Experience of stress in parents of children with ADHD: A qualitative study

References

• Abidin, R. (1995). Parenting stress index professional manual (Vol. 3). USA: Psychological Assessment Resources Inc.
   Google Scholar
• Ahmed, R., Borst, J. M., Yong, C. W., & Aslani, P. (2014). Do parents of children with attention-deficit/hyperactivity disorder (ADHD) receive adequate information about the disorder and its treatments? A qualitative investigation. Patient Preference and Adherence, 8, 661.
   PubMedGoogle Scholar
• Angold, A., Costello, E. J., & Erkanli, A. (1999). Comorbidity. Journal of Child Psychology and Psychiatry, 40(1), 57–12.
   PubMed Web of Science ®Google Scholar
• American Psychiatric Association.. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). Washington, DC: Author.
   Google Scholar
• Barroso, N. E., Hungerford, G. M., Garcia, D., Graziano, P. A., & Bagner, D. M. (2016). Psychometric properties of the Parenting Stress Index-Short Form (PSI-SF) in a high-risk sample of mothers and their infants. Psychological Assessment, 28(10), 1331.
   PubMed Web of Science ®Google Scholar
• Biederman, J., Monuteaux, M. C., Mick, E., Spencer, T., Wilens, T. E., Silva, J. M., … Faraone, S. V. (2006). Young adult outcome of attention deficit hyperactivity disorder: A controlled 10-year follow-up study. Psychological Medicine, 36(2), 167–179.
   PubMed Web of Science ®Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.
   Google Scholar
• Braun, V., & Clarke, V. (2014). What can “thematic analysis” offer health and wellbeing researchers? International Journal of Qualitative Studies on Health and Well-being, 9(1), 26152.
   PubMed Web of Science ®Google Scholar
• Brinkman, W. B., Sherman, S. N., Zmitrovich, A. R., Visscher, M. O., Crosby, L. E., Phelan, K. J., & Donovan, E. F. (2009). Parental angst making and revisiting decisions about treatment of attention-deficit/hyperactivity disorder. Pediatrics, 124(2), 580–589.
   PubMed Web of Science ®Google Scholar
• Canadian ADHD Resource Alliance. (2018). Canadian ADHD practice guidelines (4th ed.). Toronto, ON: CADDRA.
   Google Scholar
• Clarke, L., Ungerer, J., Chahoud, K., Johnson, S., & Stiefel, I. (2002). Attention deficit hyperactivity disorder is associated with attachment insecurity. Clinical Child Psychology and Psychiatry, 7(2), 179–198.
   Google Scholar
• Davis, C. C., Claudius, M., Palinkas, L. A., Wong, J. B., & Leslie, L. K. (2012). Putting families in the center: Family perspectives on decision making and ADHD and implications for ADHD care. Journal of Attention Disorders, 16(8), 675–684.
   PubMed Web of Science ®Google Scholar
• Deater‐Deckard, K. (1998). Parenting stress and child adjustment: Some old hypotheses and new questions. Clinical Psychology: Science and Practice, 5(3), 314–332.
   Web of Science ®Google Scholar
• Deater‐Deckard, K. (2004). Parenting stress. New Haven: Yale University Press.
   Google Scholar
• Firmin, M. W., & Phillips, A. (2009). A qualitative study of families and children possessing diagnoses of ADHD. Journal of Family Issues, 30(9), 1155–1174.
   Web of Science ®Google Scholar
• Frigerio, A., & Montali, L. (2016). An ethnographic-discursive approach to parental self-help groups: The case of ADHD. Qualitative Health Research, 26(7), 935–950.
   PubMed Web of Science ®Google Scholar
• Gerdes, A. C., Haack, L. M., & Schneider, B. W. (2012). Parental functioning in families of children with ADHD: Evidence for behavioral parent training and importance of clinically meaningful change. Journal of Attention Disorders, 16(2), 147–156.
   PubMed Web of Science ®Google Scholar
• Ghosh, M., Fisher, C., Preen, D. B., & Holman, C. A. J. (2016). “It has to be fixed”: A qualitative inquiry into perceived ADHD behaviour among affected individuals and parents in Western Australia. BMC Health Services Research, 16(1), 141.
   PubMedGoogle Scholar
• Grudens-Schuck, N., Allen, B. L., & Larson, K. (2004). Methodology brief: Focus group fundamentals. Extension Community and Economic Development Publication 12. Iowa State University.
