A scoping review exploring how adults self-describe and communicate about the listening difficulties they experience

References

• [NIDCD] National Institute on Deafness and Other Communication Disorders. 2021. Statistics and Epidemiology: Hearing, Ear Infections and Deafness. https://www.nidcd.nih.gov/health/statistics
   Google Scholar
• Bain, L., S. Scott, and A. G. Steinberg. 2004. “Socialization Experiences and Coping Strategies of Adults Raised Using Spoken Language.” Journal of Deaf Studies and Deaf Education 9 (1):120–128. https://doi.org/10.1093/deafed/enh001
   PubMedGoogle Scholar
• Barker, A. B., P. Leighton, and M. A. Ferguson. 2017. “Coping Together with Hearing Loss: A Qualitative Meta-Synthesis of the Psychosocial Experiences of People with Hearing Loss and Their Communication Partners.” International Journal of Audiology 56 (5):297–305. https://doi.org/10.1080/14992027.2017.1286695
   PubMed Web of Science ®Google Scholar
• Bradburn, N. M., L. J. Rips, and S. K. Shevell. 1987. “Answering Autobiographical Questions: The Impact of Memory and Inference on Surveys.” Science (New York, N.Y.) 236 (4798):157–161. https://doi.org/10.1126/science.3563494
   PubMed Web of Science ®Google Scholar
• Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2):77–101. https://doi.org/10.1191/1478088706qp063oa
   Google Scholar
• Chia, E. ‑M., J. J. Wang, E. Rochtchina, R. R. Cumming, P. Newall, and P. Mitchell. 2007. “Hearing Impairment and Health-Related Quality of Life: The Blue Mountains Hearing Study.” Ear and Hearing 28 (2):187–195. https://doi.org/10.1097/AUD.0b013e31803126b6
   PubMed Web of Science ®Google Scholar
• Chisolm, T. H., C. E. Johnson, J. L. Danhauer, L. J. P. Portz, H. B. Abrams, S. Lesner, P. A. McCarthy, and C. W. Newman. 2007. “A Systematic Review of Health-Related Quality of Life and Hearing Aids: Final Report of the American Academy of Audiology Task Force On the Health-Related Quality of Life Benefits of Amplification in Adults.” Journal of the American Academy of Audiology 18 (2):151–183. https://doi.org/10.3766/jaaa.18.2.7
   PubMed Web of Science ®Google Scholar
• Covidence systematic review software [Computer software]. 2021. Veritas Health Innovation. Melbourne, Australia. www.covidence.org
   Google Scholar
• Dixon, P. R., D. Feeny, G. Tomlinson, S. Cushing, J. M. Chen, and M. D. Krahn. 2020. “Health-Related Quality of Life Changes Associated with Hearing Loss.” JAMA Otolaryngology- Head & Neck Surgery 146 (7):630–638. https://doi.org/10.1001/jamaoto.2020.0674
   PubMed Web of Science ®Google Scholar
• Ekberg, K., C. Grenness, and L. Hickson. 2014. “Addressing Patients’ Psychosocial Concerns Regarding Hearing Aids Within Audiology Appointments for Older Adults.” American Journal of Audiology 23 (3):337–350. https://doi.org/10.1044/2014_AJA-14-0011
   PubMed Web of Science ®Google Scholar
• Entwistle, V., M. Prior, Z. C. Skea, and J. J. Francis. 2008. “Involvement in Treatment Decision-Making: Its Meaning to People with Diabetes and Implications for Conceptualisation.” Social Science & Medicine (1982) 66 (2):362–375. https://doi.org/10.1016/j.socscimed.2007.09.001
   PubMed Web of Science ®Google Scholar
• Gallagher, N. E., and J. V. Woodside. 2018. “Factors Affecting Hearing Aid Adoption and Use: A Qualitative Study.” Journal of the American Academy of Audiology 29 (4):300–312. https://doi.org/10.3766/jaaa.16148
   PubMed Web of Science ®Google Scholar
• Galvez, G., M. B. Turbin, E. J. Thielman, J. A. Istvan, J. A. Andrews, and J. A. Henry. 2012. “Feasibility of Ecological Momentary Assessment of Hearing Difficulties Encountered by Hearing Aid Users.” Ear and Hearing 33 (4):497–507. https://doi.org/10.1097/AUD.0b013e3182498c41
   PubMed Web of Science ®Google Scholar
• Galvin, K., B. H. B. Timmer, D. Tomlin, and Z. Cleaver. 2022. “Designing a Hearing Health Care Smartphone App With Ecological Momentary Assessment: A Qualitative Study of Audiologists’ Perspectives.” American Journal of Audiology 31 (4):1247–1259. https://doi.org/10.1044/2022_AJA-22-00054
   PubMed Web of Science ®Google Scholar
• Galvin, K., D. Tomlin, B. H. Timmer, Z. McNeice, N. Mount, K. Gray, and C. Short. 2023. “Designing a Mobile App to Assess Real-World Listening Difficulties: A Qualitative Study of Consumer Perspectives.” [Manuscript submitted for publication]. https://preprints.jmir.org/preprint/47578
   Google Scholar
• Glass, L. E., and H. H. Elliot. 1992. “The Professionals Told Me What it Was, But That’s Not Enough.” SHHH Journal 13 (1):26–28.
