3,428
Views
12
CrossRef citations to date
0
Altmetric
Empirical Studies

Cancer, a relational disease

Exploring the needs of relatives to cancer patients

ORCID Icon, ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Article: 1622354 | Accepted 16 May 2019, Published online: 23 May 2019

References

  • Andreassen, S., Randers, I., Nyhlin, K. T., & Mattiasson, A. (2007). A meta-analysis of qualitative studies on living with oesophageal and clinically similar forms of cancer, seen from the perspective of patients and family members. International Journal of Qualitative Studies on Health and Well-Being, 2, 114–9.
  • Antonovsky, A. (1996). The salutogenic model as a theory to guide health promotion. Health Promotion International, 11(1), 11–18.
  • Auyero, J. (2011). Patients of the state: An ethnographic account of poor people’s waiting. Latin American Research Review, 46(1), 5–29. Retrieved from http://lasa-4.univ.pitt.edu/LARR/prot/fulltext/Vol46no1/Auyero_5-29_46-1.pdf
  • Bandura, A. (1997). Insights. Self-efficacy. Harvard Mental Health Letter, 13(9), 4–6.
  • Benzein, E., Norberg, A., & Saveman, B.-I. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15(2), 117–126.
  • Boscherini, G. (2017). A sense of coherence: Supporting the healing process. Architectual Design, 87(2), 108–113.
  • Braun, M., Mikulincer, M., Rydall, A., Walsh, A., & Rodin, G. (2007). Hidden morbidity in cancer: Spouse caregivers. Journal of Clinical Oncology, 25(30), 4829–4834.
  • Cummings, R. (1922). The girl in the golden atom. University of Nebraska press. Retrieved from http://www.gutenberg.org/ebooks/21094
  • Evergeti, V. (2011). Discrimination and reaction: The practical constitution of social exclusion. Symbolic Interaction, 34(3), 377–397.
  • Fivush, R., & Merrill, N. (2014). The personal past as historically, culturally and socially constructed. Applied Cognitive Psychology, 28(3), 301–303.
  • Gillham, B. (2008). Forskningsintervjun: Tekniker och genomförande. Lund: Studentlitteratur.
  • Glaser, B. (1978). Theoretical sensitivity. Mill Valley, CA: Sociology Press.
  • Glaser, B. (1998). Doing grounded theory: Issues and discussions. Mill Valley, CA: Sociology Press.
  • Goren, A., Gilloteau, I., Lees, M., & DiBonaventura, M. (2014). Quantifying the burden of informal caregiving for patients with cancer in Europe. Support Care Cancer, 22, 1637.
  • Gunnarsson, M. (2016). Please be patient : A cultural phenomenological study of haemodialysis and kidney transplantation care (PhD dissertation). Lund University. Retrieved from http://urn.kb.se/resolve?urn=urn:nbn:se:sh:diva-28914
  • Jonasson, J. M., Hauksdóttirad, A., Nemesc, S., Surkan, P. J., Valdimarsdóttir, U., Onelöv, E., & Steineck, G. (2011). Couples’ communication before the wife’s death to cancer and the widower’s feelings of guilt or regret after the loss – A population-based investigation. European Journal of Cancer, 47(10, July 2011), 1564–1570.
  • Jussila, A.-L. (2008). Stabilising of life: A substantive theory. Grounded Theory Review, 7(1), 29–42. Retrieved from http://groundedtheoryreview.com/wp-content/uploads/2012/06/vol7no1-final-2.pdf
  • Lasane, T. P., & O'Donnell, D. A. (2005). Time Orientation Measurement: A Conceptual Approach. In A. Strathman & J. Joireman (Eds.), Understanding behavior in the context of time: Theory, research, and application (pp. 11–30). Mahwah, NJ: Lawrence Erlbaum Associates Publishers.
  • Lehto, U.-S., Aromaa, A., & Tammela, T. L. (2018). Experiences and psychological distress of spouses of prostate cancer patients at time of diagnosis and primary treatment. European Journal of Cancer Care, 27, e12729.
  • Leonidou, C., & Giannousib, Z. (2018). Experiences of caregivers of patients with metastatic cancer: What can we learn from them to better support them? European Journal of Oncology Nursing, 32(February 2018), 25–32.
  • Levine, R. V. (1996). Cultural differences in the pace of life. In H. Helfrich (Ed.), Time and mind (pp. 119–140). Seattle: Hogrefe & Huber Publishers.
  • Li, Q., & Loke, A. Y. (2013). A spectrum of hidden morbidities among spousal caregivers for patients with cancer, and differences between the genders: A review of the literature. European Journal of Oncology Nursing, 17(5), 578–587.
  • Macduff, I. (2006). Your pace or mine? Culture, time, and negotiation. Negotiation Journal, 22(1), 31–45.
  • Malterud, K., & Hollnagel, H. (2004). Positive self-assessed general health in patients with medical problems. A qualitative study from general practice. Scandinavian Journal of Primary Health Care, 22(1), 11–15.