   Google Scholar
• Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19(4), 417–425.
   Web of Science ®Google Scholar
• Heath, C. L., Curtis, D. F., Fan, W., & McPherson, R. (2015). The association between parenting stress, parenting self-efficacy, and the clinical significance of child ADHD symptom change following behavior therapy. Child Psychiatry & Human Development, 46(1), 118–129.
   PubMed Web of Science ®Google Scholar
• Jensen, P. S., Hinshaw, S. P., Kraemer, H. C., Lenora, N., Newcorn, J. H., Abikoff, H. B., … Conners, C. K. (2001). ADHD comorbidity findings from the MTA study: Comparing comorbid subgroups. Journal of the American Academy of Child & Adolescent Psychiatry, 40(2), 147–158.
   PubMed Web of Science ®Google Scholar
• Johnston, C., & Mash, E. J. (2001). Families of children with attention-deficit/hyperactivity disorder: Review and recommendations for future research. Clinical Child and Family Psychology Review, 4(3), 183–207.
   PubMed Web of Science ®Google Scholar
• Karvounides, D., Simpson, P., Davies, W., Khan, K., Weisman, S., & Hainsworth, K. (2016). Three studies supporting the initial validation of the stress numerical rating scale-11 (Stress NRS-11): A single item measure of momentary stress for adolescents and adults. Pediatric Dimensions, 1, 105–109.
   Google Scholar
• Kazdin, A. E. (1995). Child, parent and family dysfunction as predictors of outcome in cognitive-behavioral treatment of antisocial children. Behaviour Research and Therapy, 33(3), 271–281.
   PubMed Web of Science ®Google Scholar
• Keen, D., Couzens, D., Muspratt, S., & Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4(2), 229–241.
   Web of Science ®Google Scholar
• Laugesen, B., & Groenkjaer, M. (2015). Parenting experiences of living with a child with attention deficit hyperactivity disorder: A systematic review of qualitative evidence. JBI Database of Systematic Reviews and Implementation Reports, 13(11), 169–234.
   PubMedGoogle Scholar
• LeBlanc, N., & Morin, D. (2004). Depressive symptoms and associated factors in children with attention deficit hyperactivity disorder. Journal of Child and Adolescent Psychiatric Nursing, 17(2), 49–55.
   PubMedGoogle Scholar
• McIntyre, R., & Hennessy, E. (2012). ‘He’s just enthusiastic. Is that such a bad thing?’ Experiences of parents of children with attention deficit hyperactivity disorder. Emotional and Behavioural Difficulties, 17(1), 65–82.
   Google Scholar
• Miranda, A., Tárraga, R., Fernández, M. I., Colomer, C., & Pastor, G. (2015). Parenting stress in families of children with autism spectrum disorder and ADHD. Exceptional Children, 82(1), 81–95.
   Web of Science ®Google Scholar
• Modesto-Lowe, V., Danforth, J. S., & Brooks, D. (2008). ADHD: Does parenting style matter? Clinical Pediatrics, 47(9), 865–872.
   PubMed Web of Science ®Google Scholar
• Moen, Ø. L., Hall-Lord, M. L., & Hedelin, B. (2014). Living in a family with a child with attention deficit hyperactivity disorder: A phenomenographic study. Journal of Clinical Nursing, 23(21–22), 3166–3176.
   PubMed Web of Science ®Google Scholar
• Mofokeng, M., van der Wath AE. (2017). Challenges experienced by parents living with a child with attention deficit hyperactivity disorder. Journal of Child & Adolescent Mental Health, 29(2), 137–145.
   PubMed Web of Science ®Google Scholar
• National Health and Medical Research Council. (2012). Clinical practice points on the diagnosis, assessment and management of attention deficit hyperactivity disorder in children and adolescents. Australian Government, National Health and Medical Research Council.
   Google Scholar
• NICE guideline [NG87] Attention deficit hyperactivity disorder: diagnosis and management. Retrieved from https://www.nice.org.uk/guidance/conditions-and-diseases/mental-health-and-behavioural-conditions/attention-deficit-disorder
   Google Scholar
• NVivo10 [Computer software]. (2012). Retrieved from https://www.qsrinternational.com/nvivo/home
   Google Scholar
• Moen ØL, Hall-Lord, M. L., & Hedelin, B. (2011). Contending and adapting every day: Norwegian parents’ lived experience of having a child with ADHD. Journal of Family Nursing, 17(4), 441–462.