   Google Scholar
• Greasley, A., H. Crook, and R. Fulford. 2020. “Music Listening and Hearing Aids: Perspectives from Audiologists and their Patients.” International Journal of Audiology 59 (9):694–706. https://doi.org/10.1080/14992027.2020.1762126
   PubMed Web of Science ®Google Scholar
• Grenness, C., L. Hickson, A. Laplante-Lévesque, C. Meyer, and B. Davidson. 2015. “Communication Patterns in Audiologic Rehabilitation History-Taking.” Ear and Hearing 36 (2):191–204. https://doi.org/10.1097/AUD.0000000000000100
   PubMed Web of Science ®Google Scholar
• Grenness, C., L. Hickson, A. Laplante-Lévesque, and B. Davidson. 2014a. “Patient-Centred Audiological Rehabilitation: Perspectives of Older Adults Who Own Hearing Aids.” International Journal of Audiology 53 Suppl 1 (1):S68–S75. https://doi.org/10.3109/14992027.2013.866280
   PubMedGoogle Scholar
• Grenness, C., L. Hickson, A. Laplante-Lévesque, and B. Davidson. 2014b. “Patient-Centred Care: A Review for Rehabilitative Audiologists.” International Journal of Audiology 53 Suppl 1Suppl (1):S60–S67. https://doi.org/10.3109/14992027.2013.847286
   PubMedGoogle Scholar
• Hallberg, L. R., and M. L. Barrenäs. 1995. “Coping With Noise-Induced Hearing Loss: Experiences from the Perspective of Middle-Aged Male Victims.” British Journal of Audiology 29 (4):219–230. https://doi.org/10.3109/03005369509086600
   PubMed Web of Science ®Google Scholar
• Hartley, D., E. Rochtchina, P. Newall, M. Golding, and P. Mitchell. 2010. “Use of Hearing Aids and Assistive Listening Devices in an Older Australian Population.” Journal of the American Academy of Audiology 21 (10):642–653. https://doi.org/10.3766/jaaa.21.10.4
   PubMed Web of Science ®Google Scholar
• Heffernan, E., N. S. Coulson, H. Henshaw, J. G. Barry, and M. A. Ferguson. 2016. “Understanding the Psychosocial Experiences of Adults with Mild-Moderate Hearing Loss: An Application of Leventhal’s Self-Regulatory Model.” International Journal of Audiology 55 Suppl 3 (Suppl 3):S3–S12. https://doi.org/10.3109/14992027.2015.1117663
   PubMedGoogle Scholar
• Heffernan, E., D. W. Maidment, J. G. Barry, and M. A. Ferguson. 2019. “Refinement and Validation of the Social Participation Restrictions Questionnaire: An Application of Rasch Analysis and Traditional Psychometric Analysis Techniques.” Ear and Hearing 40 (2):328–339. https://doi.org/10.1097/AUD.0000000000000618
   PubMed Web of Science ®Google Scholar
• Holman, J. A., A. Drummond, S. E. Hughes, and G. Naylor. 2019. “Hearing Impairment and Daily-Life Fatigue: A Qualitative Study.” International Journal of Audiology 58 (7):408–416. https://doi.org/10.1080/14992027.2019.1597284
   PubMed Web of Science ®Google Scholar
• Iezzoni, L. I., B. L. O’Day, M. Killeen, and H. Harker. 2004. “Communicating About Health Care: Observations from Persons Who Are Deaf or Hard of Hearing.” Annals of Internal Medicine 140 (5):356–362. https://doi.org/10.7326/0003-4819-140-5-200403020-00011
   PubMed Web of Science ®Google Scholar
• John, A. B., B. M. Kreisman, and S. Pallett. 2012. “Validity of Hearing Impairment Calculation Methods for Prediction of Self-Reported Hearing Handicap.” Noise & Health 14 (56):13–20. https://doi.org/10.4103/1463-1741.93321
