Health Care Decision Making for Unbefriended, Incapacitated Adults: A Value-Committed Policy Transfer Analysis

References

• Allan, J., Pease, B., & Briskman, L. (Eds.). (2003). Critical social work: An introduction to theories and practices. NSW, Australia: Allen and Unwin.
   Google Scholar
• Allan, J., Briskman, L., & Pease, B. (Eds.). (2009). Critical social work: Theories and practices for a socially just world (2nd ed.). NSW, Australia: Crows Nest.
   Google Scholar
• American Medical Directors Association. (2003). White paper on surrogate decision-making and advance care planning in long-term care. Columbia, MD: American Medical Directors Association. Retrieved from http://www.amda.com/governance/whitepapers/surrogate/decisionmaking_hierarchy.cfm
   Google Scholar
• Association of Religious Data Archive (ARDA). (2010). United States religious traditions. Retrieved from http://www.thearda.com/rcms2010/r/u/rcms2010_99_US_name_2010.asp
   Google Scholar
• Authors. (2016). Pioneering in health care proxy decision making for unbefriended, incapacitated patients: A progressive case study. Manuscript in preparation.
   Google Scholar
• Bandy, R. J., Helft, P. R., Bandy, R. W., & Torke, A. M. (2010). Medical decision-making during the guardianship process for incapacitated, hospitalized adults: A descriptive cohort study. Journal of General Internal Medicine, 25(10), 1003–1008. doi:10.1007/s11606-010-1351-8
   PubMed Web of Science ®Google Scholar
• Bandy, R., Sachs, G. A., Montz, K., Inger, L., Bandy, R. W., & Torke, A. M. (2014). Wishard volunteer advocates program: An intervention for at risk, incapacitated, unbefriended adults. Journal of the American Geriatrics Society, 62(11), 2171–2179. doi:10.1111/jgs.13096
   PubMed Web of Science ®Google Scholar
• Browning, M., Bigby, C., & Douglas, J. (2014). Supported decision making: Understanding how its conceptual link to legal capacity is influencing the development of practice. Research and Practice in Intellectual and Developmental Disabilities, 1(1), 34–45. doi:10.1080/23297018.2014.902726
   Google Scholar
• Chen, J. J., Kwon, A., Stevens, Y., & Finn, C. T. (2015). Barriers beyond clinical control affecting timely hospital discharge for a patient requiring guardianship. Psychosomatics, 56(2), 206–209. doi:10.1016/j.psym.2014.07.006
   PubMed Web of Science ®Google Scholar
• Cohen, A. B., Wright, M. S., Cooney, L., & Fried, T. (2015). Guardianship and end-of-life decision making. JAMA Internal Medicine, 175(10), 1687–1691. doi:10.1001/jamainternmed.2015.3956
   PubMed Web of Science ®Google Scholar
• The Colorado Collaborative for Unrepresented Patients (2014). Addressing gaps in healthcare decision making for unrepresented adults: A proposal for the inclusion of a public healthcare guardian in the office of public guardianship. Retrieved from http://www.ucdenver.edu/academics/colleges/medicalschool/centers/BioethicsHumanities/academicactivities/Documents/CCUPWhitePaperJuly2014B.pdf
   Google Scholar
• Crampton, L. (2015, June 11). Abbott signs “Pastor Protection Act” into law. The Texas Tribune. Retrieved from https://www.texastribune.org/2015/06/11/gov-abbott-signs-pastor-protection-act/
   Google Scholar
• Ellor, J. W., Harris, H. W., Myers, D. R., & Russell, I. (2009). Guardianship of frail elders: Student-supported process for legislative change. Educational Gerontology, 35(7), 596–609. doi:10.1080/03601270802664165
   Web of Science ®Google Scholar
• Frank, C. (2005). Surrogate decision-making for “friendless” patients. Health Law Forum, 34(4), 71–76.
   Google Scholar
• Gillick, M. R. (1994). Medical decision-making for the unbefriended nursing home resident. Journal of Ethics, Law, and Aging, 1(2), 87–92.
   Google Scholar
• Ginsberg, L. H., & Miller-Cribbs, J. (2005). Understanding social problems, policies, and programs (4th ed.). Columbia, SC: University of South Carolina Press.
