The Impact of Symptom Severity on Health-Related Quality of Life in People with Narcolepsy Type 1

References

• Almeneessier, A. S., Alballa, N. S., Alsalman, B. H., Aleissi, S., Olaish, A. H., & BaHammam, A. S. (2019). A 10-year longitudinal observational study of cataplexy in a cohort of narcolepsy type 1 patients. Nature and Science of Sleep, 11, 231–239. https://doi.org/10.2147/nss.S229105
   PubMed Web of Science ®Google Scholar
• Bogan, R. K., Black, J., Swick, T., Mamelak, M., Kovacevic-Ristanovic, R., Villa, K. F., Mori, F., & Montplaisir, J. (2017). Correlation of changes in patient-reported quality of life with physician-rated global impression of change in patients with narcolepsy participating in a clinical trial of sodium oxybate: A post hoc analysis. Neurology and Therapy, 6(2), 237–245. https://doi.org/10.1007/s40120-017-0076-6
   PubMed Web of Science ®Google Scholar
• Daniels, E., King, M. A., Smith, I. E., & Shneerson, J. M. (2001). Health-related quality of life in narcolepsy. Journal of Sleep Research, 10(1), 75–81. https://doi.org/10.1046/j.1365-2869.2001.00234.x
   PubMed Web of Science ®Google Scholar
• Dauvilliers, Y., Beziat, S., Pesenti, C., Lopez, R., Barateau, L., Carlander, B., Luca, G., Tafti, M., Morin, C. M., & Billiard, M. (2017). Measurement of narcolepsy symptoms: The narcolepsy severity scale. Neurology, 88(14), 1358 doi:10.1212/WNL.0000000000003787.
   PubMed Web of Science ®Google Scholar
• Dauvilliers, Y., Paquereau, J., Bastuji, H., Drouot, X., Weil, J. S., & Viot-Blanc, V. (2009). Psychological health in central hypersomnias: The French Harmony study. Journal of Neurology, Neurosurgery & Psychiatry, 80(6), 636–641. https://doi.org/10.1136/jnnp.2008.161588
   PubMed Web of Science ®Google Scholar
• David, A., Constantino, F., Santos, J., & Paiva, T. (2012). Health-related quality of life in Portuguese patients with narcolepsy. Sleep Medicine, 13(3), 0–277. https://doi.org/10.1016/j.sleep.2011.06.021
   Web of Science ®Google Scholar
• Dodel, R., Peter, H., Spottke, A., Noelker, C., Althaus, A., Siebert, U., Walbert, T., Kesper, K., Becker, H. F., & Mayer, G. (2007). Health-related quality of life in patients with narcolepsy. Sleep Medicine, 8(7–8), 733–741. https://doi.org/10.1016/j.sleep.2006.10.010
   PubMed Web of Science ®Google Scholar
• Ebrahim, S. (1995). Clinical and public health perspectives and applications of health-related quality of life measurement. Social Science & Medicine, 41(10), 1383–1394. https://doi.org/10.1016/0277-9536(95)00116-o
   PubMed Web of Science ®Google Scholar
• Ervik, S., Abdelnoor, M., Heier, M. S., Ramberg, M., & Strand, G. (2006). Health-related quality of life in narcolepsy. Acta Neurologica Scandinavica, 114(3), 198–204. https://doi.org/10.1111/j.1600-0404.2006.00594.x
   PubMed Web of Science ®Google Scholar
• Flores, N. M., Villa, K. F., Black, J., Chervin, R. D., & Witt, E. A. (2016). The humanistic and economic burden of narcolepsy. Journal of Clinical Sleep Medicine, 12(3), 401–407. https://doi.org/10.5664/jcsm.5594
   PubMed Web of Science ®Google Scholar
• Golden, E. C., & Lipford, M. C. (2018). Narcolepsy: Diagnosis and management. Cleveland Clinic Journal of Medicine, 85(12), 959–969. https://doi.org/10.3949/ccjm.85a.17086
   PubMed Web of Science ®Google Scholar
• Kornum, B. R., Knudsen, S., Ollila, H. M., Pizza, F., & Overeem, S. (2017). Narcolepsy. Nature Reviews Disease Primers, 3(1), 16100. https://doi.org/10.1038/nrdp.2016.100
   PubMed Web of Science ®Google Scholar
• Liu, G. G., Wu, H., Li, M., Gao, C., & Luo, N. (2014). Chinese time trade-off values for EQ-5D health states. Value in Health: The Journal of the International Society for Pharmacoeconomics and Outcomes Research, 17(5), 597–604. https://doi.org/10.1016/j.jval.2014.05.007
   PubMed Web of Science ®Google Scholar
• Morse, A. M., & Sanjeev, K. (2018). Narcolepsy and psychiatric disorders: Comorbidities or shared pathophysiology? Medical Sciences (Basel), 6(1) : 16. https://doi.org/10.3390/medsci6010016
   PubMedGoogle Scholar
• Ong, J. C., Fox, R. S., Brower, R. F., Mazurek, S., & Moore, C. (2020). How does narcolepsy impact health-related quality of life? A mixed-methods study. Behavioral Sleep Medicine, 14(2) , 1–14. https://doi.org/10.1080/15402002.2020.1715411
   Google Scholar
• Ouyang, H., Han, F., Zheng, Q., & Zhang, J. (2019). Chinese version of narcolepsy severity scale: A validation study. BMC Neurology, 19(1), 334. https://doi.org/10.1186/s12883-019-1570-5