   PubMed Web of Science ®Google Scholar
• Laplante-Lévesque, A., L. Dons Jensen, P. Dawes, and C. Nielsen. 2013. “Optimal Hearing Aid Use: Focus Groups with Hearing Aid Clients and Audiologists.” Ear and Hearing 34 (2):193–202. https://doi.org/10.1097/AUD.0b013e31826a8ecd
   PubMed Web of Science ®Google Scholar
• Laplante-Lévesque, A., L. Hickson, and L. Worrall. 2010. “A Qualitative Study of Shared Decision Making in Rehabilitative Audiology.” Journal of the Academy of Rehabilitative Audiology 43:27–43.
   Google Scholar
• Lim, C., A. B. L. Berry, T. Hirsch, A. L. Hartzler, E. H. Wagner, E. Ludman, and J. D. Ralston. 2016. “It just seems outside my health”: How Patients with Chronic Conditions Perceive Communication Boundaries with Providers.” DIS ’16: Proceedings of the 2016 ACM Conference on Designing Interactive Systems, Brisbane, Australia, 4-8 June, 2016, 1172–1184. https://doi.org/10.1145/2901790.2901866
   Google Scholar
• Lucas, L., R. Katiri, and P. T. Kitterick. 2018. “The Psychological and Social Consequences of Single-Sided Deafness in Adulthood.” International Journal of Audiology 57 (1):21–30. https://doi.org/10.1080/14992027.2017.1398420
   PubMed Web of Science ®Google Scholar
• Manchaiah, V., M. L. Bellon-Harn, A. L. Dockens, J. H. Azios, and W. E. Harn. 2019. “Communication Between Audiologist, Patient, and Patient’s Family Members During Initial Audiology Consultation and Rehabilitation Planning Sessions: A Descriptive Review.” Journal of the American Academy of Audiology 30 (9):810–819. https://doi.org/10.3766/jaaa.18032
   PubMed Web of Science ®Google Scholar
• Meyer, C., C. Barr, A. Khan, and L. Hickson. 2017. “Audiologist-Patient Communication Profiles in Hearing Rehabilitation Appointments.” Patient Education and Counseling 100 (8):1490–1498. https://doi.org/10.1016/j.pec.2017.03.022
   PubMed Web of Science ®Google Scholar
• Morata, T. C., C. L. Themann, R. F. Randolph, B. L. Verbsky, D. C. Byrne, and E. R. Reeves. 2005. “Working in Noise with a Hearing Loss: Perceptions from Workers, Supervisors, and Hearing Conservation Program Managers.” Ear and Hearing 26 (6):529–545. https://doi.org/10.1097/01.aud.0000188148.97046.b8
   PubMed Web of Science ®Google Scholar
• Newman, C. W., G. A. Hug, G. P. Jacobson, and S. A. Sandridge. 1997. “Perceived Hearing Handicap of Patients with Unilateral or Mild Hearing Loss.” The Annals of Otology, Rhinology, and Laryngology 106 (3):210–214. https://doi.org/10.1177/000348949710600305
   PubMed Web of Science ®Google Scholar
• Parmar, B., K. Mehta, D. Vickers, and J. K. Bizley. 2022. “Experienced Hearing Aid Users’ Perspectives of Assessment and Communication Within Audiology: A Qualitative Study Using Digital Methods.” International Journal of Audiology 61 (11):956–964. https://doi.org/10.1101/2021.09.08.21263074
   PubMed Web of Science ®Google Scholar
• Peters, M. D. J., C. Marnie, A. C. Tricco, D. Pollock, Z. Munn, L. Alexander, P. McInerney, C. M. Godfrey, and H. Khalil. 2020. “Updated Methodological Guidance for the Conduct of Scoping Reviews.” JBI Evidence Synthesis 18 (10):2119–2126. https://doi.org/10.11124/JBIES-20-00167
