References
- Ahmed, S., Atkin, K., Hewison, J., & Green, J. (2006). The influence of faith and religion and the role of religious and community leaders in prenatal decisions for sickle cell disorders and thalassaemia major. Prenatal Diagnosis, 26(9), 801–10. https://doi.org/10.1002/pd.1507
- Allen, K. A. (2014). Parental decision-making for medically complex infants and children: An integrated literature review. International Journal of Nursing Studies, 51(9), 1289–1304. https://doi.org/10.1016/j.ijnurstu.2014.02.003
- Bally, J. M., Duggleby, W., Holtslander, L., Mpofu, C., Spurr, S., Thomas, R., & Wright, K. (2014). Keeping hope possible: A grounded theory study of the hope experience of parental caregivers who have children in treatment for cancer. Cancer Nursing, 37(5), 363–372. https://doi.org/10.1097/NCC.0b013e3182a453aa
- Boss, R. D., Hutton, N., Sulpar, L. J., West, A. M., & Donohue, P. K. (2008). Values parents apply to decision-making regarding delivery room resuscitation for high-risk newborns. Pediatrics, 122(3), 583–589. https://doi.org/10.1542/peds.2007-1972
- Bülow, H., Sprung, C. L., Baras, M., Carmel, S., Svantesson, M., Benbenishty, J., Maia, P. A., Beishuizen, A., Cohen, S., & Nalos, D. (2012). Are religion and religiosity important to end-of-life decisions and patient autonomy in the ICU? The Ethicatt study. Intensive Care Medicine, 38(7), 1126–1133. https://doi.org/10.1007/s00134-012-2554-8
- Chaplin, J., Schweitzer, R., & Perkoulidis, S. (2005). Experiences of prenatal diagnosis of spina bifida or hydrocephalus in parents who decide to continue with their pregnancy. Journal of Genetic Counseling, 14(2), 151–162. https://doi.org/10.1007/s10897-005-0488-9
- Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In R. Valle & M. King (Eds.), Existential-phenomenological alternatives for psychology (pp. 48–71). Oxford University Press.
- Cutcliffe, J. R., & Herth, K. A. (2002). The concept of hope in nursing 5: Hope and critical care nursing. British Journal of Nursing, 11(18), 1190–1195. https://doi.org/10.12968/bjon.2002.11.18.10578
- Fitzgerald Miller, J. (2007). Hope: A construct central to nursing. Nursing Forum, 42(1), 12–19. https://doi.org/10.1111/j.1744-6198.2007.00061.x
- Fu, Y. C. (2018). 2017 Taiwan Social Change Survey (Round 7, Year 3): Social Stratification(Restricted Access Data) (No. R090058). Taiwan: Institute of Sociology, Academia Sinica. Available from Survey Research Data Archive, Academia Sinica. https://doi.org/10.6141/TW-SRDA-R090058-2
- Hexem, K. R., Mollen, C. J., Carroll, K., Lanctot, D. A., & Feudtner, C. (2011). How parents of children receiving pediatric palliative care use religion, spirituality, or life philosophy in tough times. Journal of Palliative Medicine, 14(1), 39–44. https://doi.org/10.1089/jpm.2010.0256
- Ko, E., Cho, S., & Bonilla, M. (2012). Attitudes toward life-sustaining treatment: The role of race/ethnicity. Geriatric Nursing, 33(5), 341–349. https://doi.org/10.1016/j.gerinurse.2012.01.009
- Koenig, H. G. (2002). The connection between psychoneuroimmunology and religion. In H. G. Koenig & H. J. Cohen (Eds.), The link between religion and health: Psychoneuroimmunology and the faith factor (pp. 11–30). Oxford University Press.
- Koenig, H. G. (2009). Research on religion, spirituality, and mental health: A review. Canadian Journal of Psychiatry, 54(5), 283–291. https://doi.org/10.1177/070674370905400502
- Kylmä, J., & Juvakka, T. (2007). Hope in parents of adolescents with cancer— Factors endangering and engendering parental hope. European Journal of Oncology Nursing, 11(3), 262–271. https://doi.org/10.1016/j.ejon.2006.06.007
- Liu, S. M., Lin, H. R., Lu, F. L., & Lee, T. Y. (2014). Taiwanese parents’ experience of making a “do not resuscitate” decision for their child in pediatric intensive care unit. Asian Nursing Research, 8(1), 29–35. https://doi.org/10.1016/j.anr.2013.12.002
- Madrigal, V. N., Carroll, K. W., Faerber, J. A., Walter, J. K., Morrison, W. E., & Freudtner, C. (2016). Parental sources of support and guidance when making difficult decisions in the pediatric intensive care unit. The Journal of Pediatrics, 169, 221–226.e4. https://doi.org/10.1016/j.jpeds.2015.10.061
- Meyer, E. C., Burns, J. P., Griffith, J. L., & Truog, R. D. (2002). Parental perspectives on end-of-life care in the pediatric intensive care unit. Critical Care Medicine, 30(1), 226–231. https://doi.org/10.1097/00003246-200201000-00032
- Michelson, K. N., Koogler, T., Sullivan, C., Ortega, M., Hall, E., & Frader, J. (2009). Parental views on withdrawing life sustaining therapies in critically ill children. Archives of Pediatrics and Adolescent Medicine, 163(11), 986–992. https://doi.org/10.1001/archpediatrics.2009.180