   PubMed Web of Science ®Google Scholar
• Ozaki, A., Inoue, Y., Hayashida, K., Nakajima, T., Honda, M., Usui, A., Komada, Y., Kobayashi, M., & Takahashi, K. (2012). Quality of life in patients with narcolepsy with cataplexy, narcolepsy without cataplexy, and idiopathic hypersomnia without long sleep time: Comparison between patients on psychostimulants, drug-naïve patients and the general Japanese population. Sleep Medicine, 13(2), 200–206. https://doi.org/10.1016/j.sleep.2011.07.014
   PubMed Web of Science ®Google Scholar
• Pan, C. W., Cong, X., Zhou, H. J., Jing, L., & Pei, W. (2017). Self-reported sleep quality, duration, and health-related quality of life in older Chinese: Evidence from a rural town in Suzhou, China. Journal of Clinical Sleep Medicine Jcsm Official Publication of the American Academy of Sleep Medicine, 13(8), 967. https://doi.org/10.5664/jcsm.6696
   PubMed Web of Science ®Google Scholar
• Pizza, F., Franceschini, C., Peltola, H., Vandi, S., Finotti, E., Ingravallo, F., Nobili, L., Bruni, O., Lin, L., Edwards, M. J., Partinen, M., Dauvilliers, Y., Mignot, E., Bhatia, K. P., & Plazzi, G. (2013). Clinical and polysomnographic course of childhood narcolepsy with cataplexy. Brain, 136(Pt 12), 3787–3795. https://doi.org/10.1093/brain/awt277
   PubMedGoogle Scholar
• Plazzi, G., Serra, L., & Ferri, R. (2008). Nocturnal aspects of narcolepsy with cataplexy. Sleep Medicine Reviews, 12(2), 109–128. https://doi.org/10.1016/j.smrv.2007.08.010
   PubMed Web of Science ®Google Scholar
• Poul, J., Ibsen, R., Knudsen, S., & Jakob, K. (2013). Comorbidity and mortality of narcolepsy: A controlled retro- and prospective national study. Sleep, 36(6), 835–840. https://doi.org/10.5665/sleep.2706
   PubMed Web of Science ®Google Scholar
• Rabin, R., & de Charro, F. (2001). EQ-5D: A measure of health status from the EuroQol Group. Annals of Medicine, 33(5), 337–343. https://doi.org/10.3109/07853890109002087
   PubMed Web of Science ®Google Scholar
• Roth, T., Dauvilliers, Y., Mignot, E., Montplaisir, J., Paul, J., Swick, T., & Zee, P. (2013). Disrupted nighttime sleep in narcolepsy. Journal of Clinical Sleep Medicine, 9(9), 955–965. https://doi.org/10.5664/jcsm.3004
   PubMed Web of Science ®Google Scholar
• Sateia, M. J. (2014). International classification of sleep disorders-third edition: Highlights and modifications. Chest, 146(5), 1387–1394. https://doi.org/10.1378/chest.14-0970
   PubMed Web of Science ®Google Scholar
• Scammell, T. E. (2015). Narcolepsy. New England Journal of Medicine, 373(27), 2654–2662. https://doi.org/10.1056/NEJMra1500587
   PubMed Web of Science ®Google Scholar
• Schneider, L., & Mignot, E. (2017). Diagnosis and management of narcolepsy. Seminars in Neurology, 37(4), 446–460. https://doi.org/10.1055/s-0037-1605554
   PubMed Web of Science ®Google Scholar
• Tadrous, R., O’Rourke, D., Mockler, D., & Broderick, J. (2021). Health-related quality of life in narcolepsy: A systematic review and meta-analysis. Journal of Sleep Research, 30(6), e13383. https://doi.org/10.1111/jsr.13383
   PubMed Web of Science ®Google Scholar
• Vignatelli, L., D’Alessandro, R., Mosconi, P., Ferini-Strambi, L., Guidolin, L., De Vincentiis, A., & Plazzi, G. (2004). Health-related quality of life in Italian patients with narcolepsy: The SF-36 health survey. Sleep Medicine, 5(5), 467–475. https://doi.org/10.1016/j.sleep.2004.04.003
   PubMed Web of Science ®Google Scholar
• Vignatelli, L., Plazzi, G., Peschechera, F., Delaj, L., & D’Alessandro, R. (2011). A 5-year prospective cohort study on health-related quality of life in patients with narcolepsy. Sleep Medicine, 12(1), 0–23 doi:10.1016/j.sleep.2010.07.008.
   Web of Science ®Google Scholar
• Wang, H., Kindig, D. A., & Mullahy, J. (2005). Variation in Chinese population health related quality of life: Results from a EuroQol study in Beijing, China. Quality of Life Research, 14(1), 119–132. https://doi.org/10.1007/s11136-004-0612-6
   PubMed Web of Science ®Google Scholar
• Zhang, J., & Han, F. (2017). Sleepiness in narcolepsy. Sleep Medicine Clinics, 12(3), 323–330. https://doi.org/10.1016/j.jsmc.2017.03.008
   PubMed Web of Science ®Google Scholar
• Zhou, T., Guan, H., Yao, J., Xiong, X., & Ma, A. (2018). The quality of life in Chinese population with chronic non-communicable diseases according to EQ-5D-3L: A systematic review. Quality of Life Research, 27(11), 2799–2814. https://doi.org/10.1007/s11136-018-1928-y
   PubMed Web of Science ®Google Scholar