Patient-reported distress is prevalent in systemic light chain (AL) amyloidosis but not determined by severity of disease

References

• Zabora J, BrintzenhofeSzoc K, Curbow B, et al. The prevalence of psychological distress by cancer site. Psychooncology. 2001;10:19–28.
   PubMed Web of Science ®Google Scholar
• Carlson LE, Angen M, Cullum J, et al. High levels of untreated distress and fatigue in cancer patients. Br J Cancer. 2004;90:2297–2304.
   PubMed Web of Science ®Google Scholar
• National Comprehensive Cancer Network. [cited 2018 Feb 23]. Available from: https://www.nccn.org/patients/resources/life_with_cancer/pdf/nccn_distress_thermometer.pdf
   Google Scholar
• Jacobsen PB, Donovan KA, Trask PC, et al. Screening for psychologic distress in ambulatory cancer patients. Cancer 2005;103:1494–1502.
   PubMed Web of Science ®Google Scholar
• Ghazali N, Roe B, Lowe D, et al. Screening for distress using the Distress Thermometer and the University of Washington quality of life in post-treatment head and neck cancer survivors. Eur Arch Otorhinolaryngol. 2017;274:2253–2260.
   PubMed Web of Science ®Google Scholar
• Hegel MT, Collins ED, Kearing S, et al. Sensitivity and specificity of the Distress Thermometer for depression in newly diagnosed breast cancer patients. Psychooncology 2008;17:556–560.
   PubMed Web of Science ®Google Scholar
• Chambers SK, Zajdlewicz L, Youlden DR, et al. The validity of the Distress Thermometer in prostate cancer populations. Psychooncology 2014;23:195–203.
   PubMed Web of Science ®Google Scholar
• Ransom S, Jacobsen PB, Booth-Jones M. Validation of the Distress Thermometer with bone marrow transplant patients. Psychooncology 2006;15:604–612.
   PubMed Web of Science ®Google Scholar
• Ryan DA, Gallagher P, Wright S, et al. Sensitivity and specificity of the Distress Thermometer and a two-item depression screen (Patient Health Questionnaire-2) with a “help” question for psychological distress and psychiatric morbidity in patients with advanced cancer. Psychooncology 2012;21:1275–1284.
   PubMed Web of Science ®Google Scholar
• Head BA, Schapmire TJ, Keeney CE, et al. Use of the Distress Thermometer to discern clinically relevant quality of life differences in women with breast cancer. Qual Life Res. 2012;21:215–223.
   PubMed Web of Science ®Google Scholar
• Mehnert A, Hartung TJ, Friedrich M, et al. One in two cancer patients is significantly distressed: prevalence and indicators of distress. Psychooncology 2018;27:75–82.
   PubMed Web of Science ®Google Scholar
• Merlini G. AL amyloidosis: from molecular mechanisms to targeted therapies. Hematology Am Soc Hematol Educ Program. 2017;2017:1–12.
   PubMed Web of Science ®Google Scholar
• Kyle RA, Gertz MA. Primary systemic amyloidosis: clinical and laboratory features in 474 cases. Semin Hematol. 1995;32:45–59.
   PubMed Web of Science ®Google Scholar
• Wechalekar AD, Gillmore JD, Bird J, et al. Guidelines on the management of AL amyloidosis. Br J Haematol. 2015;168:186–206.
   PubMed Web of Science ®Google Scholar
• Muchtar E, Gertz MA, Kumar SK, et al. Improved outcomes for newly diagnosed AL amyloidosis between 2000 and 2014: cracking the glass ceiling of early death. Blood 2017;129:2111–2119.
   PubMed Web of Science ®Google Scholar
• Bayliss M, McCausland KL, Guthrie SD, et al. The burden of amyloid light chain amyloidosis on health-related quality of life. Orphanet J Rare Dis. 2017;12:15.
   PubMed Web of Science ®Google Scholar
• Sanchorawala V, McCausland KL, White MK, et al. A longitudinal evaluation of health-related quality of life in patients with AL amyloidosis: associations with health outcomes over time. Br J Haematol. 2017;179:461–470.
