The awareness of having a family history of hearing problems and the impact on those with hearing difficulties themselves: A questionnaire

References

• Guttmacher AE, Collins FS, Carmona RH. The family history – more important than ever. New Engl J Med. 2004; 35: 2333–6
   Google Scholar
• Yoon PW, Scheuner MT, Khoury MJ. Research priorities for evaluating history in the prevention of common chronic diseases. Am J Prev Med. 2003; 24: 128–35
   PubMed Web of Science ®Google Scholar
• Audran-McGovern J, Hughes C, Patterson F. Effecting behaviour change: awareness of family history. Am J Prev Med. 2003; 24: 183–9
   PubMedGoogle Scholar
• Schwartz MD, Taylor L, Willard KS. Distress, personality and mammography utilization among women with a family history of breast cancer. Health Psychol. 1999; 18: 327–32
   PubMed Web of Science ®Google Scholar
• Carlsson AH, Bjorvatn C, Engebretsen LF, Berglund G, Natvig GK. Psychosocial factors associated with quality of life among individuals attending genetic counselling for hereditary cancer. J Genet Couns. 2004; 13: 425–45
   PubMedGoogle Scholar
• Kim Y, Duhamel KN, Valdimarsdottir HB, Bovbjerg DH. Psychological distress among healthy women with family histories of breast cancer: effects of recent life events. Psychooncology 2005; 14: 555–63
   PubMedGoogle Scholar
• Karlsson KK, Harris JR, Svartengren M. Description and primary results from an audiometric study of male twins. Ear Hear 1997; 18: 114–20
   PubMed Web of Science ®Google Scholar
• Gates GA, Couropmitree NN, Myers RH. Genetic associations in age-related hearing thresholds. Arch Otolaryngol. 1999; 125: 654–9
   Google Scholar
• van Laer L, van Camp G. Genes in the ear: what have we learned over the last years?. Scand Audiol 2001; (Suppl 53): 44–53
   Google Scholar
• Sill AM, Stick MJ, Prenger VL, Phillips SL, Boughman JA, Arnos KS. Genetic epidemiological study of hearing loss in an adult population. Am J Med Genet. 1994; 54: 149–53
   PubMed Web of Science ®Google Scholar
• A Martini, Read, A, Stephens, D, editors. Genetics and hearing impairment. London: Whurr; 1996.
   Google Scholar
• HV Toriello, Reardon, W, Gorlin, RJ, editors. Hereditary Hearing Loss and its Syndromes. New York: Oxford University Press; 2004.
   Google Scholar
• Danermark B. A review of the psychosocial effects of hearing impairment in the working age population. The Impact of Genetic Hearing Impairment, D Stephens, L Jones. Whurr, London and Philadelphia 2005; 106–36
   Google Scholar
• Kramer SE. The psychosocial impact of hearing loss among elderly people. A review. The Impact of Genetic Hearing Impairment, D Stephens, L Jones. Whurr, London 2005; 137–64
   Google Scholar
• Stephens D, Lewis P, Davis A. The influence of a perceived family history of hearing difficulties in an epidemiological study of hearing problems. Audiological Medicine 2003; 1: 228–31
   Google Scholar
• Stephens D, Kramer SE. The impact of having a family history of hearing problems on those with hearing difficulties themselves: an exploratory study. Int J Audiol. 2005; 44: 206–12
   PubMed Web of Science ®Google Scholar
• Kramer SE, Zekveld AA, Stephens D. Effects of a family history on late onset hearing impairment: results of an open-ended questionnaire. The effects of genetic hearing impairment in the family, D Stephens, L Jones. Wiley, Chichester 2006; 71–80
   Google Scholar
• Kiessling J, Pichora-Fuller MK, Gatehouse S, Stephens D, Arlinger S, Chisolm T, et al. Candidature for and delivery of audiological services: special needs of older people. Int J Audiol. 2003; 42: 92–101
   Web of Science ®Google Scholar
• Davis A. Hearing in adults. Whurr, London 1995
   Google Scholar
• Norman GR, Streiner DL. Biostatistics: the bare essentials. Mosby, St. Louis, MO 1994
   Google Scholar
• Buchanan T, Ali T, Heffernan TM, Ling J, Parrott AC, Rodgers J, Scholey AB. Non-equivalence of on-line paper-and-pencil psychological tests: the case of the prospective memory questionnaire. Behav Res Methods 2005; 37: 148–54
   PubMed Web of Science ®Google Scholar
• Buchanan T. Internet-based questionnaire assessment: appropriate use in clinical contexts. Cogn Behav Ther. 2003; 32: 100–9
   PubMed Web of Science ®Google Scholar
• Ritter P, Lorig K, Laurent D, Matthews K. Internet versus mailed questionnaires: a randomized comparison. J Med Internet Res. 2004; 6: 31
   Google Scholar
• Stephens D, Kramer S, Espeso A. Factors in the effects of a family history on late onset hearing impairment. The effects of genetic hearing impairment in the family, D Stephens, L Jones. Wiley, Chichester 2006; 81–93
   Google Scholar
• Hyde M. Reasonable psychometric standards for self-report outcome measures in audiological rehabilitation. Ear Hear 2000; 21: S24–36
   PubMed Web of Science ®Google Scholar
• Coulson S. The impact that a family history of late onset hearing impairment has on those with the condition themselves. The effects of genetic hearing impairment in the family, D Stephens, L Jones. Wiley, Chichester 2006; 95–116
   Google Scholar
• Espeso A, Stephens D. Influence of a family history of hearing impairment on participation restriction, activity limitation, anxiety and depression. The effects of genetic hearing impairment in the family, D Stephens, L Jones. Wiley, Chichester 2006; 117–25
   Google Scholar
• Jang Y, Mortimer JA, Haley WE, Chisolm TE, Graves AB. Non-auditory determinants of self-perceived hearing problems among older adults: the role of stressful life conditions, neuroticism and social resources. J Gerontol Med Sciences 2002; 57A: 466–9
   Google Scholar
• Demorest ME, Erdman SA. Development of the Communication Profile for the Hearing Impaired. J Speech Hearing Disorders 1987; 52: 129–43
   PubMedGoogle Scholar
• Demorest ME, Erdman SA. Factor structure of the communication profile for the hearing impaired. J Speech Hearing Disorders 1989; 54: 541–9
   PubMedGoogle Scholar
• Erdman SA, Demorest ME. Adjustment to hearing impairment. I: description of a heterogeneous clinical population. J Speech Language Hear Res. 1998; 41: 107–22
   PubMed Web of Science ®Google Scholar
• Erdman SA, Demorest ME. Adjustment to hearing impairment. II: audiological and demographic correlates. J Speech Language Hear Res. 1998; 41: 123–36
   PubMed Web of Science ®Google Scholar