Finding ways to carry on: stories of vulnerability in chronic illness

References

• Bengtsson, J. (2006). En livsverdenstilnærming for helsevitenskapelig forskning [A lifeworld approach for health science research]. In J. Bengtsson (Ed.), Å forske i sykdoms og pleieerfaringer: Livsverdensfenomenologiske bidrag [Investigating illness and care experiences: The contribution of lifeworld phenomenology] (pp. 13–12). Kristiansand, Norway: Høyskoleforlaget.
   Google Scholar
• Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182. https://doi.org/10.1111/1467-9566.ep11339939
   PubMedGoogle Scholar
• Bury, M. (2001). Illness narratives: Fact or fiction? Sociology of Health & Illness, 23(3), 263–285. https://doi.org/10.1111/1467-9566.00252
   Web of Science ®Google Scholar
• Carel, H. (2008). Illness: The cry of the flesh. ACUMEN.
   Google Scholar
• Carel, H. (2009). A reply to “Towards an understanding of nursing as a response to human vulnerability” by Derek Sellmann: Vulnerability and illness. Nursing Philosophy, 10(3), 214–219. https://doi.org/10.1111/j.1466-769X.2009.00401.x
   PubMed Web of Science ®Google Scholar
• Ferguson, P., & Walker, H. (2014). Getting on with life: Resilience and normalcy in adolescents living with chronic illness. International Journal of Inclusive Education, 18(3), 227–240. https://doi.org/10.1080/13603116.2012.676082
   Web of Science ®Google Scholar
• Fossheim, H., Hølen, J., & Ingierd, H. (Eds.). (2013). Barn i forskning: Etiske dimensjoner [Children in research: Ethical dimensions]. De nasjonale forskningsetiske komiteene [The National Research Ethics Committees].
   Google Scholar
• Frank, A. W. (1997). Illness as moral occasion: Restoring agency to ill people. Health, 1(2), 131–148. https://doi.org/10.1177/136345939700100201
   Google Scholar
• Frank, A. W. (2010). Letting stories breathe: A socio-narratology. University of Chicago Press.
   Google Scholar
• Frank, A. W. (2012). Practicing dialogical narrative analysis. In J. A. Holstein & J. F. Gubrium (Eds.), Varieties of narrative analysis (pp. 33–52). Sage.
   Google Scholar
• Frank, A. W. (2013). The wounded storyteller: Body, illness, and ethics. Chicago: University of Chicago Press.
   Google Scholar
• Frank, A. W. (2015). Selves, holding their own with illness. In I. Fernandes, C. B. Martins, A. Reis & Z. Sanches (Eds.), Creative Dialogues: Narrative and Medicine (pp. 120–129). Cambridge Scholars Publishing.
   Google Scholar
• Gjengedal, E., Ekra, E. M., Hol, H., Kjelsvik, M., Lykkeslet, E., Michaelsen, R., Orøy, A., Skrondal, T., Sundal, H., Vatne, S., & Wogn-Henriksen, K. (2013). Vulnerability in health care – Reflections on encounters in every day practice. Nursing Philosophy, 14(2), 127–138. https://doi.org/10.1111/j.1466-769X.2012.00558.x
   PubMed Web of Science ®Google Scholar
• Gjengedal, E., & Hanestad, B. R. (2003). Å leve med kronisk sykdom: En varig kursendring [To live with chronic illness: A lasting change of course]. Cappelen.
   Google Scholar
• Gloria, J., & Acorn, S. (2000). Stigma of visible and invisible chronic conditions. Journal of Advanced Nursing, 32(1), 243–248. https://doi.org/10.1046/j.1365-2648.2000.01466.x
   Web of Science ®Google Scholar
• Hajat, C., & Stein, E. (2018). The global burden of multiple chronic conditions: A narrative review. Preventive Medicine Reports, 12, 284–293. https://doi.org/10.1016/j.pmedr.2018.10.008
   PubMedGoogle Scholar
• Heaton, J. (2015). Use of social comparisons in interviews about young adults’ experiences of chronic illness. Qualitative Health Research, 25(3), 336–347. https://doi.org/10.1177/10499732314553122
   PubMed Web of Science ®Google Scholar
• Heidegger, M. (1962). Being and time. Blackwell. ( Original work published 1927)
   Google Scholar
• Josselson, R. (2011). Narrative research: Constructing, deconstructing, and reconstructing story. In K. Charmaz & L. M. McMullen (Eds.), Five ways of doing qualitative analysis: Phenomenological psychology, grounded theory, discourse analysis, narrative research, and intuitive inquiry (pp. 224–242). Guilford Press.
