A qualitative study exploring experiences of female family caregivers of people with dementia in acceptance and commitment therapy

References

• Ahles, A. & Jenkins, J. (2017). When the going gets tough the tough gets mindful: A toolkit based on the principle of acceptance and commitment therapy. https://www.helpwithact.com/wp-content/uploads/clinicians.pdf
   Google Scholar
• Alzheimer’s Association. (2022). 2022 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia, 18(4), 700–789. https://doi.org/10.1002/alz.12638
   PubMed Web of Science ®Google Scholar
• Antony, M. M., Bieling, P. J., Cox, B. J., Enns, M. W., & Swinson, R. P. (1998). Psychometric properties of the 42-item and 21-item versions of the depression anxiety stress scales in clinical groups and a community sample. Psychological Assessment, 10(2), 176–181. https://doi.org/10.1037/1040-3590.10.2.176
   Web of Science ®Google Scholar
• Boots, L. M. M., Wolfs, C. A. G., Verhey, F. R. J., Kempen, G. I. J. M., & de Vugt, M. E. (2015). Qualitative study on needs and wishes of early-stage dementia caregivers: The paradox between needing and accepting help. International Psychogeriatrics, 27(6), 927–936. https://doi.org/10.1017/S1041610214002804
   PubMed Web of Science ®Google Scholar
• Bouws, J., Henrard, A., de Koning, M., Schirmbeck, F., van Ghesel Grothe, S., van Aubel, E., Reininghaus, U., de Haan, L., & Myin-Germeys, I. (2023). Acceptance and commitment therapy for individuals at risk for psychosis or with a first psychotic episode: A qualitative study on patients’ perspectives. Early Intervention in Psychiatry. Advance online publication. https://doi.org/10.1111/eip.13442
   PubMed Web of Science ®Google Scholar
• Bressan, V., Visintini, C., & Palese, A. (2020). What do family caregivers of people with dementia need? A mixed-method systematic review. Health & Social Care in the Community, 28(6), 1942–1960. https://doi.org/10.1111/hsc.13048
   PubMed Web of Science ®Google Scholar
• Carter, N., Bryant-Lukosius, D., DiCenso, A., Blythe, J., & Neville, A. J. (2014). The use of triangulation in qualitative research. Oncology Nursing Forum, 41(5), 545–547. https://doi.org/10.1188/14.Onf.545-547
   PubMed Web of Science ®Google Scholar
• Chan, D., Livingston, G., Jones, L., & Sampson, E. L. (2013). Grief reactions in dementia carers: A systematic review. International Journal of Geriatric Psychiatry, 28(1), 1–17. https://doi.org/10.1002/gps.3795
   PubMed Web of Science ®Google Scholar
• Chan, W. C., Ng, C., Mok, C. C., Wong, F. L., Pang, S. L., & Chiu, H. F. (2010). Lived experience of caregivers of persons with dementia in Hong Kong: A qualitative study. East Asian Archives of Psychiatry, 20(4), 163–168.
   PubMedGoogle Scholar
• Contreras, M., Van Hout, E., Farquhar, M., McCracken, L. M., Gould, R. L., Hornberger, M., Richmond, E., & Kishita, N. (2022). Internet-delivered guided self-help acceptance and commitment therapy for family carers of people with dementia (iACT4CARERS): A qualitative study of carer views and acceptability. International Journal of Qualitative Studies on Health and Well-Being, 17(1), 2066255. https://doi.org/10.1080/17482631.2022.2066255
   PubMed Web of Science ®Google Scholar
• Gallego-Alberto, L., Losada, A., Cabrera, I., Romero-Moreno, R., Pérez-Miguel, A., Pedroso-Chaparro, M. D. S., & Márquez-González, M. (2022). “I feel guilty”. Exploring guilt-related dynamics in family caregivers of people with dementia. Clinical Gerontologist, 45(5), 1294–1303. https://doi.org/10.1080/07317115.2020.1769244
   PubMed Web of Science ®Google Scholar
• Han, A. (2022). Effects of mindfulness-based interventions on depressive symptoms, anxiety, stress, and quality of life in family caregivers of persons living with dementia: A systematic review and meta-analysis. Research on Aging, 44(7–8), 494–509. https://doi.org/10.1177/01640275211043486
   PubMed Web of Science ®Google Scholar
• Han, A. & Kim, T. H. (2022). Effects of internet-delivered behavioral activation on individuals with depressive symptoms: A systematic review and meta-analysis. Journal of Psychiatric Research, 152, 104–118. https://doi.org/10.1016/j.jpsychires.2022.05.031
   PubMed Web of Science ®Google Scholar
• Han, A. & Radel, J. (2016). Spousal caregiver perspectives on a person-centered social program for partners with dementia. American Journal of Alzheimer’s Disease & Other Dementias, 31(6), 465–473. https://doi.org/10.1177/1533317515619036
   PubMed Web of Science ®Google Scholar
• Han, A., Yuen, H. K., & Jenkins, J. (2023). The feasibility and preliminary effects of a pilot randomized controlled trial: Videoconferencing acceptance and commitment therapy in distressed family caregivers of people with dementia. Journal of Health Psychology, 28(6), 554–567. https://doi.org/10.1177/13591053221141131
   PubMed Web of Science ®Google Scholar
• Han, A., Yuen, H. K., Jenkins, J., & Lee, H. Y. (2022). Acceptance and commitment therapy (ACT) guided online for distressed caregivers of persons living with dementia. Clinical Gerontologist, 45(4), 927–938. https://doi.org/10.1080/07317115.2021.1908475
   PubMed Web of Science ®Google Scholar
• Hayes, S. C., Pistorello, J., & Levin, M. E. (2012). Acceptance and commitment therapy as a unified model of behavior change. The Counseling Psychologist, 40(7), 976–1002. https://doi.org/10.1177/0011000012460836
   Web of Science ®Google Scholar
• Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (2012). Acceptance and commitment therapy: The process and practice of mindful change (2nd ed.). Guilford Press.
