • Braun V, Clarke V. Successful qualitative research: a practical guide for beginners. London: SAGE; 2013.
  • Braun V, Clarke V. Thematic analysis: a practical guide. London: SAGE; 2022.
  • Byrne D. A worked example of Braun and Clarke’s approach to reflexive thematic analysis. Qual Quant. 2022;56(3):1391–1412.
  • Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exer Health. 2019;11(4):589–597.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res. 2006;3(2):77–101.
  • Braun V, Clarke V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual Res Psychol. 2021;18(3):328–352.
  • Laybourne AH, Biggs S, Martin FC. Falls exercise interventions and reduced falls rate: always in the patient’s interest? Age Ageing. 2008;37(1):10–13.
  • Landers MR, Jacobson KM, Matsunami NE, et al. A vicious cycle of fear of falling avoidance behavior in Parkinson’s disease: a path analysis. Clin Park Relat Disord. 2021;4:100089.
  • Owen CL, Ibrahim K, Dennison L, et al. Falls self-management interventions for people with Parkinson’s disease: a systematic review article. J Parkinsons Dis. 2019;9(2):283–299.
  • Lamb SE, Jorstad-Stein EC, Hauer K, et al. Development of a common outcome data set for fall injury prevention trials: the prevention of falls network Europe consensus. J Am Geriatr Soc. 2005;53(9):1618–1622.
  • Zecevic A, Salmoni AW, Speechley M, et al. Defining a fall and reasons for falling: comparisions among the views of seniors, health care providers, and the research literature. Gerontologist. 2006;46(3):367–376.
  • Gunn H, Creanor S, Haas B, et al. Frequency, characteristics, and consequences of falls in multiple sclerosis: findings from a cohort study. Arch Phys Med Rehabil. 2014;95(3):538–545.
  • Srygley JM, Herman T, Giladi N, et al. Self-report of missteps in older adults: a valid proxy of fall risk? Arch Phys Med Rehabil. 2009; 90(5):786–792.
  • Walsh ME, Horgan NF, Walsh CD, et al. Systematic review of risk prediction models for falls after stroke. J Epidemiol Community Health. 2016; 70(5):513–519.
  • Lindholm B, Hagell P, Hansson O, et al. Prediction of falls and/or near falls in people with mild Parkinson’s disease. PLoS One. 2015;10(1):e0117018.
  • Nilsagard Y, Lundholm C, Denison E, et al. Predicting accidental falls in people with multiple sclerosis – a longitudinal study. Clin Rehabil. 2009;23(3):259–269.
  • Mazuz K, Biswas S, Lindner U. Developing self-management application of fall prevention among older adults: a content and usability evaluation. Front Digit Health. 2020;2:11.
  • Sousa LM, Marques-Vieira CM, Caldevilla MN, et al. Risk for falls among community-dwelling older people: systematic literature review. Rev Gaucha Enferm. 2017; 37(4):e55030.
  • WHO. WHO global report on falls prevention in older age. Geneva 2007.
  • Archibald MM, Ambagtsheer RC, Casey MG, et al. Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. Int J Qual Methods. 2019;18:160940691987459.
  • Keeley T, Williamson P, Callery P, et al. The use of qualitative methods to inform delphi surveys in core outcome set development. Trials. 2016;17(1):230.
  • Allard A, Fellowes A, Shilling V, et al. Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents. BMJ Open. 2014;4(4):e004611.
  • Sanderson T, Morris M, Calnan M, et al. What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis Care Res (Hoboken). 2010;62(5):640–646.
  • Mathers J, Keeley T, Jones L, et al. Using qualitative research to understand what outcomes matter to patients: direct and indirect approaches to outcome elicitation. Trials. 2015;16:1–1.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.