Health-related quality of life and chronic fatigue in long-term survivors of indolent lymphoma – a comparison with normative data

References

• Dreyling M, Ghielmini M, Rule S, et al. Newly diagnosed and relapsed follicular lymphoma: ESMO clinical practice guidelines for diagnosis, treat,ent and follow-up. Ann Oncol. 2021;32(3):298–308.
   PubMed Web of Science ®Google Scholar
• Cella DF, Bonomi AE. Measuring quality of life: 1995 update. Oncology (Williston Park). 1995;9(11):47–60.
   PubMedGoogle Scholar
• Haraldstad K, Wahl A, Andenaes R, et al. A systematic review of quality of life research in medicine and health sciences. Qual Life Res. 2019;28(10):2641–2650.
   PubMed Web of Science ®Google Scholar
• Oerlemans S, Mols F, Issa DE, et al. A high level of fatigue among long-term survivors of non-Hodgkin’s lymphoma: results from the longitudinal population-based PROFILES registry in the South of The Netherlands. Haematologica. 2013;98(3):479–486.
   PubMed Web of Science ®Google Scholar
• Beaven AW, Samsa G, Zimmerman S, et al. Quality of life is similar between long-term survivors of indolent and aggressive Non-Hodgkin lymphoma. Cancer Invest. 2016;34(6):279–285.
   PubMed Web of Science ®Google Scholar
• Chalder T, Berelowitz G, Pawlikowska T, et al. Development of a fatigue scale. J Psychosom Res. 1993;37(2):147–153.
   PubMed Web of Science ®Google Scholar
• Loge JH, Abrahamsen AF, Ekeberg O, et al. Hodgkin’s disease survivors more fatigued than the general population. J Clin Oncol. 1999;17(1):253–261. Jan
   PubMed Web of Science ®Google Scholar
• Kiserud CE, Seland M, Holte H, et al. Fatigue in male lymphoma survivors differs between diagnostic groups and is associated with latent hypothyroidism. Acta Oncol. 2015;54(1):49–59. Jan
   PubMed Web of Science ®Google Scholar
• Kimby E, Jurlander J, Geisler C, et al. Long-term molecular remissions in patients with indolent lymphoma treated with rituximab as a single agent or in combination with interferon alpha-2a: a randomized phase II study from the nordic lymphoma group. Leuk Lymphoma. 2008;49(1):102–112. Jan
   PubMed Web of Science ®Google Scholar
• Kimby E, Östenstad B, Brown P, et al. Two courses of four weekly infusions of rituximab with or without interferon-α2a: final results from a randomized phase III study in symptomatic indolent B-cell lymphomas. Leuk Lymphoma. 2015;56(9):2598–2607.
   PubMed Web of Science ®Google Scholar
• Lockmer S, Østenstad B, Hagberg H, et al. Chemotherapy-free initial treatment of advanced indolent lymphoma has durable effect with low toxicity: results from two nordic lymphoma group trials with more than 10 years of follow-up. J Clin Oncol. 2018;36(33):3315–3323.
   Web of Science ®Google Scholar
• Gandek B, Sinclair SJ, Kosinski M, et al. Psychometric evaluation of the SF-36 health survey in medicare managed care. Health Care Financ Rev. 2004;25(4):5–25.
   PubMed Web of Science ®Google Scholar
• Ware JS, Kosinski M, Gandek B, et al. SF-36 health survey. Manual and interpretation guide: manual and interpretation guide. Johnston (RI): 2000.
   Google Scholar
• Ware JE, Jr., Gandek B, Kosinski M, et al. The equivalence of SF-36 summary health scores estimated using standard and country-specific algorithms in 10 countries: results from the IQOLA project. International quality of life assessment. J Clin Epidemiol. 1998;51(11):1167–1170.
   PubMed Web of Science ®Google Scholar
• Bjelland I, Dahl AA, Haug TT, et al. The validity of the hospital anxiety and depression scale. An updated literature review. J Psychosom Res. 2002;52(2):69–77.
   PubMed Web of Science ®Google Scholar
• van den Berg TIJ, Elders LAM, de Zwart BCH, et al. The effects if work-related and individual factors on the work ability index: a systematic review. Occup Environ Med. 2009;66(4):211–220.