   Google Scholar
• Kabat-Zinn, J. (1990). Full catastrophe living: Using the wisdom of your body and mind to face stress, pain, and illness. Dell Publishing.
   Google Scholar
• Karg, N., Graessel, E., Randzio, O., & Pendergrass, A. (2018). Dementia as a predictor of care-related quality of life in informal caregivers: A cross-sectional study to investigate differences in health-related outcomes between dementia and non-dementia caregivers. BMC Geriatrics, 18(1), 189. https://doi.org/10.1186/s12877-018-0885-1
   PubMedGoogle Scholar
• Kishita, N., Contreras, M. L., West, J., & Mioshi, E. (2020). Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia. Journal of Contextual Behavioral Science, 17, 119–125. https://doi.org/10.1016/j.jcbs.2020.07.005
   Web of Science ®Google Scholar
• Köhle, N., Drossaert, C. H. C., Jaran, J., Schreurs, K. M. G., Verdonck de Leeuw, I. M., & Bohlmeijer, E. T. (2017). User-experiences with a web-based self-help intervention for partners of cancer patients based on acceptance and commitment therapy and self-compassion: A qualitative study. BMC Public Health, 17(1), 225. https://doi.org/10.1186/s12889-017-4121-2
   PubMedGoogle Scholar
• Losada, A., Márquez-González, M., Romero-Moreno, R., Mausbach, B. T., López, J., Fernández-Fernández, V., & Nogales-González, C. (2015). Cognitive-behavioral therapy (CBT) versus acceptance and commitment therapy (ACT) for dementia family caregivers with significant depressive symptoms: Results of a randomized clinical trial. Journal of Consulting and Clinical Psychology, 83(4), 760–772. https://doi.org/10.1037/ccp0000028
   PubMed Web of Science ®Google Scholar
• Márquez-González, M., Romero-Moreno, R., Cabrera, I., Olmos, R., Pérez-Miguel, A., & Losada, A. (2020). Tailored versus manualized interventions for dementia caregivers: The functional analysis-guided modular intervention. Psychology and Aging, 35(1), 41–54. https://doi.org/10.1037/pag0000412
   PubMed Web of Science ®Google Scholar
• Márquez-González, M., Romero-Moreno, R., & Losada, A. (2010). Caregiving issues in a therapeutic context: New insights from the acceptance and commitment therapy approach. In N. Pachana, K. Laidlaw, & B. Knight (Eds.), Casebook of clinical geropsychology: International perspectives on practice (pp. 33–53). Oxford University Press. https://doi.org/10.1093/med/9780199583553.001.0001
   Google Scholar
• Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1609406917733847. https://doi.org/10.1177/1609406917733847
   Web of Science ®Google Scholar
• Rise, M. B., Gismervik, S., Johnsen, R., & Fimland, M. S. (2015). Sick-listed persons’ experiences with taking part in an in-patient occupational rehabilitation program based on acceptance and commitment therapy: A qualitative focus group interview study. BMC Health Services Research, 15(1), 526. https://doi.org/10.1186/s12913-015-1190-8
   PubMed Web of Science ®Google Scholar
• Sallim, A. B., Sayampanathan, A. A., Cuttilan, A., & Ho, R. (2015). Prevalence of mental health disorders among caregivers of patients with alzheimer disease. Journal of the American Medical Directors Association, 16(12), 1034–1041. https://doi.org/10.1016/j.jamda.2015.09.007
   PubMed Web of Science ®Google Scholar
• Smith, J., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method, and research. Sage Publications.
   Google Scholar
• Tatangelo, G., McCabe, M., Macleod, A., & You, E. (2018). ”I just don’t focus on my needs.” the unmet health needs of partner and offspring caregivers of persons living with dementia: A qualitative study. International Journal of Nursing Studies, 77, 8–14. https://doi.org/10.1016/j.ijnurstu.2017.09.011
   PubMed Web of Science ®Google Scholar
• Walser, R. D., Sears, K., Chartier, M., & Karlin, B. E. (2012). Acceptance and commitment therapy for depression in veterans: Therapist manual. U.S. Department of Veterans Affairs.
   Google Scholar
• Weisman, A., Weintraub, M., Maura, J., Andino, A., & Stamatis, C. (2018). The interplay among mindfulness, caregiver burden, and mental health in family members of individuals with dementia. Professional Psychology: Research and Practice, 49(2), 116–123. https://doi.org/10.1037/pro0000181
   Web of Science ®Google Scholar
• Yu, D. S. F., Cheng, S.-T., & Wang, J. (2018). Unravelling positive aspects of caregiving in dementia: An integrative review of research literature. International Journal of Nursing Studies, 79, 1–26. https://doi.org/10.1016/j.ijnurstu.2017.10.008
   PubMed Web of Science ®Google Scholar