Experiences of involuntary childlessness and treatment in the UK: what has changed in 20 years?

References

• Boivin, J., Appleton, T.C., Baetens, P., Baron, J., Bitzer, J., Corrigan, E., … Kentenich, H. (2001). European Society of Human Reproduction and Embryology. Guidelines for counselling in infertility: outline version. Human Reproduction, 16, 1301–1304. doi: https://doi.org/10.1093/humrep/16.6.1301.
   PubMed Web of Science ®Google Scholar
• Boivin, J., Scanlan, L.C., & Walker, S.M. (1999). Why are infertile patients not using psychosocial counselling? Human Reproduction, 14, 1384–1391. doi: https://doi.org/10.1093/humrep/14.5.1384.
   PubMed Web of Science ®Google Scholar
• Coulson, N.S. (2019). Peer-to-peer health-related online support groups. In M. Khosrow-Pour (Ed.), Advanced methodologies and technologies in medicine and healthcare. Hershey, PA: IGI Global.
   Google Scholar
• Cousineau, T., & Domar, A. (2007). Psychological impact of infertility. Best Practice & Research Clinical Obstetrics & Gynaecology, 21, 293–308. doi: https://doi.org/10.1016/j.bpobgyn.2006.12.003.
   PubMed Web of Science ®Google Scholar
• Domar, A., Gordon, K., Garcia-Velasco, J., La Marca, A., Barriere, P., & Beligotti, F. (2012). Understanding the perceptions of and emotional barriers to infertility treatment: a survey in four European countries. Human Reproduction, 27, 1073–1079. doi: https://doi.org/10.1093/humrep/des016.
   PubMed Web of Science ®Google Scholar
• Fertility Fairness. (2017). IVF Provision in England. Retrieved January 22, 2019, from http://www.fertilityfairness.co.uk/nhs-fertility-services/ivf-provision-in-england/
   Google Scholar
• Frederiksen, Y., Farver-Vestergaard, I., Skovard, N.G., Ingerslev, H.J., & Zachariae, R. (2015). Efficacy of psychosocial interventions for psychological and pregnancy outcomes in infertile women and men: a systematic review and meta-analysis. BMJ Open, 5, e006592. doi: https://doi.org/10.1136/bmjopen-2014-006592.
   PubMed Web of Science ®Google Scholar
• Gameiro, S., Boivin, J., Dancet, E., de Klerk, C., Emery, M., Lewis-Jones, C., … Vermeulen, N. (2015). ESHRE guideline: routine psychosocial care in infertility and medically assisted reproduction – a guide for fertility staff. Human Reproduction, 30, 2476–2485. doi: https://doi.org/10.1093/humrep/dev177.
   PubMed Web of Science ®Google Scholar
• Greil, A.L., Slauson-Blevins, K., & McQuillan, J. (2010). The experience of infertility: A review of recent literature. Sociology of Health & Illness, 32, 140–162. doi: https://doi.org/10.1111/j.1467-9566.2009.01213.x.
   PubMed Web of Science ®Google Scholar
• Holley, S.R., Pasch, L.A., Bleil, M.E., Gregorich, S., Katz, P.K., & Adler, N.E. (2015). Prevalence and predictors of major depressive disorder for fertility treatment patients and their partners. Fertility and Sterility, 103, 1332–1339. doi: https://doi.org/10.1016/j.fertnstert.2015.02.018.
   PubMed Web of Science ®Google Scholar
• Human Fertilisation and Embryology Authority. (2018). Fertility treatment: trends and figures 2014-2016. London: Human Fertilisation and Embryology Authority. Retrieved from https://www.hfea.gov.uk/media/2563/hfea-fertility-trends-and-figures-2017-v2.pdf
   Google Scholar
• Human Fertilisation and Embryology Authority. (2019). Code of practice (9th ed.). London: Human Fertilisation and Embryology Authority. Retrieved from https://www.hfea.gov.uk/media/2793/2019-01-03-code-of-practice-9th-edition-v2.pdf
   Google Scholar
• Kennedy, R., Kingsland, C., Rutherford, A., Hamilton, M., & Ledger, W; British Fertility Society. (2006). Implementation of the NICE guideline – Recommendations from the British Fertility Society for national criteria for NHS funding of assisted conception. Human Fertility, 9, 181–198. doi: https://doi.org/10.1080/14647270600908411.