   Google Scholar
• Glen, K. B. (2015). Supported decision-making and the human right of legal capacity. Inclusion, 3(1), 2–16. doi:10.1352/2326-6988-3.1.2
   Google Scholar
• HHSC Guardianship Advisory Board. (2004). HHSC guardianship advisory board annual report to the governor and the 78th legislature on guardianship issues in Texas. Austin, Texas: Health and Human Services Commission.
   Google Scholar
• Hurme, S. B., & Wood, E. (2001). Guardian accountability then and now: Tracing tenets for an active court role. Stetson Law Review, 31, 867.
   Google Scholar
• Ife, J. (2012). Human rights and social work: Towards rights-based practice. New York, NY: Cambridge University Press.
   Google Scholar
• Karp, N., & Wood, E. (2003, July). Incapacitated and alone: Health care decision-making for unbefriended older people. American Bar Association Commission on Law and Aging, 1–62. Retrieved from http://www.americanbar.org/content/dam/aba/administrative/law_aging/2003_Unbefriended_Elderly_Health_Care_Descision-Making7-11-03.authcheckdam.pdf
   Google Scholar
• Kolan, K. (2010). Surrogate healthcare decisions. The Washington State Developmental Disabilities Council, The University Center for Excellence at the University of Washington, and Disability Rights Washington, Retrieved from http://www.ddc.wa.gov/Publications/110110_Summary_of_Consent_Issue_with_Appendices.pdf.
   Google Scholar
• Koppelman, E. R. (2002). Dementia and dignity: Towards a new method of surrogate decision making. The Journal of Medicine and Philosophy, 27(1), 65–85. doi:10.1076/jmep.27.1.65.2971
   PubMed Web of Science ®Google Scholar
• Kushel, M. B., & Miaskowski, C. (2006). End-of-life care for homeless patients: “She says she is there to help me in any situation.” JAMA, 296(24), 2959–2966. doi:10.1001/jama.296.24.2959
   PubMed Web of Science ®Google Scholar
• Larson, E. J., & Eaton, T. A. (1997). Limits of advance directives: A history and assessment of the patient self-determination act. Wake Forest Law Review, 32(2), 249–293.
   PubMedGoogle Scholar
• Lightfoot, E. (2003). The policy transfer model: A tool to help social workers engage in successful policy making. The Social Policy Journal, 2(1), 21–34. doi:10.1300/J185v02n01_03
   Google Scholar
• McKenzie, B., & Wharf, B. (2009). Policy-making and policy-makers. In B. McKenzie & B. Wharf (Eds.), Connecting policy to practice in the human services (3rd ed.) (pp. 1–29). Toronto, Canada: Oxford University Press.
   Google Scholar
• Meisel, A., & Jennings, B. (2005). Ethics, end-of-life care, and the law: Overview. In K. J. Doka, B. Jennings, & C. A. Corr (Eds.), Living with grief: Ethical dilemmas at the end of life (pp. 63–79). Washington, DC: Hospice Foundation of America.
   Google Scholar
• Meschede, T., Kahan, M., Hayes, M., & Friedman, D. (2003). Characteristics of homeless individuals accessing Massachusetts emergency shelters, 1999–2001. Boston, MA: Boston Center for Social Policy, University of Massachusetts.
   Google Scholar
• National Association of Social Workers. (2008). Code of ethics of the National Association of Social Workers. Retrieved from https://www.socialworkers.org/pubs/code/code.asp
   Google Scholar
• National Coalition of the Homeless. (2009). How many people experience homelessness? Retrieved from http://www.nationalhomeless.org/factsheets/How_Many.html
   Google Scholar
• Pope, T. M. (2012). Legal fundamentals of surrogate decision making. CHEST Journal, 141(4), 1074–1081. doi:10.1378/chest.11-2336
   PubMed Web of Science ®Google Scholar
• Pope, T. M. (2013). Making medical decisions for patients without surrogates. New England Journal of Medicine, 369(21), 1976–1978. doi:10.1056/NEJMp1308197
   PubMed Web of Science ®Google Scholar
• Pope, T. M. (2015). Legal briefing: Adult orphans and the unbefriended: Making medical decisions for unrepresented patients without surrogates. The Journal of Clinical Ethics, 26(2), 180–188.
   PubMedGoogle Scholar
• Pope, T. M., & Sellers, T. (2011a). Legal briefing: The unbefriended: Making healthcare decisions for patients without surrogates (Part 1). The Journal of Clinical Ethics, 23(1), 84–96.