   PubMed Web of Science ®Google Scholar
• Lousada I, Comenzo RL, Landau H, et al. Light chain amyloidosis: patient experience survey from the amyloidosis research consortium. Adv Ther. 2015;32:920–928.
   PubMed Web of Science ®Google Scholar
• Merlini G, Wechalekar AD, Palladini G. Systemic light chain amyloidosis: an update for treating physicians. Blood 2013;121:5124–5130.
   PubMed Web of Science ®Google Scholar
• Warsame R, Kumar SK, Gertz MA, et al. Hematology patient reported symptom screen to assess quality of life for AL amyloidosis. Am J Hematol. 2017;92:435–440.
   PubMed Web of Science ®Google Scholar
• Applebaum AJ, Stein EM, Lord-Bessen J, et al. Optimism, social support, and mental health outcomes in patients with advanced cancer. Psychooncology 2014;23:299–306.
   PubMed Web of Science ®Google Scholar
• Ma YM, Ba CF, Wang YB. Analysis of factors affecting the life quality of the patients with late stomach cancer. J Clin Nurs. 2014;23:1257–1262.
   PubMed Web of Science ®Google Scholar
• Tuinman MA, Van Nuenen FM, Hagedoorn M, et al. Distress, problems and referral wish of cancer patients: differences according to relationship status and life phase. Psychooncology 2015;24:699–704.
   PubMed Web of Science ®Google Scholar
• Agarwal J, Powers K, Pappas L, et al. Correlates of elevated distress thermometer scores in breast cancer patients. Support Care Cancer. 2013;21:2125–2136.
   PubMed Web of Science ®Google Scholar
• Randazzo D, Peters KB. Psychosocial distress and its effects on the health-related quality of life of primary brain tumor patients. CNS Oncol. 2016;5:241–249.
   PubMedGoogle Scholar
• Shu J, Lo S, Phillips M, et al. Depression and anxiety in patients with AL amyloidosis as assessed by the SF-36 questionnaire: experience in 1226 patients. Amyloid 2016;23:188–193.
   PubMed Web of Science ®Google Scholar
• Beisland E, Aarstad AK, Osthus AA, et al. Stability of distress and health-related quality of life as well as relation to neuroticism, coping and TNM stage in head and neck cancer patients during follow-up. Acta Otolaryngol. 2013;133:209–217.
   PubMed Web of Science ®Google Scholar
• Degner LF, Sloan JA. Symptom distress in newly diagnosed ambulatory cancer patients and as a predictor of survival in lung cancer. J Pain Symptom Manage. 1995;10:423–431.
   PubMed Web of Science ®Google Scholar
• Huang B, Chen H, Deng Y, et al. Diagnosis, disease stage, and distress of Chinese cancer patients. Ann Transl Med. 2016;4:73.
   PubMed Web of Science ®Google Scholar
• Kim GM, Kim SJ, Song SK, et al. Prevalence and prognostic implications of psychological distress in patients with gastric cancer. BMC Cancer. 2017;17:283.
   PubMed Web of Science ®Google Scholar
• Maher NG, Britton B, Hoffman GR. Early screening in patients with head and neck cancer identified high levels of pain and distress. J Oral Maxillofac Surg. 2013;71:1458–1464.
   PubMed Web of Science ®Google Scholar
• Brocken P, van der Heijden EH, Oud KT, et al. Distress in suspected lung cancer patients following rapid and standard diagnostic programs: a prospective observational study. Psychooncology 2015;24:433–441.
   PubMed Web of Science ®Google Scholar
• Kim JH, Yoon S, Won WY, et al. Age-specific influences of emotional distress on performance status in cancer patients. Psychooncology 2013;22:2220–2226.
   PubMed Web of Science ®Google Scholar
• Kim SJ, Rha SY, Song SK, et al. Prevalence and associated factors of psychological distress among Korean cancer patients. Gen Hosp Psychiatry. 2011;33:246–252.
   PubMed Web of Science ®Google Scholar