   PubMedGoogle Scholar
• Kerr, J., Brown, C., & Balen, A.H. (1999). The experiences of couples who have had infertility treatment in the United Kingdom: Results of a survey performed in 1997. Human Reproduction, 14, 934–938. doi: https://doi.org/10.1093/humrep/14.4.934.
   PubMed Web of Science ®Google Scholar
• Kjaer, T.K., Jensen, A., Dalton, S.O., Johansen, C., Schmiedel, S., & Kjaer, S.K. (2011). Suicide in Danish women evaluated for fertility problems. Human Reproduction, 26, 2401–2407. doi: https://doi.org/10.1093/humrep/der188.
   PubMed Web of Science ®Google Scholar
• Lund, R., Sejbaek, C.S., Christensen, U., & Schmidt, L. (2009). The impact of social relations on the incidence of severe depressive symptoms among infertile women and men. Human Reproduction, 24, 2810–2820. doi: https://doi.org/10.1093/humrep/dep257.
   PubMed Web of Science ®Google Scholar
• Matthiesen, S.M., Frederiksen, Y., Ingerslev, H.J., & Zachariae, R. (2011). Stress, distress, and outcomes of assisted reproductive technology (ART): a meta-analysis. Human Reproduction, 26, 2763–2776. doi: https://doi.org/10.1093/humrep/der246.
   PubMed Web of Science ®Google Scholar
• National Institute for Health and Care Excellence (NICE). (2013). Fertility problems: assessment and treatment. Retrieved January 22, 2019, from https://www.nice.org.uk/guidance/cg156
   Google Scholar
• Peterson, B.D., Sejbaek, C.S., Pirritano, M., & Schmidt, L. (2014). Are severe depressive symptoms associated with infertility-related distress in individuals and their partners. Human Reproduction, 29, 76–82. doi: https://doi.org/10.1093/humrep/det412.
   PubMed Web of Science ®Google Scholar
• Purewal, S., Chapman, S., & van den Akker, O. (2017). A systematic review and meta-analysis of psychological predictors of successful assisted reproductive technologies. BMC Research Notes, 10, 711. doi: https://doi.org/10.1186/s13104-017-3049-z.
   PubMedGoogle Scholar
• Purewal, S., Chapman, S., & van den Akker, O. (2018). Depression and state anxiety scores during assisted reproduction treatment are associated with outcome: a meta-analysis. Reproductive BioMedicine Online, 36, 646–657. doi: https://doi.org/10.1016/j.rbmo.2018.03.010.
   PubMed Web of Science ®Google Scholar
• Tao, P., Coates, R., & Maycock, B. (2012). Investigating marital relationship in infertility: a systematic review of quantitative studies. Journal of Reproduction and Infertility, 13, 71–80.
   PubMedGoogle Scholar
• van den Akker, O.B.A. (2012). Reproductive health psychology. Chichester: Wiley-Blackwell.
   Google Scholar
• Verhaak, C.M., Smeenk, J.M.J., van Minnen, A., Kremer, J.A.M., & Kraaimaat, F.W. (2005). A longitudinal prospective study on emotional adjustment before, during and after consecutive fertility treatment cycles. Human Reproduction, 20, 2253–2260. doi: https://doi.org/10.1093/humrep/dei015.
   PubMed Web of Science ®Google Scholar
• Visser, M., Gerrits, T., van der Veen, F., & Mochtar, M. (2019). Counsellors practices in donor sperm treatment. Human Fertility, 22, 255–265. doi: https://doi.org/10.1080/14647273.2018.1449970.
   Google Scholar
• Volgsten, H., Skoog Svanberg, A., Ekselius, L., Lundkvist, O., & Sundstrom Poromaa, I. (2008). Prevelance of psychiatric disorders in infertile owmne and men undergoing in vitro fertilization treatment. Human Reproduction, 23, 2056–2063. doi: https://doi.org/10.1093/humrep/den154.
   PubMed Web of Science ®Google Scholar
• World Health Organization (2009). Infertility definitions and terminology. Retrieved January 22, 2019, from https://www.who.int/reproductivehealth/topics/infertility/definitions/en/
   Google Scholar
• Worrall, H., Schweizer, R., Marks, E., Yuan, L., Lloyd, C., & Ramjan, R. (2018). The effectiveness of support groups: a literature review. Mental Health and Social Inclusion, 22, 85–93. doi: https://doi.org/10.1108/MHSI-12-2017-0055.
   Web of Science ®Google Scholar