   Google Scholar
• Kleinman, A. (1988). The illness narratives: Suffering, healing, and the human condition. Basic Books.
   Google Scholar
• Malterud, K. (n.d.) Project presentation: Vulnerability as a strength – How can disempowerment experiences be transformed into health resources? Retrieved from: http://sites.google.com/site/kirstimalterudshomepage/
   Google Scholar
• Malterud, K., & Solvang, P. (2005). Vulnerability as a strength: Why, when, and how? Scandinavian Journal of Public Health, 33(Suppl. 66), 3–6. https://doi.org/10.1080/14034950510033291
   Web of Science ®Google Scholar
• Moos, R. H., & Holahan, C. J. (2007). Adaptive tasks and methods of coping with illness and disability. In E. Martz & H. Livneh (Eds.), Coping with chronic illness and disability: Theoretical, empirical, and clinical aspects (pp. 107–126). Springer US. https://doi.org/10.1007/978-0-387-48670-3_6
   Google Scholar
• Nilsson, C., Lindberg, B., Skär, L., & Söderberg, S. (2016). Meanings of balance for people with long-term illnesses. British Journal of Community Nursing, 21(11), 563–567. https://doi.org/10.12968/bjcn.2016.21.11.563
   PubMedGoogle Scholar
• Paterson, B. (2001). The shifting perspectives model of chronic illness. Journal of Nursing Scholarship, 33(1), 21–26. https://doi.org/10.1111/j.1547-5069.2001.00021.x
   PubMed Web of Science ®Google Scholar
• Ricoeur, P. (1981). Phenomenology and hermeneutics. In J. B. Thompson (Ed.), Paul Ricoeur: Hermeneutics and the human sciences (pp. 101–128). Cambridge University Press.
   Google Scholar
• Ricoeur, P. (1991). Life in quest of narrative. In D. Wood (Ed.), On Paul Ricoeur: Narrative and interpretation (pp. 20–33). Routledge.
   Google Scholar
• Riessman, C. K. (2008). Narrative methods for the human sciences. Sage.
   Google Scholar
• Taylor, R. M., Gibson, F., & Franck, L. S. (2008). The experience of living with a chronic illness during adolescence: A critical review of literature. Journal of Clinical Nursing, 17(23), 3083–3091. https://doi.org/10.1111/j.1365-2702.2008.0269x
   PubMed Web of Science ®Google Scholar
• Telford, K., Kralik, D., & Kock, T. (2006). Acceptance and denial: Implications for people adapting to chronic illness: Literature review. Integrative Literature Reviews and Meta-Analyses, 55(4), 457–464. https://doi.org/10.1111/j.1365-2648.2006.03942.x
   Google Scholar
• Vetlesen, A. J. (2001). Profesjonell og personlig? Legerollen mellom vellykkethet og sårbarhet [Professional and personal? Doctor’s role between success and vulnerability]. Tidskrift Norsk Lægeforening, 121(9), 1118–1121. https://tidsskriftet.no/sites/default/files/pdf2001–1118-21.pdf.
   Google Scholar
• Williams, G. (1984). The genesis of chronic illness: Narrative re-construction. Sociology of Health and Illness, 6(2), 175–200. https://doi.org/10.1111/1467-9566.ep10778250
   PubMed Web of Science ®Google Scholar
• Williams, G. (2002). Chronic illness and the pursuit of virtue in everyday life. In R. Radley (Ed.), Worlds of illness: Biographical and cultural perspectives on health and disease (pp. 104–120). Routledge.
   Google Scholar
• World Health Organization. (2014). Global Status Report on Noncommunicable Diseases.
   Google Scholar
• Yach, D., Hawkes, C., Gould, C. L., & Hofman, K. J. (2004). The global burden of chronic diseases: Overcoming impediments to prevention and control. Jama, 291(21), 2616–2622. https://doi.org/10.1001/jama.291.21.2616
   PubMed Web of Science ®Google Scholar