Non‐invasive ventilation in ALS: current practice and future role

References

• Bourke SC, Shaw PJ, Gibson GJ. Respiratory function vs. sleep- disordered breathing as predictors of QoL in ALS. Neurology 2001; 57: 2040–2044.
   Google Scholar
• Desport JC, Preux PM, Truong TC, Vallat JM, Sautereau D, Couratier P. Nutritional status is a prognostic factor for survival in ALS patients. Neurology 1999; 53: 1059–1063.
   PubMed Web of Science ®Google Scholar
• Stambler N, Charatan M, Cedarbaum JM. Prognostic indicators of survival in ALS. ALS CNTF Treatment Study Group. Neurology 1998; 50: 66–72.
   PubMed Web of Science ®Google Scholar
• Schiffman PL, Belsh JM. Pulmonary function at diagnosis of amyotrophic lateral sclerosis. Rate of deterioration. Chest 1993; 103: 508–513.
   PubMed Web of Science ®Google Scholar
• Fallat RJ, Jewitt B, Bass M, Kamm B, Norris FH, Jr. Spirometry in amyotrophic lateral sclerosis. Arch Neurol 1979; 36: 74–80.
   PubMed Web of Science ®Google Scholar
• Armon C, Graves MC, Moses D et al. Linear estimates of disease progression predict survival in patients with amyotrophic lateral sclerosis. Muscle & Nerve 2000; 23: 874–882.
   Google Scholar
• Melo J, Homma A, Iturriaga EF et al. Pulmonary evaluation and prevalence of non-invasive ventilation in patients with amyo- trophic lateral sclerosis: a multicenter survey and proposal of a pulmonary protocol. J Neurol Sci 1999; 169: 114–117.
   Google Scholar
• Bourke SC, Williams TL, Bullock RE, Gibson GJ, Shaw PJ. Non- invasive ventilation in motor neuron disease: current UK practice. Amyotroph Lateral Scler Other Motor Neuron Disord 2002; 3: 145–149.
   PubMed Web of Science ®Google Scholar
• Cazzolli PA, Oppenheimer EA. Home mechanical ventilation for amyotrophic lateral sclerosis: nasal compared to tracheostomy- intermittent positive pressure ventilation. J Neurol Sci 1996; 139 (suppl): 123–128.
   Google Scholar
• Moss AH, Casey P, Stocking CB, Roos RP, Brooks BR, Siegler M. Home ventilation for amyotrophic lateral sclerosis patients: outcomes, costs, and patient, family, and physician attitudes. Neurology 1993; 43: 438–443.
   PubMed Web of Science ®Google Scholar
• Aboussouan LS, Khan SU, Meeker DP, Stelmach K, Mitsumoto H. Effect of non-invasive positive-pressure ventilation on survival in amyotrophic lateral sclerosis. Ann Intern Med 1997; 127: 450–453.
   Google Scholar
• Kleopa KA, Sherman M, Neal B, Romano GJ, Heiman-Patterson T. Bipap improves survival and rate of pulmonary function decline in patients with ALS. J Neurol Sci 1999; 164: 82–88.
   PubMed Web of Science ®Google Scholar
• Pinto AC, Evangelista T, Carvalho M, Alves MA, Sales Luis ML. Respiratory assistance with a non-invasive ventilator (Bipap) in MND/ALS patients: survival rates in a controlled trial. J Neurol Sci 1995; 129(suppl): 19–26.
   Google Scholar
• Bach JRMDF. Amyotrophic lateral sclerosis: prolongation of life by non-invasive respiratory aids. Chest 2002; 122: 92–98.
   PubMed Web of Science ®Google Scholar
• Hein H, Schucher B, Magnussen H. Intermittent assisted ventilation in neuromuscular diseases: course and quality of life. Pneumologie 1999; 53(Suppl 2): S89–90.
   Google Scholar
• Aboussouan LS, Khan SU, Banerjee M, Arroliga AC, Mitsumoto H. Objective measures of the efficacy of non-invasive positive- pressure ventilation in amyotrophic lateral sclerosis. Muscle & Nerve 2001; 24: 403–409.
   Google Scholar
• Lyall RA, Donaldson N, Fleming T et al. A prospective study of quality of life in ALS patients treated with non-invasive ventilation. Neurology 2001; 57: 153–156.
   Google Scholar
• Bourke SC, Bullock RE, Williams RE, Shaw PJ, Gibson GJ. Non- invasive ventilation in ALS: indications and effect on quality of life. Neurology 2003; 61: 171–177.
   PubMed Web of Science ®Google Scholar
• Newsom-Davis IC, Lyall RA, Leigh PN, Moxham J, Goldstein LH. The effect of non-invasive positive pressure ventilation (NIPPV) on cognitive function in amyotrophic lateral sclerosis (ALS): a prospective study. Journal of Neurology, Neurosurgery & Psychiatry. 2001; 71: 482–487.
   PubMed Web of Science ®Google Scholar
• Borasio GD, Shaw PJ, Hardiman O, Ludolph AC, Sales-Luis ML, Silani V. Standards of palliative care for patients with amyotrophic lateral sclerosis: results of a European survey. Amyotroph Lateral Scler Other Motor Neuron Disord 2001; 2: 159–164.
   PubMed Web of Science ®Google Scholar
• Bradley WG, Anderson F, Bromberg M et al. Current manage- ment of ALS: comparison of the ALS CARE database and the AAN Practice Parameter. The American Academy of Neurology. Neurology 2001; 57: 500–504.
   Google Scholar
• Bach JR. Update and perspective on non-invasive respiratory muscle aids. Part 2: The expiratory aids. Chest 1994; 105: 1538–1544.