  • Mishra, S. I., Brakey, H. R., Kano, M., Nedjat-Haiem, F. R., & Sussmanbc, A. L. (2018). Health related quality of life during cancer treatment: Perspectives of young adult (23–39 years) cancer survivors and primary informal caregivers. European Journal of Oncology Nursing, 32(February 2018), 48–54.
  • Nordenfelt, L. (2005). Om kronisk sjukdom och livskvalitet. In B. Richt & G. Tegern (Eds.), Sjukdomsvärldar. Om människors erfarenheter av kroppslig ohälsa (pp. 305–322). Lund: Studentlitteratur.
  • Post, S. G. (2005). Altruism, happiness, and health: It’s good to be good. International Journal of Behavioral Medicine, 12(2), 66–77.
  • Rämgård, M. (2006). The power of place. Existential crises and place security in the context of pregnancy (Doctoral thesis). Lund University, Department of Social and Economic Geography, Lund. Retrieved from http://lup.lub.lu.se/record/25595
  • Rittel, H., & Webber, M. (1973). Dilemmas in a general theory of planning. Policy Sciences, 4(2), 155–169.
  • Sand, L., Olsson, M., & Strang, P. (2009). Coping strategies in the presence of one’s own impending death from cancer. Journal of Pain and Symptom Management, 37(1), 13–22.
  • Sandén, U. (2006). … och jag vill leva. Stockholm: Prisma förlag.
  • Sandén, U. (2014). Nuets förnöjsamhet - en Grundad Teori med utgångspunkt i Nordnorskt vardagsliv. Lund, MA: Lund University, School of Social Work.
  • Sandén, U. (2016). Navigating unknown cancerwater-loved ones (Report). Lund: Lund University, Department of Design Sciences.
  • Sandén, U. (2017). Momentary contentment. Exploring needs and possibilities in a psychosocial cancer context (Licentiate thesis). Lund University, Department of Design Sciences. Retrieved from http://www.design.lth.se/fileadmin/designvetenskaper/ProaktivCancer/Momentary_Contentment_-_Ulrika_Sanden_-_Licenciate_thesis.pdf
  • Sandén, U., Harrysson, L., Thulesius, H., & Nilsson, F. (2017). Exploring health navigating design: Momentary contentment in a cancer context. International Journal of Qualitative Studies on Health and Well-Being, 12(sup2), 1374809.
  • Sandén, U., Thulesius, H., & Harrysson, L. (2015). Nuets förnöjsamhet - en Grundad Teori om livsval och överlevnadsstrategier. Sociologisk Forskning, 52(3), 235–256.
  • Sethi, B., Williams, A., Zhu, H., Shen, E., & Ireson, R. (2017). “Father is the sky. Mother is the earth:” The influence of filial piety in the caregiving experiences of mandarinspeaking Chinese caregiver-employees in Southern Ontario, Canada. Diversity and Equality in Health and Care, 14(2), 53–62.
  • Siegel, R. L., Miller, K. D., & Jemal, A. (2019). Cancer statistics, 2019. CA: a Cancer Journal for Clinicians, 69(1), 7–34.
  • Sjövall, K. (2011). Living with cancer: Impact on cancer patient and partner (Doctoral thesis). Lund University, Faculty of Medicine Doctoral Dissertation Series 2011:25.
  • Sjövall, K., Attner, B., Lithman, T., Noreen, D., Gunnars, B., Thomé, B., & Olsson, H. (2009). Influence on the health of the partner affected by tumor disease in the wife or husband based on a population-based register study of cancer in Sweden. Journal of Clinical Oncology, 27(28), 4781–4786.
  • Tamasese, K., Peteru, C., Waldegrave, C., & Bush, A. (2005). Ole Taeao Afua, the new morning: A qualitative investigation into Samoan perspectives on mental health and culturally appropriate services. Australian and New Zealand Journal of Psychiatry, 39, 300–309.
  • Thakur, R., Hsu, S., & Fontenot, G. (2012). Innovation in healthcare: Issues and future trends. Journal of Business Research, 65(4), 562–569.
  • Thulesius, H., Håkansson, A., & Petersson, K. (2003). Balancing: A basic process in end-of-life cancer care. Qualitative Health Research, 13(10), 1353–1377.
  • Waller, B. (2002). The psychological structure of patient autonomy. Cambridge Quarterly of Healthcare Ethics: CQ: the International Journal for Healthcare Ethics Committees, 11, 257–265.
  • Wallhagen, M. I., & Brod, M. (1997). Perceived control and well-being in Parkinson’s disease. Western Journal of Nursing Research, 19(1, February), 11–25; discussion 25–31.
  • Ware, N. C. (1992). Suffering and the social construction of illness: The delegitimation of illness experiencein chronic fatigue syndrome. Medical Anthropology Quarterly, New Series, 6(4), 347–361.
  • Wheeler, J. A. (1990). Information, physics, quantum: The search for links. In W. H. Zurek (Ed.), Complexity, entropy and the physics of information (pp. 3–28). Santa Fe Institute. Studies in the Sciences of Complexity. New York: CRC Press.