766
Views
11
CrossRef citations to date
0
Altmetric
Endocrinology

Mapping AcroQoL scores to EQ-5D to obtain utility values for patients with acromegaly

, , , , , ORCID Icon, & show all
Pages 382-389 | Received 23 Oct 2017, Accepted 14 Dec 2017, Published online: 05 Jan 2018

References

  • Ben-Shlomo A, Melmed S. Acromegaly. Endocrinol Metab. Clin North Am 2008;37:101-22,viii
  • Chanson P, Salenave S. Acromegaly. Orphanet J Rare Dis 2008;3:17
  • Holdaway IM, Rajasoorya C. Epidemiology of acromegaly. Pituitary 1999;2:29-41
  • Alonso J, Ferrer M, Gandek B, et al. Health-related quality of life associated with chronic conditions in eight countries: results from the International Quality of Life Assessment (IQOLA) Project. Qual Life Res 2004;13:283-98
  • Biermasz NR, van Thiel SW, Pereira AM, et al. Decreased quality of life in patients with acromegaly despite long-term cure of growth hormone excess. J Clin Endocrinol Metab 2004;89:5369-76
  • Fleming CA, Christiansen D, Nunes D, et al. Health-related quality of life of patients with HIV disease: impact of hepatitis C coinfection. Clin Infect Dis 2004;38:572-8
  • Miller A, Doll H, David J, et al. Impact of musculoskeletal disease on quality of life in long-standing acromegaly. Eur J Endocrinol 2008;158:587-93
  • Pittock SJ, Mayr WT, McClelland RL, et al. Quality of life is favorable for most patients with multiple sclerosis: a population-based cohort study. Arch Neurol 2004;61:679-86
  • Rannou F, Poiraudeau S, Berezné A, et al. Assessing disability and quality of life in systemic sclerosis: construct validities of the Cochin Hand Function Scale, Health Assessment Questionnaire (HAQ), Systemic Sclerosis HAQ, and Medical Outcomes Study 36-Item Short Form Health Survey. Arthritis Rheum 2007;57:94-102
  • Wang R, Wu C, Zhao Y, et al. Health related quality of life measured by SF-36: a population-based study in Shanghai, China. BMC Public Health 2008;8:292
  • Rowles SV, Prieto L, Badia X, et al. Quality of life (QOL) in patients with acromegaly is severely impaired: use of a novel measure of QOL: acromegaly quality of life questionnaire. J Clin Endocrinol Metab 2005;90:3337-41
  • Webb SM, Prieto L, Badia X, et al. Acromegaly Quality of Life Questionnaire (ACROQOL), a new health-related quality of life questionnaire for patients with acromegaly: development and psychometric properties. Clin Endocrinol (Oxf) 2002;57:251-8
  • Webb SM, Badia X, Surinach NL. Spanish AcroQol study group. Validity and clinical applicability of the acromegaly quality of life questionnaire, AcroQoL: a 6-month prospective study. Eur J Endocrinol 2006;155:269-77
  • Neggers SJ, van Aken MO, de Herder WW. Quality of life in acromegalic patients during long-term somatostatin analog treatment with and without pegvisomant. J Clin Endocrinol Metab 2008;93:3853-9
  • Hua SC, Yan YH, Chang TC. Associations of remission status and lanreotide treatment with quality of life in patients with treated acromegaly. Eur J Endocrinol 2006;155:831-7
  • Webb SM, Badia X. Quality of life in growth hormone deficiency and acromegaly. Endocrinol Metab Clin North Am 2007;36:221-32
  • National Institute for Health and Clinical Excellence (NICE). Incorporating health economics in guidelines and assessing resource impact. In: Guideline Development Methods, Chapter 8. NICE; updated March 2005. http://www.nice.org.uk/niceMedia/pdf/GuidelinesManualChapter8.pdf
  • Brazier JE, Yang Y, Tsuchiya A, et al. A review of studies mapping (or cross walking) non-preference based measures of health to generic preference-based measures. Eur J Health Econ 2010;11:215-25
  • Tiemensma J, Kaptein AA, Pereira AM, et al. Affected illness perceptions and the association with impaired quality of life in patients with long-term remission of acromegaly. J Clin Endocrinol Metab 2011;96:3550-8
  • Paisley AN, Rowles SV, Roberts ME, et al. Treatment of acromegaly improves quality of life, measured by AcroQol. Clin Endocrinol (Oxf) 2007;67:358-62
  • Badia X, Webb SM, Prieto L, et al. Acromegaly Quality of Life Questionnaire (AcroQoL). Health Qual Life Outcomes 2004;2:13
  • Rabin R, de Charro F. EQ-5D: a measure of health status from the EuroQol Group. Ann Med 2001;33:337-43
  • Szende A, Oppe M, Devlin N. EQ-5D value sets. Inventory, comparative review and user guide. Dordrecht: Springer; 2007
  • Dolan P. Modeling valuations for EuroQol health states. Med Care 1997;35:1095-108
  • Cohen J: Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale, NJ: Lawrence Erlbaum Associates; 1988
  • Gu NY, Botteman MF, Ji X, et al. Mapping of the Insomnia Severity Index and other sleep measures to EuroQol EQ-5D health state utilities. Health Qual Life Outcomes 2011;9:119
  • Pullenayegum EM, Tarride JE, Xie F, et al. Analysis of health utility data when some subjects attain the upper bound of 1: are Tobit and CLAD models appropriate? Value Health 2010;14:487-94
  • Basu A, Manca A. Regression estimators for generic health-related quality of life and quality-adjusted life years. Med Decis Making 2012;32:56-69
  • Herdman M, Fox-Rushby J, Rabin R, et al. Producing other language versions of the EQ-5D. In: Brooks R, de Charro F, Buxton M, editors. EuroQol: the EQ-net project on health status measurement and validation. Chp 11. Dordrecht, The Netherlands: Kluwer Academic Publishers; 2003. p 183-9
  • Kyriakakis N, Lynch J, Gilbey SG, et al. Impaired quality of life in patients with treated acromegaly despite long-term biochemically stable disease: results from a 5-years prospective study. Clin Endocrinol (Oxf) 2017;86:806-15

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.