   Google Scholar
• Lahrmann H, Wild M, Zdrahal F, Grisold W. Expiratory muscle weakness and assisted cough in ALS. ALS Other Motor Neuron Disord 2003; 4: 49–51.
   PubMed Web of Science ®Google Scholar
• Mustfa NM, Aiello MM, Lyall RAM et al. Cough augmentation in amyotrophic lateral sclerosis. Neurology 2003; 61: 1285–1287.
   Google Scholar
• Newsom-Davis IC, Lyall RA, Leigh PN, Moxham J, Goldstein LH. The effect of non-invasive positive pressure ventilation (NIPPV) on cognitive function in amyotrophic lateral sclerosis (ALS): a prospective study. J Neurol Neurosurg Psychiatry 2001; 71: 482–487.
   PubMed Web of Science ®Google Scholar
• Farrero E, Povedano, Prats E, Matos JA, Manresa F, Escarrabill J. Effects of early respiratory assessment on the evolution of ALS patients with home mechanical ventilation. Amotroph Lateral Scler Other Motor Neuron Disord 2003; 4(Suppl 1): 195–196.
   Google Scholar
• Lechtzin N, Wiener CM, Clawson L, Davidson M, Diette GB. Bipap use in ALS. Am J Respir Crit Care Med 2001; 163: A153.
   Google Scholar
• Miller RG, Rosenberg JA, Gelinas DF et al. Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence-based review): report of the Quality Standards Subcommittee of the American Academy of Neurology: ALS Practice Parameters Task Force. Neurology 1999; 52: 1311–1323.
   Google Scholar
• Anonymous. Clinical indications for non-invasive positive pressure ventilation in chronic respiratory failure due to restrictive lung disease, COPD, and nocturnal hypoventilation: a consensus conference report. Chest 1999; 116: 521–534.
   Google Scholar
• Cedarbaum JM, Stambler N. Disease status and use of ventilatory support by ALS patients. Amyotroph Lateral Scler Other Motor Neuron Disord 2001; 2: 19–22.
   PubMed Web of Science ®Google Scholar
• Pinto A, Carvalho M, Evangelista T, Lopes A, Sales-Luis L. Nocturnal pulse oximetry: a new approach to establish the appropriate time for non-invasive ventilation in ALS patients. Amyotroph Lateral Scler Other Motor Neuron Disord 2003; 4: 31–35.
   PubMed Web of Science ®Google Scholar
• Jackson CE, Rosenfeld J, Moore DH et al. A preliminary evaluation of a prospective study of pulmonary function studies and symptoms of hypoventilation in ALS/MND patients. J Neurol Sci 2001; 191: 75–78.
   Google Scholar
• Gay PC, Westbrook PR, Daube JR, Litchy WJ, Windebank AJ, Iverson R. Effects of alterations in pulmonary function and sleep variables on survival in patients with amyotrophic lateral sclerosis. Mayo Clin Proc 1991; 66: 686–694.
   PubMed Web of Science ®Google Scholar
• Phillips MF, Smith PE, Carroll N, Edwards RH, Calverley PM. Nocturnal oxygenation and prognosis in Duchenne muscular dystrophy. Am J Respir Crit Care Med 1999; 160: 198–202.
   PubMed Web of Science ®Google Scholar
• Uldry C, Fitting JW. Maximal values of sniff nasal inspiratory pressure in healthy subjects. Thorax 1995; 50: 371–375.
   PubMed Web of Science ®Google Scholar
• Lyall RA, Donaldson N, Polkey MI, Leigh PN, Moxham J. Respiratory muscle strength and ventilatory failure in amyo- trophic lateral sclerosis. Brain 2000; 124: 2000–2013.
   Web of Science ®Google Scholar
• Fitting J-W, Paillex R, Hirt L, Aebischer P, Schluep M. Sniff nasal pressure: a sensitive respiratory test to assess progression of amyotrophic lateral sclerosis. Ann Neurol 1999; 46: 887–893.
   PubMed Web of Science ®Google Scholar
• Sivak ED, Shefner JM, Mitsumoto H, Taft JM. The use of non- invasive positive pressure ventilation (NIPPV) in ALS patients: a need for improved determination of intervention timing. Amyotroph Lateral Scler Other Motor Neuron Disord 2001; 2: 139–145.
   PubMed Web of Science ®Google Scholar
• Hart N, Polkey MI, Sharshar T et al. Limitations of sniff nasal pressure in patients with severe neuromuscular weakness. J Neurol Neurosurg Psychiatry 2003; 74: 1685–1687.
   Google Scholar
• Vaszar LTMD, Weinacker ABMD, Henig NRMD, Raffin TAMD. Ethical Issues in the long-term management of progressive degenerative neuromuscular diseases. Semin Respir Crit Care Med 2002; 23: 307–314.
   PubMed Web of Science ®Google Scholar
• Borasio GD, Voltz R. Discontinuation of mechanical ventilation in patients with amyotrophic lateral sclerosis. J Neurol 1998; 245: 717–722.
   PubMed Web of Science ®Google Scholar
• Veldink JH, Wokke JHJ, van der Wal G, Vianney de Jong JMB, van den Berg LH. Euthanasia and physician-Aassisted suicide among patients with amyotrophic lateral sclerosis in the Netherlands. N Engl J Med 2002; 346: 1638–1644.
   Google Scholar
• Ganzini L, Johnston WS, McFarland BH, Tolle SW, Lee MA. Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. N Engl J Med 1998; 339: 967–973.
   PubMed Web of Science ®Google Scholar
• Weijer C, Shapiro SH, Glass KC. Clinical equipoise and not the uncertainty principle is the moral underpinning of the randomized controlled trial. BMJ 2000; 321: 756–758.
   PubMed Web of Science ®Google Scholar