- Ministry of the Interior (2019). General conditions of religions [Data file]. Taiwan: Ministry of the Interior. https://www.moi.gov.tw/files/site_stuff/321/2/year/y01-03.ods
- Nicholas, D. B., Beaune, L., Barrera, M., Blumberg, J., & Belletrutti, M. (2016). Examining the experiences of fathers of children with life-limiting illness. Journal of Social Work in End-of-life and Palliative Care, 12(1–2), 126–144. https://doi.org/10.1080/15524256.2016.1156601
- Nita, M. (2019). ‘Spirituality’ in health studies: Competing spiritualities and the elevated status of mindfulness. Journal of Religion and Health, 58(5), 1–14. https://doi.org/10.1007/s10943-019-00773-2
- Phelps, A. C., Maciejewski, P. K., Nilsson, M., Balboni, T. A., Wright, A. A., Paulk, M., & Prigerson, H. G. (2009). Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer. Journal of the American Medical Association, 301(11), 1140–1147. https://doi.org/10.1001/jama.2009.341
- Phua, J., Joynt, G. M., Nishimura, M., Deng, Y., Myatra, S. N., Chan, Y. H., Binh, N. G., Tan, C. C., Faruq, M. O., Arabi, Y. M., Wahjuprajitno, B., Liu, S.-F., Hashemian, S. M. R., Kashif, W., Staworn, D., Palo, J. E., & Koh, Y., & ACME Study Investigators and the Asian Critical Care Clinical Trials Group. (2015). Withholding and withdrawal of life-sustaining treatments in intensive care units in Asia. Journal of the American Medical Association Internal Medicine, 175(3), 363–371. doi: 10.1001/jamainternmed.2014.7386
- Richards, C. A., Starks, H., O’Connor, M. R., & Doorenbos, A. Z. (2017). Elements of family-centered care in the pediatric intensive care unit: An integrative review. Journal of Hospice and Palliative Nursing, 19(3), 238–246. https://doi.org/10.1097/NJH.0000000000000335
- Robinson, M. R., Thiel, M. M., Backus, M. M., & Meyer, E. C. (2006). Matters of spirituality at the end of life in the pediatric intensive care unit. Pediatrics, 118(3), e719–e729. https://doi.org/10.1542/peds.2005-2298
- Royal College of Paediatrics and Child Health. (2004). Withholding or withdrawing life saving medical treatment in children: A framework for practice (2nd ed.).
- Salmon, P., Hill, J., Ward, J., Gravenhorst, K., Eden, T., & Young, B. (2012). Faith and protection: The construction of hope by parents of children with leukemia and their oncologists. Oncologist, 17(3), 398–404. https://doi.org/10.1634/theoncologist.2011-0308
- Seeman, T. E., Dubin, L. F., & Seeman, M. (2003). Religiosity/spirituality and health: A critical review of the evidence for biological pathways. American Psychologist, 58(1), 53–63. https://doi.org/10.1037/0003-066X.58.1.53
- Shudy, M., de Almeida, M. L., Ly, S., Landon, C., Groft, S., Jenkins, T. L., & Nicholson, C. E. (2006). Impact of pediatric critical illness and injury on families: A systematic literature review. Pediatrics, 118 (Supplement 3), S203–S218. https://doi.org/10.1542/peds.2006-0951B
- Stevenson, M., Achille, M., & Lugasi, T. (2013). Pediatric palliative care in Canada and the USA: A qualitative metasummary of the needs of patients and families. Journal of Palliative Medicine, 16(5), 566–577. https://doi.org/10.1089/jpm.2011.0076
- Superdock, A. K., Barfield, R. C., Brandon, D. H., & Docherty, S. L. (2018). Exploring the vagueness of religion & spirituality in complex pediatric decision-making: A qualitative study. BMC Palliative Care, 17(107), 1–14. https://doi.org/10.1186/s12904-018-0360-y
- Weaver, M. S., Heinze, K. E., Bell, C. J., Wiener, L., Garee, A. M., Kelly, K. P., Casey, R. L., Watson, A., & Hinds, P. S., & Pediatric Palliative Care Special Interest Group at Children’s National Health System. (2016). Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: An integrative review. Palliative Medicine, 30(3), 212–223. doi: 10.1177/0269216315583446
- Xafis, V., Wilkinson, D., & Sullivan, J. (2015). What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback. BMC Palliative Care, 14(1), 19. https://doi.org/10.1186/s12904-015-0024-0
- Yang, Q., & Miller, G. (2015). East–west differences in perception of brain death: Review of history, current understandings, and directions for future research. Journal of Bioethical Inquiry, 12(2), 211–225. https://doi.org/10.1007/s11673-014-9564-x
- Yun, Y. H., Han, K. H., Park, S., Park, B. W., Cho, C. H., Kim, S., Lee, D. H., Lee, S. N., Lee, E. S., Kang, J. H., Kim, S.-Y., Lee, J. L., Heo, D. S., Lee, C. G., Lim, Y. K., Kim, S. Y., Choi, J. S., Jeong, H. S., & Chun, M. (2011). Attitudes of cancer patients, family caregivers, oncologists and members of the general public toward critical interventions at the end of life of terminally ill patients. Canadian Medical Association Journal, 183(10), E673–E679. https://doi.org/10.1503/cmaj.110020