   PubMedGoogle Scholar
• Pike, A., S. Moodie, K. Parsons, A. Griffin, J. Smith-Young, T. ‑L. Young, L. Mills, M. Barrett, L. Rowe, M. Parsons, et al. 2022. “‘Something is Just Not Right with My Hearing’: Early Experiences of Adults Living with Hearing Loss.” International Journal of Audiology 61 (9):787–797. https://doi.org/10.1080/14992027.2021.1983656
   PubMed Web of Science ®Google Scholar
• Poost-Foroosh, L., M. B. Jennings, L. Shaw, C. N. Meston, and M. F. Cheesman. 2011. “Factors in Client-Clinician Interaction that Influence Hearing Aid Adoption.” Trends in Amplification 15 (3):127–139. https://doi.org/10.1177/1084713811430217l
   PubMedGoogle Scholar
• Pryce, H. 2003. “Emotional Responses to King‐Kopetzky Syndrome: A Qualitative Study.” Audiological Medicine 1 (4):247–254. https://doi.org/10.1080/16513860310022381
   Google Scholar
• Shiffman, S., and A. A. Stone. 1998. “Introduction to the Special Section: Ecological Momentary Assessment in Health Psychology.” Health Psychology 17 (1):3–5. https://doi.org/10.1037/h0092706
   Web of Science ®Google Scholar
• Skøt, L., T. Jeppesen, A. I. Mellentin, and A. Elklit. 2017. “Accessibility of Medical and Psychosocial Services Following Disasters and Other Traumatic Events: Experiences of Deaf and Hard-of-Hearing Individuals in Denmark.” Disability and Rehabilitation 39 (24):2468–2476. https://doi.org/10.1080/09638288.2016.1236154
   PubMed Web of Science ®Google Scholar
• Thomas, J., and A. Harden. 2008. “Methods for the Thematic Synthesis of Qualitative Research in Systematic Reviews.” BMC Medical Research Methodology 8 (45):45. https://doi.org/10.1186/1471-2288-8-45
   PubMedGoogle Scholar
• Timmer, B. H. B., L. Hickson, and S. Launer. 2017. “Ecological Momentary Assessment: Feasibility, Construct Validity, and Future Applications.” American Journal of Audiology 26 (3S):436–442. https://doi.org/10.1044/2017_AJA-16-0126
   PubMedGoogle Scholar
• Tye-Murray, N., J. L. Spry, and E. Mauzé. 2009. “Professionals with Hearing Loss: Maintaining that Competitive Edge.” Ear and Hearing 30 (4):475–484. https://doi.org/10.1097/AUD.0b013e3181a61f16
   PubMed Web of Science ®Google Scholar
• Vaisberg, J. M., A. T. Martindale, P. Folkeard, and C. Benedict. 2019. “A Qualitative Study of the Effects of Hearing Loss and Hearing Aid Use on Music Perception in Performing Musicians.” Journal of the American Academy of Audiology 30 (10):856–870. https://doi.org/10.3766/jaaa.17019
   PubMed Web of Science ®Google Scholar
• Vas, V., M. A. Akeroyd, and D. A. Hall. 2017. “A Data-Driven Synthesis of Research Evidence for Domains of Hearing Loss, as Reported by Adults with Hearing Loss and their Communication Partners.” Trends in Hearing 21:2331216517734088. https://doi.org/10.1177/2331216517734088
   Web of Science ®Google Scholar
• Weinstein, B. E. 1996. “Treatment Efficacy: Hearing Aids in the Management of Hearing Loss in Adults.” Journal of Speech, Language, and Hearing Research 39 (5):S37–S45. https://doi.org/10.1044/jshr.3905.s37
   Web of Science ®Google Scholar