   PubMed Web of Science ®Google Scholar
• Ahlstrom L, Grimby-Ekman A, Hagberg M, et al. The work ability index and single-item question: associations with sick leave, symptoms, and health–a prospective study of women on long-term sick leave. Scand J Work Environ Health. 2010;36(5):404–412.
   PubMed Web of Science ®Google Scholar
• Godin G. The Godin-Shephard leisure-time physical activity questionnaire. Health Fitness Canada. 2011;4(1):18–22.
   Google Scholar
• Dahl AA, Grotmol KS, Hjermstad MJ, et al. Norwegian reference data on the fatigue questionnaire and the patient health questionnaire-9 and their interrelationship. Ann Gen Psychiatry. 2020;19:60.
   PubMed Web of Science ®Google Scholar
• Norwegian Center for Research Data, Bergen, Norway. Cited October 26, 2021. Available at: https://www.nsd.no/nsddata/serier/levekaarundersokelser.html
   Google Scholar
• Lakens D. Calculating and reporting effect sizes to facilitate cumulative science: a practical primer for t-tests and ANOVAs. Front Psychol. 2013;4:863.
   PubMed Web of Science ®Google Scholar
• Trevino KM, Martin P, Chen Z, et al. Worsening quality of life in indolent Non-Hodgkin lymphoma and chronic lymphocytic leukemia patients in active surveillance: a 12-Month longitudinal study. Clin Lymphoma Myeloma Leuk. 2022;22(2):82–88.
   PubMed Web of Science ®Google Scholar
• Linendoll N, Saunders T, Burns R, et al. Health related quality of life in Hodgkin lymphoma: a systematic review. Helath Qual Life Outcomes. 2016;14(1):114.
   PubMedGoogle Scholar
• Smeland K, Holte H, Fagerli UM, et al. Total late effect burden in long-term lymphoma survivors after highdose therapy with autologous stem-cell transplant and its effect on health-related quality of life. Haematologica. 2022, 107(11):2698–2707.
   PubMed Web of Science ®Google Scholar
• Eckhoff L, Knoop A, Jensen MB, et al. Persistence of docetaxel-induced neuropathy and impact on quality of life among breast cancer survivors. Eur J Cancer. 2015;51(3):292–300.
   PubMed Web of Science ®Google Scholar
• Johannsdottir IMR, Hamre H, Fosså SD, et al. Adverse health outcomes and associations with Self-Reported general health in childhood lymphoma survivors. J Adolesc Young Adult Oncol. 2017;6(3):470–476.
   PubMed Web of Science ®Google Scholar
• Chovanec M, Lauritsen J, Bandak M, et al. Late adverse effects and quality of life in survivors of testicular germ cell tumour. Nat Rev Urol. 2021;18(4):227–245.
   PubMed Web of Science ®Google Scholar
• Eikeland SA, Smeland KB, Mols F, et al. Chemotherapy-induced peripheral neuropathy after modern treatment of Hodgkin’s lymphoma; symptom burden and quality of life. Acta Oncol. 2021;60(7):911–920.
   PubMed Web of Science ®Google Scholar
• Seland M, Holte H, Bjøro T, et al. Chronic fatigue is prevalent and associated with hormonal dysfunction in long-term non-Hodgkin lymphoma survivors treated with radiotherapy to the head and neck region. Leuk Lymphoma. 2015;56(12):3306–3314.
   PubMed Web of Science ®Google Scholar
• Orfila F, Ferrer M, Lamarca R, et al. Gender differences in health-related quality of life among the elderly: the role of objective functional capacity and chronic conditions. Soc Sci Med. 2006;63(9):2367–2380.
   PubMed Web of Science ®Google Scholar
• LeBlanc MR, Zimmerman S, LeBlanc TW, et al. Persistent fatigue among long-term non-Hodgkin lymphoma survivors. Leuk Lymphoma. 2021;6:1–9.
   Google Scholar
• Bøhn SH, Thorsen L, Kiserud CE, et al. Chronic fatigue and associated factors among long-term survivors of cancers in young adulthood. Acta Oncol. 2019;58(5):753–762.
   PubMed Web of Science ®Google Scholar