   Google Scholar
• Pope, T. M., & Sellers, T. (2011b). Legal briefing: The unbefriended: Making healthcare decisions for patients without surrogates (Part 2). The Journal of Clinical Ethics, 23(2), 177–192.
   Google Scholar
• Popple, P. R., & Leighninger, L. (2004). The policy-based profession: An introduction to social welfare policy analysis for social workers (3rd ed.). Boston, MA: Allyn & Bacon.
   Google Scholar
• Quinn, M. J. (2005). Guardianship of adults: Achieving justice, autonomy, and safety. New York, NY: Springer.
   Google Scholar
• Rapoport, J., Teres, D., Zhao, Y., & Lemeshow, S. (2003). Length of stay data as a guide to hospital economic performance for ICU patients. Medical Care, 41(3), 386–397. doi:10.1097/01.MLR.0000053021.93198.96
   PubMed Web of Science ®Google Scholar
• Segal, E. (2009). Social welfare policy and social programs: A values perspective (2nd ed.). Belmont, CA: Cengage Learning.
   Google Scholar
• Smith, G., & Kohl, H. (2007). Guardianship for the elderly: Protecting the rights and welfare of seniors with reduced capacity. Washington, DC: United States Special Committee on Aging. Retrieved from http://aging.senate.gov/minority
   Google Scholar
• Social Work Advantage. (n.d.). Social work advantage health proxy services. Retrieved from http://www.socialworkadvantage.com/index.html
   Google Scholar
• Teaster, P. B. (2002). The wards of public guardians: Voices of the unbefriended. Family Relations, 51(4), 344–350. doi:10.1111/fare.2002.51.issue-4
   Web of Science ®Google Scholar
• Teaster, P. B., Mendiondo, M. S., Schmidt, W. C., Marcum, J., & Wangmo, T. (2009). The Florida public guardian programs: An evaluation of program status and outcomes. Retrieved from http://www.elderaffairs.state.fl.us/doea/Evaluation/Statewide%20Public%20Guardianship%20Annual%20Report,%202009.pdf
   Google Scholar
• Teaster, P. B., Wood, E. F., Lawrence, S. A., & Schmidt, W. C. (2007). Wards of the state: A national study of public guardianship. Stetson Law Review, 37(1), 193–241.
   Google Scholar
• Texas Rules of Evidence. (2015, April 1) Article V. Privileges. Rule 505. Privilege for communications to a clergy member. Retrieved from http://www.txcourts.gov/media/921665/tx-rules-of-evidence.pdf
   Google Scholar
• U. S. Religious Census (2010). State membership report: Texas Retrieved from http://www.thearda.com/rcms2010/r/s/48/rcms2010_48_state_name_2010.asp
   Google Scholar
• VandeCreek, L., & Burton, L. (Eds.). (2001). Professional chaplaincy: Its role and importance in healthcare. Journal of Pastoral Care, 55(1), 81–98.
   PubMedGoogle Scholar
• Wall, B. M. (2010). Conflict and compromise: Catholic and public hospital partnerships. Nursing History Review, 18, 100–117. doi:10.1891/1062-8061.18.100
   PubMed Web of Science ®Google Scholar
• Weiss, B. D., Berman, E. A., Howe, C. L., & Fleming, R. B. (2012). Medical decision-making for older adults without family. Journal of the American Geriatrics Society, 60(11), 2144–2150.
   PubMed Web of Science ®Google Scholar
• White, D. B., Curtis, J., Lo, B., & Luce, J. M. (2006). Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers. Critical Care Medicine, 34, 2053–2059. doi:10.1097/01.CCM.0000227654.38708.C1
   PubMed Web of Science ®Google Scholar
• White, D. B., Jonsen, A., & Lo, B. (2012). Ethical challenge: When clinicians act as surrogates for unrepresented patients. American Journal of Critical Care, 21(3), 202–207. doi:10.4037/AJCC2012514
   PubMed Web of Science ®Google Scholar
• Will, J. F. (2011). A brief historical and theoretical perspective on patient autonomy and medical decision making: Part I: The beneficence model. Chest Journal, 139(3), 669–673. doi:10.1378/chest.10-2532
   PubMed Web of Science ®Google Scholar