   PubMed Web of Science ®Google Scholar
• Parand, A., Afrooz, G., Mansoor, M., Yekta, M. S., Besharat, M., & Khooshabi, K. (2010). Developing stress management program for mothers of children with ADHD and its effectiveness on their mental health. Procedia-Social and Behavioral Sciences, 5, 1135–1139.
   Google Scholar
• Polanczyk, G. V., Salum, G. A., Sugaya, L. S., Caye, A., & Rohde, L. A. (2015). Annual research review: A meta‐analysis of the worldwide prevalence of mental disorders in children and adolescents. Journal of Child Psychology and Psychiatry, 56(3), 345–365.
   PubMed Web of Science ®Google Scholar
• Rogers, M. A., Wiener, J., Marton, I., & Tannock, R. (2009a). Parental involvement in children’s learning: Comparing parents of children with and without attention-deficit/hyperactivity disorder (ADHD). Journal of School Psychology, 47(3), 167–185.
   PubMed Web of Science ®Google Scholar
• Rogers, M. A., Wiener, J., Marton, I., & Tannock, R. (2009b). Supportive and controlling parental involvement as predictors of children’s academic achievement: Relations to children’s ADHD symptoms and parenting stress. School Mental Health, 1(2), 89–102.
   Google Scholar
• The Royal Australian and New Zealand College of Psychiatrists: Adult attention deficit hyperactivity disorder (ADHD) practice guidelines. Retrieved from https://www.ranzcp.org/publications/guidelines-and-resources-for-practice/adult-adhd-practice-guidelines
   Google Scholar
• Samadi, S. A., McConkey, R., & Kelly, G. (2013). Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder. Autism, 17(1), 27–43.
   PubMed Web of Science ®Google Scholar
• Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., … Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893–1907.
   PubMed Web of Science ®Google Scholar
• Sciberras, E., Bisset, M., Hazell, P., Nicholson, J., Anderson, V., Lycett, K., … Efron, D. (2016). Health‐related impairments in young children with ADHD: A community‐based study. Child: Care, Health and Development, 42(5), 709–717.
   PubMed Web of Science ®Google Scholar
• Sharif, F., Zarei, S., Shooshtari, A. A., & Vossoughi, M. (2015). The effect of stress management program using cognitive behavior approach on mental health of the mothers of the children with attention deficit hyperactivity disorder. Iranian Journal of Pediatrics, 25(3), e474.
   Web of Science ®Google Scholar
• Singh, I. (2003). Boys will be boys: Fathers’ perspectives on ADHD symptoms, diagnosis, and drug treatment. Harvard Review of Psychiatry, 11(6), 308–316.
   PubMed Web of Science ®Google Scholar
• Theule, J., Wiener, J., Tannock, R., & Jenkins, J. M. (2013). Parenting stress in families of children with ADHD: A meta-analysis. Journal of Emotional and Behavioral Disorders, 21(1), 3–17.
   Web of Science ®Google Scholar
• Timimi, S. (2017). Non-diagnostic based approaches to helping children who could be labelled ADHD and their families. International Journal of Qualitative Studies on Health and Well-being, 12(sup1), 1298270.
   PubMed Web of Science ®Google Scholar
• Tonge, B., Brereton, A., Kiomall, M., Mackinnon, A., King, N., & Rinehart, N. (2006). Effects on parental mental health of an education and skills training program for parents of young children with autism: A randomized controlled trial. Journal of the American Academy of Child & Adolescent Psychiatry, 45(5), 561–569.
   PubMed Web of Science ®Google Scholar
• Treacy, L., Tripp, G., & Baird, A. (2005). Parent stress management training for attention-deficit/hyperactivity disorder. Behavior Therapy, 36(3), 223–233.
   Web of Science ®Google Scholar
• Willig, C. (1999). Beyond appearances: A critical realist approach to social constructionism. In D. J. Nightingale & J. Cromby (Eds.), Social Constructionist Psychology: A Critical Analysis of Theory and Practice, 37–51. Buckingham, UK: Open University Press.
   Google Scholar
• Wirth, A., Reinelt, T., Gawrilow, C., Schwenck, C., Freitag, C. M., & Rauch, W. A. (2017). Examining the relationship between children’s ADHD symptomatology and inadequate parenting: The role of household chaos. Journal of Attention Disorders, 23(5), 451–462.
   PubMed Web of Science ®Google Scholar